Sierra's audiologist visit

[Guest guest]

Sierra saw a new audiologist on Tuesday. She did fine with the " listen " for

the animal. When it came time for the headphones, she did well on the right

ear; but slower on the left side. What she had to do was look for the

picture she asked her and point to it. Maybe by the time the left side came,

she

lost interest?? I did not tell this new doctor about her previous hearing

test 3 years ago, since she had a cold at the time of this plus she was only 2

1/2. Because her left ear was boarderline, she did a tymponomy (sp?). The

right side showed some peaks (good); but the left ear was a flat line.

Usually this means something is blocking it. She checked for ear wax, but it

wasn't that. Her ear canals are very, very tiny. It may be fluid, but she

hasn't

had a cold this month. Her last ear infection was in the spring. Anyone

have this happen? There is another test they can do, but with a flat line, you

can't run it? She also saw a developmental pediatrician, so they will get

together and see about further testing.

Secondly, when she saw the developmental pediatrician, he noticed her eyes

would turn in when he covered one eye. We've questioned about her eyes

before, but when we had the test done at an optometrist and had them dialated,

it

didn't show anything. I'm not sure exactly what is going on, but it will

affect her fine motor skills, as well as tracking. We are scheduled to see

another optometrist October 1; as well as an orthopedic specialist and her

endocrinologist (busy day, lots of driving). Her cardiologist visit was

yesterday

and she's wearing a holter monitor today for low heart rate. Her thyroid is

out of wack right now, but it may be interferring with her heart rate. It

also said low thyroid caused lower muscle tone. Has anyone had this happen or

know the connection? Has anyone heard of Hashimoto's Thyroiditis and what

tests are there for it? I'm wondering if this is why she has a low white

blood cell count mixed with the thyroid problems?? I've been doing some

research and found this is a chronic autoimmune condition associated with

thyroglobulin (Tg) or anti-thyroid peroxidase (TPO). She has been tested for

anti-bodies and came back negative.

Thanks so much for your help and feedback.

Kris, mom to Sierra 5 1/2 yrs. CAVC/TOF/PS (surgical repaired 5/99); MS,

Severe Mitral Cleft with Severe Mitral Regurgitation and stenosis (surgery

9/03); stridor; aspiration; dysphagia; GERD (in remission); low wbc counts;

hypothyroid; shaky hearing and vision; slow motility of lower esophagus and

Mosaic

Down Syndrome

15 ADD (great big brother and extremely great with Sierra); and

12 ADHD (limited tolerance of her!) and husband to of 19 years

[Guest guest]

Yes you can have fluid and not have had a cold. We were just at audiologist last

week and had the same thing: fluid with no other symptoms. Because we feel like

he may have fluid a lot with no symptoms - we are doing a new set of tubes on

Wed. I was surprised but like anything we can FIX! in Dallas

Sierra's audiologist visit

Sierra saw a new audiologist on Tuesday. She did fine with the " listen " for

the animal. When it came time for the headphones, she did well on the right

ear; but slower on the left side. What she had to do was look for the

picture she asked her and point to it. Maybe by the time the left side came,

she

lost interest?? I did not tell this new doctor about her previous hearing

test 3 years ago, since she had a cold at the time of this plus she was only

2

1/2. Because her left ear was boarderline, she did a tymponomy (sp?). The

right side showed some peaks (good); but the left ear was a flat line.

Usually this means something is blocking it. She checked for ear wax, but it

wasn't that. Her ear canals are very, very tiny. It may be fluid, but she

hasn't

had a cold this month. Her last ear infection was in the spring. Anyone

have this happen? There is another test they can do, but with a flat line,

you

can't run it? She also saw a developmental pediatrician, so they will get

together and see about further testing.

Secondly, when she saw the developmental pediatrician, he noticed her eyes

would turn in when he covered one eye. We've questioned about her eyes

before, but when we had the test done at an optometrist and had them dialated,

it

didn't show anything. I'm not sure exactly what is going on, but it will

affect her fine motor skills, as well as tracking. We are scheduled to see

another optometrist October 1; as well as an orthopedic specialist and her

endocrinologist (busy day, lots of driving). Her cardiologist visit was

yesterday

and she's wearing a holter monitor today for low heart rate. Her thyroid is

out of wack right now, but it may be interferring with her heart rate. It

also said low thyroid caused lower muscle tone. Has anyone had this happen

or

know the connection? Has anyone heard of Hashimoto's Thyroiditis and what

tests are there for it? I'm wondering if this is why she has a low white

blood cell count mixed with the thyroid problems?? I've been doing some

research and found this is a chronic autoimmune condition associated with

thyroglobulin (Tg) or anti-thyroid peroxidase (TPO). She has been tested for

anti-bodies and came back negative.

Thanks so much for your help and feedback.

Kris, mom to Sierra 5 1/2 yrs. CAVC/TOF/PS (surgical repaired 5/99); MS,

Severe Mitral Cleft with Severe Mitral Regurgitation and stenosis (surgery

9/03); stridor; aspiration; dysphagia; GERD (in remission); low wbc counts;

hypothyroid; shaky hearing and vision; slow motility of lower esophagus and

Mosaic

Down Syndrome

15 ADD (great big brother and extremely great with Sierra); and

12 ADHD (limited tolerance of her!) and husband to of 19 years

[Guest guest]

Just be sure that you have " reliable " hearing tests done on your children,

especially those with fluid and no infections. has complete hearing loss

in his right ear, and we don't know for how long or when it initially occurred.

He was one of those kids that rarely got sick, but I think he had fluid in his

ears at times and we didn't know.

He was very defensive with doctors and anything that had to do with testing and

even though they gave him hearing tests, I never believe that got a true

picture. We finally determined he had hearing loss when he got his 2nd (and

last) set of tubes in his ears at age 12. His speech is pretty good, so I'm

thinking he lost his hearing later but yet he has always had a head tilt, which

might indicate he had hearing loss when he was smaller. Who knows.

I just wish he would have been more cooperative earlier but it was a whole

tactile issue with him. Thankfully he has grown out of that and is totally fine

with doctors, dentists, and eye doctors.....oh and hair cuts too! Just be sure

to get their hearing checked regularly!

Jackie, Mom to 16ds, 13, and Bradley 10

--------- Sierra's audiologist visit

>

>

> Sierra saw a new audiologist on Tuesday. She did fine with the " listen "

> for

> the animal. When it came time for the headphones, she did well on the

> right

> ear; but slower on the left side. What she had to do was look for the

> picture she asked her and point to it. Maybe by the time the left side

> came, she

> lost interest?? I did not tell this new doctor about her previous hearing

> test 3 years ago, since she had a cold at the time of this plus she was

> only 2

> 1/2. Because her left ear was boarderline, she did a tymponomy (sp?). The

> right side showed some peaks (good); but the left ear was a flat line.

> Usually this means something is blocking it. She checked for ear wax, but

> it

> wasn't that. Her ear canals are very, very tiny. It may be fluid, but she

> hasn't

> had a cold this month. Her last ear infection was in the spring. Anyone

> have this happen? There is another test they can do, but with a flat line,

> you

> can't run it? She also saw a developmental pediatrician, so they will get

> together and see about further testing.

>

> Secondly, when she saw the developmental pediatrician, he noticed her eyes

> would turn in when he covered one eye. We've questioned about her eyes

> before, but when we had the test done at an optometrist and had them

> dialated, it

> didn't show anything. I'm not sure exactly what is going on, but it will

> affect her fine motor skills, as well as tracking. We are scheduled to see

> another optometrist October 1; as well as an orthopedic specialist and her

> endocrinologist (busy day, lots of driving). Her cardiologist visit was

> yesterday

> and she's wearing a holter monitor today for low heart rate. Her thyroid

> is

> out of wack right now, but it may be interferring with her heart rate. It

> also said low thyroid caused lower muscle tone. Has anyone had this

> happen or

> know the connection? Has anyone heard of Hashimoto's Thyroiditis and what

> tests are there for it? I'm wondering if this is why she has a low white

> blood cell count mixed with the thyroid problems?? I've been doing some

> research and found this is a chronic autoimmune condition associated with

> thyroglobulin (Tg) or anti-thyroid peroxidase (TPO). She has been tested

> for

> anti-bodies and came back negative.

> Thanks so much for your help and feedback.

>

> Kris, mom to Sierra 5 1/2 yrs. CAVC/TOF/PS (surgical repaired 5/99); MS,

> Severe Mitral Cleft with Severe Mitral Regurgitation and stenosis (surgery

> 9/03); stridor; aspiration; dysphagia; GERD (in remission); low wbc counts;

> hypothyroid; shaky hearing and vision; slow motility of lower esophagus and

> Mosaic

> Down Syndrome

> 15 ADD (great big brother and extremely great with Sierra); and

> 12 ADHD (limited tolerance of her!) and husband to of 19

> years

>

>

>

[Guest guest]

Nic had a history of fluid too but never an infection or cold! It's just that

the ear canals are generally smaller in people with DS that they don't drain

well on their own.

Di

Sierra's audiologist visit

Sierra saw a new audiologist on Tuesday. She did fine with the " listen "

for

the animal. When it came time for the headphones, she did well on the

right

ear; but slower on the left side. What she had to do was look for the

picture she asked her and point to it. Maybe by the time the left side

came, she

lost interest?? I did not tell this new doctor about her previous hearing

test 3 years ago, since she had a cold at the time of this plus she was

only 2

1/2. Because her left ear was boarderline, she did a tymponomy (sp?). The

right side showed some peaks (good); but the left ear was a flat line.

Usually this means something is blocking it. She checked for ear wax, but

it

wasn't that. Her ear canals are very, very tiny. It may be fluid, but she

hasn't

had a cold this month. Her last ear infection was in the spring. Anyone

have this happen? There is another test they can do, but with a flat line,

you

can't run it? She also saw a developmental pediatrician, so they will get

together and see about further testing.

Secondly, when she saw the developmental pediatrician, he noticed her eyes

would turn in when he covered one eye. We've questioned about her eyes

before, but when we had the test done at an optometrist and had them

dialated, it

didn't show anything. I'm not sure exactly what is going on, but it will

affect her fine motor skills, as well as tracking. We are scheduled to see

another optometrist October 1; as well as an orthopedic specialist and her

endocrinologist (busy day, lots of driving). Her cardiologist visit was

yesterday

and she's wearing a holter monitor today for low heart rate. Her thyroid

is

out of wack right now, but it may be interferring with her heart rate. It

also said low thyroid caused lower muscle tone. Has anyone had this

happen or

know the connection? Has anyone heard of Hashimoto's Thyroiditis and what

tests are there for it? I'm wondering if this is why she has a low white

blood cell count mixed with the thyroid problems?? I've been doing some

research and found this is a chronic autoimmune condition associated with

thyroglobulin (Tg) or anti-thyroid peroxidase (TPO). She has been tested

for

anti-bodies and came back negative.

Thanks so much for your help and feedback.

Kris, mom to Sierra 5 1/2 yrs. CAVC/TOF/PS (surgical repaired 5/99); MS,

Severe Mitral Cleft with Severe Mitral Regurgitation and stenosis (surgery

9/03); stridor; aspiration; dysphagia; GERD (in remission); low wbc counts;

hypothyroid; shaky hearing and vision; slow motility of lower esophagus and

Mosaic

Down Syndrome

15 ADD (great big brother and extremely great with Sierra); and

12 ADHD (limited tolerance of her!) and husband to of 19

years

[Guest guest]

Nic is profoundly deaf in 1 ear also. He never sat for the booth tests so we had

several ABR's done at different ages to confirm. I feel the ABR is the most

rel;iable but they have to be slightly sedated and asleep for the test. When he

was 5 months old(his 1st ABR) he fell asleep on his own, the others were done

when he was older so they sedated him for them.

Di