Boston

[Guest guest]

Are there any members in the Boston area?

[Guest guest]

Boston is applying EDF casting to young patients (they are probably saying

Risser due to ins. coding)...Although, I think they are also giving a lot

of cast breaks? ~And, Im not sure if parents have easy access to treating

docs and thorough follow-up post op...?

Parents going to Boston will have a better idea of whats going on there:)

Boston parents, please update when you can.

HRH

>

> I know this is a late response, but I am from Southington CT! I went

> through a lot of frustration trying to find the best for my daughter

> Kayleigh, she just turned a year. Schriners Boston only does Risser, si I

> ended up with Schriners Philidelphia with Dr. Cahill. If you want to get

> into there I can give you the nurse's contact info because if you wait for

> the secretary there it wll take forever... I snooped around and got into

> direct contact with his nurse and from my first call to her Kayleigh was

> casted within a month. Schriners is also free care after insurance and Dr

> Cahill is very good!

>

> Please, if you need anything feel free to contact me! It will be good to

> know someone close by going through the same thing!

> Caitlin

> 203 715 1875

>

>>

>> I am the mother of a 10 1/2 month old boy named Hunter who was diagnosed

>> with progressive infantile scoliosis at 9 months. Just like many stories

>> I have heard I am the one that discovered the scoliosis and was told he

>> was too young to have it. Well after being persistent it was in fact

>> confirmed at 9 months. Hunter was at 20 degrees at 9 1/2 months and is

>> scheduled for casting in September. My concern is that the hospital in

>> Hartford uses risser casting and not edf. I am being told that there is

>> not much difference in outcome. I like and trust the doctot but want to

>> hear from others on their thoughts. Does anyone know of a

>> doctor/hospital in the Connecticut area or New York area that does edf

>> casting and who has the name of a good doctor. Thank you.

>>

>

>

>

[Guest guest]

Hello,

I am sorry I am just answering to this post now, but I hope I can give you somewhat useful info. I can't say anything about Shriners Boston since my daughter is being treated in Boston Children's Hospital. She's been Mehta casted for seven month already (she is now 2 years and two month old). is right that on paper they call it Risser, but it is for insurance purposes ( I asked about it because I was confused the first time I saw the paperwork). As for the brakes, she usually gets her cast removed on Tuesday afternoon and the new one goes on Thursday morning. I am not sure how many days out of cast is considered a brake.

Ventsi

infantilescoliosis.org <heather@...> wrote:

From: heather@... <heather@...>Subject: Re: Re: Bostoninfantile scoliosis treatment Date: Wednesday, July 25, 2012, 8:15 AM

Boston is applying EDF casting to young patients (they are probably sayingRisser due to ins. coding)...Although, I think they are also giving a lotof cast breaks? ~And, Im not sure if parents have easy access to treatingdocs and thorough follow-up post op...?Parents going to Boston will have a better idea of whats going on there:) Boston parents, please update when you can.HRH>> I know this is a late response, but I am from Southington CT! I went> through a lot of frustration trying to find the best for my daughter> Kayleigh, she just turned a year. Schriners Boston only does Risser, si I> ended up with Schriners Philidelphia with Dr. Cahill. If you want to get> into there I can give you the nurse's contact info because if you wait for> the secretary there it wll take forever... I snooped around and got into> direct contact with his nurse and from my first call to

her Kayleigh was> casted within a month. Schriners is also free care after insurance and Dr> Cahill is very good!>> Please, if you need anything feel free to contact me! It will be good to> know someone close by going through the same thing!> Caitlin> 203 715 1875> >>>> I am the mother of a 10 1/2 month old boy named Hunter who was diagnosed>> with progressive infantile scoliosis at 9 months. Just like many stories>> I have heard I am the one that discovered the scoliosis and was told he>> was too young to have it. Well after being persistent it was in fact>> confirmed at 9 months.

Hunter was at 20 degrees at 9 1/2 months and is>> scheduled for casting in September. My concern is that the hospital in>> Hartford uses risser casting and not edf. I am being told that there is>> not much difference in outcome. I like and trust the doctot but want to>> hear from others on their thoughts. Does anyone know of a>> doctor/hospital in the Connecticut area or New York area that does edf>> casting and who has the name of a good doctor. Thank you.>>>>>

[Guest guest]

Thanks for the info on Boston, Ventsi! I didnt realize there was a

Shriners in Boston! It must be for burn care.

In regards to cast breaks...Im just guessing here, so please correct me if

Im wrong, but I think they give kids who are not being cured and using

casting as a delay tactic prior to surgery longer cast breaks...And~

kiddos that have a good shot a complete resolution get only a day or two

cast break. This is how its done at most ET Mehta Casting centers with

experience and Im pretty sure Boston is doing the same.

HRH

> Hello,

>  

> I am sorry I am just answering to this post now, but I hope I can give you

> somewhat useful info. I can't say anything about Shriners Boston since my

> daughter is being treated in Boston Children's Hospital. She's been Mehta

> casted for seven month already (she is now 2 years and two month old).

> is right that on paper they call it Risser, but it is for

> insurance purposes ( I asked about it because I was confused the first

> time I saw the paperwork).  As for the brakes, she usually  gets her

> cast removed on Tuesday afternoon and the new one goes on Thursday

> morning.  I am not sure how many days out of cast is considered a brake.

>  

> Ventsi

>  

>  

>

> infantilescoliosis.org <heather@...> wrote:

>

>

> From: heather@... <heather@...>

> Subject: Re: Re: Boston

> infantile scoliosis treatment

> Date: Wednesday, July 25, 2012, 8:15 AM

>

>

>

>  

>

>

>

> Boston is applying EDF casting to young patients (they are probably saying

> Risser due to ins. coding)...Although, I think they are also giving a lot

> of cast breaks? ~And, Im not sure if parents have easy access to treating

> docs and thorough follow-up post op...?

> Parents going to Boston will have a better idea of whats going on there:)

> Boston parents, please update when you can.

> HRH

>

>>

>> I know this is a late response, but I am from Southington CT! I went

>> through a lot of frustration trying to find the best for my daughter

>> Kayleigh, she just turned a year. Schriners Boston only does Risser, si

>> I

>> ended up with Schriners Philidelphia with Dr. Cahill. If you want to get

>> into there I can give you the nurse's contact info because if you wait

>> for

>> the secretary there it wll take forever... I snooped around and got into

>> direct contact with his nurse and from my first call to her Kayleigh was

>> casted within a month. Schriners is also free care after insurance and

>> Dr

>> Cahill is very good!

>>

>> Please, if you need anything feel free to contact me! It will be good to

>> know someone close by going through the same thing!

>> Caitlin

>> 203 715 1875

>>

>>>

>>> I am the mother of a 10 1/2 month old boy named Hunter who was

>>> diagnosed

>>> with progressive infantile scoliosis at 9 months. Just like many

>>> stories

>>> I have heard I am the one that discovered the scoliosis and was told he

>>> was too young to have it. Well after being persistent it was in fact

>>> confirmed at 9 months. Hunter was at 20 degrees at 9 1/2 months and is

>>> scheduled for casting in September. My concern is that the hospital in

>>> Hartford uses risser casting and not edf. I am being told that there is

>>> not much difference in outcome. I like and trust the doctot but want to

>>> hear from others on their thoughts. Does anyone know of a

>>> doctor/hospital in the Connecticut area or New York area that does edf

>>> casting and who has the name of a good doctor. Thank you.

>>>

>>

>>

>>

>

>

>

>

>

>

>

[Guest guest]

Hi ,

I think you are right about the brakes. Our goal, and even more importantly, our doctor's goal is a complete resolution for our daughter. Of course I understand and am prepared that you can not 100% predict the outcom, but as long as the doctor is aiming at complete cure I am happy. >>> From: heather@... <heather@...>> Subject: Re: Re: Boston> infantile scoliosis treatment > Date: Wednesday, July 25, 2012, 8:15 AM>>>> Â >>>> Boston is applying EDF casting to young patients (they are probably saying> Risser due to ins. coding)...Although, I think they are also giving a lot> of cast breaks? ~And, Im not sure if parents have easy access to treating> docs and thorough follow-up post op...?> Parents going to Boston will have a better idea of whats going on

there:)> Boston parents, please update when you can.> HRH>>>>> I know this is a late response, but I am from Southington CT! I went>> through a lot of frustration trying to find the best for my daughter>> Kayleigh, she just turned a year. Schriners Boston only does Risser, si>> I>> ended up with Schriners Philidelphia with Dr. Cahill. If you want to get>> into there I can give you the nurse's contact info because if you wait>> for>> the secretary there it wll take forever... I snooped around and got into>> direct contact with his nurse and from my first call to her Kayleigh was>> casted within a month. Schriners is also free care after insurance and>> Dr>> Cahill is very good!>>>> Please, if you need anything feel free to contact me! It will be good to>> know someone close by

going through the same thing!>> Caitlin>> 203 715 1875>> >>>>>> I am the mother of a 10 1/2 month old boy named Hunter who was>>> diagnosed>>> with progressive infantile scoliosis at 9 months. Just like many>>> stories>>> I have heard I am the one that discovered the scoliosis and was told he>>> was too young to have it. Well after being persistent it was in fact>>> confirmed at 9 months. Hunter was at 20 degrees at 9 1/2 months and is>>> scheduled for casting in September. My concern is that the hospital in>>> Hartford uses risser casting and

not edf. I am being told that there is>>> not much difference in outcome. I like and trust the doctot but want to>>> hear from others on their thoughts. Does anyone know of a>>> doctor/hospital in the Connecticut area or New York area that does edf>>> casting and who has the name of a good doctor. Thank you.>>>>>>>>>>>>>>>>

[Guest guest]

Hey! Just reading these posts now because I saw "Boston". We just had Olivia's first cast put on at Children's in Boston and I can't say enough positives about the whole process. It is Mehta casting and there are no breaks. Cast comes off Monday, new cast Tuesday, unless there are skin issues and at that the longest break may be a week depending on the severity of the skin problems. If you have any questions please feel free to ask. I've also written down everything in great detail in my blog. Hope this helps!> >>>> >>> I am the mother of a 10 1/2 month old boy named Hunter who was> >>> diagnosed> >>> with progressive infantile scoliosis at 9 months. Just like many> >>> stories> >>> I have heard I am the one that discovered the scoliosis and was told he> >>> was too young to have it. Well after being persistent it was in fact> >>> confirmed at 9 months. Hunter was at 20 degrees at 9 1/2 months and is> >>> scheduled for casting in September. My concern is that the hospital in> >>> Hartford uses risser casting and not edf. I am being told that there is> >>> not much difference in outcome. I like and trust the doctot but want to> >>> hear from others on their thoughts. Does anyone know of a> >>> doctor/hospital in the Connecticut area or New York area that does edf> >>> casting and who has the name of a good doctor. Thank you.> >>>> >>> >>> >>> >> >> >> >> >> >> >>

[Guest guest]

Sounds like you and the doc have the same goal for cast treatment and that

is KEY in treating PIS effectively. Good job momma!

HRH

> Hi ,

>  

> I think you are right about the brakes. Our goal, and even more

> importantly, our doctor's goal is a complete resolution for our daughter.

> Of course I understand and am prepared that you can not 100% predict the

> outcom, but as long as the doctor is aiming at complete cure I am happy.

>

>

>>

>>

>> From: heather@... <heather@...>

>> Subject: Re: Re: Boston

>> infantile scoliosis treatment

>> Date: Wednesday, July 25, 2012, 8:15 AM

>>

>>

>>

>>  

>>

>>

>>

>> Boston is applying EDF casting to young patients (they are probably

>> saying

>> Risser due to ins. coding)...Although, I think they are also giving a

>> lot

>> of cast breaks? ~And, Im not sure if parents have easy access to

>> treating

>> docs and thorough follow-up post op...?

>> Parents going to Boston will have a better idea of whats going on

>> there:)

>> Boston parents, please update when you can.

>> HRH

>>

>>>

>>> I know this is a late response, but I am from Southington CT! I went

>>> through a lot of frustration trying to find the best for my daughter

>>> Kayleigh, she just turned a year. Schriners Boston only does Risser, si

>>> I

>>> ended up with Schriners Philidelphia with Dr. Cahill. If you want to

>>> get

>>> into there I can give you the nurse's contact info because if you wait

>>> for

>>> the secretary there it wll take forever... I snooped around and got

>>> into

>>> direct contact with his nurse and from my first call to her Kayleigh

>>> was

>>> casted within a month. Schriners is also free care after insurance and

>>> Dr

>>> Cahill is very good!

>>>

>>> Please, if you need anything feel free to contact me! It will be good

>>> to

>>> know someone close by going through the same thing!

>>> Caitlin

>>> 203 715 1875

>>>

>>>>

>>>> I am the mother of a 10 1/2 month old boy named Hunter who was

>>>> diagnosed

>>>> with progressive infantile scoliosis at 9 months. Just like many

>>>> stories

>>>> I have heard I am the one that discovered the scoliosis and was told

>>>> he

>>>> was too young to have it. Well after being persistent it was in fact

>>>> confirmed at 9 months. Hunter was at 20 degrees at 9 1/2 months and is

>>>> scheduled for casting in September. My concern is that the hospital in

>>>> Hartford uses risser casting and not edf. I am being told that there

>>>> is

>>>> not much difference in outcome. I like and trust the doctot but want

>>>> to

>>>> hear from others on their thoughts. Does anyone know of a

>>>> doctor/hospital in the Connecticut area or New York area that does edf

>>>> casting and who has the name of a good doctor. Thank you.

>>>>

>>>

>>>

>>>

>>

>>

>>

>>

>>

>>

>>

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