Guest guest Posted February 15, 2001 Report Share Posted February 15, 2001 In a message dated 2/15/2001 2:29:42 AM Eastern Standard Time, handd1@... writes: I just had to jump in on this one. I am not familiar with your situation Helen, but I am 22 years old, and am almost deaf. I am learning sign language in college, and have found that the deaf community is very accepting of me. Please keep me informed, and ask any questions you have. ########### Thank-You. We thought Bre coudn't hear for the longest time but all test's always came back fine. They discovered she has Dyspraxia of speech and fine motor skills. Well they have kept her in preschool as she can not commuticate very well. This coming fall she will be advanced to kindergarden as she will be six. But we were told that if she is unable to SAY her alphabet and comunicate she will be held back!!! I could not believe this. Well the Dr. said yesterday he will not allow that...As long as she is ready every other way except for Saying things out loud, she will go to the next grade. We've been playing around with sign language but no one at school will help at this point. Last year at 4 1/2 years old she could say 4 or 5 words to be understood. She is now 5 1/2 and her speech consists of about 20-30 words, and you only understand them IF you know her. If she gets upset or excited you can not understand one word she says. Sorry you are going deaf. What has caused that, if I may ask? Take Care. Hugs Helen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 15, 2001 Report Share Posted February 15, 2001 Helen, Of course you may ask! I was born deaf in my left ear, that was not found out until I was 5. I have something called mondini's dysplasia, which is a deformity of the cochlea. In my left ear, I don't have any middle ear bones, or cilia hairs, in my right ear, the cilia hairs are short, and falling out. I am adapting well, but I am a little scared about when I will go deaf, it will happen, just don't know when. I have perfect speech, and am not sure how or why that happened, I think having some hearing at the beginning helped. What I am about to say is just my opinion, and I hope that it doesn't offend some people. I am only saying this to hopefully ease some of your pain, Helen. I don't view myself as being broken or damaged in any way. In fact, my hearing loss has helped me in many ways. I am paid to go to college. Yes, I said that I am paid $1500 a semester to go to college. I have to maintain a 2.0, but I work hard. My schooling and books, everything including gas and clothes are paid for by the state of CA. In many ways, I have more advantages than other students. I do have to deal with instructors who refuse to help me because of my hearing loss, and won't use the assistive listening device that helps me, only because they are ignorant of hearing loss issues. I fight very hard to eradicate this on my campus, and have to threaten the school a lot. It makes life a little difficult, but I don't let anyone get away with discrimination. I have many deaf and hard of hearing friends on campus, and we have our own little social club, and talk in sign language about other people without them knowing! Really, I don't feel like I am missing out on anything, honestly. Some people who were raised in the Deaf community, they won't use devices like hearing aids, they think it takes their culture away from them. The Deaf culture is very complex, but loving and accepting. I go to silent night pizza here. It is where sign language students and deaf people in our community come to Round Table pizza one night a month, and we all communicate. It is very helpful. Please, I know it is hard for you, and I'm sure you are hurting for your daughter, as my mother went through the same thing. She still feels guilty, and wonders what she did wrong. Really, HONESTLY, I wouldn't change it for the world. I know it is natural for you to feel hurt, or feel like she is not getting a fair chance, but just wait. You'll see that she will grow up strong and happy and loving. She will have to fight prejudices, but maybe she will become the deaf Luther King, Jr. You'll see, she'll do wonderful things with her life, and she'll have you to thank. God bless you, Helen. Please contact me any time you feel down about this. handd1@... -----Original Message-----From: angelbear1129@... [mailto:angelbear1129@...]Sent: Thursday, February 15, 2001 7:01 AM Subject: Re: Bre Dr's.--In a message dated 2/15/2001 2:29:42 AM Eastern Standard Time, handd1@... writes: I just had to jump in on this one. I am not familiar with your situation Helen, but I am 22 years old, and am almost deaf. I am learning sign language in college, and have found that the deaf community is very accepting of me. Please keep me informed, and ask any questions you have. ########### Thank-You. We thought Bre coudn't hear for the longest time but all test's always came back fine. They discovered she has Dyspraxia of speech and fine motor skills. Well they have kept her in preschool as she can not commuticate very well. This coming fall she will be advanced to kindergarden as she will be six. But we were told that if she is unable to SAY her alphabet and comunicate she will be held back!!! I could not believe this. Well the Dr. said yesterday he will not allow that...As long as she is ready every other way except for Saying things out loud, she will go to the next grade. We've been playing around with sign language but no one at school will help at this point. Last year at 4 1/2 years old she could say 4 or 5 words to be understood. She is now 5 1/2 and her speech consists of about 20-30 words, and you only understand them IF you know her. If she gets upset or excited you can not understand one word she says. Sorry you are going deaf. What has caused that, if I may ask? Take Care. Hugs Helen ~~~~ *** ~~~ *** ~~~ *** ~~~~ The Being Sick CommunityHelp with Merger/files/Visual problems with colors?Click the link below and select the modify link to your right. Then select the **Send Plain Text Email** option. This will stop you receiving emails with colored or enlarged fonts./joinMembers Lounge:-Photo Album, memorial page, members profiles, birthdays, locations, medical resources, counselling via email and a whole bunch of free things.http://www.elderwyn.com/members Message Archives and Digest Attachment Pictures:-/messagesChat:- Scheduled Daily Chats at # on IRC DALnet./files/chat.htmBookmarks:-Add a website URL you have found useful./linksPersonal Complaints or problems:-Please contact a moderator either via email <-owner > or visit:- /files/Moderators.htmSubscription Details:-1) Individual email - means that every email sent to the list you receive.2) Daily Digest - sends you 25 messages in one single email for you to browse. This is an excellent option if you receive alot of email.3) Web only/No mail - means that you can pop into eGroups at your convenience and receive no email.To modify your subscription settings, subscribe or unsubscribe, please visit /join~~~~ *** ~~~ *** ~~~ *** ~~~~Hold on to what is good, even if it's a handful of earth. Hold on to what you believe, even if it's a tree that stands by itself. Hold on to what you must do even, if it's a long way from here. Hold on to your life, even if it's easier to let go." - Pueblo Prayer Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 15, 2001 Report Share Posted February 15, 2001 ######## Thank-You . You seem to have a very level head on your shoulders. Good Luck in all your endeavors. Write to me anytime. Bre is five right now, they say her hearing is fine, but there are times I could swear she doesn't hear a word I say, and that's been going on since she was 6 Weeks old. Keep fighting for your rights ((((Hugs to you)))) Helen Helen, Of course you may ask! I was born deaf in my left ear, that was not found out until I was 5. I have something called mondini's dysplasia, which is a deformity of the cochlea. In my left ear, I don't have any middle ear bones, or cilia hairs, in my right ear, the cilia hairs are short, and falling out. I am adapting well, but I am a little scared about when I will go deaf, it will happen, just don't know when. I have perfect speech, and am not sure how or why that happened, I think having some hearing at the beginning helped. What I am about to say is just my opinion, and I hope that it doesn't offend some people. I am only saying this to hopefully ease some of your pain, Helen. I don't view myself as being broken or damaged in any way. In fact, my hearing loss has helped me in many ways. I am paid to go to college. Yes, I said that I am paid $1500 a semester to go to college. I have to maintain a 2.0, but I work hard. My schooling and books, everything including gas and clothes are paid for by the state of CA. In many ways, I have more advantages than other students. I do have to deal with instructors who refuse to help me because of my hearing loss, and won't use the assistive listening device that helps me, only because they are ignorant of hearing loss issues. I fight very hard to eradicate this on my campus, and have to threaten the school a lot. It makes life a little difficult, but I don't let anyone get away with discrimination. I have many deaf and hard of hearing friends on campus, and we have our own little social club, and talk in sign language about other people without them knowing! Really, I don't feel like I am missing out on anything, honestly. Some people who were raised in the Deaf community, they won't use devices like hearing aids, they think it takes their culture away from them. The Deaf culture is very complex, but loving and accepting. I go to silent night pizza here. It is where sign language students and deaf people in our community come to Round Table pizza one night a month, and we all communicate. It is very helpful. Please, I know it is hard for you, and I'm sure you are hurting for your daughter, as my mother went through the same thing. She still feels guilty, and wonders what she did wrong. Really, HONESTLY, I wouldn't change it for the world. I know it is natural for you to feel hurt, or feel like she is not getting a fair chance, but just wait. You'll see that she will grow up strong and happy and loving. She will have to fight prejudices, but maybe she will become the deaf Luther King, Jr. You'll see, she'll do wonderful things with her life, and she'll have you to thank. God bless you, Helen. Please contact me any time you feel down about this. handd1@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 15, 2001 Report Share Posted February 15, 2001 Helen, Thank you! I know what you mean...my doctors kept telling my mother I didn't have a hearing problem, though they didn't realize that my hearing fluctuates due to a vacuum inside my inner ear canal, and mysterious fluid. They said I was just a problem child, and she had a discipline problem. Oh, for them to eat their words now! Good luck, -----Original Message-----From: angelbear1129@... [mailto:angelbear1129@...]Sent: Thursday, February 15, 2001 10:19 PM Subject: Re: Bre Dr's.--######## Thank-You . You seem to have a very level head on your shoulders. Good Luck in all your endeavors. Write to me anytime. Bre is five right now, they say her hearing is fine, but there are times I could swear she doesn't hear a word I say, and that's been going on since she was 6 Weeks old. Keep fighting for your rights ((((Hugs to you)))) Helen Helen, Of course you may ask! I was born deaf in my left ear, that was not found out until I was 5. I have something called mondini's dysplasia, which is a deformity of the cochlea. In my left ear, I don't have any middle ear bones, or cilia hairs, in my right ear, the cilia hairs are short, and falling out. I am adapting well, but I am a little scared about when I will go deaf, it will happen, just don't know when. I have perfect speech, and am not sure how or why that happened, I think having some hearing at the beginning helped. What I am about to say is just my opinion, and I hope that it doesn't offend some people. I am only saying this to hopefully ease some of your pain, Helen. I don't view myself as being broken or damaged in any way. In fact, my hearing loss has helped me in many ways. I am paid to go to college. Yes, I said that I am paid $1500 a semester to go to college. I have to maintain a 2.0, but I work hard. My schooling and books, everything including gas and clothes are paid for by the state of CA. In many ways, I have more advantages than other students. I do have to deal with instructors who refuse to help me because of my hearing loss, and won't use the assistive listening device that helps me, only because they are ignorant of hearing loss issues. I fight very hard to eradicate this on my campus, and have to threaten the school a lot. It makes life a little difficult, but I don't let anyone get away with discrimination. I have many deaf and hard of hearing friends on campus, and we have our own little social club, and talk in sign language about other people without them knowing! Really, I don't feel like I am missing out on anything, honestly. Some people who were raised in the Deaf community, they won't use devices like hearing aids, they think it takes their culture away from them. The Deaf culture is very complex, but loving and accepting. I go to silent night pizza here. It is where sign language students and deaf people in our community come to Round Table pizza one night a month, and we all communicate. It is very helpful. Please, I know it is hard for you, and I'm sure you are hurting for your daughter, as my mother went through the same thing. She still feels guilty, and wonders what she did wrong. Really, HONESTLY, I wouldn't change it for the world. I know it is natural for you to feel hurt, or feel like she is not getting a fair chance, but just wait. You'll see that she will grow up strong and happy and loving. She will have to fight prejudices, but maybe she will become the deaf Luther King, Jr. You'll see, she'll do wonderful things with her life, and she'll have you to thank. God bless you, Helen. Please contact me any time you feel down about this. handd1@... ~~~~ *** ~~~ *** ~~~ *** ~~~~ The Being Sick CommunityHelp with Merger/files/Visual problems with colors?Click the link below and select the modify link to your right. Then select the **Send Plain Text Email** option. This will stop you receiving emails with colored or enlarged fonts./joinMembers Lounge:-Photo Album, memorial page, members profiles, birthdays, locations, medical resources, counselling via email and a whole bunch of free things.http://www.elderwyn.com/members Message Archives and Digest Attachment Pictures:-/messagesChat:- Scheduled Daily Chats at # on IRC DALnet./files/chat.htmBookmarks:-Add a website URL you have found useful./linksPersonal Complaints or problems:-Please contact a moderator either via email <-owner > or visit:- /files/Moderators.htmSubscription Details:-1) Individual email - means that every email sent to the list you receive.2) Daily Digest - sends you 25 messages in one single email for you to browse. This is an excellent option if you receive alot of email.3) Web only/No mail - means that you can pop into eGroups at your convenience and receive no email.To modify your subscription settings, subscribe or unsubscribe, please visit /join~~~~ *** ~~~ *** ~~~ *** ~~~~Hold on to what is good, even if it's a handful of earth. Hold on to what you believe, even if it's a tree that stands by itself. Hold on to what you must do even, if it's a long way from here. Hold on to your life, even if it's easier to let go." - Pueblo Prayer Quote Link to comment Share on other sites More sharing options...
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