[MassFV] How to deliver the news after the delivery - postnatal diag...

[Guest guest]

In a message dated 1/5/2005 8:54:13 AM Eastern Standard Time,

Roxanne.Hoke-Chandler@... writes:

The article below was written specifically about receiving a postnatal

diagnosis of Down syndrome. Unless parents receive the diagnosis (any diagnosis)

inutero and have time to adjust prior to the birth of their child, I don't think

there's anything a health professional can say that will take away the shock,

fear and anxiety of the situation. But, I do think the 10 recommendations

provided - again regardless of diagnosis - can help allieviate some of the fear,

sense of loss and feelings of isolation many of us experienced when our

children were first diagnosed.

DATE: January 3, 2005

Mothers Have Spoken: Physicians Need to Do a Better Job in Delivering a

Postnatal Diagnosis of Down Syndrome

Specific Recommendations Offered

A study released today by the medical journal, Pediatrics, and reprinted at

the NDSC (Nation Down Syndrome Congress) website (http://www.ndsccenter.org/),

indicates that mothers of children with Down syndrome are overwhelmingly

dissatisfied [...]

For more information about Massachusetts Family Voices @ Federation for

Children with Special Needs, a state chapter of Family Voices, a national

grassroots organization of families and friends speaking on behalf of children

and

youth with special health care needs, visit www.massfamilyvoices.org, e-mail:

MassFV@..., or leave a message at 1-800-331-0688, ext. 210. Your call will

be

returned.