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This is the update from 's care page today. , do we do anything

as a group in a situation like this?

13 July 31, 2006 at 11:58 PM EDT

tonights update comes with a very heavy, hurting heart. benjamins very long

journey will soon be over as it appears its God's will that he will soon be w

ith Him in heaven. we've done all we can, getting him any and all medical

treatments to make him better but the time has come when it isnt possible

anymore. we will do, as we've always tried to do, what is best for our son. we

will

not continue to put him through any more treatments, tests or torture to

find answers and cures. benjamin deserves to be free of pain and suffering and

as his parents who love him so very deeply it will be our final gift to him.

even tho it kills us to let him go and we would die ourselves to keep him with

us longer, we will release our grasp on him knowing he will be entering thru

the gates of heaven into eternal life. please continue to pray for benajmin

as he completes his final journey.

benjamin.....mom and dad love you so very much, so very deeply and we thank

God you were a part of our lives even if it was only for a short time. we

couldnt be more proud of the little man that you are. you have taught so many

people so many things, us included. not a second will go by that you will not

be in our hearts, thoughts and prayers. im sure it will be unbearable without

you and we will miss your sweet little smile, your thumbs up, " your

benjaminisms " terribly but knowing you are in a better place will help lighten

the

pain of having you gone. if love alone could of made you better then you never

would of gotten sick. you have the love, admiration and respect of everyone

that knows you. Goodbye my sweet little benjamin. mom and dad will be with you

once again when God calls us to him.

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