Any ideas?

[Guest guest]

How about turkey rolls? Sliced turkey breast (deli style) wrapped in a whole

wheat tortilla or stuffed in 1/2 pocket of whole wheat pita. Add lettuce,

etc. Hey I'm not a good one to talk. I have trouble too. I've been eating

bars, but I'm sick of them. I do still like the EAS Carb Control ready to

drink shakes. Kind of expensive, but I drink one every day at work for

midmorning snack.

Pat (new to this list)

>From: " nejay116 " <nejay116@...>

>Reply-

>

>Subject: Any ideas?

>Date: Tue, 11 Nov 2003 02:31:14 -0000

>

>Hey ya'll

>I have finally made the choice to change my life. Whoo hoo! Last

>week I began with the program. My biggest obstacle is this: I

>spend most of the day outside of the home and I am having trouble

>finding proteins that I can take with me (you can't very well let

>scambled eggs sit for too long even in rubbermaid ewww!) I bought

>myoplexbars, but having 3 in a row gets old. Any ideas?

>

_________________________________________________________________

Compare high-speed Internet plans, starting at $26.95.

https://broadband.msn.com (Prices may vary by service area.)

[Guest guest]

When I am out and about, things I like to have with me: cottage cheese and

fruit (apples & oranges travel well and clementines are in season now), tuna

in the vacuum packed pouches, hardboiled egg whites, baby carrots. You can

make up some protein pancakes ahead of time. Roll them up in plastic wrap

to keep them fresh. They'll be good for a couple of days, and they're

portable. I have yet to find a protein bar that I like, so I keep one in my

car and only eat them in dire emergencies.

Here's a recipe from Lean & Strong for Thai Chicken Salad that is easy to

package up into individual servings and is good cold. I like to mix the

brown rice in and let it soak up the flavor of the dressing. It's really

tasty.

Paige's Thai Chicken Salad

Ingredients

2 Cups cooked diced chicken breast

1/4 Cup sliced green onion

1 Cup broccoli slaw*

2 T sesame oil

2 T soy sauce

3-4 T seasoned rice vinegar

2 T chopped ginger**

Cracked red pepper to taste

2-3 T chopped fresh cilantro

Preparation

Combine all ingredients in a large mixing bowl, and stir together.

Allow to sit for several hours in the refrigerator prior to serving.

Serve approximately 1 1/2 Cups over 1/2 cup brown rice and

combine to make a single serving.

* Broccoli slaw can be found in the produce section with bagged

salads.

** Pickled sushi ginger (gari) works well here.

This is another staple at the household. A favorite meal 2

for me, as it does not require microwaving at the office (which can

draw some unwelcome comments from the unenlightened).

Beth

----- Original Message -----

My biggest obstacle is this: I spend most of the day outside of

the home and I am having trouble finding proteins that I can take

with me (you can't very well let scambled eggs sit for too long

even in rubbermaid ewww!) I bought myoplexbars, but having 3

in a row gets old. Any ideas?

[Guest guest]

In a message dated 1/2/2004 7:56:55 PM Central Standard Time, Mom2lfm@...

writes:

> What am

> I missing?

>

> Kathy, Liam's mom( 5)

HI Kathy

This sounds like the virus that hit our area, its mocking the flu .... same

symptoms but testing neg. on rapid test. Sara and her daddy both tested

positive for the flu but Sara's sisters, brother and grandparents tested neg. so

they

had the virus that mocked the flu.

Sara was on Tamiflu and I swear Ive never seen an illness leave so quickly

all are healthy now and I stayed well through it all

Kathy mom to Sara 12

¸...¸ ___/ /\ \___ ¸...¸

,·´º o`·, /__/ _/\_ \__\ ,·´º o`·,

```)¨(´´´ | | | | | | | | | ```)¨(´´´

¸,.-·²°´ ¸,.-·~·~·-.,¸ `°²·-.¸

As for me and my house, we will serve the Lord.

Josh. 24:15

[Guest guest]

Kathy,

has a similar thing. Very dry harsh cough. Thick mucous.

Fever around 101f.

He has had it for about two weeks. He took his last dose of zithromax today.

It seems to be working. He hasn't had a fever in a few days. The fact that

fevers trigger seizures for him. and his fevers shoot up. I get no sleep.

The two little ones had it also but it lasted only a few days.

Maureen

[Guest guest]

In a message dated 1/2/2004 10:44:59 PM Eastern Standard Time, modoyo@...

writes:

> has a similar thing. Very dry harsh cough. Thick mucous.

> Fever around 101f.

> He has had it for about two weeks. He took his last dose of zithromax

> today.

> It seems to be working. He hasn't had a fever in a few days. The fact that

>

> fevers trigger seizures for him. and his fevers shoot up. I get no sleep.

> The two little ones had it also but it lasted only a few days.

>

I can relate to the no sleep part. With Liam I watch for the extreme

lethargy which for him usually means pneumonia.

Thanks to everyone who responded. So it's probably a flu-mocking-virus and

it will probably be done within the week. It's so good to know others are

going through the same symptoms all over the country. Liam's not one for fevers

so that's the most troubling part. Good luck to everyone else going through

it!

Kathy, Liam's mom( 5)

[Guest guest]

In a message dated 1/2/2004 9:06:47 PM Eastern Standard Time,

kspilious@... writes:

There are a ton of viruses going around right now

Same here Kathy, viruses causing lots of people to be sick ... repeatedly!

Give that boy lots of TLC. Hope he recovers soon!

Cheryl in VA

[Guest guest]

As others have mentioned there are many viruses going around this year and

one of them does have a fever and cough that lasts for awhile. Even though

Sheila had her flu vaccine she is down with something right now that had a

pretty

sudden onset. Around dinner time Friday night she complained of a sore throat

and within 1/2 hour she had chills, runny nose and cough--checked her temp and

it was 100.9. I'm now wondering if her fainting spell Friday am is at all

related or is because of hypogycemia (strong possibility as I overslept which

threw her meds and breakfast off). She has been running a fever and coughing all

weekend. I suspect she has the flu or this fever/cough virus.

nancy

[Guest guest]

Sounds just like one of my very severe allergy attacks. I always run a fever

and have clear drainage.

Elaine

Any ideas?

LIam's sick. His lungs are clear, ears aren't infected, throat is fine,

nasal secretions are a lot, but clear and thin. He has a throaty cough, has

been

running temps (101-102 -- comes down with tylenol) and is clinging & whiney.

Pediatrician couldn't tell what was up but put him on Augmentin anyway on

Tuesday. Thought he might be getting a sinus infection. It doesn't seem to be

helping. He isn't eating much but is drinking plenty. He had a flu shot

(along

with every other vaccine available) No rashes. I'm nebulizing him so his

lungs stay clear. He's been this way for about a week now. Any ideas? What

am

I missing?

Kathy, Liam's mom( 5)

[Guest guest]

In a message dated 1/5/2004 6:58:50 PM Eastern Standard Time,

dbonorato4@... writes:

> Sounds just like one of my very severe allergy attacks. I always run a

> fever and have clear drainage.

Thanks Elaine. I'm going to look into allergies this year. Dr. Len said

that spasmodic croup, which he had last summer, can be allergy driven. I think

it was a flu/virus of some sort. He didn't eat much for days. He's almost

back to his old self.

Kathy, Liam's mom( 5)

[Guest guest]

,

Ian went through this stage too! It would really scare me because he'd bang his

head really hard and I was afraid he'd really hurt himself. Thankfully it was

just a stage and he has since outgrown the head banging. He does tend to be

more physical than my daughter ever was when he is angry - I am thinking it is

the boy in him. Even now, if he bumps himself on the coffee table or something,

he'll get so mad and frustrated that he'll come over and hit ME to get the

frustration out. As he's gotten older, I do see this behavior lessening a whole

lot. So, what I am trying to say is that, yes, it can be completely normal! I

worried about it too, and read about head banging on the internet and felt so

much better after I read some articles on it. Just Google head banging toddler

and you'll get a bunch of hits. I do remember reading that it is much more

common in boys than girls.

Noelle (12-2-01)

Ian (8-15-04)

Any ideas?

Hi guys

I have a concern, that I don't know how to address, I thought that

some of you may have experienced some of the same things--

Evan (almost 13months) is having PT 1x per week to help with muscle

development and strengthening and learning to walk and attain other

goals set by the PT.

The other day he addressed the fact that when Evan gets frustrated

or tired he tends to get upset and will sometimes hit his head on

the floor/table, etc and shakes his head " no " from side to side. He

has been biting some when frustrated and pinching as well. This is

NOT a problem as he only does it a few times a day when frustrated

or tired. When I re-direct his attention he usually will do ok.

The PT also addressed how Evan's joints seem to be somewhat

hypermobile- he says this could be from not walking yet and when he

does, these will strengthen.

So I feel like we have a few things that could all be related-the

torticollis,plagiocephaly,progressive scoli, hypermobile joints,

this new behavior---

Not sure what to think. I don't want to over react, just wanted some

ideas as we observe him.

I do think it is VERY normal for Evan to get frustrated b/c the cast

does limit him and since he isn't talking he can't verbalize his

frustration to me and has no other way to express to me. Any

thoughts?

Thanks for letting me ramble, I don't usually like to post such

personal things, but I just wanted some input.

and Evan

[Guest guest]

Hi !

I honestly wouldn't worry too much about it & just try & keep in

under control when it does happen.. 1st off, I've read from a lot of

different sources (try toddler head banging or biting in

BabyCenter.com search engine I'm sure there are articles there..)

that all of those things are VERY normal for a 13 mo. old baby!

Going well into Toddler years... I've read it can be done for

attention, as a game, out of frustration which like you said Evan

probably has some frustration to release these days. They just don't

know how to epress themselves so it's understandable. Both my girls

went through a short little stage like that sometime between 12 mos.-

2 yrs. & did different things in that regard, Solana a little more

so I think b/c of the added frustration of the cast and such,

sometimes would throw her head back back on whatever was behind her

& say no out of frustration for what she wasn't wanting or sometimes

tap her own head out of frustration, never to hard though to where

it was harmful & it didn't last too long. Also pinching & biting

thinking it's funny, I researched that and read it's normal from 1-2

yrs., also talked to her pedi. about it. He just suggested if he's

doing something to hurt himself you tell him with a firm " NO " not

to, & explain that hurts Evan, you don't want to hurt Evan do you!

And the same thing if he's doing it to somebody else, just some

advice he past to me maybe that will help get him through the stage.

I'm sure it will be just a stage for you guys though, will go before

you know it!

Also, my grandmother's son did the same thing as a baby (head

banging) as a tantrum or for attention, she said he'd do it really

really bad against walls & on the floor that it would scare her to

death, & he didn't even have any other health problems that was add

to his frustration like Even does, just a bad temper for a little

baby! Of course he grew out of it too & is a very smart strong guy

in the national guard

I'm sure it's just some of Evan's way of dealing w/everything he's

gone & is going through.. just do the best to get you both through

it & hopefully it passes by 2, Sol doesn't do any of that anymore &

has learned to be much more considerate to herself & people.

Good luck!

~Joy & Sol

>

> Hi guys

> I have a concern, that I don't know how to address, I thought that

> some of you may have experienced some of the same things--

> Evan (almost 13months) is having PT 1x per week to help with

muscle

> development and strengthening and learning to walk and attain

other

> goals set by the PT.

> The other day he addressed the fact that when Evan gets frustrated

> or tired he tends to get upset and will sometimes hit his head on

> the floor/table, etc and shakes his head " no " from side to side.

He

> has been biting some when frustrated and pinching as well. This is

> NOT a problem as he only does it a few times a day when frustrated

> or tired. When I re-direct his attention he usually will do ok.

>

>

> The PT also addressed how Evan's joints seem to be somewhat

> hypermobile- he says this could be from not walking yet and when

he

> does, these will strengthen.

> So I feel like we have a few things that could all be related-the

> torticollis,plagiocephaly,progressive scoli, hypermobile joints,

> this new behavior---

> Not sure what to think. I don't want to over react, just wanted

some

> ideas as we observe him.

> I do think it is VERY normal for Evan to get frustrated b/c the

cast

> does limit him and since he isn't talking he can't verbalize his

> frustration to me and has no other way to express to me. Any

> thoughts?

> Thanks for letting me ramble, I don't usually like to post such

> personal things, but I just wanted some input.

> and Evan

>

[Guest guest]

Thanks Joy. I don't usually get a big response when I post, so I appreciate

yours! I agree with what you said, I just wanted to throw it out there and see

if anyone else had any other ideas. I have been trying what you mentioned

already. It was just kind of scarry since Evan has been a VERY laid back baby up

to this point. I do think it is a phase as well and will pass. Thanks JOY.

and Evan

mosunshinebaby <mosunshinebaby@...> wrote:

Hi !

I honestly wouldn't worry too much about it & just try & keep in

under control when it does happen.. 1st off, I've read from a lot of

different sources (try toddler head banging or biting in

BabyCenter.com search engine I'm sure there are articles there..)

that all of those things are VERY normal for a 13 mo. old baby!

Going well into Toddler years... I've read it can be done for

attention, as a game, out of frustration which like you said Evan

probably has some frustration to release these days. They just don't

know how to epress themselves so it's understandable. Both my girls

went through a short little stage like that sometime between 12 mos.-

2 yrs. & did different things in that regard, Solana a little more

so I think b/c of the added frustration of the cast and such,

sometimes would throw her head back back on whatever was behind her

& say no out of frustration for what she wasn't wanting or sometimes

tap her own head out of frustration, never to hard though to where

it was harmful & it didn't last too long. Also pinching & biting

thinking it's funny, I researched that and read it's normal from 1-2

yrs., also talked to her pedi. about it. He just suggested if he's

doing something to hurt himself you tell him with a firm " NO " not

to, & explain that hurts Evan, you don't want to hurt Evan do you!

And the same thing if he's doing it to somebody else, just some

advice he past to me maybe that will help get him through the stage.

I'm sure it will be just a stage for you guys though, will go before

you know it!

Also, my grandmother's son did the same thing as a baby (head

banging) as a tantrum or for attention, she said he'd do it really

really bad against walls & on the floor that it would scare her to

death, & he didn't even have any other health problems that was add

to his frustration like Even does, just a bad temper for a little

baby! Of course he grew out of it too & is a very smart strong guy

in the national guard

I'm sure it's just some of Evan's way of dealing w/everything he's

gone & is going through.. just do the best to get you both through

it & hopefully it passes by 2, Sol doesn't do any of that anymore &

has learned to be much more considerate to herself & people.

Good luck!

~Joy & Sol

>

> Hi guys

> I have a concern, that I don't know how to address, I thought that

> some of you may have experienced some of the same things--

> Evan (almost 13months) is having PT 1x per week to help with

muscle

> development and strengthening and learning to walk and attain

other

> goals set by the PT.

> The other day he addressed the fact that when Evan gets frustrated

> or tired he tends to get upset and will sometimes hit his head on

> the floor/table, etc and shakes his head " no " from side to side.

He

> has been biting some when frustrated and pinching as well. This is

> NOT a problem as he only does it a few times a day when frustrated

> or tired. When I re-direct his attention he usually will do ok.

>

>

> The PT also addressed how Evan's joints seem to be somewhat

> hypermobile- he says this could be from not walking yet and when

he

> does, these will strengthen.

> So I feel like we have a few things that could all be related-the

> torticollis,plagiocephaly,progressive scoli, hypermobile joints,

> this new behavior---

> Not sure what to think. I don't want to over react, just wanted

some

> ideas as we observe him.

> I do think it is VERY normal for Evan to get frustrated b/c the

cast

> does limit him and since he isn't talking he can't verbalize his

> frustration to me and has no other way to express to me. Any

> thoughts?

> Thanks for letting me ramble, I don't usually like to post such

> personal things, but I just wanted some input.

> and Evan

>

---------------------------------

Get your email and more, right on the new .com

[Guest guest]

Hi

Come on.........what does the PT expect you have a 13 month old learning to

walk, among other things, trying to communicate with you all while he is in a

cast.

I think it is very normal. He is trying to get his feelings out and of course

at his age how else would he do it.

, 's twin brother(they will 17 months on the 11th), went through

the biting stage. When he was mad he would bite or pull his hair( has

a lot of hair). Now he has started biting himself. talks more than

and when gets mad or upset he throws himself on the floor and

finds whatever he can to bite. That being himself if he has to. It is not a

pretty site. My husband and I have learned to ignore this can of fit. Of course

if he is hurting himself or we will address it. It is a phase. For some

it last longer than others. has been doing this for about 3 or 4

months. Just recently started biting himself and giving a break.

has always been the laid back one of the 2 and since he got his cast he

will throw little fits from time to time as well.

Just as Joy was saying I wouldn't worry too much about it.

And like you were saying he can't talk to you to tell you what he is feeling.

This to me is the hardest age because they can't talk to us. My sister in-law

had similar problems with her little girl and taught her baby sign language.

She said it helped some.

The biting thing is hard because at his age you almost have to catch him in

the act to address it. I was just always afraid would go to church and

bite a child there. Now he just bites himself. LOL

Anyway I know all too well what you are going through. Good luck and it will

pass. Not soon enough.

Tasha/

basketsnboyds <basketsnboyds@...> wrote:

Hi guys

I have a concern, that I don't know how to address, I thought that

some of you may have experienced some of the same things--

Evan (almost 13months) is having PT 1x per week to help with muscle

development and strengthening and learning to walk and attain other

goals set by the PT.

The other day he addressed the fact that when Evan gets frustrated

or tired he tends to get upset and will sometimes hit his head on

the floor/table, etc and shakes his head " no " from side to side. He

has been biting some when frustrated and pinching as well. This is

NOT a problem as he only does it a few times a day when frustrated

or tired. When I re-direct his attention he usually will do ok.

The PT also addressed how Evan's joints seem to be somewhat

hypermobile- he says this could be from not walking yet and when he

does, these will strengthen.

So I feel like we have a few things that could all be related-the

torticollis,plagiocephaly,progressive scoli, hypermobile joints,

this new behavior---

Not sure what to think. I don't want to over react, just wanted some

ideas as we observe him.

I do think it is VERY normal for Evan to get frustrated b/c the cast

does limit him and since he isn't talking he can't verbalize his

frustration to me and has no other way to express to me. Any

thoughts?

Thanks for letting me ramble, I don't usually like to post such

personal things, but I just wanted some input.

and Evan

---------------------------------

Get your email and more, right on the new .com

[Guest guest]

I agree with you Tasha, just wanted to make sure we weren't over looking

something and didn't want to just ignore something that could be something, if

you know what I mean!!! He typically bites himself or me and waits for a

response usually, unless he's mad! I appreciate the response-makes me feel

better!

Tasha Fontenot <ryanswalk@...> wrote:

Hi

Come on.........what does the PT expect you have a 13 month old learning to

walk, among other things, trying to communicate with you all while he is in a

cast.

I think it is very normal. He is trying to get his feelings out and of course at

his age how else would he do it.

, 's twin brother(they will 17 months on the 11th), went through the

biting stage. When he was mad he would bite or pull his hair( has a lot

of hair). Now he has started biting himself. talks more than and

when gets mad or upset he throws himself on the floor and finds whatever

he can to bite. That being himself if he has to. It is not a pretty site. My

husband and I have learned to ignore this can of fit. Of course if he is hurting

himself or we will address it. It is a phase. For some it last longer than

others. has been doing this for about 3 or 4 months. Just recently

started biting himself and giving a break.

has always been the laid back one of the 2 and since he got his cast he

will throw little fits from time to time as well.

Just as Joy was saying I wouldn't worry too much about it.

And like you were saying he can't talk to you to tell you what he is feeling.

This to me is the hardest age because they can't talk to us. My sister in-law

had similar problems with her little girl and taught her baby sign language. She

said it helped some.

The biting thing is hard because at his age you almost have to catch him in the

act to address it. I was just always afraid would go to church and bite

a child there. Now he just bites himself. LOL

Anyway I know all too well what you are going through. Good luck and it will

pass. Not soon enough.

Tasha/

basketsnboyds <basketsnboyds@...> wrote:

Hi guys

I have a concern, that I don't know how to address, I thought that

some of you may have experienced some of the same things--

Evan (almost 13months) is having PT 1x per week to help with muscle

development and strengthening and learning to walk and attain other

goals set by the PT.

The other day he addressed the fact that when Evan gets frustrated

or tired he tends to get upset and will sometimes hit his head on

the floor/table, etc and shakes his head " no " from side to side. He

has been biting some when frustrated and pinching as well. This is

NOT a problem as he only does it a few times a day when frustrated

or tired. When I re-direct his attention he usually will do ok.

The PT also addressed how Evan's joints seem to be somewhat

hypermobile- he says this could be from not walking yet and when he

does, these will strengthen.

So I feel like we have a few things that could all be related-the

torticollis,plagiocephaly,progressive scoli, hypermobile joints,

this new behavior---

Not sure what to think. I don't want to over react, just wanted some

ideas as we observe him.

I do think it is VERY normal for Evan to get frustrated b/c the cast

does limit him and since he isn't talking he can't verbalize his

frustration to me and has no other way to express to me. Any

thoughts?

Thanks for letting me ramble, I don't usually like to post such

personal things, but I just wanted some input.

and Evan

---------------------------------

Get your email and more, right on the new .com

[Guest guest]

The PT sounds like most the general public though. They just see a

load " out of control " child. Lacie gets frustrated too, it is much

worse if she's tired. But you know she's so laid back and calm most

of the time. I figure if she's having a bad day or bad afternoon,

she's intitled to it. Bless their hearts they don't really

understand why their made to wear these things. There hot, there

heavy, and there uncomfortable. Lacie tends to get the most upset

when she ask to take it off and I won't (can't) let her. She'll

sometimes kick, scream, throw toys, pull her hair, bang her head,

and if you get to close hit. Most of time she screams.

I know stores, restuarants, etc... can be so difficult Lacie hates

to sit very long. So those are situations that can snow ball her

frustrations. We tend not to eat out, we'll get take-out. People

don't understand she looks like a " typical " three year old so why

can't you keep her in control. My inner thought is always let me

smack this thing on you and see how calmly you sit thru dinner. LOL!

Terrible I know but its true.

Now that Lacie's a little older we make a point to tell her its okay

to be mad but lets use you big girl words and tell mommy whats

wrong. Or I'll grab her pillow and let her yell into it until she's

calmed down a bit. I have a three month old and the screaming is

difficult. It may not be the best way to deal with her screaming but

it helps us. Or will say lets not hurt Lacie, lets get this mean old

pillow. And we have her hit the pillow. I guess the pillow gets the

brunt of her fits, huh?! LOL! But to me its better than her sister

or herself getting a " beating " .

Sorry to ramble on and on. I have to admit seeing this issue posted

was somewhat of a relief. I know Lacie has a right to feel this way

but there are times when I feel like what am I doing wrong.

> Hi guys

> I have a concern, that I don't know how to address, I thought that

> some of you may have experienced some of the same things--

> Evan (almost 13months) is having PT 1x per week to help with

muscle

> development and strengthening and learning to walk and attain

other

> goals set by the PT.

> The other day he addressed the fact that when Evan gets frustrated

> or tired he tends to get upset and will sometimes hit his head on

> the floor/table, etc and shakes his head " no " from side to side.

He

> has been biting some when frustrated and pinching as well. This is

> NOT a problem as he only does it a few times a day when frustrated

> or tired. When I re-direct his attention he usually will do ok.

>

> The PT also addressed how Evan's joints seem to be somewhat

> hypermobile- he says this could be from not walking yet and when

he

> does, these will strengthen.

> So I feel like we have a few things that could all be related-the

> torticollis,plagiocephaly,progressive scoli, hypermobile joints,

> this new behavior---

> Not sure what to think. I don't want to over react, just wanted

some

> ideas as we observe him.

> I do think it is VERY normal for Evan to get frustrated b/c the

cast

> does limit him and since he isn't talking he can't verbalize his

> frustration to me and has no other way to express to me. Any

> thoughts?

> Thanks for letting me ramble, I don't usually like to post such

> personal things, but I just wanted some input.

> and Evan

>

>

> ---------------------------------

> Get your email and more, right on the new .com

>

>

[Guest guest]

When the PT " addressed " the problem of him hitting his head when he

got frustrated did he say it was a problem?

I have read that that is a phase

I think the behavior is a normal 13 month old...

I think the flat head, hypermoblie joints and progressive scoli are

related thought. I look at old pictures of Adan as a newborn and he

always wanted to tilt hilt head to the right which would be in line

witha right sided curve I think that might also be toritcolis even

though no one " noticed " that in md visits.

my thoughts

>

> Hi guys

> I have a concern, that I don't know how to address, I thought that

> some of you may have experienced some of the same things--

> Evan (almost 13months) is having PT 1x per week to help with

muscle

> development and strengthening and learning to walk and attain

other

> goals set by the PT.

> The other day he addressed the fact that when Evan gets frustrated

> or tired he tends to get upset and will sometimes hit his head on

> the floor/table, etc and shakes his head " no " from side to side.

He

> has been biting some when frustrated and pinching as well. This is

> NOT a problem as he only does it a few times a day when frustrated

> or tired. When I re-direct his attention he usually will do ok.

>

>

> The PT also addressed how Evan's joints seem to be somewhat

> hypermobile- he says this could be from not walking yet and when

he

> does, these will strengthen.

> So I feel like we have a few things that could all be related-the

> torticollis,plagiocephaly,progressive scoli, hypermobile joints,

> this new behavior---

> Not sure what to think. I don't want to over react, just wanted

some

> ideas as we observe him.

> I do think it is VERY normal for Evan to get frustrated b/c the

cast

> does limit him and since he isn't talking he can't verbalize his

> frustration to me and has no other way to express to me. Any

> thoughts?

> Thanks for letting me ramble, I don't usually like to post such

> personal things, but I just wanted some input.

> and Evan

>

[Guest guest]

Socket dislocations are an SMA constant issue. At an MDA clinic my

doctor played ignorant while my ex leafed through a book on the dr's

desk and pointed out SMA joint dislocations and how surgery dosen't

work for it.

You need to keep searching and consulting true pain management

specialists and keep drilling the nature of your disability into

their thick as a plank heads.

The hugest diservices done to adults with SMA is the fact that the

drs who specialize in SMA don't work to treat our pain and clinics

treating pain know next to nothing about SMA.

>

> May 1999 - I was abused, in which my shoulder was dislocated.

> 2000 - I had arthroscopic surgery, tightening up the muscles in

my

> shoulder capsule because since the incident in 99' my shoulder would

> continue to " spontaneous dislocate. "

>

> Over time, due to my MD, the muscles weakened again and my shoulder

> began to spontaneous dislocate again and more frequently, and more

> painfully.

>

> May 2008 - Yet another arthroscopic surgery to tighten the muscles

in

> the capsule.

>

> Since this surgery, I have lost strength in my arm and range of

> motion. When I do use my arm I have sever pain, to the point of not

> moving it at all. Leaving it hard for me to transfer myself out and

> into my wheelchair.

>

> I'm not sure if this is more painful than I remember it ever being

due

> to it being tightened more this last surgery than the previous, or

> what it is. But I need to use my arm, but i'd like to do it with as

> little pain as possible. My problem is the doctors are convinced

that

> i'm going to become addicted to the medicine, or that it shouldn't

be

> hurting any more.

>

> I just feel like i'm stuck between a rock and a hard place, so i'm

> just wondering if anyone has any suggestions or have the same

problem

> of having severe pain after surgery and feeling like your not given

> the help needed.

>

[Guest guest]

Ok, well thank you that does help if not medically at least comforts

me to know it's not all in my head. Because that's something else I

hear is that " your convincing yourself that your in pain, you don't

need pain management "

> >

> > May 1999 - I was abused, in which my shoulder was dislocated.

> > 2000 - I had arthroscopic surgery, tightening up the muscles in

> my

> > shoulder capsule because since the incident in 99' my shoulder would

> > continue to " spontaneous dislocate. "

> >

> > Over time, due to my MD, the muscles weakened again and my shoulder

> > began to spontaneous dislocate again and more frequently, and more

> > painfully.

> >

> > May 2008 - Yet another arthroscopic surgery to tighten the muscles

> in

> > the capsule.

> >

> > Since this surgery, I have lost strength in my arm and range of

> > motion. When I do use my arm I have sever pain, to the point of not

> > moving it at all. Leaving it hard for me to transfer myself out and

> > into my wheelchair.

> >

> > I'm not sure if this is more painful than I remember it ever being

> due

> > to it being tightened more this last surgery than the previous, or

> > what it is. But I need to use my arm, but i'd like to do it with as

> > little pain as possible. My problem is the doctors are convinced

> that

> > i'm going to become addicted to the medicine, or that it shouldn't

> be

> > hurting any more.

> >

> > I just feel like i'm stuck between a rock and a hard place, so i'm

> > just wondering if anyone has any suggestions or have the same

> problem

> > of having severe pain after surgery and feeling like your not given

> > the help needed.

> >

>

[Guest guest]

Too bad you didn't get him saying that on video.  I bet it would have been his

last time.

L

________________________________

From: Amy <charmedcripchic@...>

Sent: Monday, February 9, 2009 5:20:00 PM

Subject: Re: Any Ideas?

Pain management is an area that needs so much more research it's

unreal. Some clinics are good some are not. You have to be very

vigilant in your own care.

Recently some friends from Canada told me about a doctor they

referred to as " The Vulture " .

Unfortunately I found a " Vulture " doctor of my own here in the US.

After my emergency surgery in May 08, my pain clinic dr {I'd seen

since 2002 without any bad experiences} instructed me that during my

next hospitalization I should " let nature take it's course and refuse

treatment " . He then went on to advise my primary dr to prescribe to

me what could've been a lethal dose of pain meds. {My primary and I

didn't follow that recommendation btw}.

At the time my health proxy and I did ask this pain dr for

clarification, to make we'd heard him right.

Yup we did hear him right. This dr really did advise me, that if my

intestines tied themself in a knot again, then I should refuse

surgery {which means death in a situation like that} and takes pain

meds while leaving my intestines rupture.

" We all have to die of something someday. " was how he concluded that

appointment.

{I have witnesses if people think this is any kind of an exaggerated

tall tale here}

I get chills just thinking about this but I don't want anybody here

ever going through what I did.

> >

> >

> > Socket dislocations are an SMA constant issue. At an MDA clinic

my

> > doctor played ignorant while my ex leafed through a book on the

dr's

> > desk and pointed out SMA joint dislocations and how surgery

dosen't

> > work for it.

> >

> > You need to keep searching and consulting true pain management

> > specialists and keep drilling the nature of your disability into

> > their thick as a plank heads.

> >

> > The hugest diservices done to adults with SMA is the fact that

the

> > drs who specialize in SMA don't work to treat our pain and

clinics

> > treating pain know next to nothing about SMA.

> >

>

[Guest guest]

No kidding?! Wow, it's funny though how people say " you know your body

best " but every time I tell a doctor something as simple as it's a

chest cold in 3-5 days if it's not treated now it will be

bronchitis.... I get treated like i'm making it up or whatever. It has

become very clear to me that just because you know your own body and

what it can and cannot tolerate, doctor's won't listen to you.

> > >

> > >

> > > Socket dislocations are an SMA constant issue. At an MDA clinic

> my

> > > doctor played ignorant while my ex leafed through a book on the

> dr's

> > > desk and pointed out SMA joint dislocations and how surgery

> dosen't

> > > work for it.

> > >

> > > You need to keep searching and consulting true pain management

> > > specialists and keep drilling the nature of your disability into

> > > their thick as a plank heads.

> > >

> > > The hugest diservices done to adults with SMA is the fact that

> the

> > > drs who specialize in SMA don't work to treat our pain and

> clinics

> > > treating pain know next to nothing about SMA.

> > >

> >

>

>

>

>

>

>

>

>

[Guest guest]

Kenzie started her period last year. She also has a male aide BUT on the

days when she is having her period, she goes to the special ed bathroom and the

FEMALE special ed teacher will go in the bathroom with her. I don't think it

is unreasonable to ask for a female aide. It is common sense! The male aide

helps the special ed kids who require diaper changes but would never change a

female.

Kenzie is much better with changing the pads now but still has to be

reminded to wrap and throw them away properly..

Kenzie is in regular ed classes all day but never uses the regular ed

bathroom..it's not safe!

Good luck!!

karen

S.Hancock

The hancock Team

ReMax Professionals

6813 ny Mercer

Savannah Ga 31410

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912 897 1955

912 897 3775

912 441 6338...cell

fancymom@...

**************A Good Credit Score is 700 or Above. See yours in just 2 easy

steps!

(http://pr.atwola.com/promoclk/100126575x1218822736x1201267884/aol?redir=http:%2\

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%3D62%26bcd%3DfebemailfooterNO62)

[Guest guest]

Yes, you can write in the IEP that her aide be a female.

[Guest guest]

Actually you can't, at least here, it's a staffing issue, and you can't

write that into the IEP. You can write training that the aide must

have, but as far as I have been told, I can't write " female aide " since

it's Special Ed, then Personnel who does the hiring. Maybe I could

write something like " aide must have experience in practical feminine

hygiene skills, and have successfully demonstrated the application of

100 or more sanitary pads " perhaps that would ensure a female aide

without actually stating " must be female. " :-)

That would be too easy :-)

, mom to (13), (11 DS), and Sammy (9)

wrote:

>

>

> Yes, you can write in the IEP that her aide be a female.

>

>

[Guest guest]

Wow, here it's done all the time for male aides. In fact three men have been

hired ahead of me and I've had more seniority. They used to have a male sub,

and if he got called for a job that involved diapering, they pulled him to some

other job and let the woman in that job do that part of it for him.

What if you had a daughter that needed to be cathed every day? Would they allow

a man to do that? I know men can be nurses, but would we really feel comfortable

with that? I don't want to start a flame about men vs. women....I'm just saying

I would have problem with a man, even if qualified, touching my daughter. But

, you are exactly right about how things are worded. I've had to do that

many times.

Re: any ideas?

Actually you can't, at least here, it's a staffing issue, and you can't

write that into the IEP. You can write training that the aide must

have, but as far as I have been told, I can't write " female aide " since

it's Special Ed, then Personnel who does the hiring. Maybe I could

write something like " aide must have experience in practical feminine

hygiene skills, and have successfully demonstrated the application of

100 or more sanitary pads " perhaps that would ensure a female aide

without actually stating " must be female. " :-)

That would be too easy :-)

, mom to (13), (11 DS), and Sammy (9)

wrote:

>

>

> Yes, you can write in the IEP that her aide be a female.

>

>

[Guest guest]

But you can write female aide the school is just giving you an excuse swo that

they won't have to hire anyone.? If it is appropriate for her then they must

comply.? Ask them to show you where in there policuy this is stated.? They won't

be able to.? If they tell you it is just a school rule...tell them IDEA trumps a

made up school rule.

Re: any ideas?

Actually you can't, at least here, it's a staffing issue, and you can't

write that into the IEP. You can write training that the aide must

have, but as far as I have been told, I can't write " female aide " since

it's Special Ed, then Personnel who does the hiring. Maybe I could

write something like " aide must have experience in practical feminine

hygiene skills, and have successfully demonstrated the application of

100 or more sanitary pads " perhaps that would ensure a female aide

without actually stating " must be female. " :-)

That would be too easy :-)

, mom to (13), (11 DS), and Sammy (9)

wrote:

>

>

> Yes, you can write in the IEP that her aide be a female.

>

>