Guest guest Posted March 23, 2004 Report Share Posted March 23, 2004 Hi is having this same surgery on April 21. According to the specialists I have talked to, it will do wonders, including relieving the sleep apnea, improving appetite, improving behavior (not that has any behavior problems,), etc. There are risks as with all surgeries. will have an overnight stay and I will insist on longer if any complications develop. is to have two weeks of complete rest, no school, no recess, no Scouting, no dance, no music lessons, no hard or spicy food. Of course, has seven diagnosis. He is on medication for JRA and that has to be stopped before the surgery to reduce risk of bleeding. He is also to be pre-medicated with an antibiotic because he had VSD repair as a 15 month old. is now 12 years old. Ask them any questions you feel you are uncomfortable about. I always ask questions and get complete answers. I also always take in a complete medical history of or whichever one I am taking to the doctor even if they have it already. Insist on the overnight stay if they try to tell you otherwise. Dad to , Kristi, (all three Down syndrome) and (Cri du chat) Husband to C. in Mo. Uncle Daddy to and in California (Down syndrome) T & A question > Our son Isaac (5, DS) went to the ENT today and he suggested Isaac have his tonsils and adenoids removed (which we weren't surprised) and also his uvula shortened. Isaac has sleep apnea and he felt this would help. I'm wondering from you all if there are certain questions I should ask about this procedure or things I should look out for. Isaac hasn't had surgery before. The doctor did indicate this would be an overnight stay. > Thanks, > Jill > Mom to Isaac (5, DS), Lydia and > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2008 Report Share Posted January 8, 2008 (age 4) is going to have his T & A next Friday. We really struggled with this decision. We have not done prednisone. We have gone to NIH and ruled out genetic fever syndromes. Last spring, had two consecutive fever episodes where his tonsils got so swollen he couldn't eat or drink. We arranged a consultation with an otolaryngologist then, and decided we would probably do it if he had another bad episode like that. But then his episodes got milder and farther apart, and we thought maybe he was outgrowing it. Until December. Over Christmas, he had one of his worst episodes ever, again with terrible tonsil involvement. I took him to the pediatrician a week after the fever ended, and his tonsils were still so swollen that they were practically touching his uvula. The pediatrician agrees that a T & A is a good idea. In addition to his fevers, has always snored loudly and we are quite certain that he has sleep apnea. He has never slept through the night. Even if the T & A doesn't eliminate the fevers, it should solve those problems. We were not willing to consider taking out healthy tonsils on the chance that doing so would get rid of the fevers. But his tonsils are giving us enough other reasons to take them out that we've decided it's time to do it. And of course, we're really hoping the fevers do go away! But it is scary to decide on surgery. I don't know how I'm going to get through that day. - Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2008 Report Share Posted January 8, 2008 (age 4) is going to have his T & A next Friday. We really struggled with this decision. We have not done prednisone. We have gone to NIH and ruled out genetic fever syndromes. Last spring, had two consecutive fever episodes where his tonsils got so swollen he couldn't eat or drink. We arranged a consultation with an otolaryngologist then, and decided we would probably do it if he had another bad episode like that. But then his episodes got milder and farther apart, and we thought maybe he was outgrowing it. Until December. Over Christmas, he had one of his worst episodes ever, again with terrible tonsil involvement. I took him to the pediatrician a week after the fever ended, and his tonsils were still so swollen that they were practically touching his uvula. The pediatrician agrees that a T & A is a good idea. In addition to his fevers, has always snored loudly and we are quite certain that he has sleep apnea. He has never slept through the night. Even if the T & A doesn't eliminate the fevers, it should solve those problems. We were not willing to consider taking out healthy tonsils on the chance that doing so would get rid of the fevers. But his tonsils are giving us enough other reasons to take them out that we've decided it's time to do it. And of course, we're really hoping the fevers do go away! But it is scary to decide on surgery. I don't know how I'm going to get through that day. - Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 11, 2008 Report Share Posted January 11, 2008 You have touched on part of my concern. When Mia fevers her tonsils don't ever get that bad. They do get a somewhat swollen and there has been times where they has been puss on them but I don't think they have ever really been that bad. I am scared of taking healthy tonsils. Thank you for your response. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 11, 2008 Report Share Posted January 11, 2008 You have touched on part of my concern. When Mia fevers her tonsils don't ever get that bad. They do get a somewhat swollen and there has been times where they has been puss on them but I don't think they have ever really been that bad. I am scared of taking healthy tonsils. Thank you for your response. Quote Link to comment Share on other sites More sharing options...
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