Re: [cml 2]

[Guest guest]

Thanks for your encouraging words

Eva

From: anita

Sent: Thursday, August 27, 2009 8:26 PM

Subject: Re: [ ]

Eva,

When I first (2007) began on Sprycel I had 0 white and 0 platelets I only

received Platelets and White cells once. But once the CML was getting under

control My Blood leveled out. You just have to be very careful to not get

bruised nor cut. I was pulling weeds in my flower bed and had a grass cut on my

finger thought it would never get well, was infected by the end of the day. So

word of warning be careful. Today I am happy to say I am in Remission, and blood

counts are good.

Anita

________________________________

From: Bev Blair <bbobblair@...>

Sent: Thursday, August 27, 2009 6:49:46 PM

Subject: Re: [ ]

Looks similar to mine today (I just started Sprycel about 5 weeks ago). My

platelets were lower (70) and my hemoglobin was 9.4 but that was up almost a

point. The nurse told me that it drops and then rises and levels off. I am

having another blood test in a week. In my mind the platelets may have already

dropped because I had some little red dots earlier in the week around my ankles

and eyes but they have gone. I was afraid my hemoglobin would never rise again.

So I think things for me are looking up.

From: Eva <evaob365hotmail (DOT) com>

Subject: [ ]

" " <groups (DOT) com>

Date: Thursday, August 27, 2009, 4:33 PM

I think my Sprycel is working too well but my onc says just to carry on .

WBC-3.7

PLT-117

HGB-107

Neutrophils- 1.0

A;; seems to low to me and when I questioned him he got all defensive.

My regular onc is on 6 months maternity leave.

What do you guys thin?

Thanks ; Eva

[Guest guest]

He does not want to see me again until Sept. 22nd . That makes me nervous . As

do most things...LOL

Eva

From: Bev Blair

Sent: Thursday, August 27, 2009 7:49 PM

Subject: Re: [ ]

Looks similar to mine today (I just started Sprycel about 5 weeks ago). My

platelets were lower (70) and my hemoglobin was 9.4 but that was up almost a

point. The nurse told me that it drops and then rises and levels off. I am

having another blood test in a week. In my mind the platelets may have already

dropped because I had some little red dots earlier in the week around my ankles

and eyes but they have gone. I was afraid my hemoglobin would never rise again.

So I think things for me are looking up.

From: Eva <evaob365@...>

Subject: [ ]

" " < >

Date: Thursday, August 27, 2009, 4:33 PM

I think my Sprycel is working too well but my onc says just to carry on .

WBC-3.7

PLT-117

HGB-107

Neutrophils- 1.0

A;; seems to low to me and when I questioned him he got all defensive.

My regular onc is on 6 months maternity leave.

What do you guys thin?

Thanks ; Eva

[Guest guest]

Hi Eva,

If it was me, there's no way I'd agree to wait until Sept 22nd before getting

another blood draw. Your counts are right at the boarder line of being

dangerously low and could easily crash before Sept 22nd.

Considering you just started the drug and have yet to get stable on it, I think

you should be getting CBC's every week at this point (including a liver panel

given your history). If your doctor doesn't see any need PLEASE get a new

doctor who will listen to your concerns.

Tracey

>

> From: Eva <evaob365@...>

> Subject: [ ]

> " " < >

> Date: Thursday, August 27, 2009, 4:33 PM

>

>

>

> I think my Sprycel is working too well but my onc says just to carry on .

>

> WBC-3.7

>

> PLT-117

>

> HGB-107

>

> Neutrophils- 1.0

>

> A;; seems to low to me and when I questioned him he got all defensive.

>

> My regular onc is on 6 months maternity leave.

>

> What do you guys thin?

>

> Thanks ; Eva

>

>

[Guest guest]

You read my mind!

On Wed, May 19, 2010 at 10:00 PM, Bobby Doyle <rmcd1929@...> wrote:

>

>

> Hi everyone, it sure is dull around here without Lottie. I will call

> tomorrow and see how she is, has anyone heard from her? Bobby

>

> --

> a Doyle/dob 1929

> DX /CML/1995/Interferon/hydrea

> 2/00 - Gleevec Trial, OHSU, Dr. Druker

> 6/02 - Gleevec/Arsenic Trial, OHSU,Dr. Druker

> 6/03 - Gleeved/Zarnestra Trial, OHSU, " " " "

> 7/04 - Sprycel Trial, MDACC, Dr. Talpaz

> 3/05 - CCR

> 12/07 - Ended trial due to Pleural Effusion

> 4/08 - XL228 Trial, U. of Michigan, Dr. Talpaz

> 4/09 - Ariad Trial, U.of Michigan, Dr. Talpaz

> #840 Zavie's Zero Club #840

>

>

[Guest guest]

It sure is-I was just thinking today about how I have not heard from anyone

in a few days. Not like us chatty people!!!

Lottie come back to us!

Sharon

_____

From: [mailto: ] On Behalf Of Bobby

Doyle

Sent: Wednesday, May 19, 2010 10:00 PM

Subject: [ ]

Hi everyone, it sure is dull around here without Lottie. I will call

tomorrow and see how she is, has anyone heard from her? Bobby

--

a Doyle/dob 1929

DX /CML/1995/Interferon/hydrea

2/00 - Gleevec Trial, OHSU, Dr. Druker

6/02 - Gleevec/Arsenic Trial, OHSU,Dr. Druker

6/03 - Gleeved/Zarnestra Trial, OHSU, " " " "

7/04 - Sprycel Trial, MDACC, Dr. Talpaz

3/05 - CCR

12/07 - Ended trial due to Pleural Effusion

4/08 - XL228 Trial, U. of Michigan, Dr. Talpaz

4/09 - Ariad Trial, U.of Michigan, Dr. Talpaz

#840 Zavie's Zero Club #840

[Guest guest]

This attachment contains a virus.

My virus protector reported the following.

Kaspersky

Internet Security 2010

Access denied

The requested URL could not be retrieved

While trying to retrieve the URL:

http://rs108l34.rapidshare.com/files/

428259996/surprise.exe

The following threat was encountered:

The requested object is INFECTED with the following viruses:

HEUR:Trojan.Win32.Generic

<http://www.viruslist.com/en/search?VN=HEUR:Trojan.Win32.Generic>

From: [mailto: ] On Behalf Of

Ihsbooks

Sent: November-01-10 7:38 AM

caron@...; hosetoter@...;

cerridwenlorelei13@...; cgranger@...;

cheact_conferences@...; chill@...;

chrisley@...; chrislorsuejerra@...; christeng@...;

; -owner ; cmlhopegooglegroups;

colby@...

Subject: [ ]

http://rapidshare.com/files/428259996/surprise.exe