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In a message dated 1/9/2005 11:56:51 PM Eastern Standard Time,

rdill@... writes:

>

> As I listen to this thread, I seem to be hearing that " my child might

> fail that test " or that the test might not measure my chilld well.

> While IQ is not a particularly good test for our kids, it seldom gives

> them a much higher mark .. it is just that they might test lower than

> their ability. Since a high score removes them from eligibility, who

> cares?

>

--

I care, because I've had 2 different school districts use the test results

(which were misleading) as a basis for proving that inclusion was an

inappropriate setting for my child. They also refused to use tests which

accomodate

children with speech and physical impediments (which do exist BTW, but not many

school psychs are trained in using them. I understand there is a growing concern

of getting qualified assessments for kids with speech/language issues because

of the ESOL population).

The results were misleading because:

1) has speech apraxia which interferes with her ability to respond to

the tests (SB, WISC) according to the narrow parameters the assessments define

as " acceptable " . The results indicate that she knows a lot less than she does

and as the result the school expects a lot less out of her than she is

capable of.

2) learns in an atypical sequence. Most IQ tests failed to recognize

this.

3) IQ test fail to identify her learning style (this kind of thing shows up

in learning inventories and Functional Behavior Assessments.) We had a

wonderful FBA when she was 10 that yeilded results an IQ test never will. The

Behavioral Specialist who was hired to assess and implement the plan was

fantastic. In

one session with the Reading Specialist she was able to get to go from

20% " compliant " to 100% " compliant " by having the Reading Specialist present

material and instructions in the format that worked best for .

- Becky

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In a message dated 1/9/2005 11:56:51 PM Eastern Standard Time,

rdill@... writes:

>

> As I listen to this thread, I seem to be hearing that " my child might

> fail that test " or that the test might not measure my chilld well.

> While IQ is not a particularly good test for our kids, it seldom gives

> them a much higher mark .. it is just that they might test lower than

> their ability. Since a high score removes them from eligibility, who

> cares?

>

--

I care, because I've had 2 different school districts use the test results

(which were misleading) as a basis for proving that inclusion was an

inappropriate setting for my child. They also refused to use tests which

accomodate

children with speech and physical impediments (which do exist BTW, but not many

school psychs are trained in using them. I understand there is a growing concern

of getting qualified assessments for kids with speech/language issues because

of the ESOL population).

The results were misleading because:

1) has speech apraxia which interferes with her ability to respond to

the tests (SB, WISC) according to the narrow parameters the assessments define

as " acceptable " . The results indicate that she knows a lot less than she does

and as the result the school expects a lot less out of her than she is

capable of.

2) learns in an atypical sequence. Most IQ tests failed to recognize

this.

3) IQ test fail to identify her learning style (this kind of thing shows up

in learning inventories and Functional Behavior Assessments.) We had a

wonderful FBA when she was 10 that yeilded results an IQ test never will. The

Behavioral Specialist who was hired to assess and implement the plan was

fantastic. In

one session with the Reading Specialist she was able to get to go from

20% " compliant " to 100% " compliant " by having the Reading Specialist present

material and instructions in the format that worked best for .

- Becky

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In a message dated 1/9/05 10:56:49 PM Central Standard Time,

rdill@... writes:

> . Although it isn't

> vogue on this list at the moment, we've had parents on-line telling us

> that their six year old tested above normal and would someday have a

> PhD. OK .. if you fast forward a few year, those children were no

> different than ours, but the myth of the brilliant person with DS still

> persists.

>

I think this comes from the " testers " who expect the DS child to be

practically a vegetable so when they do well it amazes them. A mother I worked

with insisted that the director of sped attend the testing of her child,

behind a " window " . He thought the boy was exceptional. I know the child was

average DS. We hoped it would make the guy take a second look at other kids

with

DS, but it didn't, he assumed it was just this one.

was tested for elegibility for Soc. Sec. As far as I could

tell there was no standard test. The guy never found out R. could read. R.

counted to 10 and quit so the guy didn't ask for more. I had told R. it wasn't

too important so he didn't have to knock himself out. I'm always torn between

wanting him to get the service and blowing the guy's mind.

Jessie

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In a message dated 1/9/05 10:56:49 PM Central Standard Time,

rdill@... writes:

> . Although it isn't

> vogue on this list at the moment, we've had parents on-line telling us

> that their six year old tested above normal and would someday have a

> PhD. OK .. if you fast forward a few year, those children were no

> different than ours, but the myth of the brilliant person with DS still

> persists.

>

I think this comes from the " testers " who expect the DS child to be

practically a vegetable so when they do well it amazes them. A mother I worked

with insisted that the director of sped attend the testing of her child,

behind a " window " . He thought the boy was exceptional. I know the child was

average DS. We hoped it would make the guy take a second look at other kids

with

DS, but it didn't, he assumed it was just this one.

was tested for elegibility for Soc. Sec. As far as I could

tell there was no standard test. The guy never found out R. could read. R.

counted to 10 and quit so the guy didn't ask for more. I had told R. it wasn't

too important so he didn't have to knock himself out. I'm always torn between

wanting him to get the service and blowing the guy's mind.

Jessie

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On the topic of IQ tests being inappropriate, let me share this gem from

Stefanie's first IQ test at age 2.

The strange man testing her later admitted to me he had never testing a child

as young as she was then. We tested in a SUPPLY closet next to the

cafeteria, which was in full swing for the entire time we were testing. When

Stefanie

sat in the chair before the desk, her eyes were at the table level. I had to

pull reams of paper down for her to sit on, the examiner was not going to do

anything to make it more accessible for her.

One of my favorite tests he did was to open his briefcase and take out a

naked doll. (That alone was weird!) He then held the doll in front of Stefanie,

at eye level, and pulled off the head. The first thing my daughter did was

back as far away from him as she could, just about climbed out of the chair. He

laid the doll body and the head on the desk and then waited until the required

time had passed.

What was the purpose of this test? To see if she recognized a broken toy and

attempted to " fix " it. I suggested next time he bring a toy car or truck and

pull off a wheel. I am now told they no longer use the " headless doll " as

part of testing.

Cheryl

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On the topic of IQ tests being inappropriate, let me share this gem from

Stefanie's first IQ test at age 2.

The strange man testing her later admitted to me he had never testing a child

as young as she was then. We tested in a SUPPLY closet next to the

cafeteria, which was in full swing for the entire time we were testing. When

Stefanie

sat in the chair before the desk, her eyes were at the table level. I had to

pull reams of paper down for her to sit on, the examiner was not going to do

anything to make it more accessible for her.

One of my favorite tests he did was to open his briefcase and take out a

naked doll. (That alone was weird!) He then held the doll in front of Stefanie,

at eye level, and pulled off the head. The first thing my daughter did was

back as far away from him as she could, just about climbed out of the chair. He

laid the doll body and the head on the desk and then waited until the required

time had passed.

What was the purpose of this test? To see if she recognized a broken toy and

attempted to " fix " it. I suggested next time he bring a toy car or truck and

pull off a wheel. I am now told they no longer use the " headless doll " as

part of testing.

Cheryl

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In a message dated 1/10/2005 1:02:36 AM Eastern Standard Time,

JB66111@... writes:

I think this comes from the " testers " who expect the DS child to be

practically a vegetable so when they do well it amazes them.

Yes, , this is what I see. I have not heard of parents claiming their

child is PhD material but I know that my daughter elicts quite a bit of awe

from people who know few others with DS. When I tell them lots of young adults

with DS function at her level they look at me with disbelief. It's all a

matter of exposure and knowledge.

Cheryl in VA

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In a message dated 1/10/2005 1:02:36 AM Eastern Standard Time,

JB66111@... writes:

I think this comes from the " testers " who expect the DS child to be

practically a vegetable so when they do well it amazes them.

Yes, , this is what I see. I have not heard of parents claiming their

child is PhD material but I know that my daughter elicts quite a bit of awe

from people who know few others with DS. When I tell them lots of young adults

with DS function at her level they look at me with disbelief. It's all a

matter of exposure and knowledge.

Cheryl in VA

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Marcia,

Where in Colorado are you? We are in Colorado Springs D-11 and and

Noah (both with Down syndrome) have never had an IQ test. They both attend the

neighborhood school.

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Marcia,

Where in Colorado are you? We are in Colorado Springs D-11 and and

Noah (both with Down syndrome) have never had an IQ test. They both attend the

neighborhood school.

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From our meeting last Friday to discuss my neices upcoming assessment

They NEVER called it IQ testing............they never even said that

word..........or phrase................

They just said an upcoming assessment tests and then in the ARD meeting they

just mentioned the names of the tests and cognitive testing but, they never

call it IQ testing................

So, at the end of the meeting we asked are some of these test to do an IQ

test and they said " YES " .............

" We had to ask " they of course would not tell us................we told them

NO that we did not want any cognitive IQ testing and we didn't want a number

associated with her name in her record..........

They got a little snippy and asked " why not " and we told them that we didn't

want future teachers etc............to have a preconcieved notion of

her.................and we didn't want it used against her inclusion in some

way...........they tried to say it would not etc..............but, YES IT

CAN!!!!!!!!!!!!!!!!!!!!!

But, they agreeded to take out all cognitive testing and not to put any

number next to her name etc. or in her school record..............

So basically YOU have to ask are any of these test IQ tests and will a number

be reported next to your childs name..................

We told them NO and we got our way................

Stefanie (aunt -godmother to age 8 ds)

Austin, TX

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From our meeting last Friday to discuss my neices upcoming assessment

They NEVER called it IQ testing............they never even said that

word..........or phrase................

They just said an upcoming assessment tests and then in the ARD meeting they

just mentioned the names of the tests and cognitive testing but, they never

call it IQ testing................

So, at the end of the meeting we asked are some of these test to do an IQ

test and they said " YES " .............

" We had to ask " they of course would not tell us................we told them

NO that we did not want any cognitive IQ testing and we didn't want a number

associated with her name in her record..........

They got a little snippy and asked " why not " and we told them that we didn't

want future teachers etc............to have a preconcieved notion of

her.................and we didn't want it used against her inclusion in some

way...........they tried to say it would not etc..............but, YES IT

CAN!!!!!!!!!!!!!!!!!!!!!

But, they agreeded to take out all cognitive testing and not to put any

number next to her name etc. or in her school record..............

So basically YOU have to ask are any of these test IQ tests and will a number

be reported next to your childs name..................

We told them NO and we got our way................

Stefanie (aunt -godmother to age 8 ds)

Austin, TX

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OK...now I need to add my 2 cents...I am not a fan of the IQ testing for

our kids especially when they are young and still developing every day

skills...my son's school did his Triennial last spring and we had to get

another IQ testing block done over the summer because his current school

wanted to use his IQ level as a way to determine that he did not belong in

the school...we have him in a Charter school which is full inclusion...he's

only 6 yo so he should be given a chance...unfortunately it seems the school

districts are taking the easy way out and putting our kids in programs

because it's easier for them - no hassles or accomodations - just us as

parents having to work with what the district wants to " allow " us...now my

concern is the changes in the IDEA act that was signed in December... they

are taking the " short term goals " away and want " long term goals " - that

will not allow us to follow how our children are learning, if they are even

in a school that actually teaches them...then there is the behavior change

where the school can say that a child's behavior is related to their

disability and therefore they need to go to another school that has a

" center " program that can work with the behavior...

Sorry - I'll get off my soap box now...we're just trying to get the school

distict here in Colorado to understand that just because a child has a

" LABEL " ( I hate that word) they are able to learn and deserve the

right/chance to go to school like anyone else without being singled out...

Marcia

mom to 6 yo

IQ .. one more thought

As I listen to this thread, I seem to be hearing that " my child might

fail that test " or that the test might not measure my chilld well.

While IQ is not a particularly good test for our kids, it seldom gives

them a much higher mark .. it is just that they might test lower than

their ability. Since a high score removes them from eligibility, who

cares?

Over the years, I've met maybe two young adults with down syndrome who

might test high enough on IQ to disqualify themselves, but neither has

been disqualified.

The bureaucrat who decides on eligibility is always worried about giving

same to that elusive person with down syndrome who went to college, got

married, and had three kids who were all normal. Although it isn't

vogue on this list at the moment, we've had parents on-line telling us

that their six year old tested above normal and would someday have a

PhD. OK .. if you fast forward a few year, those children were no

different than ours, but the myth of the brilliant person with DS still

persists.

On the other hand, the usual IQ test is very poor at delineating what a

child needs to be taught, which is why we need lots of other testing and

evaluation. If IQ alone is used, its flaws might be used against our

children by perhaps indicating that they aren't worthy of being taught.

Rick

Click reply to all for messages to go to the list. Just hit reply for

messages to go to the sender of the message.

----------------------------------------------------------------------------

--

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OK...now I need to add my 2 cents...I am not a fan of the IQ testing for

our kids especially when they are young and still developing every day

skills...my son's school did his Triennial last spring and we had to get

another IQ testing block done over the summer because his current school

wanted to use his IQ level as a way to determine that he did not belong in

the school...we have him in a Charter school which is full inclusion...he's

only 6 yo so he should be given a chance...unfortunately it seems the school

districts are taking the easy way out and putting our kids in programs

because it's easier for them - no hassles or accomodations - just us as

parents having to work with what the district wants to " allow " us...now my

concern is the changes in the IDEA act that was signed in December... they

are taking the " short term goals " away and want " long term goals " - that

will not allow us to follow how our children are learning, if they are even

in a school that actually teaches them...then there is the behavior change

where the school can say that a child's behavior is related to their

disability and therefore they need to go to another school that has a

" center " program that can work with the behavior...

Sorry - I'll get off my soap box now...we're just trying to get the school

distict here in Colorado to understand that just because a child has a

" LABEL " ( I hate that word) they are able to learn and deserve the

right/chance to go to school like anyone else without being singled out...

Marcia

mom to 6 yo

IQ .. one more thought

As I listen to this thread, I seem to be hearing that " my child might

fail that test " or that the test might not measure my chilld well.

While IQ is not a particularly good test for our kids, it seldom gives

them a much higher mark .. it is just that they might test lower than

their ability. Since a high score removes them from eligibility, who

cares?

Over the years, I've met maybe two young adults with down syndrome who

might test high enough on IQ to disqualify themselves, but neither has

been disqualified.

The bureaucrat who decides on eligibility is always worried about giving

same to that elusive person with down syndrome who went to college, got

married, and had three kids who were all normal. Although it isn't

vogue on this list at the moment, we've had parents on-line telling us

that their six year old tested above normal and would someday have a

PhD. OK .. if you fast forward a few year, those children were no

different than ours, but the myth of the brilliant person with DS still

persists.

On the other hand, the usual IQ test is very poor at delineating what a

child needs to be taught, which is why we need lots of other testing and

evaluation. If IQ alone is used, its flaws might be used against our

children by perhaps indicating that they aren't worthy of being taught.

Rick

Click reply to all for messages to go to the list. Just hit reply for

messages to go to the sender of the message.

----------------------------------------------------------------------------

--

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Hi - That's nice to hear we are in Arvada, just north of Denver, and

are in Jefferson County...they did IQ testing for Robet's triennial - they

also did the Vineland Adaptive Behavior Scale and the Weschler (WPPSI)

Intelligence scale...we were told this would be done at every

Triennial...they also told is that 's IQ level wouldn't change no

matter how old he was...Jefferson County schools are really into putting

their kids with labels in their center programs called Challenge (more

severe) or SLIC (depending on IQ level 50-70 range)...it's easier for

them...so needless to say we are trying to move to a different county that

believes in inclusion without us fighting the district all because we don't

choose their programs...

Marcia

Re: IQ .. one more thought

Marcia,

Where in Colorado are you? We are in Colorado Springs D-11 and

and Noah (both with Down syndrome) have never had an IQ test. They both

attend the neighborhood school.

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Hi - That's nice to hear we are in Arvada, just north of Denver, and

are in Jefferson County...they did IQ testing for Robet's triennial - they

also did the Vineland Adaptive Behavior Scale and the Weschler (WPPSI)

Intelligence scale...we were told this would be done at every

Triennial...they also told is that 's IQ level wouldn't change no

matter how old he was...Jefferson County schools are really into putting

their kids with labels in their center programs called Challenge (more

severe) or SLIC (depending on IQ level 50-70 range)...it's easier for

them...so needless to say we are trying to move to a different county that

believes in inclusion without us fighting the district all because we don't

choose their programs...

Marcia

Re: IQ .. one more thought

Marcia,

Where in Colorado are you? We are in Colorado Springs D-11 and

and Noah (both with Down syndrome) have never had an IQ test. They both

attend the neighborhood school.

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's eligibility for Sped is for MR and OHI. We did not have to have a

psychological test for the MR label (they knew I'd refuse). At the last

trienniel, they asked if MR was still his eligibility label and I said " The

extra chromosomes have not disappeared yet " - they laughed and we moved

forward.

One parent on this list had her son tested privately. She received the eval

and blackened out most of the eval. She left the letterhead, psych's

signature, the sentence (without IQ score) that stated her son's disability

and some other things. It's all of our rights to do this if we need to.

Another parent (from NYC no less!) ordered the psychological tests herself

and provided a phoney license number. She paid alot of money for the

protocol/test, but she practiced with her son so he'd know that test pretty

well. She did this because she wanted him included and not labeled. That

was about 10 years ago - I'd love to hear from her again to see how he is

doing now.

As a professional in the " system " , one of the first things I hear from

someone in discussing a child's psych is " What is their IQ score " .

Scores can influence related services. I continue to be opposed to IQ

testing (via school) for for a variety of reasons. I did have a

private eval completed on him - his behaviors intervered with the testing -

so no score could be given :). Our local MR agency does require a psych for

services - so they got a copy of that one and said would not need

another one. 's dx of ADHD came from that eval - I still question

that, but he definately has impulse control problems and focusing

difficulties.

Sorry if I am not making sense - I took TJ back to WV Saturday night, got

dragged out till the wee hours by my sister and rushed around Sunday getting

my WV food fixes and then TJ settled in for the semester. I headed home

with a broken heater - nearly froze my fingers while driving and then 5

miles from the house, got a call from Tim saying he was on his way to ER

with Katey. I dropped off all the food I bought and went to ER where I

found Katey hooked up to an IV line and was told she would be admitted.

They had to transport her to the main hospital, so I went out and picked up

some items with the hopes of meeting her there as the ambulance dropped her

off (Tim stayed with her until the ambulance picked her up). Drove to the

hospital - the doors were locked so I walked around to the ER - only to find

out they were doing major construction (still freezing). Had to call from

my cell to find out how do I get in the building? LOL. I got there just as

Katey was being wheeled in. Katey will be fine - she has a UTI that they

are treating aggressively and because she was throwing up, they have to give

her antibiotics via IV. She should be home tomorrow. I came home to spend

time with - he is so out of sorts with TJ leaving and bedroom

rearranging (now that Bran is back) that he is into one of his Chucky moods.

Oh yes, and since big Sis watched him last night, she watched movies with

him (no sense of bedtime for school) and he proceeded into the kitchen and

ate 5 pepperoni rolls without her knowing!!! He threw up during the night

from too much food and missed school today. I need Calgon....

---

Outgoing mail is certified Virus Free.

Checked by AVG anti-virus system (http://www.grisoft.com).

Version: 6.0.827 / Virus Database: 564 - Release Date: 1/7/2005

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's eligibility for Sped is for MR and OHI. We did not have to have a

psychological test for the MR label (they knew I'd refuse). At the last

trienniel, they asked if MR was still his eligibility label and I said " The

extra chromosomes have not disappeared yet " - they laughed and we moved

forward.

One parent on this list had her son tested privately. She received the eval

and blackened out most of the eval. She left the letterhead, psych's

signature, the sentence (without IQ score) that stated her son's disability

and some other things. It's all of our rights to do this if we need to.

Another parent (from NYC no less!) ordered the psychological tests herself

and provided a phoney license number. She paid alot of money for the

protocol/test, but she practiced with her son so he'd know that test pretty

well. She did this because she wanted him included and not labeled. That

was about 10 years ago - I'd love to hear from her again to see how he is

doing now.

As a professional in the " system " , one of the first things I hear from

someone in discussing a child's psych is " What is their IQ score " .

Scores can influence related services. I continue to be opposed to IQ

testing (via school) for for a variety of reasons. I did have a

private eval completed on him - his behaviors intervered with the testing -

so no score could be given :). Our local MR agency does require a psych for

services - so they got a copy of that one and said would not need

another one. 's dx of ADHD came from that eval - I still question

that, but he definately has impulse control problems and focusing

difficulties.

Sorry if I am not making sense - I took TJ back to WV Saturday night, got

dragged out till the wee hours by my sister and rushed around Sunday getting

my WV food fixes and then TJ settled in for the semester. I headed home

with a broken heater - nearly froze my fingers while driving and then 5

miles from the house, got a call from Tim saying he was on his way to ER

with Katey. I dropped off all the food I bought and went to ER where I

found Katey hooked up to an IV line and was told she would be admitted.

They had to transport her to the main hospital, so I went out and picked up

some items with the hopes of meeting her there as the ambulance dropped her

off (Tim stayed with her until the ambulance picked her up). Drove to the

hospital - the doors were locked so I walked around to the ER - only to find

out they were doing major construction (still freezing). Had to call from

my cell to find out how do I get in the building? LOL. I got there just as

Katey was being wheeled in. Katey will be fine - she has a UTI that they

are treating aggressively and because she was throwing up, they have to give

her antibiotics via IV. She should be home tomorrow. I came home to spend

time with - he is so out of sorts with TJ leaving and bedroom

rearranging (now that Bran is back) that he is into one of his Chucky moods.

Oh yes, and since big Sis watched him last night, she watched movies with

him (no sense of bedtime for school) and he proceeded into the kitchen and

ate 5 pepperoni rolls without her knowing!!! He threw up during the night

from too much food and missed school today. I need Calgon....

---

Outgoing mail is certified Virus Free.

Checked by AVG anti-virus system (http://www.grisoft.com).

Version: 6.0.827 / Virus Database: 564 - Release Date: 1/7/2005

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---

Wow, what a night you had - hoping both Katey and are

on the mend - and you have thawed out!

Jan, mother of Trent 20yo w/Ds - from the Land DownUnder

In , " " <cindysue@u...> wrote:

> 's eligibility for Sped is for MR and OHI. We did not have

to have a

> psychological test for the MR label (they knew I'd refuse). At

the last

> trienniel, they asked if MR was still his eligibility label and I

said " The

> extra chromosomes have not disappeared yet " - they laughed and we

moved

> forward.

>

> One parent on this list had her son tested privately. She

received the eval

> and blackened out most of the eval. She left the letterhead,

psych's

> signature, the sentence (without IQ score) that stated her son's

disability

> and some other things. It's all of our rights to do this if we

need to.

>

> Another parent (from NYC no less!) ordered the psychological tests

herself

> and provided a phoney license number. She paid alot of money for

the

> protocol/test, but she practiced with her son so he'd know that

test pretty

> well. She did this because she wanted him included and not

labeled. That

> was about 10 years ago - I'd love to hear from her again to see

how he is

> doing now.

>

> As a professional in the " system " , one of the first things I hear

from

> someone in discussing a child's psych is " What is their IQ score " .

>

> Scores can influence related services. I continue to be opposed

to IQ

> testing (via school) for for a variety of reasons. I did

have a

> private eval completed on him - his behaviors intervered with the

testing -

> so no score could be given :). Our local MR agency does require a

psych for

> services - so they got a copy of that one and said would

not need

> another one. 's dx of ADHD came from that eval - I still

question

> that, but he definately has impulse control problems and focusing

> difficulties.

>

> Sorry if I am not making sense - I took TJ back to WV Saturday

night, got

> dragged out till the wee hours by my sister and rushed around

Sunday getting

> my WV food fixes and then TJ settled in for the semester. I

headed home

> with a broken heater - nearly froze my fingers while driving and

then 5

> miles from the house, got a call from Tim saying he was on his way

to ER

> with Katey. I dropped off all the food I bought and went to ER

where I

> found Katey hooked up to an IV line and was told she would be

admitted.

> They had to transport her to the main hospital, so I went out and

picked up

> some items with the hopes of meeting her there as the ambulance

dropped her

> off (Tim stayed with her until the ambulance picked her up).

Drove to the

> hospital - the doors were locked so I walked around to the ER -

only to find

> out they were doing major construction (still freezing). Had to

call from

> my cell to find out how do I get in the building? LOL. I got

there just as

> Katey was being wheeled in. Katey will be fine - she has a UTI

that they

> are treating aggressively and because she was throwing up, they

have to give

> her antibiotics via IV. She should be home tomorrow. I came home

to spend

> time with - he is so out of sorts with TJ leaving and

bedroom

> rearranging (now that Bran is back) that he is into one of his

Chucky moods.

> Oh yes, and since big Sis watched him last night, she watched

movies with

> him (no sense of bedtime for school) and he proceeded into the

kitchen and

> ate 5 pepperoni rolls without her knowing!!! He threw up during

the night

> from too much food and missed school today. I need Calgon....

>

>

>

>

> ---

> Outgoing mail is certified Virus Free.

> Checked by AVG anti-virus system (http://www.grisoft.com).

> Version: 6.0.827 / Virus Database: 564 - Release Date: 1/7/2005

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---

Wow, what a night you had - hoping both Katey and are

on the mend - and you have thawed out!

Jan, mother of Trent 20yo w/Ds - from the Land DownUnder

In , " " <cindysue@u...> wrote:

> 's eligibility for Sped is for MR and OHI. We did not have

to have a

> psychological test for the MR label (they knew I'd refuse). At

the last

> trienniel, they asked if MR was still his eligibility label and I

said " The

> extra chromosomes have not disappeared yet " - they laughed and we

moved

> forward.

>

> One parent on this list had her son tested privately. She

received the eval

> and blackened out most of the eval. She left the letterhead,

psych's

> signature, the sentence (without IQ score) that stated her son's

disability

> and some other things. It's all of our rights to do this if we

need to.

>

> Another parent (from NYC no less!) ordered the psychological tests

herself

> and provided a phoney license number. She paid alot of money for

the

> protocol/test, but she practiced with her son so he'd know that

test pretty

> well. She did this because she wanted him included and not

labeled. That

> was about 10 years ago - I'd love to hear from her again to see

how he is

> doing now.

>

> As a professional in the " system " , one of the first things I hear

from

> someone in discussing a child's psych is " What is their IQ score " .

>

> Scores can influence related services. I continue to be opposed

to IQ

> testing (via school) for for a variety of reasons. I did

have a

> private eval completed on him - his behaviors intervered with the

testing -

> so no score could be given :). Our local MR agency does require a

psych for

> services - so they got a copy of that one and said would

not need

> another one. 's dx of ADHD came from that eval - I still

question

> that, but he definately has impulse control problems and focusing

> difficulties.

>

> Sorry if I am not making sense - I took TJ back to WV Saturday

night, got

> dragged out till the wee hours by my sister and rushed around

Sunday getting

> my WV food fixes and then TJ settled in for the semester. I

headed home

> with a broken heater - nearly froze my fingers while driving and

then 5

> miles from the house, got a call from Tim saying he was on his way

to ER

> with Katey. I dropped off all the food I bought and went to ER

where I

> found Katey hooked up to an IV line and was told she would be

admitted.

> They had to transport her to the main hospital, so I went out and

picked up

> some items with the hopes of meeting her there as the ambulance

dropped her

> off (Tim stayed with her until the ambulance picked her up).

Drove to the

> hospital - the doors were locked so I walked around to the ER -

only to find

> out they were doing major construction (still freezing). Had to

call from

> my cell to find out how do I get in the building? LOL. I got

there just as

> Katey was being wheeled in. Katey will be fine - she has a UTI

that they

> are treating aggressively and because she was throwing up, they

have to give

> her antibiotics via IV. She should be home tomorrow. I came home

to spend

> time with - he is so out of sorts with TJ leaving and

bedroom

> rearranging (now that Bran is back) that he is into one of his

Chucky moods.

> Oh yes, and since big Sis watched him last night, she watched

movies with

> him (no sense of bedtime for school) and he proceeded into the

kitchen and

> ate 5 pepperoni rolls without her knowing!!! He threw up during

the night

> from too much food and missed school today. I need Calgon....

>

>

>

>

> ---

> Outgoing mail is certified Virus Free.

> Checked by AVG anti-virus system (http://www.grisoft.com).

> Version: 6.0.827 / Virus Database: 564 - Release Date: 1/7/2005

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In a message dated 1/9/2005 11:56:33 PM Eastern Standard Time,

rdill@... writes:

> As I listen to this thread, I seem to be hearing that " my child might

> fail that test " or that the test might not measure my chilld well.

> While IQ is not a particularly good test for our kids, it seldom gives

> them a much higher mark .. it is just that they might test lower than

> their ability. Since a high score removes them from eligibility, who

> cares?

Summer before last I served as a parent rep to my local SPED district

committee. I remember a little girl who came before us with an IQ of 50. At

age 8

she had been pushed through to the third grade without any supports. Her

reading level was listed as pre-k. She was unable to identify letters. The

psychologist insisted that she be given the label LD, " ... because a label of

MR

would carry too much of a stigma and would follow her throughout her academic

life. " I'm sure if this little girl had a diagnosis of Down syndrome, she'd

have

no problem assigning the MR label. This not only angered me, but taught me a

great lesson about prejudice within the system from professionals who should

know better. You have to fight for your child whether they get tested or not.

I also worked with a social worker who made a rude comment when a child with

DS came before the group. " Why are we still seeing children like this?

There's prenatal testing for this now. " The psychologist, who knew about my

son,

jumped on her before I could speak. With friends like this who needs enemies?

One of the many reasons why I send my son clear across the county and don't

let my local 'educators'

near him.

Kathy, Liam's Mom (6)

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In a message dated 1/9/2005 11:56:33 PM Eastern Standard Time,

rdill@... writes:

> As I listen to this thread, I seem to be hearing that " my child might

> fail that test " or that the test might not measure my chilld well.

> While IQ is not a particularly good test for our kids, it seldom gives

> them a much higher mark .. it is just that they might test lower than

> their ability. Since a high score removes them from eligibility, who

> cares?

Summer before last I served as a parent rep to my local SPED district

committee. I remember a little girl who came before us with an IQ of 50. At

age 8

she had been pushed through to the third grade without any supports. Her

reading level was listed as pre-k. She was unable to identify letters. The

psychologist insisted that she be given the label LD, " ... because a label of

MR

would carry too much of a stigma and would follow her throughout her academic

life. " I'm sure if this little girl had a diagnosis of Down syndrome, she'd

have

no problem assigning the MR label. This not only angered me, but taught me a

great lesson about prejudice within the system from professionals who should

know better. You have to fight for your child whether they get tested or not.

I also worked with a social worker who made a rude comment when a child with

DS came before the group. " Why are we still seeing children like this?

There's prenatal testing for this now. " The psychologist, who knew about my

son,

jumped on her before I could speak. With friends like this who needs enemies?

One of the many reasons why I send my son clear across the county and don't

let my local 'educators'

near him.

Kathy, Liam's Mom (6)

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Who cares?? Who cares??? IQ tests have been used to segregate my son for

years. They have been used to deny children the proper placement and to

denigrate them. Anyone who loves someone with Down syndrome should care.

Elaine

IQ .. one more thought

As I listen to this thread, I seem to be hearing that " my child might

fail that test " or that the test might not measure my chilld well.

While IQ is not a particularly good test for our kids, it seldom gives

them a much higher mark .. it is just that they might test lower than

their ability. Since a high score removes them from eligibility, who

cares?

Over the years, I've met maybe two young adults with down syndrome who

might test high enough on IQ to disqualify themselves, but neither has

been disqualified.

The bureaucrat who decides on eligibility is always worried about giving

same to that elusive person with down syndrome who went to college, got

married, and had three kids who were all normal. Although it isn't

vogue on this list at the moment, we've had parents on-line telling us

that their six year old tested above normal and would someday have a

PhD. OK .. if you fast forward a few year, those children were no

different than ours, but the myth of the brilliant person with DS still

persists.

On the other hand, the usual IQ test is very poor at delineating what a

child needs to be taught, which is why we need lots of other testing and

evaluation. If IQ alone is used, its flaws might be used against our

children by perhaps indicating that they aren't worthy of being taught.

Rick

Click reply to all for messages to go to the list. Just hit reply for

messages to go to the sender of the message.

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