Guest guest Posted April 30, 2003 Report Share Posted April 30, 2003 Today Austin went to the Pulmonologist. The good news, his rescue medication, Xopenex, can be dropped to just as needed. Bad news, after 24 days of antibiotics, sinus infection is still present. So, 30 days of Omnicef are prescribed, with a follow-up CAT Scan. While he is sedated, they will draw blood for a few tests. These are what worry me. The doc is sure something is wrong with the immune system, it's just not working. So, they are doing CBC Differential, Platelet Count, Immunoglobulins, all the IgA,IgM,IgG,IgD and IgG subclasses. Leukemia was mentioned, and that scares me. I know there are families on the list that have and are dealing with this, so I will try and get my words right. But, if you have anything to help me, please, holler. All in all, it was a decent visit. Thanks for listening. Beth, mom to Austin, 6/ds and Dakota, 6 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 30, 2003 Report Share Posted April 30, 2003 In a message dated 4/30/03 3:15:32 PM Pacific Daylight Time, djackht@... writes: > But, if you have anything to > help me, please, holler. > > All in all, it was a decent visit. Thanks for listening. > > Beth, mom to Austin, 6/ds and Dakota, 6 > > Sinus infections can be VERY tough, even with nothing wrong with the immune system. My dh has had his sinuses scraped out 3 times because of chronic sinus infections and nothing is wrong with his immune system. (My dad had his done once). Now he aggressively treats his allergies, as well as jumps on antibiotics at the first sign of a sinus infection, and regularly steams his head in the steam room at the gym. He hasn't had to have his sinuses scraped out in over 10 years. But looking back he's sure he spent his entire collage experience under the effects of one long sinus infection. - Becky Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 30, 2003 Report Share Posted April 30, 2003 In a message dated 4/30/2003 6:16:10 PM Eastern Daylight Time, djackht@... writes: > Today Austin went to the Pulmonologist. The good news, his rescue > medication, Xopenex, can be dropped to just as needed. Bad news, after 24 > days of antibiotics, sinus infection is still present. So, 30 days of > Omnicef are prescribed, with a follow-up CAT Scan. Good news about the lungs Beth! I went through a similar bout of sinus infections with Liam last year. His ENT refused to prescribe a third round of anti-biotics until he took a culture. Turned out it was a staph infection that was resistant to the amoxicillin and another one prescribed. The culture showed it was responsive to Bactrim (I think that was it, a sulphur based drug). Cleared it up right away. Don't know if it will help, but it worked for us. Can you ask about culturing it? Kathy, Liam's mom( 5) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 30, 2003 Report Share Posted April 30, 2003 In a message dated 4/30/2003 6:16:10 PM Eastern Daylight Time, djackht@... writes: > So, they > are doing CBC Differential, Platelet Count, Immunoglobulins, all the > IgA,IgM,IgG,IgD and IgG subclasses. Leukemia was mentioned, and that > scares > me. PS. Try not to worry about the L-word. I know I do too. AT Liam's 5 year check up, I pointed to a bruise on his knee. " He's 5! " was the doctor's response. The CBC Differential will tell. Liam's pulmonologist says he and a lot of kids with DS have immature complements. The complement is apparently a part of the immune system. Liam's immune system seems to be kicking in this year. (knock on wood) Kathy, Liam's mom( 5) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 30, 2003 Report Share Posted April 30, 2003 In a message dated 4/30/03 3:42:40 PM Pacific Daylight Time, Mom2lfm@... writes: > Can you ask about culturing it? > Kathy, Liam's mom( 5) > > GREAT idea - had a culture before her Adnoids were removed. She was put on antibiotics for 2 weeks and then ltured again... the infection was still there! The ENT decided it was hiding out in the adnoids & tonsils and the best bet was to remove both and treat with antibiotics immediately following surgery. THAT cleared it up. When she had a UTI (urinary tract infection) she was cultured the first time to figure out which specific antibiotics to use. What antibiotics has AUstin been on to date? Unfortunately some doctors don't treat aggressively enough and you develop resistant strains over time that get harder and harder to beat. - Becky Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 30, 2003 Report Share Posted April 30, 2003 In a message dated 4/30/2003 5:40:26 PM Central Daylight Time, Mom2lfm writes: > . Can you ask about culturing it? > Kathy, Liam's mom( 5) I will ask about the culture. It's not just his sinuses, though. It's been recurrent infections thru out his body. Respiratory, the works. If it were only the sinuses, I wouldn't think so much about it. I'm sure it's nothing. I saw his CAT Scan today. The right side was full of puss that day, but who knows, it was 3 weeks ago. :-) Thanks for the culture advice. I'll get on that! Beth Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 30, 2003 Report Share Posted April 30, 2003 In a message dated 4/30/2003 5:50:46 PM Central Daylight Time, RSYOSH@... writes: > What antibiotics has AUstin been on to date? Unfortunately some doctors > don't treat aggressively enough and you develop resistant strains over time > > that get harder and harder to beat. > He's been on a full round of Augmentin, 600 mg, 2X per day, omnicef, 14 days, and that's just for the past 24 days. He's been on a few others, just in the past 3 months, but I can't remember them at the moment. Seems like one was amoxicillin, though. Ugh, don't want to do 30 more days of omnicef. It constipates him, and throws off his Prilosec! Beth Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 30, 2003 Report Share Posted April 30, 2003 In a message dated 4/30/03 7:11:49 PM Central Daylight Time, djackht@... writes: Well Beth for what it's worth, hehe > He's been on a full round of Augmentin, 600 mg, 2X per day, seems to be the drug of choice after amoxicillain.....completely worthless except for giving (and the adult clients who lived inthe group home my daughter worked at) the diareahha. Honest, it's a very expesive drug that did not kick 's sinus infection, which she had for like 2 months or so and went through about 3 different oral antibiotics. Her list went amoxicillan, amoxiciallan, augumentin, auguemntin then finally actually saw her ped and he did the zinthromax, bactroban in nostrils and eye drops (she has very narrow tear ducts) this worked. She had the same type of thing 2 yrs in a row, so after that we just start the bactroban and eye drops and for whatever reason rarely needed to get an oral antibiotic. Also we try to keep her alergies under control. Here does not get augmentin because if theres something else to take theres no reason for us to have to deal with the side effect....plus it has never really cleared up whatever she was taking it for anyway so why waste my money on an antibiotic that costs $60 a bottle (and that was 5 yrs ago) if amoxicialln doesn't work we go on to zinthomax, which I really like cause i only have to rememeber to give it to her once a day for 5 days. hehe Good luck hope he's better soon. Joy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 30, 2003 Report Share Posted April 30, 2003 Hi My son had recurring sinus infections. Missed a lot of school, antibiotic after antibiotic. Coughed all night. Was taking other kid to GI doctor and he heard me mention this and said " HE HAS REFLUX " put him on Prilosec and sinuses cleared right up. he had had CAT scan before that GI appointment and it showed sinuses that were almost closed. Constant blocking. He has not had sinus problems since and it has been 3 yrs. Jean Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 30, 2003 Report Share Posted April 30, 2003 In a message dated 4/30/03 5:19:46 PM Pacific Daylight Time, djackht@... writes: > > I will ask about the culture. It's not just his sinuses, though. It's > been > recurrent infections thru out his body. Respiratory, the works. If it > were > only the sinuses, I wouldn't think so much about it. I'm sure it's > nothing. > I saw his CAT Scan today. The right side was full of puss that day, but > who > knows, it was 3 weeks ago. :-) Thanks for the culture advice. I'll get on > > that! > Beth > The thing is, once you have one difficult infection (and sinus can be VERY difficult) it weakens the system overall, making it hard for the body to kick other infections. And the fact that the doctor keeps on using amoxicillin, despite the history shows it has NOT been effective, is suspicious. I'ld be thinking about a new doctor. - Becky Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 1, 2003 Report Share Posted May 1, 2003 We've been that route. He does have Reflux. He's on Prilosec, has been for about 45 days now. The sinus infection hasn't gotten any better. We are hoping for better results on the sinus CAT scan in 30 days. The first one showed icky stuff everywhere, worse on the right side than the left. I tell ya, this child has had a sinus infection for 6 years! Seems the doctors would treat the current one, with one round of antibiotics, then within a week of finishing the treatment, he would be running green again. Yuck. Beth Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 1, 2003 Report Share Posted May 1, 2003 In a message dated 5/1/2003 11:07:58 AM Eastern Daylight Time, mom2bridget@... writes: > With all the trouble with sinus infections as well as allergies I am passing > along a Saline Nasal Rinse that was developed by a pediatric ENT. It has > really helped Bridget. > > I put the mixture in a spray bottle I had for Rx nasal Spray. You can also > use a bottle from store bought saline spray. > Thanks for the reminder . Liam's ENT has us using it as well. It worked well last fall. I got lazy and stopped it, but it worked very well. Kathy, Liam's mom( 5) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 1, 2003 Report Share Posted May 1, 2003 What about using a nasal syringe (bulb) to suck out all the goo after the saline spray>? Loree Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 1, 2003 Report Share Posted May 1, 2003 I have had the same problem with Micah but the pediatrician wouldn't put him back on antibiotic for at least a week in between to see if it was not just a cold starting (This from a kid who has had green coming from his nose since Jan. and in the hospital twice in that amount of time with pneumonia!!) It amazes me how much Austin and Micah are alike right down to the green goo. He is clear at the moment because we did have him on an antibiotic because of the pneumonia, I am hoping with the warm weather we will be done with it for this year. Let us know what happens. Loree Re: trouble? > We've been that route. He does have Reflux. He's on Prilosec, has > been for about 45 days now. The sinus infection hasn't gotten any better. > We are hoping for better results on the sinus CAT scan in 30 days. The first > one showed icky stuff everywhere, worse on the right side than the left. I > tell ya, this child has had a sinus infection for 6 years! Seems the doctors > would treat the current one, with one round of antibiotics, then within a > week of finishing the treatment, he would be running green again. Yuck. > Beth > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 1, 2003 Report Share Posted May 1, 2003 A PS to my other post. They did immune testing on Micah because they were sure he had an imuuno deficiency, he didn't (Meningitis at birth and 4 pneumonia's in 13 months plus other infections) I think what becky is saying is true. There bodies get so run down they can't fight anything. We are praying that now that Micah is on the prilosec it will stop the aspiration pneumonias (which is what they think they were) and the asthma, croup et all will finally clear up as he gets stronger. I do see a difference in him already. Maybe it will just be a matter of time for Austin also. Loree Re: trouble? > In a message dated 4/30/03 5:19:46 PM Pacific Daylight Time, djackht@... > writes: > > > > > I will ask about the culture. It's not just his sinuses, though. It's > > been > > recurrent infections thru out his body. Respiratory, the works. If it > > were > > only the sinuses, I wouldn't think so much about it. I'm sure it's > > nothing. > > I saw his CAT Scan today. The right side was full of puss that day, but > > who > > knows, it was 3 weeks ago. :-) Thanks for the culture advice. I'll get on > > > > that! > > Beth > > > > The thing is, once you have one difficult infection (and sinus can be VERY > difficult) it weakens the system overall, making it hard for the body to kick > other infections. > > And the fact that the doctor keeps on using amoxicillin, despite the history > shows it has NOT been effective, is suspicious. I'ld be thinking about a > new doctor. > > - Becky > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 1, 2003 Report Share Posted May 1, 2003 Loree- I am glad to hear the Prilosec is making a difference. Schulte ----- Original Message ----- From: " loree " <loree5@...> > We are praying that now that Micah is on the prilosec it will > stop the aspiration pneumonias (which is what they think they >were) and the asthma, croup et all will finally clear up as he gets > stronger. I do see a difference in him already. Maybe it will just > be a matter of time for Austin also. > Loree Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 1, 2003 Report Share Posted May 1, 2003 With all the trouble with sinus infections as well as allergies I am passing along a Saline Nasal Rinse that was developed by a pediatric ENT. It has really helped Bridget. I put the mixture in a spray bottle I had for Rx nasal Spray. You can also use a bottle from store bought saline spray. I use it 4 to 5 times a day with 4 to 5 sprays in each nostril. If you child can blow their nose, it will help more. If not use Q-tips to clean the nose after spraying it with the saline spray. I hope this helps everyone. mom to Bridget 10 Subject: Saline nose rinse Saline Nasal Rinse 1. Carefully clean a 1-quart glass jar. Rinse well. 2. Fill the clean jar with tap water or bottled water. No need to boil the water 3. Add 2 to 3 (3 is best for adults; I use 1 1/2 to 2 for Bridget) heaping teaspoons of pickling or canning salt. DO NOT USE TABLE SALT. Table salt has additives you don't want to use in your nose rinse. Morton's makes pickling salt in a green box. 4. Add 1 rounded teaspoon of baking soda (pure bicarbonate) 5. Stir or shake before each use. 6. Store at room tem. 7. After a week pour out any mixture that is left and make a new batch. NOTE: If the mixture seems to strong use less salt. Gradually increase to 2 to 3 teaspoons. Benefits; When you rinse the nose with this unbalanced salt water and baking soda mixture, you wash crusts and other debris from the nose. Salty water pulls fluids out of swollen tissue, which decongest the nose and improves air flow. This makes it much easier to breathe and helps open sinus drainage holes. The mixture helps the nose membranes move mucus faster The mixture cleans the nose making it more receptive to Rx nasal sprays. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 1, 2003 Report Share Posted May 1, 2003 The bulb can cause the tissue to swell, so it is advised to not do this. Re: re:trouble? What about using a nasal syringe (bulb) to suck out all the goo after the saline spray>? Loree Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 1, 2003 Report Share Posted May 1, 2003 My ex-son-in-law had sinus problems like that too and no immune problems. Other problems in his head but not that.LOL My dad had surgery on his sinuses too one time but I don't know the details. I was a kid and don't remember but he didn't have immune problems either. So there are other things. I hope for the best, I know it's scary. Jessie Quote Link to comment Share on other sites More sharing options...
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