Ling /endovisit/ headaces / chatroom

[Guest guest]

Hello Ling *hugs*

Its lovely to see you back hon. How are you coping with everything? It must be a terribly hard time for you right now. Are your family being supportive? is there antyhing we can do to help?

Your endo sounds like a lovely Dr. Its so good to know that these special Drs do exist. Its good for you too to know that he is looking after you. What a relief for you!

But oh the headaches - what a nightmare for you! Injections. YUCK. I am on amitriptyline. It does take a while to build up, and the longer you are on it the better it works. What dose are you on? I know lots of Drs just start you on 25mg. But you can have much more then that. Codeine is good too - its one of the few pain meds I have found that actuatlly work. Is it helping you sweety?

"I feel like a sick old lady, stuck to the bed, and hardly have any life."

*gentle hugs*

I do know that feeling. Its not nice. (uderstatement of the year)

Love you very muhc and woud do what I could to make it all better. How are the medications helping now?

Sorry I missed you inn the chat room. Missed your email by 30 mins. Sorry hon, will try to catch up wiht you again soon!!! Much much love to you and bunbun!!

Aisha

[Guest guest]

Hello Aisha, Nerys,, 4, Sophia and all,

"Its lovely to see you back hon. How are you coping with everything? It must be a terribly hard time for you right now. Are your family being supportive? is there antyhing we can do to help?"

Supportive? I feel I am stronger than them in this aspect. My second sis still miss mum very much, and will often suddenly cry. I think of my my mum all the time too, almost everything I see reminds me of her. However, I do try not to let it control me. But the thing is, my sis just keeps talking about it, such as asking me questions like, " Do you miss Mum" Do you think Mum is in heaven? Do you think we should have let the docs intubate her?" When looking at the past photos, they kept asking me, " Mum looks quite sick, don't you think so?"

I mean, I will be very unfeeling if i say I do not miss her, but I try to avoid letting myself get controlled by this feelings of missing her. Hence, I get kind of irritated when they ask me these questions. I try to keep myself together, but they kept reminding me!!! I know it is okay to miss my mum, but it is horrible to be reminded of her that way. Everyday, the scene that happened in the ICU replays in my mind. I try not to let these thoughts control me, but my sisters are not making the situation any better.

"Your endo sounds like a lovely Dr. Its so good to know that these special Drs do exist. Its good for you too to know that he is looking after you."

Yeah, he is fantastic. He is the best doc I have ever met.

"But oh the headaches - what a nightmare for you! Injections. YUCK. I am on amitriptyline. It does take a while to build up, and the longer you are on it the better it works. What dose are you on? "

I did not take the amitriptyline. It did not work for me the other round, so I did not take it now. I am now taking Indomethacin when the pain comes. I try not to take it unless it becomes bad, as the doc is worried the drug will burn a hole in my stomach.

One of the drugs that actually work on me is actually Indomethacin. Celebrex, well, it only helps for up to 4hrs. Others like Baclofen, Valporate, Synflex, Naramig, they hardly work at all.

"Love you very muhc and woud do what I could to make it all better. How are the medications helping now? "

None helped much. I will be seeing the pain doc again on Fri. I actually called him on Tue, but he was unable to help me as he would be busy in the operating theartre for the whole day. He asked me to to to my neuro or go to the emergency dept. I did not, for I know that will end me up admitted into the hospital again.

"Sorry I missed you inn the chat room. Missed your email by 30 mins."

Aisha: No prob! I am sure we will meet each other again. Maybe in ICQ???

Just want to thank everyone for their kind words, really appreciate it.

Lots of hugs,

Ling

[Guest guest]

Dearest Ling,

It must be a really hard time for you now. I totally understand that you would rather remember your mum as your mum, not as someone who was sick. Sounds like your sisters are just grieving and this is their way of doing so. We all have our own ways of coping as you know all too well sweets *hugs* I admire your strength and compassion.

Let us know how you go with the pain doc hon. And yes I look forward to seeing you in the chatroom or ICQ (which tends to not work so good) or catching up for a chat soon honey!

Love you very much, take care of your sweet self.

*gentle hugs*

Aisha