Re: time for everyone to post !!!!!!!

[Guest guest]

Stacie,It is good to hear from you.  My ICD started beeping last Saturday.  At first the old brain didn't know what it was.  By Monday I had confirmed that it was my ICD.  Called the doc had had an appointment today.  I am scheduled for a replacement on 12/19/2011.  That's six years and a couple of months on this battery.

When I reminded the doc that I am on blood thinner because of a mechanical valve he said they no longer take you off of the blood thinner and it should be outpatient.  That is great news as the last time I think I spent a week in the hospital waiting for the blood clotting levels to return to normal.

I hope that everyone enjoys the Holiday and that I'm not making a mistake getting the ICD replaced so close to Christmas.  I guess I shouldn't expect much from Santa Claus.

Joe SchmidtGod Loves Us All

On Wed, Dec 7, 2011 at 1:22 PM, LIghtingpaw <lightingpaw@...> wrote:

 aright guys and gals the list has been WAY to quit so i thought its time for everyoen to check in let usknow how your doing

 

 this last year has been extremly hard i havent posted on here much but i think of everyone every day !!!!! my hearts as shockign as ever  dad and his icd is doign great  we both have been missing my mom very much !!!  anyways how are you all doign

 

 stacie shocking life for shocking people !

[Guest guest]

Stacie,My husband, Mark, lost his job in April and we have been trying to get disability for him since then. He certainly qualifies, but continued to work since our soon is still in high school. His heart has weakened along with his morale. He is having shoulder replacement surgery in a couple of weeks. I moved my business out of an office last week and into our home to save money and keep an eye on him. I'm glad that your dad is doing well with his ICD. I hope that next year is better for both of you. BonnieSent from my Samsung Epicâ„¢ 4G Touch --- time for everyone to post !!!!!!! From: LIghtingpaw <lightingpaw@...> " " < > CC:

aright guys and gals the list has been WAY to quit so i thought its time for everyoen to check in let usknow how your doing

this last year has been extremly hard i havent posted on here much but i think of everyone every day !!!!! my hearts as shockign as ever dad and his icd is doign great we both have been missing my mom very much !!! anyways how are you all doign

stacie shocking life for shocking people !

[Guest guest]

dear bonnie so sorry to hear abotu your husband mark lossing his job and his heart issuses getting worse thats never fun i hope your able to get hhim on disabilitiey soon !!! i wish you luck in the mean time we know hard times my dad hasnt been able to work since 2002 when he coded and got his icd i have never been able to work do to my heart and other health conditions i have a very shocking personality:) on my forth icd !!! since i was ten years old dads on his secound icd dads only been shocked one me i'm still counting !!!!! lol it can be tough and heartbreaking to have your health worsen and worse yet to feel as though your not able toprovide for your family the way you used to be able to ! my dad went though a long period of being down because of his

health and not working ect i think its normal to feel that way but i hope things get better for you soon !

stacie and kira cardiac alert dog and mobility assistance dog and Hero mobitlity and cardiac alert dog in training !!!

From: Byork1992 <byork1992@...>Subject: RE: time for everyone to post !!!!!!! Date: Wednesday, December 7, 2011, 7:11 PM

Stacie,

My husband, Mark, lost his job in April and we have been trying to get disability for him since then. He certainly qualifies, but continued to work since our soon is still in high school. His heart has weakened along with his morale. He is having shoulder replacement surgery in a couple of weeks. I moved my business out of an office last week and into our home to save money and keep an eye on him.

I'm glad that your dad is doing well with his ICD. I hope that next year is better for both of you.

BonnieSent from my Samsung Epicâ„¢ 4G Touch --- time for everyone to post !!!!!!! From: LIghtingpaw <lightingpaw@...> " " < > CC:

aright guys and gals the list has been WAY to quit so i thought its time for everyoen to check in let usknow how your doing

this last year has been extremly hard i havent posted on here much but i think of everyone every day !!!!! my hearts as shockign as ever dad and his icd is doign great we both have been missing my mom very much !!! anyways how are you all doign

stacie shocking life for shocking people !

[Guest guest]

sorry to hear you need a new device so close to the holidays but pelase keep us posted it is good to hear from you to !!!! i personaly miss hearign from the people on this wonderful list !!!! who knows santa might still come but the most important thing is that you will have a new device that will keep you here to meet santa

aright guys and gals the list has been WAY to quit so i thought its time for everyoen to check in let usknow how your doing

this last year has been extremly hard i havent posted on here much but i think of everyone every day !!!!! my hearts as shockign as ever dad and his icd is doign great we both have been missing my mom very much !!! anyways how are you all doign

stacie shocking life for shocking people !

[Guest guest]

Hi folks--

So far I'm shock-free, five years out from my cardiac arrest. I haven't been

back to the hospital once for this issue, my unit is rarely used for pacing, and

so far I'm doing well. Thanks for checking in, Stacie!

Lynn S.

------

Mama, homeschooler, writer, activist, dancer, spinner & knitter

Portfolio: http://www.siprelle.com

For feminist homemakers: http://www.TheNewHomemaker.com

NOTICE: The National Security Agency may have read this email without warning,

warrant, or notice.

[Guest guest]

I was wondering just a few days ago if I was out of the loop of this

list, it had been so long since I saw a message here. I'm glad to hear

from you Stacie!

I'm doing well, over four years after my ICD was implanted. So far, no

shocks or pacing. But I'm due to have surgery for a minor and unrelated

problem that will include general anesthesia. I'm not real worried

about it, but I do wonder if something would set off the ICD while i'm

" under. " But I guess if I'm " under " it wouldn't matter so much. (isn't

the device " tested " while your unconscious during it's implantation?)

I'm guessing that the silence from this group means people are doing

OK. Merry Christmas/Happy Holidays to everyone.

Bill on

time for everyone to post !!!!!!!

 

 aright guys and gals the list has been WAY to quit so i thought its

time for everyoen to check in let usknow how your doing

 

 this last year has been extremly hard i havent posted on here much but

i think of everyone every day !!!!! my hearts as shockign as ever  dad

and his icd is doign great  we both have been missing my mom very much

!!!  anyways how are you all doign

 

 stacie shocking life for shocking people !

[Guest guest]

bill usaly they turn the device off proir to any sugrey (i should know i had minny lol ) as the tools they use can cause inaprorete shocks ! i woudl talk to the doctor and too you icd doc and insure both are on bored with the device being on and risk to that effect ( my brain doctor for one of the first brain sugerys after my icd implanted insisted despite me and the heart doc sayign otherwise that the device be left on for my safety we he had a very shocking exprince as the tools caused a "fasle " shock my mom busted up laughign when he came out eye wide and shakeing lol as hsi firsted words after the sugery was i learned my lesson never again never again lol after that every sugery he done the device was turn "OFF" and external icd pads where placed on me proir to sugery for the

"just in case" but they wherent likely to shock liek the icd did ) the tool they use to cartrize and minnimize blood loss can cause the icd to fire but otherwise its great hearign from you i sure do miss this list and nope my heart hasnt been "great" but what can one do other then fight on you know

From: WTon@... <WTon@...>Subject: Re: time for everyone to post !!!!!!! Date: Thursday, December 8, 2011, 1:28 AM

I was wondering just a few days ago if I was out of the loop of this list, it had been so long since I saw a message here. I'm glad to hear from you Stacie!I'm doing well, over four years after my ICD was implanted. So far, no shocks or pacing. But I'm due to have surgery for a minor and unrelated problem that will include general anesthesia. I'm not real worried about it, but I do wonder if something would set off the ICD while i'm "under." But I guess if I'm "under" it wouldn't matter so much. (isn't the device "tested" while your unconscious during it's implantation?)I'm guessing that the silence from this group means people are doing OK. Merry Christmas/Happy Holidays to everyone.Bill on time for everyone to post !!!!!!! aright guys and gals the list has been WAY to quit so i thought its time for everyoen to check in let usknow how your doing this last year has been extremly hard i havent posted on here much but i think of everyone every day !!!!! my hearts as shockign as ever dad and his icd is doign great we both have been missing my mom very much !!! anyways how are you all doign stacie shocking life for shocking people !

[Guest guest]

Hi all,and Merry Christmas to everyone ! Am doing ok, but had some concerns when i had my last checkup, the cardio tech asked me about removing my new ICD, i had just had it put in less than a year ago and now saying this stuff, I told her in so many words HELL NO !!! LOL First of all even tho she is probably well qualified to do the testing, but am not so sure about her saying this stuff about removing my icd. Am on my second one and had it put in at the VA in Tucson and have never heard a word from them since, never has bothered to call and ask how im doing or anything. have not see a cardio dr since either, even tho the VA i go to reguraly has one i have never meant him, so who is she to say this? Makes me very nervious as i really dont have much faith in the

VA. My primary dr has never said anything about it either RE: removing. and besides my primary and i are butting heads over a blotched surgery i had at the VA in Alburqueque when they left wire fragments inside me and never said a word, after having xrays and CT scan and one can see these frags, my primary dr denies she sees anything. Well i understand her not admitting to it since in 2000 i filed a claim againist the VA and am still fighting for compensation from them. She also sent me to see a urology dr and he also denies seeing anything on the films. Thats the govt for ya. There is a saying that has been around for the VA for a while now " Deny Deny and Hope You Die " which i first i thought was hogwash, but now days i wonder, i know they are somewhat over loaded with new patients comming in, but ............. oh well sorry for sounding off. I just get so frustrated with the VA.

Yes i would like to go back to my private drs (cardio and primary) but i cant afford the co-payments, especailly at the cardio drs office. caught up in the scam of it all. Anway i would like to wish everyone a very Merry Christmas and a Joyious New Year. Keep the Faith My Friends. in Az

[Guest guest]

Thanks, Stacie, for your reply regarding surgery. I have a magnet, which is from Medtronics, provided by my doc at the time of implantation, to shut it off, since I have the "recalled" fidelis lead in me. I've never put it near my ICD even though the folks monitoring me say it's fine to do that to check for battery status (it is supposed to beep in a certain way if battery is OK and a different way if it is not.) But I know it shuts down the ICD as long as the magnet is proximate to it. I'll take my magnet along to the hospital!

Bill H

In a message dated 12/7/2011 10:40:00 P.M. Pacific Standard Time, lightingpaw@... writes:

bill usaly they turn the device off proir to any sugrey (i should know i had minny lol ) as the tools they use can cause inaprorete shocks ! i woudl talk to the doctor and too you icd doc and insure both are on bored with the device being on and risk to that effect ( my brain doctor for one of the first brain sugerys after my icd implanted insisted despite me and the heart doc sayign otherwise that the device be left on for my safety we he had a very shocking exprince as the tools caused a "fasle " shock my mom busted up laughign when he came out eye wide and shakeing lol as hsi firsted words after the sugery was i learned my lesson never again never again lol after that every sugery he done the device was turn "OFF" and external icd pads where placed on me proir to sugery for the "just in case" but they wherent likely to shock liek the icd did ) the tool they use to cartrize and minnimize blood loss can cause the icd to fire but otherwise its great hearign from you i sure do miss this list and nope my heart hasnt been "great" but what can one do other then fight on you know

From: WTon@... <WTon@...>Subject: Re: time for everyone to post !!!!!!! Date: Thursday, December 8, 2011, 1:28 AM

I was wondering just a few days ago if I was out of the loop of this list, it had been so long since I saw a message here. I'm glad to hear from you Stacie!I'm doing well, over four years after my ICD was implanted. So far, no shocks or pacing. But I'm due to have surgery for a minor and unrelated problem that will include general anesthesia. I'm not real worried about it, but I do wonder if something would set off the ICD while i'm "under." But I guess if I'm "under" it wouldn't matter so much. (isn't the device "tested" while your unconscious during it's implantation?)I'm guessing that the silence from this group means people are doing OK. Merry Christmas/Happy Holidays to everyone.Bill on time for everyone to post !!!!!!! aright guys and gals the list has been WAY to quit so i thought its time for everyoen to check in let usknow how your doing this last year has been extremly hard i havent posted on here much but i think of everyone every day !!!!! my hearts as shockign as ever dad and his icd is doign great we both have been missing my mom very much !!! anyways how are you all doign stacie shocking life for shocking people !

[Guest guest]

Stacie,

when my husband needed help with SS disability, he called Occudata--a law firm that only deals with helping people get disability. If you search on line , it will come up. My husband never met them--they are in Kansas, I think but dealt only on phone and mail --this was about 18 years ago. A close friend also was helped. I highly recommend them if disability is dragging their feet.

Adele---Dave's in Maine's Mom

PS--by the way all--my son Dave is doing great--thanks to much prayer and great doctors in Boston and the support of this great group. MERRY CHRSTMAS TO ALL!!!!!.

RE: time for everyone to post !!!!!!!

Stacie,

My husband, Mark, lost his job in April and we have been trying to get disability for him since then. He certainly qualifies, but continued to work since our soon is still in high school. His heart has weakened along with his morale. He is having shoulder replacement surgery in a couple of weeks. I moved my business out of an office last week and into our home to save money and keep an eye on him.

I'm glad that your dad is doing well with his ICD. I hope that next year is better for both of you.

Bonnie

Sent from my Samsung Epicâ„¢ 4G Touch

--- time for everyone to post !!!!!!!

From: LIghtingpaw <lightingpaw@...>

" " < >

CC:

aright guys and gals the list has been WAY to quit so i thought its time for everyoen to check in let usknow how your doing

this last year has been extremly hard i havent posted on here much but i think of everyone every day !!!!! my hearts as shockign as ever dad and his icd is doign great we both have been missing my mom very much !!! anyways how are you all doign

stacie shocking life for shocking people !

[Guest guest]

Hi everyone,

Happy Holidays to you all. I’m out here in CA

and doing well enough. , I understand the confusion about a tech

asking you about removing your ICD. Do you have any idea why she asked

you that? Sometimes I’d love to have mine removed, but I think most

docs are opposed to it.

Knock wood, I’ve had no “necessary” shocks—just

the ones from a fractured wire some years ago, and I’ve had “phantom

shocks.” Does anyone else out there have phantoms? If so, how

often, and under what circumstances. All of mine but one have occurred in

the night—woke me, but then when I have the ICD checked out the next time

it shows no fires, which is a good thing. The last one I had wasn’t

as potent as the ones prior to that.

Anyway, Happy New Year to Everyone.

Teri

[Guest guest]

Teri,, have no idea why she would say this having my ICD removed, she said something abuot im doing better and that my Injection Fraction is good, thought the only way they could tell your IF is by doing a stress test which i havent had one in years, I would like t ask what are phathom shocks> have no idea what these are. Merry Christmas to All My Friends here. God Bless

America. in Az

[Guest guest]

Strange indeed. Ejection fraction can be measured through an echocardiogram. A stress test echo is used to see the EF when the heart is at work. Seems counterintuitive to have an ICD removed. Maybe it was the ICD that improved your EF by assisting the heart.The first thing that distinguishes a writer is that he is most alive when alone.-- AmiFrom: <shadow061@...>Subject: Re: time for everyone to post !!!!!!!" " < >Date: Saturday, December 10, 2011, 5:15 AM

Teri,, have no idea why she would say this having my ICD removed, she said something abuot im doing better and that my Injection Fraction is good, thought the only way they could tell your IF is by doing a stress test which i havent had one in years, I would like t ask what are phathom shocks> have no idea what these are. Merry Christmas to All My Friends here. God Bless

America. in Az

[Guest guest]

he newer ICD's can measure ef function and fluid leels aroudn he heart and in he lungs ! bu a echo/sress test is more commenly used to conferm now adays

From: <shadow061@...>Subject: Re: time for everyone to post !!!!!!!" " < >Date: Saturday, December 10, 2011, 5:15 AM

Teri,, have no idea why she would say this having my ICD removed, she said something abuot im doing better and that my Injection Fraction is good, thought the only way they could tell your IF is by doing a stress test which i havent had one in years, I would like t ask what are phathom shocks> have no idea what these are. Merry Christmas to All My Friends here. God Bless

America. in Az

[Guest guest]

If I was told to have my functioning AICD removed, I

would definitely get a trusted second opinion, and then decide for

myself if either or both are credible. Mine regulates my pulse,

and checks for afib and dangerous VT. It provides therapy first,

without shocks. If the therapy doesn't work, it gives a

therapeutic shock (as often as necessary to keep me alive).

Because of the previous, I am delighted to have it. I can't

believe it can be harmful to have it in my chest. I've had one for

12 years. It saved my life.

Norm

[Guest guest]

Happy Holidays to everyone out there in zapper land!Ho Ho Ho

, you are a remarkable woman. Every time I read your posts or think about

you it helps to put my life into perspective.

I wanted to ask, especially since I know there are A LOT of lurkers out there.

Has anyone been diagnosed with autonomic nerve dysfunction? My doctors are

guardedly speculating that this may be the cause of my heart problems. Since

they have never been able to determine the cause of both my heart attack and

cardiac arrest. They discovered I have a very high vagel response when I had my

last angiogram. This also would explain why my ICD and I were not compatible.

I also wanted to share that I have been off of amioderone for a little more than

a year and am feeling so much better. My thyroid healed itself and other than

residual problems with my teeth from having had dry mouth for so long, life is

looking brighter. Once in awhile I will have problems with my mucus membranes

feeling like they are burning or double vision but the episodes get farther and

farther apart. I'm not a candidate for the drug anymore. woohoo!

Again, Merry Christmas to All and to All a happy holiday season

>

>  aright guys and gals the list has been WAY to quit so i thought its time for

everyoen to check in let usknow how your doing

>  

>  this last year has been extremly hard i havent posted on here much but i

think of everyone every day !!!!! my hearts as shockign as ever  dad and his icd

is doign great  we both have been missing my mom very much !!!  anyways how are

you all doign

>  

>  stacie shocking life for shocking people !

>

[Guest guest]

and others,

Phantom shocks feel like the real thing, but are not. Some

medical professionals think they are caused by anxiety and tension associated

with wearing a defibrillator. Not everyone has them, so I suppose not

knowing what they are is a good thing. You can go onto Google or whatever

search engine and type: “defibrillator phantom shock”

(leave out the quotation marks though,) the first two hits that come up are

pretty good articles that comment on what they are. I found the articles after

I’d had a shock or two that I was sure was real but was proven not to be

when I next had the ICD checked. Hope this helps.

Teri

[Guest guest]

Hi all and Merry Christmas to everyone, as far as having my ICD removed until i hear it from either my EP or cardio doc it isnt comming out, these are our lives they are dealing with and in no uncertain terms will it be removed. talk about wanting a fight lol, j/k. anyway think i have another appt this month for another checkup i think, so will see what she says then the tech that is. With having Vtech and afid and chf i dont think she has any business saying something about removing it. Anyway Stacie, good to see you are still here with us hope you are getting ready for the holidays. How is Kerria :? i think that is her name. sorry if im wrong. Will do some checking on those pathatium shock things. Since i dont have anyone to

help me i tend to slack off some lol. even forget to take my meds at times too loll. oh well. I WANT TO WISH EVERYONE A VERY MERRY CHRISTMAS AND A HAPPY NEW YEAR., :-) take care all, john in az

[Guest guest]

me i'm soso findaly learned the TRUTH about my icd replacement sugery back in 07 of what happened ! anyways as for holidays we have a tree up and lights on it but i'm not sure why other then for the spirit of things ( there no money for gifts for me or dad or even kira or hero to go under it ) but we are ready for the holidays in the sense the tree is up kira is okay shes nearign retirement though within the next year i cant beleave its been that long already !!!!!! shes aroudn 8-9 years now so she deserves to live out her life without worrying about helping me everyday but she will stay with me when that happens shes mine for life !!!!! but hopefuly we got a year ebfore that happens !!!! my health has been shockign as ever !!!! but thats life for you i

think i'm gettign used to the shocks only took 18years lol had a icd since i was 10 !!! how are you doign are you ready for the holidays ?????