I have an 18 year old son with an ICD

[Guest guest]

I have an 18 year old son with and ICD, he was born with a heart

defect which later in life required him to have a valve implant as

well as an ICD. He is an active young man who loves the high school

Jazz Band. We live in a fairly small town and he, so far, is the only

young adult with an ICD that lives in the community. He feels a

bit " alone " as no one else can really relate to his feelings. I was

doing some research and found this website, but wanted to check it out

before I told him about it. Is there anyone else out there that has

an ICD who is a young adult? I would like to get him in touch with

someone who has similar problems that he can chat with on occasion.

[Guest guest]

Hi Laurie, My name is a and I am 25 years old and I received my ICD almost 3 months ago (I got it on my 25th birthday!). I have Ventricular Tachycardia and family history of ARVD (my brother died 6 months ago from it), as well as Mitral Valve Prolapse. I, too, have found it difficult finding other young adults with ICD's and I would enjoy chatting with your son about all of the issues surrounding having an ICD/Pacemaker implanted at such a young age. Thanks. a from Virginia Laurie <dlrgertenbach@...> wrote: I have an 18 year old son with and ICD, he was born with a heart defect which later in life required him to have a valve implant as well as an ICD. He is an active young man

who loves the high school Jazz Band. We live in a fairly small town and he, so far, is the only young adult with an ICD that lives in the community. He feels a bit "alone" as no one else can really relate to his feelings. I was doing some research and found this website, but wanted to check it out before I told him about it. Is there anyone else out there that has an ICD who is a young adult? I would like to get him in touch with someone who has similar problems that he can chat with on occasion.

Relax. virus scanning helps detect nasty viruses!

[Guest guest]

Hi a, I am so sorry to hear about your brother, how old was he? I am not sure what ARVD is? Can you explain? Having an ICD is truly a life changing experience, hope you are recovering from your surgery. Ross has struggled a bit with his ICD, it shocked him for the first time this last summer while we were on vacation, a total of 8 times. He and I were both air lifted 2 hours to Children's Hospital in San Diego from Mammoth Lakes California. It was an extremely scary time for both of us. It was found that he needed an adjustment to the ICD itself and an increase in his beta blocker medication. 3 years ago, at the age of 15 Ross had to have his second heart surgery, a pulmonic valve implant and also a regular pacemaker. All was ok for awhile but in December of 2004 he began having episodes of severe sweating, nausea and paleness. At first we weren't sure what was

going on, we thought maybe he was coming down with the flu, but when he went for a pacer check, they found that those episodes were Ventricular Tach at a rate of 245, they put him in ICU the 22nd of December and put in the ICD, we were home by Christmas Eve. I have been searching the internet trying to find younger adults with ICD's and finally contacted Medtronic Corp. today re: a new piece of equipment that we are using called a CareLink System. We live over 2 hours from the nearest facility that can treat my son. This CareLink System used if he receives a shock, we hook the monitor over his ICD, and it transmits vital info to the hospital. The hospital calls us back and lets us know if the shock did what it was supposed to or if we need to life flight him...a wonderful thing, we are blessed to have it. Anyway, the lady I spoke with, said that she had spoken to many people who rave about this web site...so gave it a try.

I will give my son your information, but he is a bit shy, I may be talking with you and giving him your information and emailing you back...I just hope to find an outlet for him to use when he feels alone. Thank you so kindly for your information, please keep in contact, I would love to hear from you. Sincerely, Laurie a <paula_butler25@...> wrote: Hi Laurie, My name is a and I am 25 years old and I received my ICD almost 3 months ago (I got it on my 25th birthday!). I have Ventricular Tachycardia and family history of ARVD (my brother died 6 months ago from it), as well as Mitral Valve Prolapse. I, too, have found it difficult finding other young adults with ICD's and I would enjoy chatting

with your son about all of the issues surrounding having an ICD/Pacemaker implanted at such a young age. Thanks. a from Virginia Laurie <dlrgertenbach@...> wrote: I have an 18 year old son with and ICD, he was born with a heart defect which later in life required him to have a valve implant as well as an ICD. He is an active young man who loves the high school Jazz Band. We live in a fairly small town and he, so far, is the only young adult with an ICD that lives in the community. He feels a bit "alone" as no one else can really relate to his feelings. I was doing some research and found this website, but wanted to check it out before I told him about it. Is there anyone else out there that

has an ICD who is a young adult? I would like to get him in touch with someone who has similar problems that he can chat with on occasion. Relax. virus scanning helps detect nasty viruses!

[Guest guest]

Hi a, I am so sorry to hear about your brother, how old was he? I am not sure what ARVD is? Can you explain? Having an ICD is truly a life changing experience, hope you are recovering from your surgery. Ross has struggled a bit with his ICD, it shocked him for the first time this last summer while we were on vacation, a total of 8 times. He and I were both air lifted 2 hours to Children's Hospital in San Diego from Mammoth Lakes California. It was an extremely scary time for both of us. It was found that he needed an adjustment to the ICD itself and an increase in his beta blocker medication. 3 years ago, at the age of 15 Ross had to have his second heart surgery, a pulmonic valve implant and also a regular pacemaker. All was ok for awhile but in December of 2004 he began having episodes of severe sweating, nausea and paleness. At first we weren't sure what was

going on, we thought maybe he was coming down with the flu, but when he went for a pacer check, they found that those episodes were Ventricular Tach at a rate of 245, they put him in ICU the 22nd of December and put in the ICD, we were home by Christmas Eve. I have been searching the internet trying to find younger adults with ICD's and finally contacted Medtronic Corp. today re: a new piece of equipment that we are using called a CareLink System. We live over 2 hours from the nearest facility that can treat my son. This CareLink System used if he receives a shock, we hook the monitor over his ICD, and it transmits vital info to the hospital. The hospital calls us back and lets us know if the shock did what it was supposed to or if we need to life flight him...a wonderful thing, we are blessed to have it. Anyway, the lady I spoke with, said that she had spoken to many people who rave about this web site...so gave it a try.

I will give my son your information, but he is a bit shy, I may be talking with you and giving him your information and emailing you back...I just hope to find an outlet for him to use when he feels alone. Thank you so kindly for your information, please keep in contact, I would love to hear from you. Sincerely, Laurie a <paula_butler25@...> wrote: Hi Laurie, My name is a and I am 25 years old and I received my ICD almost 3 months ago (I got it on my 25th birthday!). I have Ventricular Tachycardia and family history of ARVD (my brother died 6 months ago from it), as well as Mitral Valve Prolapse. I, too, have found it difficult finding other young adults with ICD's and I would enjoy chatting

with your son about all of the issues surrounding having an ICD/Pacemaker implanted at such a young age. Thanks. a from Virginia Laurie <dlrgertenbach@...> wrote: I have an 18 year old son with and ICD, he was born with a heart defect which later in life required him to have a valve implant as well as an ICD. He is an active young man who loves the high school Jazz Band. We live in a fairly small town and he, so far, is the only young adult with an ICD that lives in the community. He feels a bit "alone" as no one else can really relate to his feelings. I was doing some research and found this website, but wanted to check it out before I told him about it. Is there anyone else out there that

has an ICD who is a young adult? I would like to get him in touch with someone who has similar problems that he can chat with on occasion. Relax. virus scanning helps detect nasty viruses!

[Guest guest]

Dear Laurie,

As one Mom to another, I know how difficult it is for us to see our son's experiencing these heart problems. My son , from Maine is on this site. I am, but rarely pipe in. I saw your post and thought I would comment and give you and your son encouragement.

was 30 when his heart rate went to 300 while playing basketball. He was treated in Boston . He had an ICD device at that time put in.

Yes, it is an adjustment for him and the family. Two years ago married. He has a job as an engineer so there is life after a ICD.

ARVD is an electrical problem in the right ventricle, and this is what has. If you look it up on Google there is lots of info on it. There are other conditions that require an ICD so make a list of questions and ask the doctors next time. The people on this site are great. I wish you and your son the best.

Please do tell me about this CareLine System--it sounds great. How do you get it??? Is it expensive ???

Best Regards,

Adele

Re: I have an 18 year old son with an ICD

Hi a,

I am so sorry to hear about your brother, how old was he? I am not sure what ARVD is? Can you explain? Having an ICD is truly a life changing experience, hope you are recovering from your surgery. Ross has struggled a bit with his ICD, it shocked him for the first time this last summer while we were on vacation, a total of 8 times. He and I were both air lifted 2 hours to Children's Hospital in San Diego from Mammoth Lakes California. It was an extremely scary time for both of us. It was found that he needed an adjustment to the ICD itself and an increase in his beta blocker medication. 3 years ago, at the age of 15 Ross had to have his second heart surgery, a pulmonic valve implant and also a regular pacemaker. All was ok for awhile but in December of 2004 he began having episodes of severe sweating, nausea and paleness. At first we weren't sure what was going on, we thought maybe he was coming down with the flu, but when he went for a pacer check, they found that those episodes were Ventricular Tach at a rate of 245, they put him in ICU the 22nd of December and put in the ICD, we were home by Christmas Eve. I have been searching the internet trying to find younger adults with ICD's and finally contacted Medtronic Corp. today re: a new piece of equipment that we are using called a CareLink System. We live over 2 hours from the nearest facility that can treat my son. This CareLink System used if he receives a shock, we hook the monitor over his ICD, and it transmits vital info to the hospital. The hospital calls us back and lets us know if the shock did what it was supposed to or if we need to life flight him...a wonderful thing, we are blessed to have it. Anyway, the lady I spoke with, said that she had spoken to many people who rave about this web site...so gave it a try. I will give my son your information, but he is a bit shy, I may be talking with you and giving him your information and emailing you back...I just hope to find an outlet for him to use when he feels alone.

Thank you so kindly for your information, please keep in contact, I would love to hear from you.

Sincerely,

Laurie a <paula_butler25@...> wrote:

Hi Laurie,

My name is a and I am 25 years old and I received my ICD almost 3 months ago (I got it on my 25th birthday!). I have Ventricular Tachycardia and family history of ARVD (my brother died 6 months ago from it), as well as Mitral Valve Prolapse. I, too, have found it difficult finding other young adults with ICD's and I would enjoy chatting with your son about all of the issues surrounding having an ICD/Pacemaker implanted at such a young age.

Thanks.

a from Virginia

Laurie <dlrgertenbach@...> wrote:

I have an 18 year old son with and ICD, he was born with a heart defect which later in life required him to have a valve implant as well as an ICD. He is an active young man who loves the high school Jazz Band. We live in a fairly small town and he, so far, is the only young adult with an ICD that lives in the community. He feels a bit "alone" as no one else can really relate to his feelings. I was doing some research and found this website, but wanted to check it out before I told him about it. Is there anyone else out there that has an ICD who is a young adult? I would like to get him in touch with someone who has similar problems that he can chat with on occasion.

Relax. virus scanning helps detect nasty viruses!

[Guest guest]

Hi Adele, I guess as a mom, we will never stop worrying! Actually my son is adjusting, but sometimes I feel he has no one to really relate to, except doctors. I am so happy for your son, I am glad that he has such a normal life with marriage and family, I too hope that my son will have the same outcome. The CareLink System is a really neat thing. After the scare we had while on vacation last summer, I wrote Children's Hosptial in San Diego and asked them to please consider this unit. (My oldest son actually works for Medtronic and told me about it.) The system is a telephone unit of sorts, it has a "mouse" that you put directly over the ICD, push the button and it records the information. It then dials the hospital where the unit is programed for and sends the information directly to that facility. We will then receive a phone call back from the hospital letting us know if the

shock was appropriate and all is ok, or that we need to get to the hospital right away. We can take it on vacation with us where ever we go within the 50 United States. We live about 2 hours from the hospital where my son receives his treatment, so if it was an emergency, we would then life flight him there. Your hospital may have such a system in place, just ask. If not, contact Medtronic and ask them to send you information on it and talk to the hospital near you about the improtance of this unit. i feel it will give my son some freedom to experience life to the fullest. So nice to hear from you. Lauriepoetess38 <poetess38@...> wrote: Dear Laurie, As one Mom to another, I know how difficult it is for us to see our son's experiencing these heart problems. My son , from Maine is on this site. I am, but rarely pipe in. I saw your post and thought I would comment and give you and your son encouragement. was 30 when his heart rate went to 300 while playing basketball. He was treated in Boston . He had an ICD device at that time put in. Yes, it is an adjustment for him and the family. Two years ago married. He has a job as an engineer so there is life after a ICD. ARVD is an electrical problem in the right ventricle, and this is what has. If you look it up on Google there is lots of info on it. There are other conditions that require an ICD so make a list of questions and ask the doctors next time. The people on this site are great. I wish you and your son the best. Please do tell me about this CareLine System--it sounds great. How do you get it??? Is it expensive ??? Best Regards, Adele Re: I have an 18 year old son with an ICD Hi a, I am so sorry to hear about your brother, how old was he? I am not sure what ARVD is? Can you explain? Having an ICD is truly a life changing experience, hope you are recovering from your surgery. Ross has struggled a bit with his ICD, it shocked him for the first

time this last summer while we were on vacation, a total of 8 times. He and I were both air lifted 2 hours to Children's Hospital in San Diego from Mammoth Lakes California. It was an extremely scary time for both of us. It was found that he needed an adjustment to the ICD itself and an increase in his beta blocker medication. 3 years ago, at the age of 15 Ross had to have his second heart surgery, a pulmonic valve implant and also a regular pacemaker. All was ok for awhile but in December of 2004 he began having episodes of severe sweating, nausea and paleness. At first we weren't sure what was going on, we thought maybe he was coming down with the flu, but when he went for a pacer check, they found that those episodes were Ventricular Tach at a rate of 245, they put him in ICU the 22nd of December and put in the ICD, we were home by Christmas Eve. I have been searching the internet trying to find younger adults with ICD's and finally

contacted Medtronic Corp. today re: a new piece of equipment that we are using called a CareLink System. We live over 2 hours from the nearest facility that can treat my son. This CareLink System used if he receives a shock, we hook the monitor over his ICD, and it transmits vital info to the hospital. The hospital calls us back and lets us know if the shock did what it was supposed to or if we need to life flight him...a wonderful thing, we are blessed to have it. Anyway, the lady I spoke with, said that she had spoken to many people who rave about this web site...so gave it a try. I will give my son your information, but he is a bit shy, I may be talking with you and giving him your information and emailing you back...I just hope to find an outlet for him to use when he feels alone. Thank you so kindly for your information, please keep in contact, I would love to hear from you. Sincerely, Laurie a <paula_butler25@...> wrote: Hi Laurie, My name is a and I am 25 years old and I received my ICD almost 3 months ago (I got it on my 25th birthday!). I have Ventricular Tachycardia and family history of ARVD (my brother died 6 months ago from it), as well as Mitral Valve Prolapse. I, too, have found it difficult finding other young adults with ICD's and I would enjoy chatting with your son about all of the issues surrounding having an ICD/Pacemaker implanted at such a young age. Thanks. a from Virginia Laurie <dlrgertenbach@...> wrote: I have an 18 year old son with and ICD, he was born with a heart defect which later in life required him to have a valve implant as well as an ICD. He is an active young man who loves the high school Jazz Band. We live in a fairly small town and he, so far, is the only young adult with an ICD that lives in the community. He feels a bit "alone" as no one else can really relate to his feelings. I was doing some research and found this website, but wanted to check it out before I told him about it. Is there anyone else out there that has an ICD who is a young adult? I would like to get him in touch with someone who has similar problems that he can chat with on occasion. Relax. virus scanning helps detect nasty viruses!

[Guest guest]

Laurie, Thanks for info--will forward it to .

Adele

Re: I have an 18 year old son with an ICD

Hi a,

I am so sorry to hear about your brother, how old was he? I am not sure what ARVD is? Can you explain? Having an ICD is truly a life changing experience, hope you are recovering from your surgery. Ross has struggled a bit with his ICD, it shocked him for the first time this last summer while we were on vacation, a total of 8 times. He and I were both air lifted 2 hours to Children's Hospital in San Diego from Mammoth Lakes California. It was an extremely scary time for both of us. It was found that he needed an adjustment to the ICD itself and an increase in his beta blocker medication. 3 years ago, at the age of 15 Ross had to have his second heart surgery, a pulmonic valve implant and also a regular pacemaker. All was ok for awhile but in December of 2004 he began having episodes of severe sweating, nausea and paleness. At first we weren't sure what was going on, we thought maybe he was coming down with the flu, but when he went for a pacer check, they found that those episodes were Ventricular Tach at a rate of 245, they put him in ICU the 22nd of December and put in the ICD, we were home by Christmas Eve. I have been searching the internet trying to find younger adults with ICD's and finally contacted Medtronic Corp. today re: a new piece of equipment that we are using called a CareLink System. We live over 2 hours from the nearest facility that can treat my son. This CareLink System used if he receives a shock, we hook the monitor over his ICD, and it transmits vital info to the hospital. The hospital calls us back and lets us know if the shock did what it was supposed to or if we need to life flight him...a wonderful thing, we are blessed to have it. Anyway, the lady I spoke with, said that she had spoken to many people who rave about this web site...so gave it a try. I will give my son your information, but he is a bit shy, I may be talking with you and giving him your information and emailing you back...I just hope to find an outlet for him to use when he feels alone.

Thank you so kindly for your information, please keep in contact, I would love to hear from you.

Sincerely,

Laurie a <paula_butler25@...> wrote:

Hi Laurie,

My name is a and I am 25 years old and I received my ICD almost 3 months ago (I got it on my 25th birthday!). I have Ventricular Tachycardia and family history of ARVD (my brother died 6 months ago from it), as well as Mitral Valve Prolapse. I, too, have found it difficult finding other young adults with ICD's and I would enjoy chatting with your son about all of the issues surrounding having an ICD/Pacemaker implanted at such a young age.

Thanks.

a from Virginia

Laurie <dlrgertenbach@...> wrote:

I have an 18 year old son with and ICD, he was born with a heart defect which later in life required him to have a valve implant as well as an ICD. He is an active young man who loves the high school Jazz Band. We live in a fairly small town and he, so far, is the only young adult with an ICD that lives in the community. He feels a bit "alone" as no one else can really relate to his feelings. I was doing some research and found this website, but wanted to check it out before I told him about it. Is there anyone else out there that has an ICD who is a young adult? I would like to get him in touch with someone who has similar problems that he can chat with on occasion.

Relax. virus scanning helps detect nasty viruses!

[Guest guest]

i'm 22 year old i'm on my secound icd ! i got my first icd when i was 13 ! i understand his feeling for beign alone and at a young age ! i have had heart defects since birth and at the age of 12 aquiride cardiomyopathy and along with that every arrythmia in the books and a icd ! if he wants to talk i'll be here he can email on the group or privitely at lightingpaw@... my name is stacie ! it is hard to have a icd being so young because you dont find minny other young people with thim ! you can always talk to freinds but they really dont knwo how it feels and the emational cross fire you go though and the worry you have always in the back of your mind sometimes it hel;ps to not be

alone in these feeling and soemtimes talking to someone who has the same thing or simmular can help you to feel less alone when dealing with it anyways i'm here if he would like to talk ! stacie,22 shocking life for shocking people !Laurie <dlrgertenbach@...> wrote: I have an 18 year old son with and ICD, he was born with a heart defect which later in life required him to have a valve implant as well as an ICD. He is an active young man who loves the high school Jazz Band. We live in a fairly small town and he, so far, is the only young adult with an ICD that lives in the community. He feels a bit "alone" as no one else can really relate to his feelings. I was doing some research and found this website, but wanted to check it out

before I told him about it. Is there anyone else out there that has an ICD who is a young adult? I would like to get him in touch with someone who has similar problems that he can chat with on occasion.Please visit the Zapper homepage athttp://www.ZapLife.org

[Guest guest]

Hello, I'm 25. I have had my ICD since I was 21 years old. I was born with cardiomypothy. Take Care LeahLIghtingpaw <lightingpaw@...> wrote: i'm 22 year old i'm on my secound icd ! i got my first icd when i was 13 ! i understand his feeling for beign alone and at a young age ! i have had heart defects since birth and at the age of 12 aquiride cardiomyopathy and along with that every arrythmia in the books and a icd ! if he wants to talk i'll be here he can email on the group or privitely at lightingpaw@... my name is stacie ! it is hard to

have a icd being so young because you dont find minny other young people with thim ! you can always talk to freinds but they really dont knwo how it feels and the emational cross fire you go though and the worry you have always in the back of your mind sometimes it hel;ps to not be alone in these feeling and soemtimes talking to someone who has the same thing or simmular can help you to feel less alone when dealing with it anyways i'm here if he would like to talk ! stacie,22 shocking life for shocking people !Laurie <dlrgertenbach@...> wrote: I have an 18 year old son with and ICD, he was born with a heart defect which later in life required him to have a valve implant as well as an

ICD. He is an active young man who loves the high school Jazz Band. We live in a fairly small town and he, so far, is the only young adult with an ICD that lives in the community. He feels a bit "alone" as no one else can really relate to his feelings. I was doing some research and found this website, but wanted to check it out before I told him about it. Is there anyone else out there that has an ICD who is a young adult? I would like to get him in touch with someone who has similar problems that he can chat with on occasion.Please visit the Zapper homepage athttp://www.ZapLife.org

[Guest guest]

Hi Laurie, My brother was 33 years old and he died very suddenly - we never even knew he had heart problems. ARVD - Arrhymogenic Right Ventricular Dysplasia - It's a rare genetic heart disease in which the muscle in the right ventricle dies off and is replaced by fat, which, in turn basically messes up the heart's electrical system and sometimes causes sudden cardiac death. One of the symptoms of ARVD is VT, which is what I have, and since ARVD is so very hard to diagnose, and because my VT reached bpm of over 220 during an EP study, they decided to put in my ICD the very next day. I am on beta blockers as well. I'm sorry to hear of Ross' ordeal. I have never been shocked as of yet, but I can just imagine how scary it is - shoot, the THOUGHT of being shocked is scary! It sounds like your son is quite the trooper. Yes, having an ICD is a life changing

event - not just for the person who has the ICD, but also for their family and friends. People tend to treat you differently, almost as if you were made of glass, as if you're so very delicate, when all you want to be seen as is how you were "before". It's hard to cope with having something mechanical inside of you, especially at such a young age, knowing that for the rest of your life you'll have this and that you need to for your survival - yeah, it's a lot to take in. After reading all the other posts, it seems as if I got my ICD put in during "middle age" - some people being as young as 13 or so!! It looks like your son, Ross, will have plenty of support in this group! I look forward to hearing from him! Take care & keep in touch. a from Virginia Laurie Gertenbach <dlrgertenbach@...> wrote: Hi a, I am so sorry to hear about your brother, how old was he? I am not sure what ARVD is? Can you explain? Having an ICD is truly a life changing experience, hope you are recovering from your surgery. Ross has struggled a bit with his ICD, it shocked him for the first time this last summer while we were on vacation, a total of 8 times. He and I were both air lifted 2 hours to Children's Hospital in San Diego from Mammoth Lakes California. It was an extremely scary time for both of us. It was found that he needed an adjustment to the ICD itself and an increase in his beta blocker medication. 3 years ago, at the age of 15 Ross had to have his second heart surgery, a pulmonic valve implant and also a regular pacemaker. All was ok for awhile but in December of 2004 he began having

episodes of severe sweating, nausea and paleness. At first we weren't sure what was going on, we thought maybe he was coming down with the flu, but when he went for a pacer check, they found that those episodes were Ventricular Tach at a rate of 245, they put him in ICU the 22nd of December and put in the ICD, we were home by Christmas Eve. I have been searching the internet trying to find younger adults with ICD's and finally contacted Medtronic Corp. today re: a new piece of equipment that we are using called a CareLink System. We live over 2 hours from the nearest facility that can treat my son. This CareLink System used if he receives a shock, we hook the monitor over his ICD, and it transmits vital info to the hospital. The hospital calls us back and lets us know if the shock did what it was supposed to or if we need to life flight him...a wonderful thing, we are blessed to have it. Anyway, the lady I spoke with, said

that she had spoken to many people who rave about this web site...so gave it a try. I will give my son your information, but he is a bit shy, I may be talking with you and giving him your information and emailing you back...I just hope to find an outlet for him to use when he feels alone. Thank you so kindly for your information, please keep in contact, I would love to hear from you. Sincerely, Laurie a <paula_butler25@...> wrote: Hi Laurie, My name is a and I am 25 years old and I received my ICD almost 3 months ago (I got it on my 25th birthday!). I have Ventricular Tachycardia and family history of ARVD (my brother died 6 months ago from it), as well as Mitral Valve Prolapse. I, too, have

found it difficult finding other young adults with ICD's and I would enjoy chatting with your son about all of the issues surrounding having an ICD/Pacemaker implanted at such a young age. Thanks. a from Virginia Laurie <dlrgertenbach@...> wrote: I have an 18 year old son with and ICD, he was born with a heart defect which later in life required him to have a valve implant as well as an ICD. He is an active young man who loves the high school Jazz Band. We live in a fairly small town and he, so far, is the only young adult with an ICD that lives in the community. He feels a bit "alone" as no one else can really relate to his feelings. I was doing some research and found this website, but wanted

to check it out before I told him about it. Is there anyone else out there that has an ICD who is a young adult? I would like to get him in touch with someone who has similar problems that he can chat with on occasion. Relax. virus scanning helps detect nasty viruses!

Relax. virus scanning helps detect nasty viruses!

[Guest guest]

Lauri,

I have a 16 year old son with an ICD and a similar history. He had a

second valve repair this summer and suffered a cardiac arrest his

first day of school. He has received one shock back in October and

seems to be doing fairly well now.

>

> I have an 18 year old son with and ICD, he was born with a heart

> defect which later in life required him to have a valve implant as

> well as an ICD. He is an active young man who loves the high school

> Jazz Band. We live in a fairly small town and he, so far, is the

only

> young adult with an ICD that lives in the community. He feels a

> bit " alone " as no one else can really relate to his feelings. I was

> doing some research and found this website, but wanted to check it

out

> before I told him about it. Is there anyone else out there that has

> an ICD who is a young adult? I would like to get him in touch with

> someone who has similar problems that he can chat with on occasion.

>