Ambrotose

[Guest guest]

This product, and Dr. See, were discussed intensely on

the CFIDS Experimental list about a year ago. The

ambrotose appears to be a variety of sugars and not

much more. I do not remember anyone reporting any

improvement (CFIDS = Chronic Fatigue and Immune

Dysfunction Syndrome which involves immune system and

neurological issues). I do remember the dismay with

which Dr. See went from being a respected researcher

on CFIDS to a MLM front man. People on that list

stopped seeing him. Ambrotose has not been mentioned

as a possible tx for CFIDS in at least 9 months.

CFSFMExperiemental is also an egroups list and if you

are interested I expect you could search the archives

on this. They did a lot of good research and I think

someone actually saw Dr. See at some point.

Doris

__________________________________________________

[Guest guest]

Great that you think that this product works for you but unless you are doing

a controlled study you can't prove that. Anecdotals do have value but you

cannot claim that because you think that a product works that it does work.

Kathy R

[Guest guest]

>

>Message: 7

> Date: Tue, 18 Jan 2005 08:01:44 -0500

> From: " Joanne Longley " <painter907@...>

>Subject: RE: Re: Ambrotose (off topic)

>

>Hi Folks, what is the web site for Ambrotose mentioned? Joanne L. Is it

>www.Ambrotose.com ??? I will google it talk soon JL

Joanne,

Maybe someone has already answered this, or you have Googled it for

yourself. I checked Google for Ambotose and this is the web site I came up with

http://www.betterglycostore.com/

Vali

[Guest guest]

--- In low dose naltrexone , " Lori " <lorigrady214@c...>

wrote:

> I have been taking ambrotose for over 4 months now and my

improvements

> have been remarkable...still a long way to go - but I am headed in

the

> right direction. You can email me directly at lorigrady214@c...

>

> I also have a glyco-friends group where people are talking about

their

> experiences...

>

> My one friend in NY literally was not out of her house in 2 years.

> First she actually went out on the porch. Later she was able to

attend

> 2 events at her sons school. Still in a wheelchair - but that was

> something she couldn't do before.

>

> I am still on ldn too. I love it and all that it has done for me.

At

> such a tiny dose I may stay on it forever.....

>

> Please email and we can talk more...

Hi, I tried Ambratrose and got a little relief, but it was so

expensive and I take 3tblsp a day, so I learned how to ,make my own

instead of paying 100.00 or so for a 100gm jar, I make about 10lbs

for under a 100.00.

My urin and blood work improved a LITTLE while taking Ambatrose, but

when I started my homemade version, two weeks later I had NO protein

or hematuria in my urin for the first time in four years as well as

when I started my homemade version my kidney pain went away

instantly. This was before I started LDN, but I consider my results

most impressive considering I have Lupus SLE and the doc said I

could expect to only get worse, but after the last bit of lab work

he said not to stop taking the supplement as I am showing vast

improvements that he had not seen before. So I make my smoothie

every morning, and also get tons of energy from it. I can email the

recipe and links to where to purchase best and cheapest products if

anyone likes. It is not Rocket science to make.

Hugs,

Betty

[Guest guest]

Betty,

I would love your recipe! Thanks for sharing.

Sue Meier

[low dose naltrexone] Re: ambrotose

> I have been taking ambrotose for over 4 months now and my improvements > have been remarkable...still a long way to go - but I am headed in the > right direction. You can email me directly at lorigrady214@c...> > I also have a glyco-friends group where people are talking about their > experiences...> > My one friend in NY literally was not out of her house in 2 years. > First she actually went out on the porch. Later she was able to attend > 2 events at her sons school. Still in a wheelchair - but that was > something she couldn't do before. > > I am still on ldn too. I love it and all that it has done for me. At > such a tiny dose I may stay on it forever.....> > Please email and we can talk more...Hi, I tried Ambratrose and got a little relief, but it was so expensive and I take 3tblsp a day, so I learned how to ,make my own instead of paying 100.00 or so for a 100gm jar, I make about 10lbs for under a 100.00.My urin and blood work improved a LITTLE while taking Ambatrose, but when I started my homemade version, two weeks later I had NO protein or hematuria in my urin for the first time in four years as well as when I started my homemade version my kidney pain went away instantly. This was before I started LDN, but I consider my results most impressive considering I have Lupus SLE and the doc said I could expect to only get worse, but after the last bit of lab work he said not to stop taking the supplement as I am showing vast improvements that he had not seen before. So I make my smoothie every morning, and also get tons of energy from it. I can email the recipe and links to where to purchase best and cheapest products if anyone likes. It is not Rocket science to make.Hugs,Betty

[Guest guest]

(Message: 6

Date: Wed, 22 Jun 2005 01:06:57 -0000

From: "Lynn" <beachgirl3lynn@...>

Subject: Ambrotose?

hi everyone,

just wondering if anyone was taking the Ambrotose supplements and

if so how they were working for them......

thanks

Lynn)

Hi, Lynn,

I have taken Ambrotose since last July. At first it helped remarkably. I had been pretty much lying around all day. I was up on my feet the next day and scraping and painting my house! Then things went back down hill.

In March I realized that though I had good intentions, I got to the end of the day without taking what I was supposed to! I doubled my dose and doubled my efforts to be sure I took it. Amazing! Within days, my joint pain was gone! I no longer doubled over to get to the bathroom in the mornings! Another thing was that I got goosebumps back! It was amazing! I started out thinking something was wrong, then realized it was goosebumps! LOL!

Anyway, I will not be stopping the glyconutrients. There is something in them for me!

Sally

[Guest guest]

I am taking ambrotose - for just over 4months now. I am feeling little improvements along the way - and so are many friends. My husband who is healthy is noticing improcements.

When taking nutrition to help your body heal, you need dedication and patience. This is not a quick fix... but it is a good path to take....

Blessings to you,Loriwww.mannapages.com/lorigrady

Ambrotose?

hi everyone,

just wondering if anyone was taking the Ambrotose supplements and

if so how they were working for them......

thanks

Lynn)

Hi, Lynn,

I have taken Ambrotose since last July. At first it helped remarkably. I had been pretty much lying around all day. I was up on my feet the next day and scraping and painting my house! Then things went back down hill.

In March I realized that though I had good intentions, I got to the end of the day without taking what I was supposed to! I doubled my dose and doubled my efforts to be sure I took it. Amazing! Within days, my joint pain was gone! I no longer doubled over to get to the bathroom in the mornings! Another thing was that I got goosebumps back! It was amazing! I started out thinking something was wrong, then realized it was goosebumps! LOL!

Anyway, I will not be stopping the glyconutrients. There is something in them for me!

Sally