Kineret Was Re: Don't know if anyone is getting my posts?

[Guest guest]

on 12/17/01 11:42 PM, tpeppergirl@... at tpeppergirl@... wrote:

> In a message dated 12/17/2001 9:46:53 PM Eastern Standard Time,

> E2@... writes:

>

> Ellen,

> Hi, I'm Tery. I've been lurking lately, so a belated welcome to you. I live

> in N FL, still very hot here for this time of the year. Still wearing

> shorts. I am currently in a drug study for Kineret (Anakinra- the study

> name). Jan 3 will be 1 year for me. My study was double blind for the first

> year then for 2 years I know that I will get the " real thing " . I was to the

> point I had tried pretty much everything out there and was grabbing at

> straws. My RD is the RD in charge of my study so I really lucked out. Can't

> wait to find out my x-ray results after the 1 year mark. Hugs to all. Tery

> - FL

>

>

> << Hi all I have written a few times and asked a few questions of you all

> but I did not get replies - just wanted to see if they were going thru.

>

> I went to the doc last week and now it looks like I have fibromyalgia (I

> already have RA lupus and sjogrens) - I have a lot of pains that are not

> necessarily joint related. My doc is excited about a new drug out called

> Kineret. He wants to wait for it to be out for awhile before I try it. He

> also switched my celebrex. which was not working, to a new drug called

> Meloxicam and it is working better, I think. I have been on methotrixate for

> 10 years and it still works. I have no deformities at this point!

> Dental problems are also getting me. I had one tooth break off so I just

> paid 550 for a new bridge and now I have another bad tooth right in front. I

> have spent thousands on my teeth to no avail. I am just not ready to have

> the few left pulled. But I cannot afford much more!

> Hope someone reads this.

> Love

> Ellen in Hot Florida - does not seem like Christmas at all! 85 degrees

> today. >>

>

>

>

[Guest guest]

In a message dated 12/17/2001 9:46:53 PM Eastern Standard Time,

E2@... writes:

Ellen,

Hi, I'm Tery. I've been lurking lately, so a belated welcome to you. I live

in N FL, still very hot here for this time of the year. Still wearing

shorts. I am currently in a drug study for Kineret (Anakinra- the study

name). Jan 3 will be 1 year for me. My study was double blind for the first

year then for 2 years I know that I will get the " real thing " . I was to the

point I had tried pretty much everything out there and was grabbing at

straws. My RD is the RD in charge of my study so I really lucked out. Can't

wait to find out my x-ray results after the 1 year mark. Hugs to all. Tery

- FL

<< Hi all I have written a few times and asked a few questions of you all

but I did not get replies - just wanted to see if they were going thru.

I went to the doc last week and now it looks like I have fibromyalgia (I

already have RA lupus and sjogrens) - I have a lot of pains that are not

necessarily joint related. My doc is excited about a new drug out called

Kineret. He wants to wait for it to be out for awhile before I try it. He

also switched my celebrex. which was not working, to a new drug called

Meloxicam and it is working better, I think. I have been on methotrixate for

10 years and it still works. I have no deformities at this point!

Dental problems are also getting me. I had one tooth break off so I just

paid 550 for a new bridge and now I have another bad tooth right in front. I

have spent thousands on my teeth to no avail. I am just not ready to have

the few left pulled. But I cannot afford much more!

Hope someone reads this.

Love

Ellen in Hot Florida - does not seem like Christmas at all! 85 degrees

today. >>