seizure question

[Guest guest]

recently visited a behavioral/developmental pediatrician to get some

ideas on what is motivating some of his behaviors, etc. One of the things Chris

does occasionally is sort of " moan " while he is playing on computer or watching

TV or whatever. The Dr. thought this might be some sort of seizure activity

(although he is NOT in a " trance-like " state while doing this and WE think it is

a soothing mechanism of some sort). The Dr. suggested we have an EEG done on

him. Here is my question: does a person have to be actively having a seizure

during the EEG for them to diagnose? Or can they see a change in the brain from

previous seizure activity? I just don't know if it's worth it to put Chris

through all of this when I seriously do not think he is experiencing seizures.

Thanks so much for your help! in Dallas

[Guest guest]

Nic had a seizure problem at ages 2-4. No, they don't have to be having a

seizure at the time of the EEG.

At one point (while Nic was asleep) they put a strobe light in front of his face

to try to bring one on so it could be recorded. Nic had Myoclonic jerks which

were little seizures that made it look like he was startled. He would have over

100 a day.

After 2 years on depekote they stopped.

Di

seizure question

recently visited a behavioral/developmental pediatrician to get

some ideas on what is motivating some of his behaviors, etc. One of the things

does occasionally is sort of " moan " while he is playing on computer or

watching TV or whatever. The Dr. thought this might be some sort of seizure

activity (although he is NOT in a " trance-like " state while doing this and WE

think it is a soothing mechanism of some sort). The Dr. suggested we have an EEG

done on him. Here is my question: does a person have to be actively having a

seizure during the EEG for them to diagnose? Or can they see a change in the

brain from previous seizure activity? I just don't know if it's worth it to put

through all of this when I seriously do not think he is experiencing

seizures. Thanks so much for your help! in Dallas

[Guest guest]

Nic had a 24 hour one done the first time. It wasn't a good experience for him

and he still has " issues " about anyone touching his head. In the 24 hr test, the

electrodes are literally superglued to his head. The removal process was much

worse than the application. The 2nd time we had his head shaved which did make

it less painful.

Di

Re: seizure question

had a single grand mal seizure when she was 10. We had an EEG to see

if she had epilepsy (the results were negative and she never had a second

episode).

The EEG isn't a " painful " test, just a hassle. I had to keep her awake all

night and then we had the test in the AM. It involved pasting electrodes all

over her head and the while she dozed off in my arms (because she was

exhausted) the person doing the testing caused lights to flash at different

rates and

measured her brain activity in response.

It's not a bad thing to have the test done to " rule out " siezures.

- Becky

In a message dated 9/14/2005 12:55:05 AM Eastern Standard Time,

karenmotes@... writes:

recently visited a behavioral/developmental pediatrician to get

some ideas on what is motivating some of his behaviors, etc. One of the

things does occasionally is sort of " moan " while he is playing on

computer

or watching TV or whatever. The Dr. thought this might be some sort of

seizure

activity (although he is NOT in a " trance-like " state while doing this and

WE think it is a soothing mechanism of some sort). The Dr. suggested we have

an EEG done on him. Here is my question: does a person have to be actively

having a seizure during the EEG for them to diagnose? Or can they see a

change

in the brain from previous seizure activity? I just don't know if it's worth

it to put through all of this when I seriously do not think he is

experiencing seizures. Thanks so much for your help! in Dallas

[Guest guest]

yuck - superglue. Makes my head hurt just thinking about it.

WIth Talor it was just pasting stuff the consistency of vaseline. She didn't

like it either. but I held her in my lap (in a bear hug) while the

technition applied it. It came out with shampoo.

- Becky

In a message dated 9/14/2005 8:16:55 AM Eastern Standard Time,

drf218@... writes:

Nic had a 24 hour one done the first time. It wasn't a good experience for

him and he still has " issues " about anyone touching his head. In the 24 hr

test, the electrodes are literally superglued to his head. The removal process

was much worse than the application. The 2nd time we had his head shaved which

did make it less painful.

Di

[Guest guest]

's teachers had thought she might be having seizures because she

tended to drift of and look spacey or fall asleep in class during some

activities.

Years later a psychiatrist attributed it to narcolepsy. Funny it never

occurred to me, because narcolepsy runs in the family. Overstimulation can

cause

an assortment of behaviors - one of which is seizures.

- Becky

In a message dated 9/14/2005 7:18:49 AM Eastern Standard Time,

cindysue@... writes:

Seizures can mimic behaviors - your doctor is being very thorough. The EEG

may not pick anything up - even if moans during the testing.

's neurologist told us that the area of origin may be so tiny and

deep, that the only way to detect activity is if the lead (wire) is on that

particular area of the brain.

[Guest guest]

they removed them with acetone(nail polish remover) She was scrubbing his head

with I causing it to bleed. Ever get nail polish remover in a small cut???? You

can imagine the screaming that went on as 5 of us held him down....

Di

Re: seizure question

yuck - superglue. Makes my head hurt just thinking about it.

WIth Talor it was just pasting stuff the consistency of vaseline. She didn't

like it either. but I held her in my lap (in a bear hug) while the technition

applied it. It came out with shampoo.

- Becky

In a message dated 9/14/2005 8:16:55 AM Eastern Standard Time,

drf218@... writes:

Nic had a 24 hour one done the first time. It wasn't a good experience for

him and he still has " issues " about anyone touching his head. In the 24 hr test,

the electrodes are literally superglued to his head. The removal process was

much worse than the application. The 2nd time we had his head shaved which did

make it less painful.

Di

[Guest guest]

,

im not doctor but i dont think he is haveing seizures , cause my frankie

who is 8 makes the humming moaning sound when he is playin, watchin tv,

doing homework. no matter what he is doing he makes that noise 90 percent of

the time and he has made this sound since i can even remember , i just

figure its a soothing sound for him, or maybe he dont even realize he doesnt

anymore its just habbit ,,, but for him deffinatly not a siezure,,, angel

-- seizure question

recently visited a behavioral/developmental pediatrician to get

some ideas on what is motivating some of his behaviors, etc. One of the

things does occasionally is sort of " moan " while he is playing on

computer or watching TV or whatever. The Dr. thought this might be some sort

of seizure activity (although he is NOT in a " trance-like " state while doing

this and WE think it is a soothing mechanism of some sort). The Dr.

suggested we have an EEG done on him. Here is my question: does a person

have to be actively having a seizure during the EEG for them to diagnose? Or

can they see a change in the brain from previous seizure activity? I just

don't know if it's worth it to put through all of this when I

seriously do not think he is experiencing seizures. Thanks so much for your

help! in Dallas

[Guest guest]

Well - I asked his grandfather (retired surgeon) if he thought was

having seizures. He has spent MUCH time with him - too many sleepovers to

count - and he thinks definitely not. He even recalled one time when he was

5 when he thought he might be but he spoke to him and responded

immediately. So he has thought of this long before me. I think I will NOT do

an EEG - it will be h*ll on him - he is a strong 10 year old and sleep or

not - he will fight it and it will be traumatic. And I just don't think

there is any evidence to think he is having them. We just did not get a good

rapport with this Dr. and don't necessarily think he knows much about DS.

Very disappointing. Thanks for all your words of wisdom. It is truly

appreciated. in Dallas

seizure question

>

>

>

> recently visited a behavioral/developmental pediatrician to

get

> some ideas on what is motivating some of his behaviors, etc. One of the

> things does occasionally is sort of " moan " while he is playing on

> computer or watching TV or whatever. The Dr. thought this might be some

sort

> of seizure activity (although he is NOT in a " trance-like " state while

doing

> this and WE think it is a soothing mechanism of some sort). The Dr.

> suggested we have an EEG done on him. Here is my question: does a person

> have to be actively having a seizure during the EEG for them to diagnose?

Or

> can they see a change in the brain from previous seizure activity? I just

> don't know if it's worth it to put through all of this when I

> seriously do not think he is experiencing seizures. Thanks so much for

your

> help! in Dallas

>

>

>

>

[Guest guest]

Mac is also a big time moaner (although not as much as he's getting older) his

is related to sleep...when he's falling asleep or waking up is when he does it.

It used to go on for a good 1/2 hr. as he was falling asleep or waking up.

RE: seizure question

Myah makes this noise all the time when she is playing with something small.

I think it is a focus thing. I would not think a seizure is involved either.

Let me know what you find out. I think we talked in the past that our kids

do this a lot.