Guest guest Posted September 19, 2000 Report Share Posted September 19, 2000 > > Coping with Fibromyalgia > by Webber > http://www.suite101.com/article.cfm/fibromyalgia/44082 > > A Fibromyalgia Study > > Research into fibromyalgia is expensive, time-consuming, and requires a > great deal of commitment from not only the researchers but also from the > subjects. Double-blind experiments are being done, but they must be able to > be duplicated by other researchers before they are taken as fact. Studies > are different. Studies provide valuable information for researchers to draw > upon when they are designing a double-blind experiment. In an observational > study, the investigators do not assign the subjects to treatment or control > as is done in a double-blind controlled experiment. > > One such observational study is being conducted by Peggy Muench. She is a > former nurse and has both fibromyalgia and chronic fatigue syndrome. She has > gained an appreciation of the mind-body-spirit connection and how these work > together to assist individuals when ill to cope with the illness. Peggy is > especially interested in how spirituality and hope impact the chronic > illness experience. > > She is currently enrolled in a doctoral program and is writing her > dissertation on the relationship between spirituality, hope, and > psychological well-being for individuals diagnosed with fibromyalgia and/or > chronic fatigue syndrome. She is interested in surveying individuals > diagnosed with these illnesses around the world. > > Peggy needs to find at least 200 individuals who have been diagnosed with > these two chronic conditions, and who will commit themselves to answering a > one-time questionnaire. It should take about 30 minutes to complete the > survey, and she will be assigning a number to insure anonymity of responses. > She is planning to send out the questionnaires through regular mail and will > include postage so individuals can return them with no cost to themselves. > > Peggy is very interested in obtaining a diversified sample since this lends > credibility to the study. That is, she is looking for a wide representation > of individuals with these illnesses. She is hoping to send out 400 > questionnaires, but does need the firm commitment of at least 200 > individuals. > > As with any study that is conducted by a student working towards a doctorate > degree, Peggy will need the approval of her department head plus pass the > Human Subjects Review Board. This will be completed in August. > > It is important for such studies to be done. They not only help us when they > are published and read by other researchers, but they make us feel that we > are contributing to the body of research that is important for learning more > about fibromyalgia and chronic fatigue. > > I encourage all to email Peggy. Let's show our support for her work into > understanding more about the mind-body-spirit connection to fibromyalgia and > chronic fatigue. > > ---------------------------------------------- > > Chip < mailto:cdavis@...> publishes and maintains The Fibrom-L > Community Website, < http://www.fibrom-l.org> featuring information on the > Fibrom-L Email Discussion Group plus the latest news about FMS/CFS/GWS and > other " umbrella " disorders. > > Join our mailing list! > < mailto:fibroml-subscribe@...> > > <><><><><><><><><> DO NOT REPOST THIS PART <><><><><><><><><> > To get Dr. Nye's information sheets, send a message addressed to: > LISTSERV@... > > That says: > GET FMS PT-INFO > GET FMS MD-INFO Quote Link to comment Share on other sites More sharing options...
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