EF

[Guest guest]

hi guin and all well got a phone call from the VA hospital said to call my EP asap and go in to see him said i have a problem with my device, called my EP and will go in on Wednesday, they would not tellme what is wrong jsut that i had to get in asap. now im all worried and upset just took to pain meds so ican relax and be able to sleep tonight. think its time for a good swig of Jack daniels. Since this thing went off two weeks ago have been really tired and cal fall asleep almost anytime wonderng if this has something to do with my icd any thoughts? anyone? sure could use some cheer right now. crap am not ready to go yet lol. take care all john in az

From: Candi <candi51gmail (DOT) com>Subject: Left Ventricle Non Compaction@groups .comDate: Sunday, July 20, 2008, 8:45 AM

Hello- I was diagnosed with Left Ventricle Non Compaction in January. I am 31 yrs old. My EF is getting slightly better now that I am on meds- Ace inhib, beta blocker, HCTZ, etc. We have gone from talking transplant all the way to just treating with meds and watching.There were many studies that showed one of reasons for the high mortality of this condition could be linked to sudden cardiac death due to Vfib so my Dr's decided I needed an ICD. This is fine with me because it does give me peace of mind that I won't just keel over. It's seems to be that same dilema probably alot of us have- "not crazy about having this thing in my chest but it is the lesser of the evils" mentality. I only have one lead at this time but they can add up to 3 momore if my EF decreases and I need to be paced.Anyhow- I am trying to locate more people with this condition and am in the process of setting up a

website with info for patients and families with info about LVNC and to create a community so the LVNC'ers can contact each other. So far I have met one woman in Canada, one in Massachusetts, and one man in London with this condition. I am in Illinois. We are all being treated very differently and have enjoyed "comparing notes" so to say.If anyone has been diagnosed with this condition or has any experience wit this type of cardiomyopathy, I would love to hear from you.Thanks for reading!And thanks to the moderators and all who post- this is a great resource!Candi

[Guest guest]

Hey ;

Gee they sure took their time letting you know.... I think you said you have a Medtronic -- probably not one on the recall list - or the recalled leads???

In any event. I would stay calm. Sounds like you are with the alcohol!!!! As I remember your EP is about an hour drive?? Too bad he cannot see you tomorrow - I would have been more demanding to know WHAT is WRONG with my ICD... Any way I would not worry too much - as I believe you units is programmed like mine and the others which is to do a self test each day at a particular time and programmed to sound at a particular time each day to let you know there is a problem. Even at the warning tone - you still have plenty of time to get into see your EP.

I assume the VA Hosp will call your Ep and let them know what they have found - or at least fax the report to your Doc?????

Do Keep us posted.

Try to Relax,

~guin

-CA

Left Ventricle Non Compaction@groups .comDate: Sunday, July 20, 2008, 8:45 AM

Hello- I was diagnosed with Left Ventricle Non Compaction in January. I am 31 yrs old. My EF is getting slightly better now that I am on meds- Ace inhib, beta blocker, HCTZ, etc. We have gone from talking transplant all the way to just treating with meds and watching.There were many studies that showed one of reasons for the high mortality of this condition could be linked to sudden cardiac death due to Vfib so my Dr's decided I needed an ICD. This is fine with me because it does give me peace of mind that I won't just keel over. It's seems to be that same dilema probably alot of us have- "not crazy about having this thing in my chest but it is the lesser of the evils" mentality. I only have one lead at this time but they can add up to 3 momore if my EF decreases and I need to be paced.Anyhow- I am trying to locate more people with this condition and am in the process of setting up a website with info for patients and families with info about LVNC and to create a community so the LVNC'ers can contact each other. So far I have met one woman in Canada, one in Massachusetts, and one man in London with this condition. I am in Illinois. We are all being treated very differently and have enjoyed "comparing notes" so to say.If anyone has been diagnosed with this condition or has any experience wit this type of cardiomyopathy, I would love to hear from you.Thanks for reading!And thanks to the moderators and all who post- this is a great resource!Candi

[Guest guest]

hey kiddo my icd is a St.Jude Medical device, there hasnt been any recalls on them as far as i know. have not heard any beebing sounds but then i dont hear very well eiteher sometimes i dont even hear my cell phone rig. lol. yep got haf of my jd gone now trid to go ot bed but cant slep. so im back here . will let you know what happen said they would send all info to my epp by fax. oh well will se what happns got to go p now good night

From: Candi <candi51gmail (DOT) com>Subject: Left Ventricle Non Compaction@groups .comDate: Sunday, July 20, 2008, 8:45 AM

Hello- I was diagnosed with Left Ventricle Non Compaction in January. I am 31 yrs old. My EF is getting slightly better now that I am on meds- Ace inhib, beta blocker, HCTZ, etc. We have gone from talking transplant all the way to just treating with meds and watching.There were many studies that showed one of reasons for the high mortality of this condition could be linked to sudden cardiac death due to Vfib so my Dr's decided I needed an ICD. This is fine with me because it does give me peace of mind that I won't just keel over. It's seems to be that same dilema probably alot of us have- "not crazy about having this thing in my chest but it is the lesser of the evils" mentality. I only have one lead at this time but they can add up to 3 momore if my EF decreases and I need to be paced.Anyhow- I am trying to locate more people with this condition and am in the process of setting up a

website with info for patients and families with info about LVNC and to create a community so the LVNC'ers can contact each other. So far I have met one woman in Canada, one in Massachusetts, and one man in London with this condition. I am in Illinois. We are all being treated very differently and have enjoyed "comparing notes" so to say.If anyone has been diagnosed with this condition or has any experience wit this type of cardiomyopathy, I would love to hear from you.Thanks for reading!And thanks to the moderators and all who post- this is a great resource!Candi

[Guest guest]

----- Original Message ----From:

> got a phone call from the VA hospital said to call my EP asap

, why does the VA want you to call your EP a sap?

Seriously, hope all goes well. Hopefully your VA hospital is one of the better ones. It seems to me that the services and treatment vary greatly. The promise of "lifetime medical care" for retirees that was made when I went into the Air Force in 1961 ain't what it was made to seem.

From California where it is always better to get a call from the VA hospital than from the VA cemetery.

Bill

[Guest guest]

Good morning all, i was at the VA on Tuesday for checkup on my ICD battery is

at 2.49 but also was told my EF is at 25%, can anyone enlightend me on this, as

im not so sure what it means. Was told that my EF should be up around 50-60%.

Is this why i get so tired and feel fatigued all the time ? the meds i take are

: Co-Reg, Lisinopril, Lastix, Potissium, Crestor. Thx all for any advice.

[Guest guest]

I'll give it a shot. EF is ejection fraction or what percent of the

possible volume of content of the heart chamber is ejected with each

heartbeat. Nobody has 100 percent. Even the healthiest heart can't empty

the entire chamber. I think mine is 45.

I think of the chamber as being like a flexible bottle. When you squeeze a

full bottle you can usually only cause a percentage of the contents to flow

out of the top of the bottle. The amount you can squeeze out is the EF for

that bottle.

If 50 is normal your heart is working twice as hard to get the same amount

of blood flowing and I suspect that is part of why you get tired quicker.

I hope this helps.

Joe Schmidt

God Loves Us All

But isn't always happy with us!

EF

Good morning all, i was at the VA on Tuesday for checkup on my ICD battery

is at 2.49 but also was told my EF is at 25%, can anyone enlightend me on

this, as im not so sure what it means. Was told that my EF should be up

around 50-60%. Is this why i get so tired and feel fatigued all the time ?

the meds i take are : Co-Reg, Lisinopril, Lastix, Potissium, Crestor. Thx

all for any advice.

No virus found in this outgoing message.

Checked by AVG - www.avg.com

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05:50:00

[Guest guest]

Joe was correct in his description of ejection fraction. The normal, healthy heart, has an EF of between 50 and 60%. Anything below 40% is considered low and could lead to heart failure. Certain prescription drugs can also contribute to your feeling tired and fatigued. The side effects may get better as your body gets used to the drugs. Resting is good. Fatigue is a sign to take it easy and not overexert yourself because your heart can't keep up with your body's demand for oxygen.From: shadow061 <shadow061@...>Subject: EF Date: Thursday, September 3, 2009, 6:11 AM

Good morning all, i was at the VA on Tuesday for checkup on my ICD battery is at 2.49 but also was told my EF is at 25%, can anyone enlightend me on this, as im not so sure what it means. Was told that my EF should be up around 50-60%. Is this why i get so tired and feel fatigued all the time ? the meds i take are : Co-Reg, Lisinopril, Lastix, Potissium, Crestor. Thx all for any advice.