Re: Don't know if anyone is getting my posts?

[Guest guest]

on 12/17/01 10:54 PM, Kathy Trowbridge at katkan2001@... wrote:

>

> Hi Ellen, yeah i got your post sorry to here you have so many things wrong

> with you but that seems to be the way it is for us. I have fibro, RA,and an

> bi-polar. Yeah thats messed up. I noticed you live in Fla. so do I . I live in

> Bartow Fla. Where do you live? You are right it sure doesnt feel like

> Christmas here. Well I hope you get to feeling better. Kat in FLa

> Ellen campbell <E2@...> wrote: on 12/10/56 5:02 PM, Ellen

> campbell at E2@... wrote:

>

>> on 12/10/01 12:26 AM, at Matsumura_Clan@... wrote:

>>

>>> ,

>>>

>>> I am wondering how you are doing. You said before that you were from New

>>> York, and I'm hoping that you are OK since 9/11.

>>>

>>> I never thanked you properly for the sweet note you wrote as I was

>>> finalizing my divorce in July. A very-belated THANK YOU! I really appreciate

>>> it now and did very much then. I'm so sorry that I've taken this long to

>>> acknowledge your kindness.

>>>

>>> I've also been meaning to compare notes with you about teeth. I have had

>>> some weird, unexplained infections, too. I have asked every doctor, dentist,

>>> and endodontist I've seen (many!) about what the mouth-body link could be,

>>> but I have had no spectacular answers.

>>>

>>> Write soon if you can and if you feel like it. Hope you are well.

>>>

>>>

>>>

>>>

>>>

>>>

[Guest guest]

on 12/10/56 5:02 PM, Ellen campbell at E2@... wrote:

> on 12/10/01 12:26 AM, at Matsumura_Clan@... wrote:

>

>> ,

>>

>> I am wondering how you are doing. You said before that you were from New

>> York, and I'm hoping that you are OK since 9/11.

>>

>> I never thanked you properly for the sweet note you wrote as I was

>> finalizing my divorce in July. A very-belated THANK YOU! I really appreciate

>> it now and did very much then. I'm so sorry that I've taken this long to

>> acknowledge your kindness.

>>

>> I've also been meaning to compare notes with you about teeth. I have had

>> some weird, unexplained infections, too. I have asked every doctor, dentist,

>> and endodontist I've seen (many!) about what the mouth-body link could be,

>> but I have had no spectacular answers.

>>

>> Write soon if you can and if you feel like it. Hope you are well.

>>

>>

>>

>>

>>

>>

[Guest guest]

Hi Ellen, yeah i got your post sorry to here you have so many things wrong with

you but that seems to be the way it is for us. I have fibro, RA,and an bi-polar.

Yeah thats messed up. I noticed you live in Fla. so do I . I live in Bartow Fla.

Where do you live? You are right it sure doesnt feel like Christmas here. Well I

hope you get to feeling better. Kat in FLa

Ellen campbell <E2@...> wrote: on 12/10/56 5:02 PM, Ellen

campbell at E2@... wrote:

> on 12/10/01 12:26 AM, at Matsumura_Clan@... wrote:

>

>> ,

>>

>> I am wondering how you are doing. You said before that you were from New

>> York, and I'm hoping that you are OK since 9/11.

>>

>> I never thanked you properly for the sweet note you wrote as I was

>> finalizing my divorce in July. A very-belated THANK YOU! I really appreciate

>> it now and did very much then. I'm so sorry that I've taken this long to

>> acknowledge your kindness.

>>

>> I've also been meaning to compare notes with you about teeth. I have had

>> some weird, unexplained infections, too. I have asked every doctor, dentist,

>> and endodontist I've seen (many!) about what the mouth-body link could be,

>> but I have had no spectacular answers.

>>

>> Write soon if you can and if you feel like it. Hope you are well.

>>

>>

>>

>>

>>

>>

[Guest guest]

Hi Ellen. I also have FM and RA. FM causes me more pain that RA at times with

the muscle pain. The pain meds I take don't really do anything for FM pain.

Antidepressants help some people with FM pain. I also have high dental bills

and know how bad it is. I'm not fortunate to have dental insurance, and have

hefty dental bills. I'm to the point of saying pull what's left because I can't

afford any more caps or root canals. Dentisty is not affordable unless you have

dental insurance.

One of our members is on the Kineret, and is having very good results from it.

She participated in the study for it's approval, and it's the first drug that

she has responded to, so we are very excited. I hope other have the same great

results.

I wish I were in Florida right about now. It's wet and cold here, and that is

perfect weather for pain. Sunny Florida sounds pretty inviting. What part of

Florida are you in? I love the Stuart/ Port St. Lucie area and hope to retire

to that area. It would be strange to have such warm weather for Christmas.

a

On Mon, 17 December 2001, Ellen campbell wrote:

> I went to the doc last week and now it looks like I have fibromyalgia (I<BR>

> already have RA lupus and sjogrens) - I have a lot of pains that are not<BR>

> necessarily joint related. My doc is excited about a new drug out called<BR>

> Kineret. He wants to wait for it to be out for awhile before I try it. He<BR>

> also switched my celebrex. which was not working, to a new drug called<BR>

> Meloxicam and it is working better, I think. I have been on methotrixate

for<BR>

> 10 years and it still works. I have no deformities at this point!<BR>

> Dental problems are also getting me. I had one tooth break off so I just<BR>

> paid 550 for a new bridge and now I have another bad tooth right in front.

I<BR>

> have spent thousands on my teeth to no avail. I am just not ready to have<BR>

> the few left pulled. But I cannot afford much more!<BR>

> Hope someone reads this.<BR>

> Love<BR>

> Ellen in Hot Florida - does not seem like Christmas at all! 85 degrees<BR>

> today.<BR>

> & gt; <BR>

> <BR>

> <BR>

> </tt>

>

> <br>

>

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