Guest guest Posted November 7, 2005 Report Share Posted November 7, 2005 We are using Tenex ( blood pressure med ) for impulse control, those neuroleptics ( hope i spelled that right LOL ) are scary. We seem to have good control now, the only thing was CB got a little sleepy at first...now we are doing fine. CB's Granny Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 8, 2005 Report Share Posted November 8, 2005 Tenex is just like the Clonadine that we use for Karac, and I think it is great. I agree with you. I'm glad CB is doing well. karac is doing well too. Sunday after I made Karac read he told me "it is arduous". I know I use that word sometimes, but I don't remember when was the last time that I used it. It just makes me wonder what all he has in that brain! smile. Pat K Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 8, 2005 Report Share Posted November 8, 2005 LOL...arduous ! Great word ! Terrific Brain ! CB's Granny Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 9, 2005 Report Share Posted November 9, 2005 It appears that you are dealing with inexperienced doctors. I don't think it is appropriate to prescribe and anti-psychotic medication like Abilify for impulsivity. The response you got about Tenex is much more appropriate for impulse control. Bill Nason, LLP Behavior Specialist Auburn Hills, Michigan > > Hi Shari: > > My son never had any type of sleep disturbance. He was a great > sleeper! He would crash about 8:30-9:00 and I'd wake him up by 7:00 > for school. On weekends he would sleep 7:30AM to 8:00. > > The reason we are trying med's is b/c his teachers are saying his > impulsiviness is getting in the way of him learning. That he is very > intelligent, but if it is not a preferred activity, he will jump up > in the class and spin really fast (sensory?). On the playground at > times he will run away from the class b/c he decided he was going 2 > the bathroom. > > Then once my aftercare got wind of what his teacher stated,they > started complaining that he wasn't sitting in his seat on the bus > and always jumping up. (mind you he is an autistic/cluster class in > Kindergarten and his aftercare is special needs but yet I feel the > issues he's having problems with are due to the disorder. They say > this is to help him b/c he is so high functioning and he has so much > potential, but i can't help feel it's just to make their job easier) > > Nicky has always been very independent. He was dressing himself and > picking out his own clothing before age two. His speech has > progressed alot but the articulation is still poor. They say he > has " apraxic tendencies " but not apraxia. He doesn't have the > physical traits of apraxia and he can make most sounds, it's just > blending them with consanants. > > We tried Focalin which made him depressed. Now it's Ablilify. It > def. calms him. The one thing I noticed, other than his " early 2 > bed, early 2 rise " is that he is more clingy. Maybe b/c we have been > home for 2 weeks since the hurricane. He used to play nicely with > his toys, all day. He's an only child so he is used to playing > alone. He has great imaginary play. He would play with his Dora > house and other toys for hours. Now, maybe 20 minutes and he's > on my lap nagging 4 me to take him somewhere. Back to Orlando, > wanting to sleep over his Dad's house, etc. > Now is this Typical behavior for a six year old? I dunno....... It > also seems to me that his mild OCD behaviors have increased or > should I say are more magnified....closing opened doors, having to > inspect every bathroom in every store,etc. > > So the only reason we are trying meds are to help him focus. Abilify > is our second medication that we have have tried. He's been on it > for four weeks today. > > Just fishing out there for feedback from other parents that have had > similar circumstances. > Ann in WPB > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 10, 2005 Report Share Posted November 10, 2005 Hi Bill, What do you think of Abilify for help with focus and concentration? My son has been on 10 mgs of Abilify for over 2 years now for his lack of attending in class. It seems to not make much of a difference at home, but the teachers say he is much easier to handle. I've been thinking of looking for other options, but I have no idea what all these drugs are for and what their side effects are too. Thanks for your input. Raylene -- Re: medication changes It appears that you are dealing with inexperienced doctors. I don't think it is appropriate to prescribe and anti-psychotic medication like Abilify for impulsivity. The response you got about Tenex is much more appropriate for impulse control. Bill Nason, LLPBehavior SpecialistAuburn Hills, Michigan>> Hi Shari:> > My son never had any type of sleep disturbance. He was a great > sleeper! He would crash about 8:30-9:00 and I'd wake him up by 7:00 > for school. On weekends he would sleep 7:30AM to 8:00.> > The reason we are trying med's is b/c his teachers are saying his > impulsiviness is getting in the way of him learning. That he is very > intelligent, but if it is not a preferred activity, he will jump up > in the class and spin really fast (sensory?). On the playground at > times he will run away from the class b/c he decided he was going 2 > the bathroom.> > Then once my aftercare got wind of what his teacher stated,they > started complaining that he wasn't sitting in his seat on the bus > and always jumping up. (mind you he is an autistic/cluster class in > Kindergarten and his aftercare is special needs but yet I feel the > issues he's having problems with are due to the disorder. They say > this is to help him b/c he is so high functioning and he has so much > potential, but i can't help feel it's just to make their job easier)> > Nicky has always been very independent. He was dressing himself and > picking out his own clothing before age two. His speech has > progressed alot but the articulation is still poor. They say he > has "apraxic tendencies" but not apraxia. He doesn't have the > physical traits of apraxia and he can make most sounds, it's just > blending them with consanants.> > We tried Focalin which made him depressed. Now it's Ablilify. It > def. calms him. The one thing I noticed, other than his "early 2 > bed, early 2 rise" is that he is more clingy. Maybe b/c we have been > home for 2 weeks since the hurricane. He used to play nicely with > his toys, all day. He's an only child so he is used to playing > alone. He has great imaginary play. He would play with his Dora > house and other toys for hours. Now, maybe 20 minutes and he's > on my lap nagging 4 me to take him somewhere. Back to Orlando, > wanting to sleep over his Dad's house, etc. > Now is this Typical behavior for a six year old? I dunno....... It > also seems to me that his mild OCD behaviors have increased or > should I say are more magnified....closing opened doors, having to > inspect every bathroom in every store,etc.> > So the only reason we are trying meds are to help him focus. Abilify > is our second medication that we have have tried. He's been on it > for four weeks today.> > Just fishing out there for feedback from other parents that have had > similar circumstances.> Ann in WPB> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 21, 2005 Report Share Posted November 21, 2005 My son's focus was doing great on Abilify the first month. I was giving him 1/4 of the 5mg tablet. Reports from school have decreased the past week so the doc told me to gradually increase to 10mg and if he is still having hyperactivity, we will decrease to 5mg and ad Tenex for the hyperactivity. On the 5mg he is just irritable. Cries and gets frustrated so easily, I cannot increase it more than 5mg. This weekend I took it down to 1/4 again, hoping that maybe b/c of his cold, it caused him to be distracted. I don't want to make him miserable.... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 6, 2006 Report Share Posted August 6, 2006 Hi Everyone - quick update here. After 5.5 years on the same seizure medication, is being switched over to Trileptal. We made the switch yesterday and will increase the dosage during the next couple weeks. Right now, he's on half of what he will be on by later on this month. Dr. Capone wanted to see him and we went back to see him on Wednesday and he also prescribed buspar for the anxiety and OCD. We start that after we are on the full dose of trileptal. So far, 's OCD behaviors have increased - but we also drove to West Virginia yesterday and returned home today. He didn't have any typical structure in place. I'm hoping things go well with these changes - I hate this trial and error stuff - it took us a long time to find a combination that worked to some degree and here we go again............ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 7, 2006 Report Share Posted August 7, 2006 , Why does the doctor feel he needs to change his meds? Di Medication changes > Hi Everyone - quick update here. After 5.5 years on the same seizure > medication, is being switched over to Trileptal. We made the > switch > yesterday and will increase the dosage during the next couple weeks. > Right > now, he's on half of what he will be on by later on this month. Dr. > Capone > wanted to see him and we went back to see him on Wednesday and he also > prescribed buspar for the anxiety and OCD. We start that after we are on > the full dose of trileptal. So far, 's OCD behaviors have > increased - but we also drove to West Virginia yesterday and returned home > today. He didn't have any typical structure in place. > > I'm hoping things go well with these changes - I hate this trial and error > stuff - it took us a long time to find a combination that worked to some > degree and here we go again............ > > > > > > > Click reply to all for messages to go to the list. Just hit reply for > messages to go to the sender of the message. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 7, 2006 Report Share Posted August 7, 2006 had a neuro appointment 2 weeks ago. Because he's had three breakthrough seizures since March (and a gran mal one after the appointment) and he's gained alot of weight, they wanted to put him on trileptal and wean him off depakote. Trileptal and carbatrol are like cousins, so we did a quick switch there, but gradual dosing until we get to the max dose for him). They feel the depakote really isn't workign anymore (just took edge off to begin with) and that the trileptal will help with the moods, too. We wont start taking him off the depakote until October. Meanwhile, his OCD is a real problem. He has to tap the windows (and raise, lower them, pull blinds, curtains, sheers, etc.....URGH!) and a few weeks ago, he put his arm through one and got several nasty cuts (healed nicely with liquid band aid - a must for all first aid kits!). The neuro wanted to consult with the other doctors and get us back in to see Dr. Capone (which we did last week). So for the OCD, we are going to try buspar towards the end of this month. I have it all on a calender and Timbo screwed up on day #1! Katey said had a better day today - probably being home helped. The weight gain started earlier this year. The kid is on 40 mg of metadate, enough for most people to have a small appetite. does not know when to stop eating. He can open a package of capri suns and drink all 10 before I notice. He can eat a bag of grapes, jethro size bowls of cereal, quarts of ice cream, quarts of orange juice and oh gosh, gallons of chocoate milk if I purchased that in gallon size (I don't). I tried buying chips in individual bags (like Sharon told me to) - only to have him open EVERY SINGLE ONE and eat them all. Fat Free pudding - yummy, but 6 in one setting? It's a problem here and I try to buy as much low or no fat foods as I can. I'm going to end up buying one of those rubber made chests that can be locked and keep his favorites locked up. Medication changes > > >> Hi Everyone - quick update here. After 5.5 years on the same seizure >> medication, is being switched over to Trileptal. We made the >> switch >> yesterday and will increase the dosage during the next couple weeks. >> Right >> now, he's on half of what he will be on by later on this month. Dr. >> Capone >> wanted to see him and we went back to see him on Wednesday and he also >> prescribed buspar for the anxiety and OCD. We start that after we are on >> the full dose of trileptal. So far, 's OCD behaviors have >> increased - but we also drove to West Virginia yesterday and returned >> home >> today. He didn't have any typical structure in place. >> >> I'm hoping things go well with these changes - I hate this trial and >> error >> stuff - it took us a long time to find a combination that worked to some >> degree and here we go again............ >> >> >> >> >> >> >> Click reply to all for messages to go to the list. Just hit reply for >> messages to go to the sender of the message. >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 8, 2006 Report Share Posted August 8, 2006 , I hope this switch goes well and that seizures control becomes even better then the old combo Medication changes Hi Everyone - quick update here. After 5.5 years on the same seizure medication, is being switched over to Trileptal. We made the switch yesterday and will increase the dosage during the next couple weeks. Right now, he's on half of what he will be on by later on this month. Dr. Capone wanted to see him and we went back to see him on Wednesday and he also prescribed buspar for the anxiety and OCD. We start that after we are on the full dose of trileptal. So far, 's OCD behaviors have increased - but we also drove to West Virginia yesterday and returned home today. He didn't have any typical structure in place. I'm hoping things go well with these changes - I hate this trial and error stuff - it took us a long time to find a combination that worked to some degree and here we go again............ Quote Link to comment Share on other sites More sharing options...
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