Guest guest Posted April 16, 2004 Report Share Posted April 16, 2004 Dear Gang, Thanks, that is all I can say right now without the tears starting to flow. I am so very very weary and weak but because of my kids and grandkids and my beautiful adopted families and my zapper list family I know that I will make it. The trip to Hell was exactly that the sight and scenery were horrible with little to want to share at this time or to write about. Much of it was a blur. Being in ICU first was scary to say the least and then my 5 day trip to PICU was mind boggling it is never dark there and there is never quite there is always some light and some machine even in your head even if its only in your mind. The nurse and staff in both were wonderful caring and took excellent care of me. I was allowed to do nothing for myself which sometimes as I could at least move a bit I found humiliating and embarrassing the assured me they didn't mind but, God there were days it was coming from both end only I wasn't sure which both ends Glad to let you know that I am now home swollen ankles adhesive sodden skin, bruised arms hands and fingers and mediport just in case. My nose bleeds every time I blow it but I have enough strength to at least blow it. My butt has sores and chaffed skin even from the sensitive no allergic sheets they finally started using. The enamel on my teeth we will discuss later. My ankles are swollen and the skin all over my body is peeling and puffy. I still must go back and forth for special procedures oh and guess what I got something special while I was in AGMC. Two new doctors who I love and a new disease to and to my list. I have a condition called severe reflux with over envasive GERD, but the new one is called Acalasisia, it is a condition constriction of the esophagus that has progressed to the point that I know longer have an opening into my stomach and all those little values and hinges in there don't work either and all the back wash has even went into my lungs and I have no lining left and lots of acid burn. But guess what the treatment they will try next? Bottom. DR Fulton will go in and dilate my esophagus again it has been done 5 times already in the past few weeks only this time he will start with small injection of botox into my esophagus hoping that it will paralyze enough of the restriction to start letting small amounts of food go direct to the stomach. they can do they a number of times over a long period of time and hopefully they can get it to work. At this point there is one other procedure available to help me but the doctor hopes it doesn't come to that as the rupture rate is over 80% which of course causes other severe problems. You guys are great, as usual you have pulled me through another really tight spot. I was so sadden to hear about Father , I ask my friend Nurse Rita who is Irish and a very good catholic to have special mass said in his honor. Dave you had better be peeing up a storm. I just finished 8ozs of cranberry juice. it took me three hours but I got it down and so far its still there, so you owe me. I was read something about someone want to know if it was worth it to have a ICD. TO WHO EVER WROTE THAT AND WANTED An ANSWER I'm, AT THE TOP OF MY VOICE YES YES YES OH YES!!!!!!!!!!!!> No matter what has happened to my and how many times I have been at the bottom or how many times it has miss fired or scared the shit out of me and my family I, AM HERE AND alive and able to look in to the beautiful eyes of my children but even more into the eyes of my beloved grandchildren, to hold and touch them to smell them to listen to them to see them grow, but there are even more and everyone on this board will tell you a few years back I would have said rip the damn thing out and be done with it. I am able to share with all of you and know that I am never alone and there is always someone even though you know how crazy I am that understand where I am that day at that time. Get it don't wait. It takes about 18 months to come to full terms with it. Get a good shrink who understands not one that tells you your not coping but one who is willing to travel with you and make good use of this group. Well, this concludes this long drawn out sermon my knees are shaking and I m sure I just heard thunder so its off to nap with me. THANKS YOU GUYS I LOVE AND PRAY IN MY OWN WAY FOR EACH AND EVERY ONE OF YOU! You guys all have an electric personality. Love, Hugs and blessing and just plain thanks Sharon at home and healing Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 17, 2004 Report Share Posted April 17, 2004 Sharon; Thank you for your long message. ALL I can say is I am so happy you are home and healing. You have been through so much and have always come through it. I know with the love and support of your family, adopted family and zapper family you will get through this. Blessings to you, ~guin Re: Sharon First Message... Dear Gang, Thanks, that is all I can say right now without the tears starting to flow. I am so very very weary and weak but because of my kids and grandkids and my beautiful adopted families and my zapper list family I know that I will make it. The trip to Hell was exactly that the sight and scenery were horrible with little to want to share at this time or to write about. Much of it was a blur. Being in ICU first was scary to say the least and then my 5 day trip to PICU was mind boggling it is never dark there and there is never quite there is always some light and some machine even in your head even if its only in your mind. The nurse and staff in both were wonderful caring and took excellent care of me. I was allowed to do nothing for myself which sometimes as I could at least move a bit I found humiliating and embarrassing the assured me they didn't mind but, God there were days it was coming from both end only I wasn't sure which both ends Glad to let you know that I am now home swollen ankles adhesive sodden skin, bruised arms hands and fingers and mediport just in case. My nose bleeds every time I blow it but I have enough strength to at least blow it. My butt has sores and chaffed skin even from the sensitive no allergic sheets they finally started using. The enamel on my teeth we will discuss later. My ankles are swollen and the skin all over my body is peeling and puffy. I still must go back and forth for special procedures oh and guess what I got something special while I was in AGMC. Two new doctors who I love and a new disease to and to my list. I have a condition called severe reflux with over envasive GERD, but the new one is called Acalasisia, it is a condition constriction of the esophagus that has progressed to the point that I know longer have an opening into my stomach and all those little values and hinges in there don't work either and all the back wash has even went into my lungs and I have no lining left and lots of acid burn. But guess what the treatment they will try next? Bottom. DR Fulton will go in and dilate my esophagus again it has been done 5 times already in the past few weeks only this time he will start with small injection of botox into my esophagus hoping that it will paralyze enough of the restriction to start letting small amounts of food go direct to the stomach. they can do they a number of times over a long period of time and hopefully they can get it to work. At this point there is one other procedure available to help me but the doctor hopes it doesn't come to that as the rupture rate is over 80% which of course causes other severe problems. You guys are great, as usual you have pulled me through another really tight spot. I was so sadden to hear about Father , I ask my friend Nurse Rita who is Irish and a very good catholic to have special mass said in his honor. Dave you had better be peeing up a storm. I just finished 8ozs of cranberry juice. it took me three hours but I got it down and so far its still there, so you owe me. I was read something about someone want to know if it was worth it to have a ICD. TO WHO EVER WROTE THAT AND WANTED An ANSWER I'm, AT THE TOP OF MY VOICE YES YES YES OH YES!!!!!!!!!!!!> No matter what has happened to my and how many times I have been at the bottom or how many times it has miss fired or scared the shit out of me and my family I, AM HERE AND alive and able to look in to the beautiful eyes of my children but even more into the eyes of my beloved grandchildren, to hold and touch them to smell them to listen to them to see them grow, but there are even more and everyone on this board will tell you a few years back I would have said rip the damn thing out and be done with it. I am able to share with all of you and know that I am never alone and there is always someone even though you know how crazy I am that understand where I am that day at that time. Get it don't wait. It takes about 18 months to come to full ter ms with it. Get a good shrink who understands not one that tells you your not coping but one who is willing to travel with you and make good use of this group. Well, this concludes this long drawn out sermon my knees are shaking and I m sure I just heard thunder so its off to nap with me. THANKS YOU GUYS I LOVE AND PRAY IN MY OWN WAY FOR EACH AND EVERY ONE OF YOU! You guys all have an electric personality. Love, Hugs and blessing and just plain thanks Sharon at home and healingPlease visit the Zapper homepage athttp://www.ZapLife.org Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 20, 2004 Report Share Posted April 20, 2004 Oh Sharon, all I can say is that you are such an inspiration to me, and I am so glad I have gotton to know you a teeny bit thru these posts. audi Re: Sharon First Message... Dear Gang, Thanks, that is all I can say right now without the tears starting to flow. I am so very very weary and weak but because of my kids and grandkids and my beautiful adopted families and my zapper list family I know that I will make it. The trip to Hell was exactly that the sight and scenery were horrible with little to want to share at this time or to write about. Much of it was a blur. Being in ICU first was scary to say the least and then my 5 day trip to PICU was mind boggling it is never dark there and there is never quite there is always some light and some machine even in your head even if its only in your mind. The nurse and staff in both were wonderful caring and took excellent care of me. I was allowed to do nothing for myself which sometimes as I could at least move a bit I found humiliating and embarrassing the assured me they didn't mind but, God there were days it was coming from both end only I wasn't sure which both ends Glad to let you know that I am now home swollen ankles adhesive sodden skin, bruised arms hands and fingers and mediport just in case. My nose bleeds every time I blow it but I have enough strength to at least blow it. My butt has sores and chaffed skin even from the sensitive no allergic sheets they finally started using. The enamel on my teeth we will discuss later. My ankles are swollen and the skin all over my body is peeling and puffy. I still must go back and forth for special procedures oh and guess what I got something special while I was in AGMC. Two new doctors who I love and a new disease to and to my list. I have a condition called severe reflux with over envasive GERD, but the new one is called Acalasisia, it is a condition constriction of the esophagus that has progressed to the point that I know longer have an opening into my stomach and all those little values and hinges in there don't work either and all the back wash has even went into my lungs and I have no lining left and lots of acid burn. But guess what the treatment they will try next? Bottom. DR Fulton will go in and dilate my esophagus again it has been done 5 times already in the past few weeks only this time he will start with small injection of botox into my esophagus hoping that it will paralyze enough of the restriction to start letting small amounts of food go direct to the stomach. they can do they a number of times over a long period of time and hopefully they can get it to work. At this point there is one other procedure available to help me but the doctor hopes it doesn't come to that as the rupture rate is over 80% which of course causes other severe problems. You guys are great, as usual you have pulled me through another really tight spot. I was so sadden to hear about Father , I ask my friend Nurse Rita who is Irish and a very good catholic to have special mass said in his honor. Dave you had better be peeing up a storm. I just finished 8ozs of cranberry juice. it took me three hours but I got it down and so far its still there, so you owe me. I was read something about someone want to know if it was worth it to have a ICD. TO WHO EVER WROTE THAT AND WANTED An ANSWER I'm, AT THE TOP OF MY VOICE YES YES YES OH YES!!!!!!!!!!!!> No matter what has happened to my and how many times I have been at the bottom or how many times it has miss fired or scared the shit out of me and my family I, AM HERE AND alive and able to look in to the beautiful eyes of my children but even more into the eyes of my beloved grandchildren, to hold and touch them to smell them to listen to them to see them grow, but there are even more and everyone on this board will tell you a few years back I would have said rip the damn thing out and be done with it. I am able to share with all of you and know that I am never alone and there is always someone even though you know how crazy I am that understand where I am that day at that time. Get it don't wait. It takes about 18 months to come to full terms with it. Get a good shrink who understands not one that tells you your not coping but one who is willing to travel with you and make good use of this group. Well, this concludes this long drawn out sermon my knees are shaking and I m sure I just heard thunder so its off to nap with me. THANKS YOU GUYS I LOVE AND PRAY IN MY OWN WAY FOR EACH AND EVERY ONE OF YOU! You guys all have an electric personality. Love, Hugs and blessing and just plain thanks Sharon at home and healingPlease visit the Zapper homepage athttp://www.ZapLife.org Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 20, 2004 Report Share Posted April 20, 2004 Hello Sharon: All i can say is You are an inspiration to me. More power to you honey. I am glad you're back home. We kept praying for you. I know you are a tough cookie. Welcome back. Love TURK Re: Sharon First Message... Dear Gang, Thanks, that is all I can say right now without the tears starting to flow. I am so very very weary and weak but because of my kids and grandkids and my beautiful adopted families and my zapper list family I know that I will make it. The trip to Hell was exactly that the sight and scenery were horrible with little to want to share at this time or to write about. Much of it was a blur. Being in ICU first was scary to say the least and then my 5 day trip to PICU was mind boggling it is never dark there and there is never quite there is always some light and some machine even in your head even if its only in your mind. The nurse and staff in both were wonderful caring and took excellent care of me. I was allowed to do nothing for myself which sometimes as I could at least move a bit I found humiliating and embarrassing the assured me they didn't mind but, God there were days it was coming from both end only I wasn't sure which both ends Glad to let you know that I am now home swollen ankles adhesive sodden skin, bruised arms hands and fingers and mediport just in case. My nose bleeds every time I blow it but I have enough strength to at least blow it. My butt has sores and chaffed skin even from the sensitive no allergic sheets they finally started using. The enamel on my teeth we will discuss later. My ankles are swollen and the skin all over my body is peeling and puffy. I still must go back and forth for special procedures oh and guess what I got something special while I was in AGMC. Two new doctors who I love and a new disease to and to my list. I have a condition called severe reflux with over envasive GERD, but the new one is called Acalasisia, it is a condition constriction of the esophagus that has progressed to the point that I know longer have an opening into my stomach and all those little values and hinges in there don't work either and all the back wash has even went into my lungs and I have no lining left and lots of acid burn. But guess what the treatment they will try next? Bottom. DR Fulton will go in and dilate my esophagus again it has been done 5 times already in the past few weeks only this time he will start with small injection of botox into my esophagus hoping that it will paralyze enough of the restriction to start letting small amounts of food go direct to the stomach. they can do they a number of times over a long period of time and hopefully they can get it to work. At this point there is one other procedure available to help me but the doctor hopes it doesn't come to that as the rupture rate is over 80% which of course causes other severe problems. You guys are great, as usual you have pulled me through another really tight spot. I was so sadden to hear about Father , I ask my friend Nurse Rita who is Irish and a very good catholic to have special mass said in his honor. Dave you had better be peeing up a storm. I just finished 8ozs of cranberry juice. it took me three hours but I got it down and so far its still there, so you owe me. I was read something about someone want to know if it was worth it to have a ICD. TO WHO EVER WROTE THAT AND WANTED An ANSWER I'm, AT THE TOP OF MY VOICE YES YES YES OH YES!!!!!!!!!!!!> No matter what has happened to my and how many times I have been at the bottom or how many times it has miss fired or scared the shit out of me and my family I, AM HERE AND alive and able to look in to the beautiful eyes of my children but even more into the eyes of my beloved grandchildren, to hold and touch them to smell them to listen to them to see them grow, but there are even more and everyone on this board will tell you a few years back I would have said rip the damn thing out and be done with it. I am able to share with all of you and know that I am never alone and there is always someone even though you know how crazy I am that understand where I am that day at that time. Get it don't wait. It takes about 18 months to come to full terms with it. Get a good shrink who understands not one that tells you your not coping but one who is willing to travel with you and make good use of this group. Well, this concludes this long drawn out sermon my knees are shaking and I m sure I just heard thunder so its off to nap with me. THANKS YOU GUYS I LOVE AND PRAY IN MY OWN WAY FOR EACH AND EVERY ONE OF YOU! You guys all have an electric personality. Love, Hugs and blessing and just plain thanks Sharon at home and healingPlease visit the Zapper homepage athttp://www.ZapLife.org Quote Link to comment Share on other sites More sharing options...
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