Re: Newbie and my introduction

[Guest guest]

WELCOME to the group. As I said to Dave this is a good group of people. Once in a will Bill pops in with a joke or two. So you can see we also have a sense of humor. The support when needed is great here also. Our official greater is amongst the missing so once again I say, Welcome to the group.

Gail

Newbie and my introduction

Hello to all, I HAD to join this group because I LOVE the name of it. It's funny to see it written like that (just not all that thrilling when it fires!) I am a 38 year old female and I live on the coast of Ma. I come from a family with a dominent gene for dilated cardiomyopathy with potentially lethal arrythmias. My 29 year old brother died suddenly 11 years ago. My mom has had ticker problems for as long as I can remember, but once my brother passed, we had the rest of the family tested and fouind the gene in others. So, I guess if you can find something positive about my brother passing so young its that the rest of us had our eyes opened to this crummy disease. Since his death this gene was found in 4 other family members. My mother, her brother and another brother of mine have all had heart transplants. My sister and I have the implanted defib's. We had hoped it stopped with our generation, but it has since been found in my 12 year old niece. We will not tell her as of yet, I can hear it now...I can't go to school cause my heart hurts :-). Her MD's are all aware and we are keeping a close eye on her. Unfortunately, I can go into heart failure easy, I'm sure that probably goes for just about everyone here. I also have Lupus. It's been tricky balancing my illnesses and all the meds that go along with them. I have had to stop working as an RN just recently due to my symptoms. I have to take immunosuppresive meds, needless to say, its not a good idea to work around all those germs. I DO have a wonderful bedside manner because of being on both sides of the bed. I don't wish illness on anyone, but I think a lot of healthcare providers could benefit from a visit to the other side of a stethescope. Well, I have gone on long enuf and have probably bored u to tears. Thanks for listening and God Bless, PamPlease visit the Zapper homepage athttp://www.ZapLife.org

[Guest guest]

Hi Pam!

Welcome to the group. I'm Jen, got my ICD at 21 for a genetic problem also (long QT syndrome). I grew up in MA (born in Boston and grew up in Foxboro), and now live in Providence - are you on the cape?

"Got Siamese" www.siameserescue.org

Newbie and my introduction

Hello to all, I HAD to join this group because I LOVE the name of it. It's funny to see it written like that (just not all that thrilling when it fires!) I am a 38 year old female and I live on the coast of Ma. I come from a family with a dominent gene for dilated cardiomyopathy with potentially lethal arrythmias. My 29 year old brother died suddenly 11 years ago. My mom has had ticker problems for as long as I can remember, but once my brother passed, we had the rest of the family tested and fouind the gene in others. So, I guess if you can find something positive about my brother passing so young its that the rest of us had our eyes opened to this crummy disease. Since his death this gene was found in 4 other family members. My mother, her brother and another brother of mine have all had heart transplants. My sister and I have the implanted defib's. We had hoped it stopped with our generation, but it has since been found in my 12 year old niece. We will not tell her as of yet, I can hear it now...I can't go to school cause my heart hurts :-). Her MD's are all aware and we are keeping a close eye on her. Unfortunately, I can go into heart failure easy, I'm sure that probably goes for just about everyone here. I also have Lupus. It's been tricky balancing my illnesses and all the meds that go along with them. I have had to stop working as an RN just recently due to my symptoms. I have to take immunosuppresive meds, needless to say, its not a good idea to work around all those germs. I DO have a wonderful bedside manner because of being on both sides of the bed. I don't wish illness on anyone, but I think a lot of healthcare providers could benefit from a visit to the other side of a stethescope. Well, I have gone on long enuf and have probably bored u to tears. Thanks for listening and God Bless, PamPlease visit the Zapper homepage athttp://www.ZapLife.org

[Guest guest]

Hello Pam:

First of all another BIIIIG Welcome to Pam everyone. You are an inspiration. I very much enjoyed your story. I am the moderator of the group. Keep posting. Again welcome to the Family. Love to all the new comers, Good Luck, Good Health and Good Heart. TURK

Newbie and my introduction

Hello to all, I HAD to join this group because I LOVE the name of it. It's funny to see it written like that (just not all that thrilling when it fires!) I am a 38 year old female and I live on the coast of Ma. I come from a family with a dominent gene for dilated cardiomyopathy with potentially lethal arrythmias. My 29 year old brother died suddenly 11 years ago. My mom has had ticker problems for as long as I can remember, but once my brother passed, we had the rest of the family tested and fouind the gene in others. So, I guess if you can find something positive about my brother passing so young its that the rest of us had our eyes opened to this crummy disease. Since his death this gene was found in 4 other family members. My mother, her brother and another brother of mine have all had heart transplants. My sister and I have the implanted defib's. We had hoped it stopped with our generation, but it has since been found in my 12 year old niece. We will not tell her as of yet, I can hear it now...I can't go to school cause my heart hurts :-). Her MD's are all aware and we are keeping a close eye on her. Unfortunately, I can go into heart failure easy, I'm sure that probably goes for just about everyone here. I also have Lupus. It's been tricky balancing my illnesses and all the meds that go along with them. I have had to stop working as an RN just recently due to my symptoms. I have to take immunosuppresive meds, needless to say, its not a good idea to work around all those germs. I DO have a wonderful bedside manner because of being on both sides of the bed. I don't wish illness on anyone, but I think a lot of healthcare providers could benefit from a visit to the other side of a stethescope. Well, I have gone on long enuf and have probably bored u to tears. Thanks for listening and God Bless, PamPlease visit the Zapper homepage athttp://www.ZapLife.org

[Guest guest]

Hi Jenn, No, I am not on the Cape. I live in Gloucester and am

anxiously awaiting the pretty weather. I am dying to get out onto the

ocean again! Thanks for the warm welcome. R u a Pats fan.....did u

grow up anywhere near the stadium? Take care, Pam

> Hi Pam!

>

> Welcome to the group. I'm Jen, got my ICD at 21 for a genetic

problem also (long QT syndrome). I grew up in MA (born in Boston and

grew up in Foxboro), and now live in Providence - are you on the cape?

>

>

>

>

>

> " Got Siamese " www.siameserescue.org

> Newbie and my introduction

>

>

> Hello to all, I HAD to join this group because I LOVE the name of

it.

> It's funny to see it written like that (just not all that

thrilling

> when it fires!) I am a 38 year old female and I live on the coast

of

> Ma. I come from a family with a dominent gene for dilated

> cardiomyopathy with potentially lethal arrythmias. My 29 year old

> brother died suddenly 11 years ago. My mom has had ticker

problems

> for as long as I can remember, but once my brother passed, we had

the

> rest of the family tested and fouind the gene in others. So, I

guess

> if you can find something positive about my brother passing so

young

> its that the rest of us had our eyes opened to this crummy

disease.

> Since his death this gene was found in 4 other family members. My

> mother, her brother and another brother of mine have all had

heart

> transplants. My sister and I have the implanted defib's. We had

hoped

> it stopped with our generation, but it has since been found in my

12

> year old niece. We will not tell her as of yet, I can hear it

now...I

> can't go to school cause my heart hurts :-). Her MD's are all

aware

> and we are keeping a close eye on her. Unfortunately, I can go

into

> heart failure easy, I'm sure that probably goes for just about

> everyone here. I also have Lupus. It's been tricky balancing my

> illnesses and all the meds that go along with them. I have had to

> stop working as an RN just recently due to my symptoms. I have to

> take immunosuppresive meds, needless to say, its not a good idea

to

> work around all those germs. I DO have a wonderful bedside manner

> because of being on both sides of the bed. I don't wish illness

on

> anyone, but I think a lot of healthcare providers could benefit

from

> a visit to the other side of a stethescope. Well, I have gone on

long

> enuf and have probably bored u to tears. Thanks for listening and

God

> Bless, Pam

>

>

>

> Please visit the Zapper homepage at

> http://www.ZapLife.org

>

>

>

[Guest guest]

-How does one get the name TURK, I picture u as a huge man with a

viking like helmit on your head. Thanks for the warm welcome, this

really seems like a great group. I will keep posting. God Bless, Pam--

In , " Turk " <goturk1@h...> wrote:

> Hello Pam:

> First of all another BIIIIG Welcome to Pam everyone. You are an

inspiration. I very much enjoyed your story. I am the moderator of

the group. Keep posting. Again welcome to the Family. Love to all the

new comers, Good Luck, Good Health and Good Heart. TURK

> Newbie and my introduction

>

>

> Hello to all, I HAD to join this group because I LOVE the name of

it.

> It's funny to see it written like that (just not all that

thrilling

> when it fires!) I am a 38 year old female and I live on the coast

of

> Ma. I come from a family with a dominent gene for dilated

> cardiomyopathy with potentially lethal arrythmias. My 29 year old

> brother died suddenly 11 years ago. My mom has had ticker

problems

> for as long as I can remember, but once my brother passed, we had

the

> rest of the family tested and fouind the gene in others. So, I

guess

> if you can find something positive about my brother passing so

young

> its that the rest of us had our eyes opened to this crummy

disease.

> Since his death this gene was found in 4 other family members. My

> mother, her brother and another brother of mine have all had

heart

> transplants. My sister and I have the implanted defib's. We had

hoped

> it stopped with our generation, but it has since been found in my

12

> year old niece. We will not tell her as of yet, I can hear it

now...I

> can't go to school cause my heart hurts :-). Her MD's are all

aware

> and we are keeping a close eye on her. Unfortunately, I can go

into

> heart failure easy, I'm sure that probably goes for just about

> everyone here. I also have Lupus. It's been tricky balancing my

> illnesses and all the meds that go along with them. I have had to

> stop working as an RN just recently due to my symptoms. I have to

> take immunosuppresive meds, needless to say, its not a good idea

to

> work around all those germs. I DO have a wonderful bedside manner

> because of being on both sides of the bed. I don't wish illness

on

> anyone, but I think a lot of healthcare providers could benefit

from

> a visit to the other side of a stethescope. Well, I have gone on

long

> enuf and have probably bored u to tears. Thanks for listening and

God

> Bless, Pam

>

>

>

> Please visit the Zapper homepage at

> http://www.ZapLife.org

>

>

>