Guest guest Posted May 26, 2003 Report Share Posted May 26, 2003 Thanks Dave: This is a fantastic article. It proves my long ongoing argument with my EPS doc whic i kept saying in the hospital even with the beats of 210 per minute i was dizzy but still concious so i kept asking him to pace me up to 220 if it goes higher then shock me. I love this stuff. Thanks. TURK Fewer Zaps This study suggests that adjustments to your ICD may reduce the number of Zaps by 70 %http://www.businesswire.com/cgi-bin/cb_headline.cgi? & story_file=bw.051703/231375002 & directory=/google & header_file=header.htm & footer_file=Dave ThibodeauPlease visit the Zapper homepage athttp://www.ZapLife.org Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 26, 2003 Report Share Posted May 26, 2003 I am siti g here in tars over joyed with this article which is printing as I write what a revolustion. THANK YOU FROM THE BOTTOM OF MY HEART! SHARON IN OHIO Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 28, 2003 Report Share Posted May 28, 2003 That's very good news to get Turk. Griff Re: Fewer Zaps>Date: Tue, 27 May 2003 19:42:34 -0000>>Okay... next question ... was everyone's V-tach inducible? ... and>sustained? ... I'm trying to figure out in my own mind why I'm under>the impression that my EP study was conclusive... it told the EP docs>at which point I go into V-Tach and then 'Fib ... and this has held>true since '90>>Bridget... when you say you went into "flutter at 155" do you mean>Atrial Flutter? ... that may be the difference... I don't have Atrial>arryhthmia... only PVCs, V-tach and 'Fib.>>JES in 'Jersey...where the sun is finally shinning, be it only for>today \o/>>> > > wasn't> > > everyone tested and dx'd this way?> > > JES in rainy 'Jersey...>_________________________________________________________________The new MSN 8: advanced junk mail protection and 2 months FREE* http://join.msn.com/?page=features/junkmailPlease visit the Zapper homepage athttp://www.ZapLife.org Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 28, 2003 Report Share Posted May 28, 2003 Thans griff. Re: Re: Fewer Zaps That's very good news to get Turk. Griff Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 28, 2003 Report Share Posted May 28, 2003 Hey Jes, I may not be able to contribute much to this, as LQTS can be wierd as far as whats inducible. But... I'm not very indicible at all - only once during my implant did I get VF at 188 - which resulted in my set rate (which was later changed to 220). Other than that - its all a guess! hehe Re: Fewer Zaps Okay... next question ... was everyone's V-tach inducible? ... and sustained? ... I'm trying to figure out in my own mind why I'm under the impression that my EP study was conclusive... it told the EP docs at which point I go into V-Tach and then 'Fib ... and this has held true since '90 Bridget... when you say you went into "flutter at 155" do you mean Atrial Flutter? ... that may be the difference... I don't have Atrial arryhthmia... only PVCs, V-tach and 'Fib.JES in 'Jersey...where the sun is finally shinning, be it only for today \o/> > wasn't > > everyone tested and dx'd this way?> > JES in rainy 'Jersey...Please visit the Zapper homepage athttp://www.ZapLife.org Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 28, 2003 Report Share Posted May 28, 2003 Griff, I think you have made some valuable comments. No two cases are alike and that is why this board has always been so great. Some of us have adjusted better than others emotional and physical. As in everything in life we need to find what works best for us. You have made me aware of the fact that I need to ask more questions. My view over the last couple of years has been if it ain't broke don't push your luck. I have more or less buried my head in the sand. I don't have a poor me attitude I just have a buried attitude. I feel fortunate that I am still here and can enjoy my garden my kids and my grandchildren and good music and an occasional glass of wine. I talked with my heart doctor this morning at my visit and took him the articleI had printed. Thanks Sharon in Ohio Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 28, 2003 Report Share Posted May 28, 2003 > Bridget... when you say you went into " flutter at 155 " do you mean > Atrial Flutter? ... that may be the difference... I don't have Atrial > arryhthmia... only PVCs, V-tach and 'Fib. Nope. Ventricular Flutter. Not organized enough to be V-Tach I guess. As I understand it, my left ventrical just stops pumping as a unit and different sections try to pump independently. But my problem is that my arrhythmia is intermittent (to borrow an engineering phrase.) Sometimes my heart can work away and I'm fine and other times it just doesn't work right. I can't predict when I will have problems either. I do know that Calcium Channel Blockers make me worse not better. Bridget Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 28, 2003 Report Share Posted May 28, 2003 Sharon, Feel free to contact me off-list. I like to do those things too (well, except the mall part) and I am still driving. You aren't that far away. If you ever want to just traipse around Amish country or something, I'd be willing to drive you. Bridget -- In , IIPistacio@a... wrote: But sometimes I just want to go and > do my thing like spend all afternoon in the craft store or the fabric store or > the carad shop or just at the mall. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 28, 2003 Report Share Posted May 28, 2003 I think that is only true some of the time. With some people what they find in the study is conclusive and for others it isn't. We all just have such widely different sets of problems that no one answer fits all of us. Bridget > I'm of the impression > that the setting is mandated by what is found during EP study... > otherwise, what is EP study for? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 28, 2003 Report Share Posted May 28, 2003 Hello : That sound like good news that they can't induce it. My doctor said i had a few vt episodes for the past two years which were unsustained so the machine didn't even paced them. TURK >From: " mai_lin " <mai_lin@...> >Reply- >< > >Subject: Re: Re: Fewer Zaps >Date: Tue, 27 May 2003 22:38:45 -0400 > >Hey Jes, > >I may not be able to contribute much to this, as LQTS can be wierd as far >as whats inducible. But... > >I'm not very indicible at all - only once during my implant did I get VF at >188 - which resulted in my set rate (which was later changed to 220). >Other than that - its all a guess! hehe > > > Re: Fewer Zaps > > > Okay... next question ... was everyone's V-tach inducible? ... and > sustained? ... I'm trying to figure out in my own mind why I'm under > the impression that my EP study was conclusive... it told the EP docs > at which point I go into V-Tach and then 'Fib ... and this has held > true since '90 > > Bridget... when you say you went into " flutter at 155 " do you mean > Atrial Flutter? ... that may be the difference... I don't have Atrial > arryhthmia... only PVCs, V-tach and 'Fib. > > JES in 'Jersey...where the sun is finally shinning, be it only for > today \o/ > > > > > wasn't > > > everyone tested and dx'd this way? > > > JES in rainy 'Jersey... > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 28, 2003 Report Share Posted May 28, 2003 Turk, Yep its good news, but of course there's always that underlying flaw - it was an 'ugly' rhythm that could be very dangerous. But luckily, it takes alot for that too happen. We're lucky that way. I'm crazy for cross stitch! http://mai_lin.tripod.com/crossstitch/mainframes.html >From: " Gurhan G. Ozdemir " <goturk1@...> >Reply- > >Subject: Re: Re: Fewer Zaps >Date: Wed, 28 May 2003 11:13:47 -0400 > >Hello : >That sound like good news that they can't induce it. My doctor said i had a >few vt episodes for the past two years which were unsustained so the >machine >didn't even paced them. TURK > > > >From: " mai_lin " <mai_lin@...> > >Reply- > >< > > >Subject: Re: Re: Fewer Zaps > >Date: Tue, 27 May 2003 22:38:45 -0400 > > > >Hey Jes, > > > >I may not be able to contribute much to this, as LQTS can be wierd as far > >as whats inducible. But... > > > >I'm not very indicible at all - only once during my implant did I get VF >at > >188 - which resulted in my set rate (which was later changed to 220). > >Other than that - its all a guess! hehe > > > > > > Re: Fewer Zaps > > > > > > Okay... next question ... was everyone's V-tach inducible? ... and > > sustained? ... I'm trying to figure out in my own mind why I'm under > > the impression that my EP study was conclusive... it told the EP docs > > at which point I go into V-Tach and then 'Fib ... and this has held > > true since '90 > > > > Bridget... when you say you went into " flutter at 155 " do you mean > > Atrial Flutter? ... that may be the difference... I don't have Atrial > > arryhthmia... only PVCs, V-tach and 'Fib. > > > > JES in 'Jersey...where the sun is finally shinning, be it only for > > today \o/ > > > > > > > > wasn't > > > > everyone tested and dx'd this way? > > > > JES in rainy 'Jersey... > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 28, 2003 Report Share Posted May 28, 2003 Sharon you still might consider visiting my site or looking into my handbook for patients. Both are really good. http://groups.msn.com/ElectryingJoulesandLivingWithYourNewICD The handbook is further down the post site. With 12 years of experience all I want to do is help others. Griff Re: Re: Fewer Zaps Griff, I think you have made some valuable comments. No two cases are alike and that is why this board has always been so great. Some of us have adjusted better than others emotional and physical. As in everything in life we need to find what works best for us. You have made me aware of the fact that I need to ask more questions. My view over the last couple of years has been if it ain't broke don't push your luck. I have more or less buried my head in the sand. I don't have a poor me attitude I just have a buried attitude. I feel fortunate that I am still here and can enjoy my garden my kids and my grandchildren and good music and an occasional glass of wine. I talked with my heart doctor this morning at my visit and took him the articleI had printed.Thanks Sharon in Ohio Please visit the Zapper homepage athttp://www.ZapLife.org Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 28, 2003 Report Share Posted May 28, 2003 Hey Gordon: I tried to get in to the link but msn says it can't find the page. TURK >From: " GORDON GRIFFITH " <cacps2@...> >Reply- >< > >Subject: Re: Re: Fewer Zaps >Date: Wed, 28 May 2003 11:44:14 -0400 > >Sharon you still might consider visiting my site or looking into my >handbook for patients. Both are really good. >http://groups.msn.com/ElectryingJoulesandLivingWithYourNewICD The handbook >is further down the post site. With 12 years of experience all I want to do >is help others. Griff > Re: Re: Fewer Zaps > > > Griff, I think you have made some valuable comments. No two cases are >alike and that is why this board has always been so great. Some of us have >adjusted better than others emotional and physical. As in everything in >life we need to find what works best for us. You have made me aware of the >fact that I need to ask more questions. My view over the last couple of >years has been if it ain't broke don't push your luck. I have more or less >buried my head in the sand. I don't have a poor me attitude I just have a >buried attitude. I feel fortunate that I am still here and can enjoy my >garden my kids and my grandchildren and good music and an occasional glass >of wine. I talked with my heart doctor this morning at my visit and took >him the articleI had printed. > > Thanks Sharon in Ohio > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 28, 2003 Report Share Posted May 28, 2003 Turk, that's because this dumb ass misspelled Electrifying it should be as follows: http://groups.msn.com/ElectrifyingJoulesandLivingWithYourNewICD son spaces and all words bud and beginning with a cap. Hope you'll try again. Griff Re: Re: Fewer Zaps>>> Griff, I think you have made some valuable comments. No two cases are >alike and that is why this board has always been so great. Some of us have >adjusted better than others emotional and physical. As in everything in >life we need to find what works best for us. You have made me aware of the >fact that I need to ask more questions. My view over the last couple of >years has been if it ain't broke don't push your luck. I have more or less >buried my head in the sand. I don't have a poor me attitude I just have a >buried attitude. I feel fortunate that I am still here and can enjoy my >garden my kids and my grandchildren and good music and an occasional glass >of wine. I talked with my heart doctor this morning at my visit and took >him the articleI had printed.>> Thanks Sharon in Ohio> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 28, 2003 Report Share Posted May 28, 2003 I will visit your site and I will look at the handbook. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 28, 2003 Report Share Posted May 28, 2003 griff I can't get the site to come up either and neither can my husband. What am I doing wrong Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 28, 2003 Report Share Posted May 28, 2003 Hey Griff: It should be Electrifyingtalesandlivingwithyournewicd right? TURK >From: " GORDON GRIFFITH " <cacps2@...> >Reply- >< > >Subject: Re: Re: Fewer Zaps >Date: Wed, 28 May 2003 15:10:32 -0400 > > Turk, that's because this dumb ass misspelled Electrifying it should be >as follows: > http://groups.msn.com/ElectrifyingJoulesandLivingWithYourNewICD son >spaces and all words bud and beginning with a cap. Hope you'll try again. > Griff > Re: Re: Fewer Zaps > > > > > > Griff, I think you have made some valuable comments. No two cases >are > >alike and that is why this board has always been so great. Some of us >have > >adjusted better than others emotional and physical. As in everything >in > >life we need to find what works best for us. You have made me aware of >the > >fact that I need to ask more questions. My view over the last couple >of > >years has been if it ain't broke don't push your luck. I have more or >less > >buried my head in the sand. I don't have a poor me attitude I just >have a > >buried attitude. I feel fortunate that I am still here and can enjoy >my > >garden my kids and my grandchildren and good music and an occasional >glass > >of wine. I talked with my heart doctor this morning at my visit and >took > >him the articleI had printed. > > > > Thanks Sharon in Ohio > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 29, 2003 Report Share Posted May 29, 2003 Turk tales,living,with,yourand New are all capitalized exactly as shown below: http://groups.msn.com/ElectrifyingTalesandLivingWithYourNewICD the capital letters are the key. Griff Re: Re: Fewer Zaps> >> >> > Griff, I think you have made some valuable comments. No two cases >are> >alike and that is why this board has always been so great. Some of us >have> >adjusted better than others emotional and physical. As in everything >in> >life we need to find what works best for us. You have made me aware of >the> >fact that I need to ask more questions. My view over the last couple >of> >years has been if it ain't broke don't push your luck. I have more or >less> >buried my head in the sand. I don't have a poor me attitude I just >have a> >buried attitude. I feel fortunate that I am still here and can enjoy >my> >garden my kids and my grandchildren and good music and an occasional >glass> >of wine. I talked with my heart doctor this morning at my visit and >took> >him the articleI had printed.> >> > Thanks Sharon in Ohio> > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 29, 2003 Report Share Posted May 29, 2003 It has to be typed in exactly like follows, no spaces and all words capped as shown below: http://groups.msn.com/ElectrifyingTalesandLivingWithYourNewICD Do it just like that and you can't miss. Hope you give it a try. Griff Re: Re: Fewer Zaps griff I can't get the site to come up either and neither can my husband. What am I doing wrong Please visit the Zapper homepage athttp://www.ZapLife.org Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 29, 2003 Report Share Posted May 29, 2003 I got right to it by clicking on the link in the email......First link was bad, but this one works.....Thanks Jerry in Ohio Re: Re: Fewer Zaps griff I can't get the site to come up either and neither can my husband. What am I doing wrong Please visit the Zapper homepage athttp://www.ZapLife.org Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 29, 2003 Report Share Posted May 29, 2003 it was determined pacing for V-tach not for me in multiple EP studies... my V-tach pacing is " off " as a result... but you do give me substance for many questions at next EP visit... Thx Griff JES <~~ that would be the JES w/the brand new shiny " same model as last time " ICD Is you're pacing mode on or off? Have they ever, to your knowledge, lowered your settings to determine whether or not you could be paced out of a rhythm before it got out of hand? I'd be willing to bet not. But that's enough said from me. I'm leaving this one alone. Be Well Griff > Re: Fewer Zaps > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 29, 2003 Report Share Posted May 29, 2003 No problem Jes, technology is always advancing. According to my EP and a couple of Guidant reps ATP is always possible and the results are sure worth while as it saves you the sting of the dreaded shockaroo. Good luck to you. Be Well Griff Re: Fewer Zaps> Please visit the Zapper homepage athttp://www.ZapLife.org Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 30, 2003 Report Share Posted May 30, 2003 ugh - they gave you another St. Jude Jes? I hope they don't do that to me! Re: Fewer Zaps> Please visit the Zapper homepage athttp://www.ZapLife.org Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 30, 2003 Report Share Posted May 30, 2003 Too late now, but for future reference you are a consumer as well as a patient and you have a say in what device you get. I've selected all three of mine after calling the tech services departments of the Big Three. Griff Re: Fewer Zaps> Please visit the Zapper homepage athttp://www.ZapLife.org Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 30, 2003 Report Share Posted May 30, 2003 Thats a great idea Griff, I may do that myself. I plan on going with a Medtronic for my next, mostly based on the number of Medtronics the h ospital I'm at uses vs. others. Re: Fewer Zaps> Please visit the Zapper homepage athttp://www.ZapLife.org Quote Link to comment Share on other sites More sharing options...
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