Re: P.S. Guy: unfelt shocks and ATP (was Re: Re: Amiodarone dose)

[Guest guest]

Hi Jan,

Please don't bother apologizing for your English. What you said was pretty

clear. Why did you wake up in a hospital? Everyone else is talking about

fainting and/or getting shocked out in normal life, then recovering and

going on with things. Do some people wind up taken to the hospital when the

shock happens to them?Why?

Guy: unfelt shocks and ATP (was Re: Re:

Amiodarone dose)

>

>

> Guy,

>

> The shocks you describe where you seem to be saying that you fainted

before

> the shock occurred, what did that feel like? Were you scared or

panicked for

> a time before you passed out? Did you feel your heart racing the way we

> would if we were just normal and we were having a panic attack?

Thanks you.

>

> second, I forget what is ATP. I went to te gloassry in ZAP FAQ, and

it's not

> listed there. what is it. Somethng xxx pacing?

>

> Thanks,

>

> something very scarcy scarcy befor3e berore a seconed

> ----- Original Message -----

> From: " Guy Scardina " <guys101@...>

>

> ,

> Believe it or not, I have never felt a shock. During the first year

> after I got my ICD I had two or three shocks but my heart rate was so

> high that I passed out before the shock. I remember one shock

> happened when I was taking out the trash. I had enough warning to sit

> down on the kitchen floor and the next thing I remember was laying on

> the floor half in a daze, wondering if I was dead or alive. Another

> happened while I was walking and also had enough warning to sit

> before I passed out. While sitting on the curb after I regained

> consciousness a guy in a Corvette stopped and asked if I needed help.

> It was nice of him to give me a ride even though it was only a couple

> blocks to my home.

> The shock that I received last summer was during the night and I was

> asleep. I woke up after it happened and realized that something had

> just occured but was not certain what it was until my next

> interrogation.

> I think somebody already explained what ATP means. I usually feel

> them and hope they do not escalate into a shock.

>

------------------------------------

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[Guest guest]

So if you do not have an ICD, it's sort of a painless although sad way to

die. Interesting.

Guy: unfelt shocks and ATP (was Re: Re:

> Amiodarone dose)

> >

> >

> > Guy,

> >

> > The shocks you describe where you seem to be saying that you fainted

> before

> > the shock occurred, what did that feel like? Were you scared or

> panicked for

> > a time before you passed out? Did you feel your heart racing the

way we

> > would if we were just normal and we were having a panic attack?

> Thanks you.

> >

> > second, I forget what is ATP. I went to te gloassry in ZAP FAQ, and

> it's not

> > listed there. what is it. Somethng xxx pacing?

> >

> > Thanks,

> >

> > something very scarcy scarcy befor3e berore a seconed

> > ----- Original Message -----

> > From: " Guy Scardina " <guys101@>

> >

> > ,

> > Believe it or not, I have never felt a shock. During the first year

> > after I got my ICD I had two or three shocks but my heart rate was so

> > high that I passed out before the shock. I remember one shock

> > happened when I was taking out the trash. I had enough warning to sit

> > down on the kitchen floor and the next thing I remember was laying on

> > the floor half in a daze, wondering if I was dead or alive. Another

> > happened while I was walking and also had enough warning to sit

> > before I passed out. While sitting on the curb after I regained

> > consciousness a guy in a Corvette stopped and asked if I needed help.

> > It was nice of him to give me a ride even though it was only a couple

> > blocks to my home.

> > The shock that I received last summer was during the night and I was

> > asleep. I woke up after it happened and realized that something had

> > just occured but was not certain what it was until my next

> > interrogation.

> > I think somebody already explained what ATP means. I usually feel

> > them and hope they do not escalate into a shock.

> >

>

------------------------------------

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1 - Email list forum at

/

2 - Email delivery of the Zapper Newsletter at

2/

3 - Email list forum for those involved in ICD litigation at

3/

ZapChat - Real time online support group (Thursdays 8PM EST) at

http://www.zaplife.org/chat.html

ZapFAQs - A glossary of ICD/arrhythmia terms and abbreviations at

http://www.zaplife.org/zap4.htm

The ZAPPER Home page at

http://www.zaplife.org/

[Guest guest]

Jan,

I see. How long after the device was implanted did you get these first zaps,

causing you to be in hospital? And have you continued to take amiodaron

since that time? In what dosage? What negative effects has the drug has on

your health besides holding down your pulse rate?

thanks.

halth helath inhosptial?the

Guy: unfelt shocks and ATP (was Re: Re:

> Amiodarone dose)

> >

> >

> > Guy,

> >

> > The shocks you describe where you seem to be saying that you fainted

> before

> > the shock occurred, what did that feel like? Were you scared or

> panicked for

> > a time before you passed out? Did you feel your heart racing the

way we

> > would if we were just normal and we were having a panic attack?

> Thanks you.

> >

> > second, I forget what is ATP. I went to te gloassry in ZAP FAQ, and

> it's not

> > listed there. what is it. Somethng xxx pacing?

> >

> > Thanks,

> >

> > something very scarcy scarcy befor3e berore a seconed

> > ----- Original Message -----

> > From: " Guy Scardina " <guys101@>

> >

> > ,

> > Believe it or not, I have never felt a shock. During the first year

> > after I got my ICD I had two or three shocks but my heart rate was so

> > high that I passed out before the shock. I remember one shock

> > happened when I was taking out the trash. I had enough warning to sit

> > down on the kitchen floor and the next thing I remember was laying on

> > the floor half in a daze, wondering if I was dead or alive. Another

> > happened while I was walking and also had enough warning to sit

> > before I passed out. While sitting on the curb after I regained

> > consciousness a guy in a Corvette stopped and asked if I needed help.

> > It was nice of him to give me a ride even though it was only a couple

> > blocks to my home.

> > The shock that I received last summer was during the night and I was

> > asleep. I woke up after it happened and realized that something had

> > just occured but was not certain what it was until my next

> > interrogation.

> > I think somebody already explained what ATP means. I usually feel

> > them and hope they do not escalate into a shock.

> >

>

>

>

> ------------------------------------

>

> Be sure to visit and use other ZapLife.org services:

>

> The ZapperBBS at

> http://zaplife.org/phpBB2/viewforum.php?f=1

> 1 - Email list forum at

> /

> 2 - Email delivery of the Zapper Newsletter at

> 2/

> 3 - Email list forum for those involved in ICD litigation at

> 3/

> ZapChat - Real time online support group (Thursdays 8PM EST) at

> http://www.zaplife.org/chat.html

> ZapFAQs - A glossary of ICD/arrhythmia terms and abbreviations at

> http://www.zaplife.org/zap4.htm

> The ZAPPER Home page at

> http://www.zaplife.org/

[Guest guest]

The posts about fainting interest me, because that was the first sign (according to my doctors) that I needed an ICD. I was 24 at the time (am now 26) and I passed out twice in a 7 day period. I was overweight, a smoker, it was 0 degrees outside and I was walking up a big hill to get to my car. I started to feel kind of ill and I was having a heck of a time breathing. Because of the breathing I started to panic. I don't remember if my heart was beating at a dangerously fast pace or not. I knew something was going to happen and then I went down. I don't know how long I was out for but the people around me said it was awhile. I woke up slurring my speech and felt like I was going to be sick. I hit my head pretty hard on the cement. I was taken by ambulance to the hospital where they found out I

had Long QT syndrome.

The second time I passed out was exactly a week later, again walking to my car. This time I wasn't walking up a big hill but I was walking faster then normal to try and keep up with my group of co-workers. This time I kind of new I was going down because I stepped back to somewhat hide myself and knelt down so I wouldn't hit the ground as hard. I wasn't out as long this time and I didn't wake up slurring my speech or feeling sick.

After I passed out the first time the doctors suggested I wear a halter heart monitor but I never thought I would pass out again. To this day I am kicking myself because I will never know if I passed out due to my Long QT syndrome or if I passed out because I was having a panic attack.

I had my ICD for 2 1/2 years before the lead fractured and never had any incidents. During that time I continued to smoke and was still over weight (for about another year).

My ICD is still turned off and I really can't decide what to do. My doctor (at the Mayo Clinic) mentioned this denervation surgery that I could have done instead of having my ICD turned back on. I would have no problem keeping the ICD if I knew the shocks I received were going to save my life. But so far the only experience I have with the shocks was unnecessary...

Has anyone heard of a denervation surgery that destroys some nerves that have to do with adrenaline?

I feel like one of my cardio's is pushing me to decide what to do with my ICD, but I told her this kind of decision is hard, it's not like picking out a pair of jeans to wear. It's especially hard because my husband and I want to start a family and I want to do what is best for my health and what will provide me the best quality of life.

Sorry, I kind of "went off" there! Just struggling to make a decision!

From: Janne <ystano@...>Subject: P.S. Guy: unfelt shocks and ATP (was Re: Re: Amiodarone dose) Date: Saturday, January 10, 2009, 1:36 PM

PS No time to panic, either. Because the consiusness are fading I don'tthik one would panic anyway.Janne> >> > i forgot to ask. In the bit of time before you passed out and then> the ICD > > provided its gentle "therapy," I asked if you felt panicked in the> normal > > sense, and as if you were fainting from panic. Is this how it feel> is you > > die because you don't have an ICD? So the death is pretty painless,> I guess? > > I'm not saying anything positive for death, I'm just saying it sound> like >

> you just feel panicked for a second then you pass out and fall down> and then > > you're gone. Thanks.> > fel did befdafainnomral aked is that gentla> > Guy: unfelt shocks and ATP (was Re: Re:> Amiodarone dose)> > > > > > Guy,> > > > The shocks you describe where you seem to be saying that you fainted> before> > the shock occurred, what did that feel like? Were you scared or> panicked for> > a time before you passed out? Did you feel your heart racing

theway we> > would if we were just normal and we were having a panic attack?> Thanks you.> > > > second, I forget what is ATP. I went to te gloassry in ZAP FAQ, and> it's not> > listed there. what is it. Somethng xxx pacing?> > > > Thanks,> > > > something very scarcy scarcy befor3e berore a seconed> > ----- Original Message ----- > > From: "Guy Scardina" <guys101@>> > > > ,> > Believe it or not, I have never felt a shock. During the first year> > after I got my ICD I had two or three shocks but my heart rate was so> > high that I passed out before the shock. I remember one shock> > happened when I was taking out the trash. I had enough warning to sit> > down on the kitchen floor and the next thing I remember was laying on> > the floor half in a

daze, wondering if I was dead or alive. Another> > happened while I was walking and also had enough warning to sit> > before I passed out. While sitting on the curb after I regained> > consciousness a guy in a Corvette stopped and asked if I needed help.> > It was nice of him to give me a ride even though it was only a couple> > blocks to my home.> > The shock that I received last summer was during the night and I was> > asleep. I woke up after it happened and realized that something had> > just occured but was not certain what it was until my next> > interrogation.> > I think somebody already explained what ATP means. I usually feel> > them and hope they do not escalate into a shock.> >>

[Guest guest]

,

I had my Genetic Testing done through PGX Health, I believe they are located in Connecticut. Took about 7 weeks to get the results.

From: Janne <ystano@...>Subject: P.S. Guy: unfelt shocks and ATP (was Re: Re: Amiodarone dose) Date: Monday, January 12, 2009, 7:10 AM

,The gene tests for LQTS are performed here in Norway. The results isprobably back alredy, but myself I won't get to know them until mynext ICD interrogation next month.The ARVD/C test was to be sent to some place in Canada. Janne> > > >> > > > i forgot to ask. In the bit of time before you passed out andthen> > > the ICD> > > > provided its gentle

"therapy," I asked if you felt panickedin the> > > normal> > > > sense, and as if you were fainting from panic. Is this how itfeel> > > is you> > > > die because you don't have an ICD? So the death is pretty painless,> > > I guess?> > > > I'm not saying anything positive for death, I'm just sayingit sound> > > like> > > > you just feel panicked for a second then you pass out andfall down> > > and then> > > > you're gone. Thanks.> > > > fel did befdafainnomral aked is that gentla> > > > Guy: unfelt shocks and ATP (was Re: Re:> > > Amiodarone dose)> > > >> > > >> > > > Guy,> > > >> > > > The shocks you describe where you seem to be saying that youfainted> > > before> > > > the shock occurred, what did that feel like? Were you scared or> > > panicked for> > > > a time before you passed out? Did you feel your heart racing the> > way we> > > > would if we were just normal and we were having a panic attack?> > > Thanks you.> > > >> > > > second, I forget what is ATP. I went to te gloassry in ZAPFAQ, and> > > it's

not> > > > listed there. what is it. Somethng xxx pacing?> > > >> > > > Thanks,> > > > > > > > something very scarcy scarcy befor3e berore a seconed> > > > ----- Original Message ----- > > > > From: "Guy Scardina" <guys101@>> > > >> > > > ,> > > > Believe it or not, I have never felt a shock. During thefirst year> > > > after I got my ICD I had two or three shocks but my heart rate> was so> > > > high that I passed out before the shock. I remember one shock> > > > happened when I was taking out the trash. I had enough warning> to sit> > > > down on the kitchen floor and the next thing I remember was> laying on> > > > the floor half in a daze, wondering if I was dead or

alive.Another> > > > happened while I was walking and also had enough warning to sit> > > > before I passed out. While sitting on the curb after I regained> > > > consciousness a guy in a Corvette stopped and asked if I needed> help.> > > > It was nice of him to give me a ride even though it was only a> couple> > > > blocks to my home.> > > > The shock that I received last summer was during the nightand I was> > > > asleep. I woke up after it happened and realized thatsomething had> > > > just occured but was not certain what it was until my next> > > > interrogation.> > > > I think somebody already explained what ATP means. I usually feel> > > > them and hope they do not escalate into a shock.> > > >> > >> >

>> > >> > > ------------ ---- ---- -> > >> > > Be sure to visit and use other ZapLife.org services:> > >> > > The ZapperBBS at> > > _http://zaplife. http://zaplhttp: //zaphttp: //_ > (http://zaplife. org/phpBB2/ viewforum. php?f=1) > > > 1 - Email list forum at> > > _http://health. http://healthhtt p://heahttp: //h_ > (http://health. groups.. com/group/ /) > > > 2 - Email delivery of the Zapper Newsletter at> > > _http://health. http://healthhtt p://heahttp: //he_ > (http://health. groups.. com/group/ 2/) > > > 3 - Email list forum for those involved in ICDlitigation at> > > _http://health. http://healthhtt p://heahttp: //he_ > (http://health. groups.. com/group/ 3/) > > > ZapChat - Real time online support group (Thursdays 8PM EST) at> > > _http://www.zaplife. http://wwhttp_(http://www.zaplife. org/chat. html) > > > ZapFAQs - A glossary of ICD/arrhythmia terms and abbreviations at> > > _http://www.zaplife. http://wwhtt_(http://www.zaplife. org/zap4. htm) > > > The ZAPPER Home page at> > > _http://www.zaplife. http://ww_ (http://www.zaplife. org/) !Groups > Links> > >> >> >> >> > ------------ ---- ---- -> >> > Be sure to visit and use other ZapLife.org services:> >> > The ZapperBBS at> > _http://zaplife. http://zaplhttp: //zaphttp: //_ > (http://zaplife. org/phpBB2/ viewforum. php?f=1) > > 1 - Email list forum at> > _http://health. http://healthhtt p://heahttp: //h_ > (http://health. groups.. com/group/ /) > > 2 - Email delivery of the Zapper Newsletter at> > _http://health. http://healthhtt p://heahttp: //he_ > (http://health. groups.. com/group/ 2/) > > 3 - Email list forum for

those involved in ICD litigation at> > _http://health. http://healthhtt p://heahttp: //he_ > (http://health. groups.. com/group/ 3/) > > ZapChat - Real time online support group (Thursdays 8PM EST) at> > _http://www.zaplife. http://wwhttp_ (http://www.zaplife. org/chat. html) > > ZapFAQs - A glossary of ICD/arrhythmia terms and abbreviations at> > _http://www.zaplife. http://wwhtt_ (http://www.zaplife. org/zap4. htm)

> > The ZAPPER Home page at> > _http://www.zaplife. http://ww_ (http://www.zaplife. org/) ! Groups > Links> >> > ------------ --------- --------- ------> > Be sure to visit and use other ZapLife.org services:> > The ZapperBBS at> _http://zaplife. http://zaplhttp: //zaphttp: //_ > (http://zaplife. org/phpBB2/ viewforum. php?f=1) > 1 - Email list forum at> _http://health. http://healthhtt p://heahttp: //h_ > (http://health. groups.. com/group/ /) > 2 - Email delivery of the Zapper Newsletter at> _http://health. http://healthhtt p://heahttp: //he_ > (http://health. groups.. com/group/ 2/) > 3 - Email list forum for those involved in ICD litigation at> _http://health. http://healthhtt p://heahttp: //he_ > (http://health. groups.. com/group/ 3/) > ZapChat - Real time online support group (Thursdays 8PM EST) at> _http://www.zaplife. http://wwhttp_ (http://www.zaplife. org/chat. html) > ZapFAQs - A glossary of ICD/arrhythmia terms and abbreviations at> _http://www.zaplife. http://wwhtt_ (http://www.zaplife. org/zap4. htm) > The ZAPPER Home page at> _http://www.zaplife. http://ww_ (http://www.zaplife. org/) ! Groups Links> > > > > ************ **A Good Credit Score is 700 or Above. See yours in just2 easy > steps! >(http://pr.atwola. com/promoclk/ 100000075x121585 5013x1201028747/ aol?redir= http://www. freecreditreport .com/pm/default. aspx?sc=668072% 26hmpgID= 62%26bcd= De> cemailfooterNO62)>

[Guest guest]

Jan,

thanks very much for your clear explanation.

Guy: unfelt shocks and ATP (was Re: Re:

> > > Amiodarone dose)

> > > >

> > > >

> > > > Guy,

> > > >

> > > > The shocks you describe where you seem to be saying that you

fainted

> > > before

> > > > the shock occurred, what did that feel like? Were you scared or

> > > panicked for

> > > > a time before you passed out? Did you feel your heart racing the

> > way we

> > > > would if we were just normal and we were having a panic attack?

> > > Thanks you.

> > > >

> > > > second, I forget what is ATP. I went to te gloassry in ZAP

FAQ, and

> > > it's not

> > > > listed there. what is it. Somethng xxx pacing?

> > > >

> > > > Thanks,

> > > >

> > > > something very scarcy scarcy befor3e berore a seconed

> > > > ----- Original Message -----

> > > > From: " Guy Scardina " <guys101@>

> > > >

> > > > ,

> > > > Believe it or not, I have never felt a shock. During the first

year

> > > > after I got my ICD I had two or three shocks but my heart rate

> was so

> > > > high that I passed out before the shock. I remember one shock

> > > > happened when I was taking out the trash. I had enough warning

> to sit

> > > > down on the kitchen floor and the next thing I remember was

> laying on

> > > > the floor half in a daze, wondering if I was dead or alive.

Another

> > > > happened while I was walking and also had enough warning to sit

> > > > before I passed out. While sitting on the curb after I regained

> > > > consciousness a guy in a Corvette stopped and asked if I needed

> help.

> > > > It was nice of him to give me a ride even though it was only a

> couple

> > > > blocks to my home.

> > > > The shock that I received last summer was during the night and

I was

> > > > asleep. I woke up after it happened and realized that

something had

> > > > just occured but was not certain what it was until my next

> > > > interrogation.

> > > > I think somebody already explained what ATP means. I usually feel

> > > > them and hope they do not escalate into a shock.

> > > >

> > >

> > >

> > >

> > > ------------------------------------

> > >

> > > Be sure to visit and use other ZapLife.org services:

> > >

> > > The ZapperBBS at

> > > http://zaplife.org/phpBB2/viewforum.php?f=1

> > > 1 - Email list forum at

> > > /

> > > 2 - Email delivery of the Zapper Newsletter at

> > > 2/

> > > 3 - Email list forum for those involved in ICD litigation at

> > > 3/

> > > ZapChat - Real time online support group (Thursdays 8PM EST) at

> > > http://www.zaplife.org/chat.html

> > > ZapFAQs - A glossary of ICD/arrhythmia terms and abbreviations at

> > > http://www.zaplife.org/zap4.htm

> > > The ZAPPER Home page at

> > > http://www.zaplife.org/