Guest guest Posted October 21, 2000 Report Share Posted October 21, 2000 From the KUTAPRESSIN package insert: KUTAPRESSIN injection (liver derivative complex) is a sterile solution containing 25.5 mg liver derivative complex per mL in sterile water for injection. KUTAPRESSIN Injection is composed of peptides and amino acids. The product contains no protein and does not exhibit anti-anemia activity. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 8, 2000 Report Share Posted November 8, 2000 We were in Germany this summer and I went 3 pharmacies to inquire about getting Kutapressin there, as the manufacturer is Schwartz, a German co. (I believe). None of the pharmacies had it, nor could they figure out if it was sold in Germany under another name. I had hoped to buy it there for a lot less as my insurance does not cover it and it is costing us $140 per bottle. I also heard a similar product was made in the US but don't know how it compares. The pharmacists I spoke with in Germany know Schwartz but just couldn't find anything like Kutapressin in their systems or PDR-type manuals. mary Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 8, 2000 Report Share Posted November 8, 2000 I purchased Kutapressin on-line from FamilyMeds for $132; not much cheaper, but a little. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 12, 2001 Report Share Posted March 12, 2001 The criteria would vary from child to child just as the disability does. Since most of the children who get it are not getting it as an isolated drug and testing on it was never done for the exact way it is being used now I don't believe the reassurance your husband wants exists at the present time. Having said all that Dr. Goldberg has used it long enough that if he recommends it I would seriously consider his recommendation. My daughter has had a wonderful response from it and that has made me only more optimistic about the use of the drugs that will eventually be tested. I will be mentoring in Dr. Goldberg's office from the 19th until the 23rd of March. Does anyone have an appointment during that week? I would love to meet some of you in person! Kathy -Northern New York Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 13, 2001 Report Share Posted March 13, 2001 I have no statistics, etc. on Kutapressin. However, I can relate that my son has been taking this for almost 3 years. Within 2-3 months we noticed a very favorable impact, and it has continued well since. Our son is recovered, no signs of autism. We feel the use of Kutapressin was the single biggest factor in his recovery. Obviously, I recommend it highly. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 14, 2001 Report Share Posted March 14, 2001 I have posted the story before, and since you have been on this list for a long time, I'm sure you've read it. My son was diagnosed at a very prestigious autism center as " moderately to severely autistic " at age 23 months. He did ALL the things you hear everyone talk about, including stemming, etc. We started seeing Goldberg when he was about 3. In the meantime we did a lot of therapy including Lovaas, Greenspan, and the Koegel's approach (Santa Barbara). My son didn't talk at all until about 4 1/2. We did the standard Goldberg protocol. 2-3 months after we started Kutapressin we began noticing a definite change, and it improved gradually over the next year and a half. He was deemed recovered at about age 5. Our opinion is the medications had the most effect on our son, but without good, concentrated therapy, there would be problems from the few years he had had difficulty. Why did he recover? Who knows? I'm just telling you our experience. I am not aware of any problems that can be created by Kutapressin, and with Goldberg's frequent testing, I would assume if there were problems, he would detect it. Therefore, I would certainly give it a try. We certainly experimented with a lot of stuff, and when we felt there were problems occurring, or we weren't seeing a positive effect, we stopped. Why not do the same with Kutapressin? If you're waiting for definite research data, that definitively proves the answer has been found, FORGET IT. It doesn't exist, which is why no one quite knows how to pursue this whole spectrum. That's the hardest part, but I would sure have a rough time living with it had we not tried everything, and then found out in the future it could have had a positive effect. Good luck Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 14, 2001 Report Share Posted March 14, 2001 Kutapressin (for the past 3 yrs.) has been one of the factors keeping my 9yr old ASD child physically well. she is very severely autistic and was ill constantly. It has boosted her learning capabilities because she feels better....is happier, and more focused. I am starting Kutapressin injections tomorrow for CFS. After seeing the results in my daughter, i am looking forward to this new treatment for me and improving my health. Tina M. Hendrix Cure2000@... President, Coalition, Northern California Neuro-Immune Dysfunction Syndromes Autism Spectrum Disorder, ADD/ADHD, Learning Disorders, Hyperactivity, CFS, etc. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 14, 2001 Report Share Posted March 14, 2001 Tina, is there a doctor in the UK? I live an hour west of London. Thank you, martha rolfe Re: kutapressin > Kutapressin (for the past 3 yrs.) has been one of the factors keeping my 9yr > old ASD child physically well. she is very severely autistic and was ill > constantly. It has boosted her learning capabilities because she feels > better....is happier, and more focused. I am starting Kutapressin injections > tomorrow for CFS. After seeing the results in my daughter, i am looking > forward to this new treatment for me and improving my health. > > Tina M. Hendrix > Cure2000@... > President, Coalition, Northern California > Neuro-Immune Dysfunction Syndromes > Autism Spectrum Disorder, ADD/ADHD, Learning Disorders, Hyperactivity, CFS, > etc. > > > Quote Link to comment Share on other sites More sharing options...
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