Re: hypertrophic cardiomyopathy

[Guest guest]

vaya condios

--- joycee_1 <digntheview@...> wrote:

> Hello everyone, If any one can help me My heart drs.

> want to do

> either Av node ablation or atrial fibilution

> ablation. I have read so

> much on the internet, I am not sure, I already have

> Icd in Last sept,

> 2004. I am still getting palpitations, and

> shortness of breath, I am

> 52 yearls old felmale, and I feel like I think a 100

> year old woould

> feel, I want to sleep all the time, and don't have

> alot of engery

> anymore, If anyone can please help. I sure do need

> it Thank you for

> any help I can get...Joyce from calif

>

>

>

>

>

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[Guest guest]

Joyce,

What is you ejection fraction ??? What meds are you on ? Do you

dring alchohol or caffine ?

I had a suden cardiac arrest in May and got my ICD implanted. Shortly

thereafter I was having A-fibs and palpitations. I greatly reduced my

alchohol intake to a glass of wine a day and stopped drinking caffine.

My doc put my on Verapimil and my a-fibs and palps were greatly reduced.

Good luck,

Phil

> Hello everyone, If any one can help me My heart drs. want to do

> either Av node ablation or atrial fibilution ablation. I have read so

> much on the internet, I am not sure, I already have Icd in Last sept,

> 2004. I am still getting palpitations, and shortness of breath, I am

> 52 yearls old felmale, and I feel like I think a 100 year old woould

> feel, I want to sleep all the time, and don't have alot of engery

> anymore, If anyone can please help. I sure do need it Thank you for

> any help I can get...Joyce from calif

[Guest guest]

Phil, do you have side effects from verapamil? I also have

hypertrophic obstructive cardiomyopathy and palpitations and a fast

heart rate. They have just given me verapamil but it makes me dizzy

and gives me a headache. I don't know if I can get used to this and

it will go away or not but I haven't been taking them because they

make me feel lousy. I can't take beta blockers because I have

asthma. What else is there??? Kathy

> > Hello everyone, If any one can help me My heart drs. want to do

> > either Av node ablation or atrial fibilution ablation. I have

read so

> > much on the internet, I am not sure, I already have Icd in Last

sept,

> > 2004. I am still getting palpitations, and shortness of breath,

I am

> > 52 yearls old felmale, and I feel like I think a 100 year old

woould

> > feel, I want to sleep all the time, and don't have alot of engery

> > anymore, If anyone can please help. I sure do need it Thank you

for

> > any help I can get...Joyce from calif

[Guest guest]

I have been on verapamil for about 1.5 years. I did get headaches alot at first but they went away after about 2 weeks. I now have no problems with verapamil. I do know you shouldn't stop taking any meds without the consulting your doctor. I was on a blood pressure pill that they had to take me off of gradually. Your body gets immuned to these drugs and you may have a reaction by just quit taking them.

J.T.

From: "kathyn2" <kathyn2@...>Reply- To: Subject: Re: hypertrophic cardiomyopathyDate: Thu, 29 Sep 2005 01:17:44 -0000Phil, do you have side effects from verapamil? I also have hypertrophic obstructive cardiomyopathy and palpitations and a fast heart rate. They have just given me verapamil but it makes me dizzy and gives me a headache. I don't know if I can get used to this and it will go away or not but I haven't been taking them because they make me feel lousy. I can't take beta blockers because I have asthma. What else is there??? Kathy> > Hello everyone, If any one can help me My heart drs. want to do> > either Av node ablation or atrial fibilution ablation. I have read so > > much on the internet, I am not sure, I already have Icd in Last sept, > > 2004. I am still getting palpitations, and shortness of breath, I am > > 52 yearls old felmale, and I feel like I think a 100 year old woould > > feel, I want to sleep all the time, and don't have alot of engery > > anymore, If anyone can please help. I sure do need it Thank you for > > any help I can get...Joyce from califPlease visit the Zapper homepage athttp://www.ZapLife.org

[Guest guest]

Thank You Phil

I am not sure what a ejection fraction is, I don't drink, but do drink soda's, the meds I take are

Digitek, Sotalol, Warfarin, and not they also have me n Crestor, and then I do take pain meds, Have bad neck and should also. I am always in A-fib, I was in ICU for 4 days and the Drs. where ready to put the paddles on me, so see if I could come out of it and stay out, But on my own was out of it for 1 hr. so he said it would do any good, I know some of the meds are to slow me down, but can't slow anymore, I don't think, Sleep alot as it is. I go next week to talk with Drs. about surgery. Again thank you...Joyce

Re: hypertrophic cardiomyopathy

Joyce,What is you ejection fraction ??? What meds are you on ? Do youdring alchohol or caffine ?I had a suden cardiac arrest in May and got my ICD implanted. Shortlythereafter I was having A-fibs and palpitations. I greatly reduced myalchohol intake to a glass of wine a day and stopped drinking caffine.My doc put my on Verapimil and my a-fibs and palps were greatly reduced.Good luck,Phil> Hello everyone, If any one can help me My heart drs. want to do> either Av node ablation or atrial fibilution ablation. I have read so > much on the internet, I am not sure, I already have Icd in Last sept, > 2004. I am still getting palpitations, and shortness of breath, I am > 52 yearls old felmale, and I feel like I think a 100 year old woould > feel, I want to sleep all the time, and don't have alot of engery > anymore, If anyone can please help. I sure do need it Thank you for > any help I can get...Joyce from calif

[Guest guest]

Kathy,

I cant say that I have any major side effects from the verapamil.

Although it did make me a little dizzy in the begining, but now no

problems. I'm not 100% sure that the Verapamil is the cure for my

afibs because at the same time I stopped drinking caffine and reduced

my alchohol intake to a glass of wine a day. But I think the

combination of all those factors has significantly reduced my afib

episodes.

Good Luck,

Phil

> > > Hello everyone, If any one can help me My heart drs. want to do

> > > either Av node ablation or atrial fibilution ablation. I have

> read so

> > > much on the internet, I am not sure, I already have Icd in Last

> sept,

> > > 2004. I am still getting palpitations, and shortness of breath,

> I am

> > > 52 yearls old felmale, and I feel like I think a 100 year old

> woould

> > > feel, I want to sleep all the time, and don't have alot of engery

> > > anymore, If anyone can please help. I sure do need it Thank you

> for

> > > any help I can get...Joyce from calif

[Guest guest]

Mavik

I had the same side effects from Verapamil. They did subside some, but

I also only remember my pills at night so I asked for along acting drug

that I could take once a day. That's when they switched me to Mavik.

What do you take for your asthma? I'm using Advair these days and

other than the cost, it's fantastic.

Bridget

> Phil, do you have side effects from verapamil? I also have

> hypertrophic obstructive cardiomyopathy and palpitations and a fast

> heart rate. They have just given me verapamil but it makes me dizzy

> and gives me a headache. I don't know if I can get used to this and

> it will go away or not but I haven't been taking them because they

> make me feel lousy. I can't take beta blockers because I have

> asthma. What else is there??? Kathy

[Guest guest]

Hi Bridget, for my asthma they had me on advair but it gave me a sore

throat. So then they tried a new one called Spiriva and it gave me a

worse sore throat. ITs unfortunate because it really helped the

asthma. Now I just take the rescue drug, Albuterol with a nebulizer

when I have to. Were there any side effects from the mavik? I think

I was tried on that and I didn't have side effects except from my

heart. It made me very short of breath but it may have been another

drug. I will look it up. Do you have hypertrophic cardiomyopathy?

Kathy

> > Phil, do you have side effects from verapamil? I also have

> > hypertrophic obstructive cardiomyopathy and palpitations and a

fast

> > heart rate. They have just given me verapamil but it makes me

dizzy

> > and gives me a headache. I don't know if I can get used to this

and

> > it will go away or not but I haven't been taking them because

they

> > make me feel lousy. I can't take beta blockers because I have

> > asthma. What else is there??? Kathy

[Guest guest]

Mavik has never given me any trouble.

I'm not familiar with Spiriva, but I can tell you this about inhaled

sterods like Advair, rinsing your mouth after every use is very

important. Azmacort was the one that was the worst for me. I had

thrush in a few weeks. I've used a couple other inhaled steriods but

the Advair works the best for me. One trick I did learn by chance was

to gargle with coke instead of just rinsing my mouth out to prevent

throat irritation. One of my nurses thinks it's the acid that does it,

but we don't don't know for sure, we just know it works for me.

Bridget

> Hi Bridget, for my asthma they had me on advair but it gave me a sore

> throat. So then they tried a new one called Spiriva and it gave me a

> worse sore throat. ITs unfortunate because it really helped the

> asthma. Now I just take the rescue drug, Albuterol with a nebulizer

> when I have to. Were there any side effects from the mavik? I think

> I was tried on that and I didn't have side effects except from my

> heart. It made me very short of breath but it may have been another

> drug. I will look it up. Do you have hypertrophic cardiomyopathy?

> Kathy

>