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T&A surgery cancelled

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Traci,

better to find a more compliant doctor than to risk gavin's recovery. I had

such problems with jesse after his tonsils were out and once the surgery was

done, our ent didnt want to hear anything from us.

definately did not stay in the hospt long enuf post surgery. we had

amanda for 23 hours and by like 12 hours later she was fine and we all agreed to

take her home.

good luck in philly- hope you get some good docs!

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Thanks to all that responded about an overnight stay after T & A

surgery. I called and told his nurse that we wanted him to do the

surgery and we wanted to keep the surgery date...... BUT, we

insisted on at least a 23 hr stay. Well, imagine my surprise when

she called this morning to say that the Doc felt that if we felt so

strongly about this issue of Gavin staying more than 4 hours, well

then he felt we should go elsewhere. SOOO.... we are now delayed

even longer on the surgery and we have to find a 3rd ENT. We have an

appointment Sept. 30 at CHOPS (Children's Hosp of Phila). They also

now have the trisomy 21 center open, so we're hoping to also get an

appointment there. Instead of trying to find good specialists in our

area, we're going to do the " one stop shopping " in Philadelphia!!

Traci and Gavin, 5

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In a message dated 8/5/2004 7:53:12 PM Eastern Daylight Time,

gavinsaunt1@... writes:

> Thanks to all that responded about an overnight stay after T & A

> surgery. I called and told his nurse that we wanted him to do the

> surgery and we wanted to keep the surgery date...... BUT, we

> insisted on at least a 23 hr stay. Well, imagine my surprise when

> she called this morning to say that the Doc felt that if we felt so

> strongly about this issue of Gavin staying more than 4 hours, well

> then he felt we should go elsewhere.

All I can say is good! I would have felt very uncomfortable using a surgeon

who wouldn't listen to the professional opinions of other physicians. It's

been published that our kids should remain overnight in a journal of

Otolaryngology. If he/she won't listen to his/her peers what hope do you have

of him/her

listening to you as a parent?

Kathy, Liam's mom( 6)

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Look at it this way Traci. If he was so quick to dismiss you when you felt

strongly about something, how would he have been had something gone wrong. I

think you did the right thing and remember everything is in God's timing.

perhaps CHOPS is where Gavin is suppose to be. Anyway, sorry you had to go

through this but kudo's to you for standing your ground. if more people would

realize that they DO have a say in things, some things would change.

Loree

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Traci, I agree totally with what Loree says. Some doctors and their

attitudes....holier than thou. Besides all the info you collected on this issue

and if your insurance would allow it, I don't understand what the doctor's

problem was with this. Screw him! (pardon me!)

Jackie, Mom to 16ds, 13, and Bradley 10

-------------- Original message --------------

> Look at it this way Traci. If he was so quick to dismiss you when you felt

> strongly about something, how would he have been had something gone wrong. I

> think you did the right thing and remember everything is in God's timing.

> perhaps CHOPS is where Gavin is suppose to be. Anyway, sorry you had to go

> through this but kudo's to you for standing your ground. if more people would

> realize that they DO have a say in things, some things would change.

>

> Loree

>

>

>

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Going to CHOP sounds like a good idea to me. And we think we know of

a couple of good ENT docs there. Actually, we've never had a problem with

any CHOP doctor, though some are better than others.

Charlie has been there lots. Sometimes it like we say, well, shall

we mess around with local hospitals or shall we just go straight to CHOP?

They do seem to know what they're doing and what they're about.

But don't be surprised nor disappointed if you have to wait for an

appointment. We had to wait literally months to get Charlie a visit with the

T21 program. But on occasions when there was any urgency, we were seen

promptly. Early on, once had a GI attending physician call me up at home on

a Sat. morning.

Oh, and know secondhand of a couple of other kids with Ds who had

procedures done there. Very young girl stayed overnight after her

T & A--believe her surgeon thought she would have to go to PICU but she did so

well that a regular room for a night and let go the next afternoon was just

fine. And once when Charlie was having day surgery, we bumped into older

girl with Ds having ear tubes put in. They were in and out so fast I asked

her parents if they shouldn't have used the drive thru window.

Good luck,

Bob, dad to Charlie 5 w/ Ds(CHOP warhorse) and 1 w/out

Ds(only 3 trips so far)

<<Thanks to all that responded about an overnight stay after T & A

surgery. I called and told his nurse that we wanted him to do the

surgery and we wanted to keep the surgery date...... BUT, we

insisted on at least a 23 hr stay. Well, imagine my surprise when

she called this morning to say that the Doc felt that if we felt so

strongly about this issue of Gavin staying more than 4 hours, well

then he felt we should go elsewhere. SOOO.... we are now delayed

even longer on the surgery and we have to find a 3rd ENT. We have an

appointment Sept. 30 at CHOPS (Children's Hosp of Phila). They also

now have the trisomy 21 center open, so we're hoping to also get an

appointment there. Instead of trying to find good specialists in our

area, we're going to do the " one stop shopping " in Philadelphia!!

Traci and Gavin, 5 >>

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Where are you from? we are just outside Philly. I prefer duPont children's

hospital tho, in Delaware.

Di

Re: T & A surgery cancelled

Going to CHOP sounds like a good idea to me. And we think we know of

a couple of good ENT docs there. Actually, we've never had a problem with

any CHOP doctor, though some are better than others.

Charlie has been there lots. Sometimes it like we say, well, shall

we mess around with local hospitals or shall we just go straight to CHOP?

They do seem to know what they're doing and what they're about.

But don't be surprised nor disappointed if you have to wait for an

appointment. We had to wait literally months to get Charlie a visit with the

T21 program. But on occasions when there was any urgency, we were seen

promptly. Early on, once had a GI attending physician call me up at home on

a Sat. morning.

Oh, and know secondhand of a couple of other kids with Ds who had

procedures done there. Very young girl stayed overnight after her

T & A--believe her surgeon thought she would have to go to PICU but she did so

well that a regular room for a night and let go the next afternoon was just

fine. And once when Charlie was having day surgery, we bumped into older

girl with Ds having ear tubes put in. They were in and out so fast I asked

her parents if they shouldn't have used the drive thru window.

Good luck,

Bob, dad to Charlie 5 w/ Ds(CHOP warhorse) and 1 w/out

Ds(only 3 trips so far)

<<Thanks to all that responded about an overnight stay after T & A

surgery. I called and told his nurse that we wanted him to do the

surgery and we wanted to keep the surgery date...... BUT, we

insisted on at least a 23 hr stay. Well, imagine my surprise when

she called this morning to say that the Doc felt that if we felt so

strongly about this issue of Gavin staying more than 4 hours, well

then he felt we should go elsewhere. SOOO.... we are now delayed

even longer on the surgery and we have to find a 3rd ENT. We have an

appointment Sept. 30 at CHOPS (Children's Hosp of Phila). They also

now have the trisomy 21 center open, so we're hoping to also get an

appointment there. Instead of trying to find good specialists in our

area, we're going to do the " one stop shopping " in Philadelphia!!

Traci and Gavin, 5 >>

Click reply to all for messages to go to the list. Just hit reply for

messages to go to the sender of the message.

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Hi, Di,

We are about half way between Philadelphia and New York. We live in

Plainsboro, NJ. I thought for a while that Charlie was on some sort of

hospital inspection committee and determined to visit very !#*% hospital in

the area. He musta missed duPont, though.

Regards,

Bob

<<

Where are you from? we are just outside Philly. I prefer duPont children's

hospital tho, in Delaware.

Di >>

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Vickie spent 3 1/2 weeks at Philly CHOP... I slept there every night...

Overall everyone was great though there was one pediatric cardithoracic

surgeon that was a little more " I am G*D almighty " then I liked but the

nurses and all were excellant... they had a library on an upper floor with

internet access so I had communtication with this list... Vickie was only 7

weeks old the day she was admitted..... The only time I did not sleep right

next to her crib was when she was in CICU... but they found another bed in

the hospital for me....

Re: Re: T & A surgery cancelled

> Hi, Di,

> We are about half way between Philadelphia and New York. We live in

> Plainsboro, NJ. I thought for a while that Charlie was on some sort of

> hospital inspection committee and determined to visit very !#*% hospital

in

> the area. He musta missed duPont, though.

> Regards,

> Bob

>

>

> <<

> Where are you from? we are just outside Philly. I prefer duPont

children's

> hospital tho, in Delaware.

> Di >>

>

>

>

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