Re: HI - I'm New !!!!!!!!!!!

[Guest guest]

In a message dated 12/20/04 3:53:16 PM, kim_kanan@... writes:

<< Kim - Reiyan's Mom >>

That's a good one to go by!

~ Mom to 14 DS and Diabetes Type 1 and 10 NYC

[Guest guest]

In a message dated 12/20/04 3:53:16 PM, kim_kanan@... writes:

<< Kim - Reiyan's Mom >>

That's a good one to go by!

~ Mom to 14 DS and Diabetes Type 1 and 10 NYC

[Guest guest]

Whoops! There are two Kims - What do you think I should go by then??

----------- Kim Kanan ----- Kim - Reiyan's Mom or ???? Do you have any

suggestions

" Doll, Kim L " <KLDoll@...> wrote:Welcome to the group.

-Thanks!

Kim

HI - I'm New !!!!!!!!!!!

Hello. My name is Kim. I am a SAHM of 4. I have 5 year old twins

(Boy- Ali, Girl- Jennah), a 3 year old son, Noah --- and my little guy

Reiyan (pronounced Ray Yawn). Reiyan is 11 months old and has DS - he

is also a 27 week preemie.

Just so that you can get to know him - He has a lot of medical problems

- challenges. He has 4 problems with his lungs (3 are caused by

prematurity and one becasue of Downs) he has - Pulmonary Hypertention

(caused by Downs) he also has Hypoplatia (small lungs) and CLD (cronic

lung disease) and his arteries going into his lungs are small. To top

all this off he had a Heart Defect (which I'm sue many of you have had

to deal with) ASD - repaired after he had heart failure on 4th of July

weekend. He had Failure to thrive so now he has a fundoplication

(wrapping the stomache around the esophagus so he can't throw up) and a

g-tube (which has been a bit of a struggle getting to understand how

much my son needs etc... These are his major problems - he also has

clogged tear ducts and completely closed ear canals so his hearing is

quite muffled. The doctors say 50% deaf in one ear and 75% deaf in the

other.

I only told you this to get to know him - as far as his downs goes - he

has very low muscle tone and is only just now starting to roll over and

if he does roll to his tummy - his arms get stuck - He is a total

charmer - the Nurses love him - he is very visual and vocal.

I sent a pic to go along with this email

Thanks for letting me in on your group! Kim

---------------------------------

Do you ?

Send holiday email and support a worthy cause. Do good.

[Guest guest]

Whoops! There are two Kims - What do you think I should go by then??

----------- Kim Kanan ----- Kim - Reiyan's Mom or ???? Do you have any

suggestions

" Doll, Kim L " <KLDoll@...> wrote:Welcome to the group.

-Thanks!

Kim

HI - I'm New !!!!!!!!!!!

Hello. My name is Kim. I am a SAHM of 4. I have 5 year old twins

(Boy- Ali, Girl- Jennah), a 3 year old son, Noah --- and my little guy

Reiyan (pronounced Ray Yawn). Reiyan is 11 months old and has DS - he

is also a 27 week preemie.

Just so that you can get to know him - He has a lot of medical problems

- challenges. He has 4 problems with his lungs (3 are caused by

prematurity and one becasue of Downs) he has - Pulmonary Hypertention

(caused by Downs) he also has Hypoplatia (small lungs) and CLD (cronic

lung disease) and his arteries going into his lungs are small. To top

all this off he had a Heart Defect (which I'm sue many of you have had

to deal with) ASD - repaired after he had heart failure on 4th of July

weekend. He had Failure to thrive so now he has a fundoplication

(wrapping the stomache around the esophagus so he can't throw up) and a

g-tube (which has been a bit of a struggle getting to understand how

much my son needs etc... These are his major problems - he also has

clogged tear ducts and completely closed ear canals so his hearing is

quite muffled. The doctors say 50% deaf in one ear and 75% deaf in the

other.

I only told you this to get to know him - as far as his downs goes - he

has very low muscle tone and is only just now starting to roll over and

if he does roll to his tummy - his arms get stuck - He is a total

charmer - the Nurses love him - he is very visual and vocal.

I sent a pic to go along with this email

Thanks for letting me in on your group! Kim

---------------------------------

Do you ?

Send holiday email and support a worthy cause. Do good.

[Guest guest]

Hi, Kim,

Welcome to the group. Sorry to hear that little Reiyan's plate is so

full just now, too many issues. Just tell him to do the best he can. That

first year or two can be pretty rugged.

My son Charlie was a 30 weeker, and probably thanks to IUGR birth

weight was only 1130 grams, just less than 2 1/2 lbs. Early on his main

issue was congenital cataracts, had his first cataract surgery at 6 days

old. Took him a full 10 weeks to graduate NICU. But he's 5 1/2 yrs old now

and pretty darn healthy.

Know of a couple of kids who had that difficult combination, preemie

with Ds.

I didn't get to see Reiyan's picture because I read the archives on

the web. My loss. If you wanted to check out my guy, his web page is at

http://home.earthlink.net/~wrblack/

Regards,

Bob, Charlie's dad

[Guest guest]

Hi, Kim,

Welcome to the group. Sorry to hear that little Reiyan's plate is so

full just now, too many issues. Just tell him to do the best he can. That

first year or two can be pretty rugged.

My son Charlie was a 30 weeker, and probably thanks to IUGR birth

weight was only 1130 grams, just less than 2 1/2 lbs. Early on his main

issue was congenital cataracts, had his first cataract surgery at 6 days

old. Took him a full 10 weeks to graduate NICU. But he's 5 1/2 yrs old now

and pretty darn healthy.

Know of a couple of kids who had that difficult combination, preemie

with Ds.

I didn't get to see Reiyan's picture because I read the archives on

the web. My loss. If you wanted to check out my guy, his web page is at

http://home.earthlink.net/~wrblack/

Regards,

Bob, Charlie's dad

[Guest guest]

HI Kim

Welcome to the group My daughter Sara (age 13) had the heart repair stuff

at age 10 months and also like at age 7, was dx with epilepsy. Right

now the meds are keeping it controlled but it is the month of Dec and it

seems every yr. in Dec we have a major episode ............ leading to a

hospital stay. Fingers crossed we will skip it this month

By the way ......... how does everyone like my snowman below heehee my

cousin (age 14) sent it to me after she heard that they are forecasting a winter

storm to hit us tomorrow night. Its been in the teens lately so Im hoping this

storm hits!!!!!!!!

Memphis wont know what to do heehee

Kathy mom to Sara 13

..--..

/___, \

(_____)(_)

( ' <

' )

######

>-/# : \-<

( # : )

\ /

[Guest guest]

HI Kim

Welcome to the group My daughter Sara (age 13) had the heart repair stuff

at age 10 months and also like at age 7, was dx with epilepsy. Right

now the meds are keeping it controlled but it is the month of Dec and it

seems every yr. in Dec we have a major episode ............ leading to a

hospital stay. Fingers crossed we will skip it this month

By the way ......... how does everyone like my snowman below heehee my

cousin (age 14) sent it to me after she heard that they are forecasting a winter

storm to hit us tomorrow night. Its been in the teens lately so Im hoping this

storm hits!!!!!!!!

Memphis wont know what to do heehee

Kathy mom to Sara 13

..--..

/___, \

(_____)(_)

( ' <

' )

######

>-/# : \-<

( # : )

\ /

[Guest guest]

welcome to the group Kim

You cant attach photos or anything on this list

If you go to the page on you can start your own

gallery there where we can see pics

> Found a newer pic - I attached it

>

>

>

--

Aussie Leis- mum to BJ - 7 - ds, Natasha 2.5 and 1

" The happiness of a man in this life does not consist in the absence but in the

mastery of his passions. "

Alfred Lord Tennyson (1809 - 1892)

[Guest guest]

welcome to the group Kim

You cant attach photos or anything on this list

If you go to the page on you can start your own

gallery there where we can see pics

> Found a newer pic - I attached it

>

>

>

--

Aussie Leis- mum to BJ - 7 - ds, Natasha 2.5 and 1

" The happiness of a man in this life does not consist in the absence but in the

mastery of his passions. "

Alfred Lord Tennyson (1809 - 1892)

[Guest guest]

In a message dated 12/20/04 10:25:12 P.M. Central Standard Time,

b4alltoday@... writes:

how does everyone like my snowman below heehee my

cousin (age 14) sent it to me after she heard that they are forecasting a

winter

storm to hit us tomorrow night. Its been in the teens lately so Im hoping

this

storm hits!!!!!!!!

Memphis wont know what to do heehee

I love your snowman Kathy and you are right, if the snow flies Memphis won't

know what hit them. When I was in college, Middle Tenn. State, there was a

snowstorm,and I use that term lightly as there was all of maybe 2 inches. We

(my brother and I) were driving and there were accidents all over the place.

Growing up in New York with the traffic and the snow I was amazed at how a

little snow could cause everything to come to a halt in Tenn. It was really

funny!

Loree

[Guest guest]

In a message dated 12/20/04 10:25:12 P.M. Central Standard Time,

b4alltoday@... writes:

how does everyone like my snowman below heehee my

cousin (age 14) sent it to me after she heard that they are forecasting a

winter

storm to hit us tomorrow night. Its been in the teens lately so Im hoping

this

storm hits!!!!!!!!

Memphis wont know what to do heehee

I love your snowman Kathy and you are right, if the snow flies Memphis won't

know what hit them. When I was in college, Middle Tenn. State, there was a

snowstorm,and I use that term lightly as there was all of maybe 2 inches. We

(my brother and I) were driving and there were accidents all over the place.

Growing up in New York with the traffic and the snow I was amazed at how a

little snow could cause everything to come to a halt in Tenn. It was really

funny!

Loree