Re: is everyoen okay tiem to check in !!!

[Guest guest]

On Nov 9, 2009, at 8:07 PM, LIghtingpaw wrote:

> i was wonderign the same thing is everybody okay time to check in?

Hi folks--

Well, I'll start. For some reason, I'm in a period of near-crippling

fear. I'm riding my bike all over the place, I'm bellydancing--I'm

doing so, so much better than I ever expected after my arrest! And

yet, not a minute goes by that I'm not constantly checking in

expectation that something is wrong. It's been three and a half years.

Will I ever stop being afraid?

Lynn S.

------

Mama, homeschooler, writer, activist, spinner & knitter

Main site: http://www.siprelle.com

For feminist homemakers: http://www.TheNewHomemaker.com

NOTICE: The National Security Agency may have read this email without

warning, warrant, or notice.

[Guest guest]

no i dont think you ever stop being affriad but i do think at soem point we learn to live with the fear and better ways of handleing it ! but i tdont think the fearn ever totaly goes away for soem it might but for me it remain but there again i ahve been shocked so minny times it's ahrd to to be fearful

stacie> i was wonderign the same thing is everybody okay time to check in?Hi folks--Well, I'll start. For some reason, I'm in a period of near-crippling fear. I'm riding my bike all over the place, I'm bellydancing- -I'm doing so, so much better than I ever expected after my arrest! And yet, not a minute goes by that I'm not constantly checking in expectation that something is wrong. It's been three and a half years. Will I ever stop being afraid?Lynn S.------Mama, homeschooler, writer, activist, spinner & knitterMain site: http://www.siprelle .comFor feminist homemakers: http://www.TheNewHo memaker.comNOTICE: The National Security Agency may have read this email without warning, warrant,

or notice.

[Guest guest]

From: Lynn Siprelle <

For some reason, I'm in a period of near-crippling fear.

There are lots of good reasons to be in near crippling fear.

For husbands there is always the possibility that the wife will

come home unexpectedly and find you sleepig comfortably

between the arms of . . . the Laz-E-Boy recliner.

And for wives there is always the fear that the husband will

come homre unexpectedly and find out that the wonderful

meals you have ready for him everyday after work are really

frozen entrees from the supermarket.

Then there is the fear that all of those magnets stuck on

your refrigerator door that hold up your grandchildren's

artwork will shut down your defibrillator.

There is also the fear that not only will your defibrillator go

off suddenly upon opening your hospital bill, but it will also

recruit the bladder and sphincter muscle to join in on the

bodily attack.

There is the fear that the defibrillator will go off while you are

in church and the involuntary gutteral sounds that come from

your body will be mistaken by the congregation for a heathen

chant to false pagan gods and you will be barred for life from

all church bake sales.

There is the fear that you will mistakenly go through an airport

metal detector and cause your defibrillator to fire and make a

noise that will have a three hundred and fifty pound Homeland

Security agent with a handelbar mustache and a tatoo of Rosie

O'Donnell (or just a tatoo of Rosie O'Donnell with a handlebar

mustache) decide to give you a full body cavity search.

There is the fear that your defibrillator will go off and you will fall

to the ground squealing and the neighbor's pit bull will think you

are a female dog in heat.

There is the fear that your defibrilator will fire and the emanating

electromagnetic waves will permanently switch your cable

television to the weather channel.

There is the very real fear that your defibrillator will go off during

sex and your partner will think you are dying.

There is the very real fear that your defibrillator will not go off

during sex and your partner will think that you are already dead.

I'm riding my bike all over the place,

So you're the one that left tire tracks on my living room floor!

I'm bellydancing--I'm doing so, so much better than I ever

expected after my arrest!

I, on the other hand, would definitely be arrested after I tried

to belly dance.

And yet, not a minute goes by that I'm not constantly checking

in expectation that something is wrong.

We husbands do not have that problem. we do not need to

check on whether something is wrong. Our wives tell us that

there always is. and it's our fault.

It's been three and a half years.

Don't ask what it has been three and a half years since for me.

I'll give you a hint. My wife;s lingerie is made of linoleum.

Will I ever stop being afraid?

Only if you have my e-mails deleted before they reach your in-box.

From California where my cardiologist's nurse slapped me because I called my defiobrillator the family joules.

Bill

[Guest guest]

Dear me! Folk should give themselves a break.

BG often takes to his bed, never mind a recliner, for a nap. I didn't know I was supposed to

mind.

He makes his own meals, as I do mine - such as they are .

I've done the 'no bills with the Brit NHS' speech before. Soon you will have 'Obama-care' -

and not need to be jealous any more?

To fear anything happening in church, you have to go there in the first place. I don't. Nor

do I visit airports. And pitbulls are, thankfully, illegal here (S.Palin take note!).

No sex, please - we're British!

I'll never have any grandkids of course, but standing near the fridge, arrayed as it is with

magnets holding nothing, is probably the nearest I get to excitement in my life... (which is exactly

how I like it!).

Leonie.

PS. If my ICD ever DOES zap me, is there a sure way to wipe the data so the thing won't

'shop' me next time I get a box-check?

From: billandmarthamahan@...Date: Mon, 9 Nov 2009 23:39:03 -0800Subject: Re: is everyoen okay tiem to check in !!!

From: Lynn Siprelle <

For some reason, I'm in a period of near-crippling fear.

There are lots of good reasons to be in near crippling fear.

For husbands there is always the possibility that the wife will

come home unexpectedly and find you sleepig comfortably

between the arms of . . . the Laz-E-Boy recliner.

And for wives there is always the fear that the husband will

come homre unexpectedly and find out that the wonderful

meals you have ready for him everyday after work are really

frozen entrees from the supermarket.

Then there is the fear that all of those magnets stuck on

your refrigerator door that hold up your grandchildren's

artwork will shut down your defibrillator.

There is also the fear that not only will your defibrillator go

off suddenly upon opening your hospital bill, but it will also

recruit the bladder and sphincter muscle to join in on the

bodily attack.

There is the fear that the defibrillator will go off while you are

in church and the involuntary gutteral sounds that come from

your body will be mistaken by the congregation for a heathen

chant to false pagan gods and you will be barred for life from

all church bake sales.

There is the fear that you will mistakenly go through an airport

metal detector and cause your defibrillator to fire and make a

noise that will have a three hundred and fifty pound Homeland

Security agent with a handelbar mustache and a tatoo of Rosie

O'Donnell (or just a tatoo of Rosie O'Donnell with a handlebar

mustache) decide to give you a full body cavity search.

There is the fear that your defibrillator will go off and you will fall

to the ground squealing and the neighbor's pit bull will think you

are a female dog in heat.

There is the fear that your defibrilator will fire and the emanating

electromagnetic waves will permanently switch your cable

television to the weather channel.

There is the very real fear that your defibrillator will go off during

sex and your partner will think you are dying.

There is the very real fear that your defibrillator will not go off

during sex and your partner will think that you are already dead.

I'm riding my bike all over the place,

So you're the one that left tire tracks on my living room floor!

I'm bellydancing--I'm doing so, so much better than I ever

expected after my arrest!

I, on the other hand, would definitely be arrested after I tried

to belly dance.

And yet, not a minute goes by that I'm not constantly checking

in expectation that something is wrong.

We husbands do not have that problem. we do not need to

check on whether something is wrong. Our wives tell us that

there always is. and it's our fault.

It's been three and a half years.

Don't ask what it has been three and a half years since for me.

I'll give you a hint. My wife;s lingerie is made of linoleum.

Will I ever stop being afraid?

Only if you have my e-mails deleted before they reach your in-box.

From California where my cardiologist's nurse slapped me because I called my defiobrillator the family joules.

Bill

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[Guest guest]

Hi all - -

I'm one of those "lurkers" who sees all the email from the list but has little to contribute, so I don't add things here just to show up.

But since you asked for a "check in" - -

I had my ICD installed 2 years ago, following a diagnosis of heart failure a year earlier. I had passed out after a coughing fit (I had inadvertently swallowed a couple of flying insects while talking on the phone outside!) so, given my history, the ICD was implanted. Just 3 weeks before I was Medicare-eligible so I had a year-long battle with my insurance company (Regents Blue Shield in Washington state) which I finally won after a lot of persistence.

I travel full-time with my partner in a 5th wheel trailer around the country. I am in Palm Springs at the moment. I check in with my EP in Tucson about once a year and phone in my ICD data every few months from wherever I am; and all seems to be going fine. I have never been zapped nor paced, the battery is holding up, and the recalled, defective lead from Medtronics, which I got about a week before the recall(!) is doing fine, too. In fact, I rarely even think about it anymore.

Early on I came across a book which I feel has given me some info that has contributed to my staying stable and, I think, even improving over these two years. The book is "Reverse Heart Disease Now" by Sinatra. Based largely on Sinatra's recommendations, I take bunches of supplements along with a couple of Rx's.

I feel lucky about my health status at this time, and I know there are many of us with ICD's who have similar experience for quite a while (and therefore don't say much here, I suspect.) I'm glad, nevertheless, to be on this list, for I learn a lot about what others are going through (and what I may anticipate going through in the future.)

Bill H.

[Guest guest]

Hi everyone,

I am doing OK here in MA. I hope everyone else is doing OK too.

Sydney

-- is everyoen okay tiem to check in !!!

i was wonderign the same thing is everybody okay time to check in?

[Guest guest]

Dear Lynn;

My fear started disappearing after about 3 to 4 years and now i just continue living my life. Just remember we have an advantage that we are carrying our doctors and nurses inside our chest. Not everyone is so lucky. Live your life as best as you can. Thats all we can do. No matter what life is beautiful. Take care,

Kind regards,

TURK

From: Lynn Siprelle <lynn@...> Sent: Mon, November 9, 2009 11:28:52 PMSubject: Re: is everyoen okay tiem to check in !!!

On Nov 9, 2009, at 8:07 PM, LIghtingpaw wrote:> i was wonderign the same thing is everybody okay time to check in?Hi folks--Well, I'll start. For some reason, I'm in a period of near-crippling fear. I'm riding my bike all over the place, I'm bellydancing- -I'm doing so, so much better than I ever expected after my arrest! And yet, not a minute goes by that I'm not constantly checking in expectation that something is wrong. It's been three and a half years. Will I ever stop being afraid?Lynn S.------Mama, homeschooler, writer, activist, spinner & knitterMain site: http://www.siprelle.comFor feminist homemakers: http://www.TheNewHomemaker.comNOTICE: The National Security Agency may have read this email without warning, warrant, or notice.

[Guest guest]

Hi everyone,

Mark is doing very well. Had his annual ICD check last week and everything is good. There were no runs of anything on his report and he is only using the left lead that is pacing his lower( I think) ventricle 96% of the time. The other ventricle is working fine on its own and is not using the right lead. His EF has gone from 10 to 30-35 and his heart has shrunk 21/2 centimeters since he was diagnosed with cardiomyopathy in 3/07. My biggest worry now is that our 15 year old son has started taking flying lessons. I actually went with him strapped into the back seat on the first one. It is very difficult for me, because I have always been terrified of flying and up until that day, took atavan to fly. I am getting better, but it is going to be very hard for me to let him go without me. Another worry is that Mark's nephew passed out last weekend and the med center finally caught his heart in VIfib on

the EKG. This has happened to him over the years, but they have never been able to find anything wrong. He has to wear a monitor for 30 days and hopefully, they will find out what is wrong and let us know if it is a genetic problem. His dad (Mark's twin) has a full left bundle block that is untreated, as he says it's only stopped a few times. His other brother almost died last week when his blood sugar went into the 1300's and his ICD went off 7 timees. Amazingly enough, he didn't go into a coma and went home after a few days. I am worried, because our son had a dizzy spell on 07 and we have had to take him to a cardiologist here a couple of times because they saw something in his first EKG and have been watching him for LQT. If there is something genetic, I just want to find it so it can be treated. Also, if he has a heart problem, he won't be able to have his pilot's license. It would

devastate him, but he would rather know now before he spends the $45,000 plus tuition to get his commercial pilot's license. I know, the economy is pretty bad for pilots, but this has been his dream since he was very little. His instructor told me that he'd never seen anyone jsut get in the plane and fly like him without instructions. I was very proud of him as I hung onto the back of his seat for dear life. He learned it all from flying online with his flight simulator for several years. I hope that everyone else is doing well.

Mark and Bonnie

From: LIghtingpaw <lightingpaw@...>Subject: is everyoen okay tiem to check in !!! Date: Monday, November 9, 2009, 10:07 PM

i was wonderign the same thing is everybody okay time to check in?