Re: Really rotten week!!!!

[Guest guest]

Hi ,

YUCK - IV antibios - YUCK YUCK YUCK. I hope you are taking something like Flagyl, or acidophilus? You don't want your tummy going bad on all these antibios. What they have you on? Gentamycin?

"probably looking at at least 6 more weeks because they believe there is an infection in my bone, WONDERFUL I am so pissed!!!"

I dont blame you babe! 6 weeks of IV Antibios - shit thats nasty. At home or hospital?

"I am angry that this "MD" didn't follow it (he's going to hear very loudly from me) if he did follow he could have caught it before it got to this point. <snip> I'm so angry that I can't even think straight. Just the antibiotics alone are going to make other things worse like my Crohns Disease. I've been doing this for 6 months now because of the original idiot . I really think I am going to take some type of legal action against him. As far as I'm concerned I should have had follow up until the thing healed at least. He just threw up his hands and said there's nothing more we can do, you don't have to come back. I think it's patient negligence and I'm paying a really big price for it."

Sounds like you have a very reasonable claim to take legal action - it does sound like the man is a fool and should be slapped!!! "Sorry I'm going on and on but that's how angry and upset and depressed I am about all of this."

Never apologise, we know how shitty it can be. Scream all you need honey!

"This is suppose to be a nice time of year......"

I think its the hardest time of year for us. Kind of reminds us of everything we cant do, cant go shopping, cant get gifts, cant afford anything, cant cook etc etc. Let alone all the shit with family. Its a rough time of year and I'm not real christmassy just now either.

How are ya doing ? Hows the IV's going?

Thinking of you, and please, vent away all you need.

Love Aisha

[Guest guest]

Thanks ,

I am not a very good patient because I get terribly angry especially when I

am somewhere because of an idiot doctor. theweek of the week hasn't been any

better. Tomorrow, my birthday, I get to go back to the hospital and have a

PICC line put in--such fun!!! Now I know why I hate birthdays

Love

[Guest guest]

IVS STINK!!!!!! Working on #6 already and tomorrow I go for a PICC line

because Ihave no viens left for the years of use--wonderful birthday present.

The rest of the week was just as bad. All the scans and spending the whole

day at the hospital running here and there. Poor Meg I thought she was going

to crack up. She got so tired one day she was daydreaming and didn't get out

of the elevator fast enough and the doors closed with her inside. I thohgt

we both were going to have a heart attack. thankfull a woman getting on

heard me screaming and waving my arms and brought her back. I thought I

would never let her go. the only good thing is that the radiologist " doesn't

think there is but can't rule out " an infection in the bone, deep skin

definatly so the anitbiotics go on. If the ulcers not better by Sunday then

they want to biopsy it.

I really hate being sick at this time of the year. I finally broke down

today and called and ordered pies for Thanksgiving. I have NEVER done that.

My girlfriend calls me th Betty Crocker of Southbridge because I always make

from scratch. Oh well

Timeee to try and sleep--I'm so nervous about tomorrow

Love and hugs

[Guest guest]

Tomorrow, my birthday, I get to go back to the hospital and have a

PICC line put in--such fun!!! Now I know why I hate birthdays

Love

###########Happy Birthday !!!

Hope you have a nice one, even though you have to have the thingie put in...

Hugs

Helen

--- angelbear1129@...

--- EarthLink: It's your Internet.

[Guest guest]

"I really hate being sick at this time of the year."

Me too - sucks not being able to go shopping or cook or whatever you want to do. I'm so antichristmas at the moment. In a real bah humbug frame of mind.

"I finally broke down today and called and ordered pies for Thanksgiving."

I think thats sensible hon, you cant expect yourself to do everything.

"I'm so nervous about tomorrow"

How did it go ? How are you feeling?

Love Aisha

[Guest guest]

Hi Aisha,

The PICC line was horrible! They didn't do it the day they were suppose so I

went the following day just planning to get my med and come home because I

was really feeling lousy and I got told they were doing the line. I had Meg

with me. So I ended up having to call my parents to drive 50 miles to come

get her. My Dad finaly went home with Meg and my Mom stayed because I was

such a nervous wreck and my asthma was totally out of control. 2 more doc to

add to the slapping list my primary who blew me off on Friday when I couldn't

breath-- " you're on IV meds that will take care of what you have " then the

covering infectious disease doc on Saturday who the IV nurse called becaue I

was having such a problem breathing " it's not you're asthma you're not

wheezing enough (I don't wheeze I cough for starters) go home and take cough

med. By Sunday it was really back then add in the surprise of the line and

needless to say my asthma was really bad. So I spent the rest of the

afternoon in the Er because my regular Infectious doc couldn't get me there

fast enough. 6 hours later, 6 breathing treatments, a few pain pills and a

shit load of new meds (57$ just in copays!) I finally got home. Doctors can

be so stupid at times, I guess I really need to re evaluate some of the

doctors I have been using. But I came home and laid down the law to all

here. I need to rest, which means fend for yourself. You want clean

clothes-wash them. want them ironed? do it etc etc. Even the 4 year old

got the message pick up your things because if I do it's with a garbage bag.

I think it finally sunk in a little with everything that has happened in the

last couple days.

Right now I am just exhauted the meds are all fighting each other, one makes

me hyper, and the other makes me sleepy and so on. It's enough to keep the

med schedule right plus I have to drive to the hospital daily wich takes me

1.5-2 hours round trip. I am kind of looking forward to being on school

vacation soon, he helps more than the husband does.

I hope you're feeling ok, now that I have rambled on and on. I just can't

stop thinking about all the med screw ups that have gotten me to this point

and that I allowed it to happen (I'm a nurse, I should have seen some of

this) but you better believe I'm not sitting back anymore and if I don't

think the answer is reasonable then I will keep looking.

If I don't get back on for a few days it's just because I am enhausted and I

hope EVERYBODY HAS A WONDERFUL THANKSGIVING AND GETS TO EAT EVERYTHING THEY

CAN (WITH OUT HURTING OURSELVES!!)

I know I am thankful for all of you..

Love and big hugs..

[Guest guest]

Thanks, Helen,

Actually they skipped doing it on my birthday (thank god because it hurt like

hell) and did it the following day. Worst birthday I have ever had, but my

Mom brought me Chocolate cake.. YYYUUUUUMMMMMMM

Love kelly

[Guest guest]

Hey !!

How are you doing now? That Picc line still in? *ugh* I just HATE IV's...

"Doctors can be so stupid at times, I guess I really need to re evaluate some of the doctors I have been using."

What type of Drs are you seeing? Are they treating you as a human or just a case? Remember you pay their salary therfore you are THE BOSS. If you dont like em, fire em and hire someone better!!!

"I need to rest, which means fend for yourself. You want clean clothes-wash them. want them ironed? do it etc etc. Even the 4 year old got the message pick up your things because if I do it's with a garbage bag. I think it finally sunk in a little with everything that has happened in the last couple days."

Thats the attitude babe! Kick ass attitude. If your 4 yo can do that then everyone in your household can!

"Right now I am just exhauted the meds are all fighting each other, one makes me hyper, and the other makes me sleepy and so on. It's enough to keep the med schedule right plus I have to drive to the hospital daily wich takes me 1.5-2 hours round trip. I am kind of looking forward to being on school vacation soon, he helps more than the husband does."

You are driving yourself? *coughs* Isnt that kind of dangerous? Do they not have transport facilities where you could be picked up? IV's can make you sick as shit, the last thing you should be doing is driving afterwards. Where did they end up putting the PICC line?

"I hope you're feeling ok, now that I have rambled on and on. I just can't stop thinking about all the med screw ups that have gotten me to this point and that I allowed it to happen (I'm a nurse, I should have seen some of this) but you better believe I'm not sitting back anymore and if I don't think the answer is reasonable then I will keep looking."

Dont blame yourself. I'm a smart woman but stuck with twit practioners also in the hope that they had some answers for me. You do the best you can with what knowledge you have at the time. Nurse or not you are sick therefore you do anything to be well. Good to see you got that fighting attitude back. Dont sit back and take crap from any practitioner, cause if they are like that then you will not be able to work with them and you will never get well. You need medical professionals you know are good, who you believe in, and who you can turn to.

Hang in there honey, you're doing great!

*hugs*

Love Aisha