Guest guest Posted July 12, 2002 Report Share Posted July 12, 2002 Charlene, I hope your daughter is better soon. Please let us know how she is doing. Carly had Kawasaki's Disease in August of 2000, and it was a nightmare. I hope it's just something that will pass. Take Care Jayne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 12, 2002 Report Share Posted July 12, 2002 CONGRATS !! Its just a shame we have to fight for everything. We are getting ESY this year also. But in fall, I am keeping a journal of her behavior before,during & after school breaks & I will be asking the school staff to do the same. This way I can show how hard school breaks are for her. Again -- congrats -- meeting today Update on the meeting today. They agreed that extended year services will consist of two days a week for 30 minutes helping me teach my son the pex system! This might not seem much at all but with these people it is quite a miracle. The meeting went much better then planned. My daughter woke up this morning with a headach and a bloody nose. Then didnt eat lunch. Had headach all day. Then 4 bloody noses during the day. So this evening I took her to the ER and she has strep throat again! Ever since we moved here oct 2000 she has had strep at least 5 times a year! I want to thank everyone that wished me well. The meeting went so well and I realized I panicked for nothing. Charlene Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 12, 2002 Report Share Posted July 12, 2002 Thats a great idea . Documentation so they know you mean business! I was so surprised at the results yesterday. OH and a lady was there from CDE (colorado department of education) and also the town mayor stopped by while this meeting was in progress. I truely believe they all know who I am now LOL. Thanks Charlene -- Re: meeting today CONGRATS !! Its just a shame we have to fight for everything. We are getting ESY this year also. But in fall, I am keeping a journal of her behavior before,during & after school breaks & I will be asking the school staff to do the same. This way I can show how hard school breaks are for her. Again -- congrats -- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 12, 2002 Report Share Posted July 12, 2002 Hi Charlene, Kawasaki's Disease is the leading cause of heart disease in children. It's symptoms are persistent fever (usually 5 days or more) that doesn't go away with asprin or tylenol, swollen lymph node in the neck area, red itchy eyes with no discharge, red/swollen hands and feet, rash on body, strawberry tongue, and rash on bottom (like a diaper rash, but actually caused by strep virus). After the initial infection and treatment with IVIG, the child's hands and feet begin to peel. Basically it attacks the heart and some children will die from it. To learn more about KD, go to www.kdfoundation.org. Carly's picture is on the families page. Just scroll down near the bottom. She's the little one with curly blond hair. Jayne (mom to Carly-NT and Maddy-ASD) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 12, 2002 Report Share Posted July 12, 2002 Jayne I never heard of Kawasakis disease? What is it? charlene -- Re: meeting today Charlene, I hope your daughter is better soon. Please let us know how she is doing. Carly had Kawasaki's Disease in August of 2000, and it was a nightmare. I hope it's just something that will pass. Take Care Jayne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 14, 2002 Report Share Posted November 14, 2002 HI we finished Sara's BIP this afternoon, a 3 hour meeting of complaining, whining etc.... about Sara's behavior..... mainly from one of her teachers but all shared how Sara is not this perfect angel???? I think these meetings are the hardest to deal with. I heard a lot of excuses, denials, to what they REALLY are doing or should I say, not doing, no one really taking responsibility for their own behavior geeeeeeeesh could the apple not be falling far from the educational tree???? anyway she did get a soso plan, if implemented but I sure wish I could force some accountability on their shoulders, to may to make sure they are working with her needs in mind. Sara's SS teacher really showed her true colors today, she does not think her class is appropriate for Sara, that SS is not appropriate for Sara. Luckily the administrator today corrected this line of thinking, now I wish the SS teacher would take interest and change her obvious style of teaching to meet all of the kids learning style. While Im holding my breath waiting NOT Im going to really work closely with the aide, so Sara can receive an appropriate education in this part of the curriculum All and all Im glad its over until the next issue pops up lol Kathy mom to Sara 10 .......... ready to snuggle with my " perfect " angel heehee Quote Link to comment Share on other sites More sharing options...
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