Guest guest Posted March 31, 2006 Report Share Posted March 31, 2006 As I've always posted here we had to supplement the carnosine/carn- aware for my son Tanner on an on and off basis. I don't know why. We used to mix the carn-aware with the pure carnosine powder to kee the costs on, so I agree with Kerri on that point. (2 cents we wish right?!) One funny point about this is that I have a child that at that point was eating fish oil off a spoon every day -but if he saw the white powder of the carnosine/carn-aware he wouldn't eat his food. What's funny about that? It had no smell or flavor and if I mixed it in well enough he had no idea it was there! We have not used carnosine or carn-aware for at least a year. What I've seen on each supplement (an old archived message up on Speechville now) http://www.speech-express.com/alternative-therapy/efa-faqs.html My experience with Carnosine and Carn-aware http://www.speech-express.com/alternative-therapy/carnosine.html Tanner's story http://www.cherab.org/information/familiesrelate/letter.html ===== Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 31, 2006 Report Share Posted March 31, 2006 We also got wows from lipo glutathione, which we started after starting carnaware (and the kids are still on the glut). , have you tried carnosine with Dakota? You've mentioned his attention problems, so I'm wondering if it would have an effect on adhd. thanks, > > As I've always posted here we had to supplement the carnosine/carn- > aware for my son Tanner on an on and off basis. I don't know why. > We used to mix the carn-aware with the pure carnosine powder to kee > the costs on, so I agree with Kerri on that point. (2 cents we wish > right?!) > > One funny point about this is that I have a child that at that point > was eating fish oil off a spoon every day -but if he saw the white > powder of the carnosine/carn-aware he wouldn't eat his food. What's > funny about that? It had no smell or flavor and if I mixed it in > well enough he had no idea it was there! > > We have not used carnosine or carn-aware for at least a year. > > What I've seen on each supplement (an old archived message up on > Speechville now) > http://www.speech-express.com/alternative-therapy/efa-faqs.html > > My experience with Carnosine and Carn-aware > http://www.speech-express.com/alternative-therapy/carnosine.html > > Tanner's story > http://www.cherab.org/information/familiesrelate/letter.html > > ===== > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 1, 2006 Report Share Posted April 1, 2006 does anyone get blood levels before giving these enzymes and supplements or do most just do trial and error? karen Jeff <kerripat@...> wrote: , Of the things we have tried so far, I have to say that Carn-Aware has not been one of our " favorites " . No bad side effects or anything, we just didn't notice any " wow " results, and it's pretty darn expensive. However, we only went up to 2 per day, and I've heard of other people using 4 per day. I may try it again at the higher dose someday. Just a note: Carn-Aware is a blend of L-carnosine, zinc and vitamin E. Vitamin E is supposed to be good for neurological issues (and it's in Pro-EFA and Omega 3-6-9) and zinc is another common supplement our kids need. So I'm not sure if it's maybe the formulation that helps? Or just the carnosine? You can get just plain carnosine for way cheaper, and I was thinking about trying that, if there's a next time. Other things that have helped us: Pro-EFA (wow!), Pro-EPA, GFCF diet, lipoceutical glutathione (wow!), epsom salt baths. Next up: ViraStop enzymes and Olive leaf extract to battle virus issues. My 2 cents, Kerri > > Would those of you who have used carnosine please post your > experiences with it? I've used it before in both my kids and saw good > gains, but stopped after 9 months (and they didn't lose any skills). > Now my son is older and he is having problems with attention and > auditory processing in school. I'm wondering if carnosine might help > these issues. I've read Dr. Chez's studies, but I'd like to hear what > you have seen too. > > thanks very much, > > > p.s. I'm sorry if this is off-topic. I know that carnosine is useful > for apraxia, so I thought some of you may have seen an effect on other > issues. thanks. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 1, 2006 Report Share Posted April 1, 2006 I did do a nutritional analysis (bloodwork) before starting supplements, so I knew what vitamins, minerals and aminos my children were low on, and I knew they were low on omega 3 fatty acids and glutathione. There isn't a test that indicates a need for carnosine to my knowledge. I give enzymes because a stool test indicated that my children don't produce enough digestive enzymes. > > > > Would those of you who have used carnosine please post your > > experiences with it? I've used it before in both my kids and saw > good > > gains, but stopped after 9 months (and they didn't lose any > skills). > > Now my son is older and he is having problems with attention and > > auditory processing in school. I'm wondering if carnosine might > help > > these issues. I've read Dr. Chez's studies, but I'd like to hear > what > > you have seen too. > > > > thanks very much, > > > > > > p.s. I'm sorry if this is off-topic. I know that carnosine is > useful > > for apraxia, so I thought some of you may have seen an effect on > other > > issues. thanks. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 1, 2006 Report Share Posted April 1, 2006 may want to keep an open mind regarding blood testing as the way to know correct levels of Omegas at least. (and to date still have not done blood testing on either of my boys) The following archive may answer why* *Dr. AJ who I speak of below is now behind www.durhamtrial.org From: " kiddietalk " <kiddietalk@...> Date: Sat May 14, 2005 7:05 am Subject: Re: Re-adding Pro-EFA kiddietalk Hi Laurel, When the MD diagnosed Evan as " Receptive-Expressive Language Disorder " what methods were used for testing to know there were " receptive " delays in addition to expressive delays? Does Evan (on the oils at least) know how to follow 2 and 3 part commands like " go get your teddy and bring him to me " or " grab your sneakers and your sweater and hurry to the car or we are going to be late! " I like to give children the benefit of the doubt and 'not' use the word " receptive " or " cognitive " delayed -unless you seek second opinions and know for sure. Those words easily change over the years -and 'not' for the better. Know if they are correct to use right from the start -and make sure that only nonverbal testing is used for verbal disabled children or it's a violation of their civil rights and can be filed as a complaint with the Office of Civil Rights. (Please let me know if any of you are at that point lisa@... ) Laurel once a child is up to two capsules of ProEFA, there are no reasons I know of not to go back to the two capsules if you stop and want to start again. Perhaps your child however has special dietary needs you are following from an MD. Just curious too. Does your child's MD know that each time he diagnosed your child it differed depending upon whether he was on the oil therapy? That is what is always posted here -a child on the oils will no longer present all the symptoms of his or her diagnosis. Apraxic children for example no longer fit the classic profile of apraxia....but doesn't mean they no longer need speech therapy! The oils just help to accelerate the progress. One or two capsules of ProEFA (fish and borage oil with a 5/1 ratio of Omega 3/DHA and EPA, over the Omega 6/GLA) are considered " extremely conservative dosages of fish oils " by all the professionals that spoke at the First Apraxia Conference http://www.cherab.org/news/scientific.html To give you an idea -one capsule of ProEFA is about equivalent to the dosage the FDA approved for infant formula. When we began fish oil therapy through CHERAB, we had hundreds of members that all knew each other and knew each other's children. Were there some that did blood analysis and waited to begin EFAs until after a host of other complicated nutritional supplements were given to the child? Yes. And in those cases there was a 50% success rate of the other stuff working. For those of us however that 'just gave the child fish oils " we had closer to a 90% success rate. One exception to this...If EFAs 'don't' work -which is the rare situation from what we've seen anyway -then perhaps that child needs other supplements to help digest the essential fatty acids properly. There's a very old expression " The Proof Is In The Pudding " which I love. If you try EFAs and they work...then that's all you need to know unless they don't work, or work well enough. As I posted once -I was standing next to Suzanne Smolyar who went the blood analysis route for her 5 year old daughter 'after' the ProEFA worked for her. Suzanne was talking to Dr. AJ about her daughter's blood analysis results. I said excuse me to both and asked " Dr. , if it was your child who is a child like those of ours in this group with a speech impairment or ADHD or whatever -and not for research, would you do blood analysis before you supplemented with fish oil...or...would you just supplement your child with the fish oils? " She (again) made a face like " you're kidding, right? " squinting her eyes a bit with a smile and said " I'd just give him the fish oils. " Here's just one of many articles about the most recent study on EFAs that Dr. AJ who spoke at the First Apraxia Conference was behind Can fish oil supplements really boost your brain power? Get the lowdown: http://www.gm.tv/index.cfm?articleid=14487 And...here's just one archive below as to why I'm not a huge believer in blood analysis. It obviously has some major flaws due to the blood brain barrier. This story again was based on a time when we all knew each other in person as a large group from mainly 1999 to 2003. When people post here you don't know what's the reality for the group -you do when you all know each other in person as a group. ~~~~~~~~~~~start of archive Unless we understand what is going on in our children and can make sure there is proper diagnosis/therapies for each -which we don't - and we understand what all the many various supplements are doing to help or not help, I'm not a huge believer of blood analysis for neurological conditions. This is why I choose to stick to those therapies/treatments/supplements I know are benign. I will add to that -unless there are medical reasons. My reasons on the blood analysis stem from EFAs due to another scientist/mathematician/mom in our group -former CHERAB VP Suzanne Smolyar who is now attending medical school to study EFAs due to her daughter 's amazing reactions on EFAs. " From: Suzanne Smolyar Date: Wed Mar 21, 2001 2:36 pm Subject: RE: [ ] progress Hi Gloria, I wanted to say that I know exactly how you feel. Last night at the table, 's brother (Ari 6.8) began to speak while was trying to say something, so she looked at Ari and said in a loud and affirmative tone " Shut up Ari, Shut up " . We were so excited and overjoyed at her using that phrase - we forgot to explain to her that it was inappropriate to use at the table and to her family members. We just thought it was golden -just like you did. Here is some background from one of my previous posts that will tell you why this is so exciting . " I am a mother of a beautiful 5-year-old girl, . Since the time she was about 11 mo old - I had a feeling that something was wrong with fine motor, gross motor and of course speech. Through the past 4 years, I have gone to numerous neurologists, best in the field, I must add. We have gone non-stop to therapy with , but the progress was painfully slow. did not speak- making it nearly impossible for us to communicate with her. Everyday at night I would kiss , and standing over her head I would say, " please start talking tomorrow " - subliminal messages - hoping they'd work. To no avail, my child was just not talking. Therapy helped, but progress was limited. I don't want to continue with this sob-story, as you probably all understand the fear and frustration in parents and the child as well. After becoming involved with Quote Link to comment Share on other sites More sharing options...
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