Guest guest Posted January 6, 2003 Report Share Posted January 6, 2003 In a message dated 1/6/2003 3:07:09 PM US Mountain Standard Time, shippahoy@... writes: > kids but know > that if the kids are adopted and raised by adoptive parents that they > will get the services like medical care and money for adapted things > they may need and diapers and wipies for kids over potty training age.I > don't know why they don't help by- birth parents but by-adoption parents > they bend over backwards for. Not true here. We are the adoptive parents of 5 children, 3 of them special needs and we aren't getting anything more than the rest of the sp needs parents. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 6, 2003 Report Share Posted January 6, 2003 , You are right. I am all for subsidies if the children have special needs, but those of us who are raising our biological special needs children basically get very little assistance. Our only assistance is 's special education services. Everything else is done through private insurance and copays. The only thing that I would really like to have and that my insurances won't pay for is for someone to come into the home and work with us - also consult with the school and daycare. If had medicaid, I could get that without jumping through hoops. There is a possibility that I could get this now through his IEP, but then it would go through our local family assessment family team, which my supervisor serves on. As far as developmental disabilities, I have two kids on my caseload whose needs are greater than s. Most of the other children have been affected socially and emotionally - not to mention being taken away from their biological families. If ever had to go into care (and if anything happened to Tim and I - this could happen b/c we don't have anyone who would take him), his adoptive parents would get everything through subsidy - including a darm stroller that I often dream of having. I wish those who are most vulnerable would be served appropriately. We live in a state that is near the bottom as far as services to the MR population goes. We pay thousands of dollars a year in taxes - yet I doubt $1 goes towards the MR/DD population Services for kids It is a shame they don't help families with special kids more.I know there are some families that want to raise their special kids but know that if the kids are adopted and raised by adoptive parents that they will get the services like medical care and money for adapted things they may need and diapers and wipies for kids over potty training age.I don't know why they don't help by- birth parents but by-adoption parents they bend over backwards for.The kids get everything (Mostly ) and since there is adoption assistance to meet the childs needs, there is no worry over money.It is really unfair to by-birth families .I have really seen them struggle and feel awful they don't get more help for the kids. Somebody has to do something to help these parents.I see them working so hard to try to provide the best for their kids when just a little help from a program,any program would help these families.Especially the single moms out there.They are the unsung heroes of America.But somebody needs to help the parents who want to parent their special needs child and give them the services they need without making them feel like they are begging. I personally do not think we need a space program.What for?I'm not going to the moon to live,or any other planet.Just because we have the technology to go there and take soil samples and millions of pictures should we?And why are we giving all this money to third world countries when our children need it. These countries don't even pay us back. And why don't those that should speak out do it? Because they are working so many jobs that they don't have the time.We help everybody.Why don't we help our own people first? We are important,we love our country,american kids count.If we are the greatest country in the world then why are some of our kids and families suffering the most??? And why is there so much hoopla about sports in schools.I think too much money is spent on that.We need a science program for special kids in our schools more than we need sports. Our is 12.He has ds but he loves science.He and I just put together a planetarium over the weekend.It was fun.It also has the sun in the middle with all the planets revolving around it.We accurately painted the planets.My husband and I are thinking about starting a science club for kids who are not getting it in school.They would have fun with it. Thanks for letting me vent. wife of mom to ,Kristi, and Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2003 Report Share Posted January 7, 2003 Do you ever wonder if society is going down the path that will punish parents that choose to have children with disabilities rather than abort them ... because of the costs that are involved in supporting those children and adults? I really don't believe services and funding is going to improve for people with disabilities. If people like Singer influence college students and others in our society, I think things will just get worse. Cheryl in VA (one of the worst states for support services to people with disabilities) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2003 Report Share Posted January 7, 2003 I think that already happens, if not as overtly as it might. There seems to be a lingering attitude that parents of children with and people with d/a " suffer " and it seems to be an attitude that they <should> suffer--like they need to be made to if they don't evidence sufficient levels in the eyes of some. Judi Re: Services for kids Do you ever wonder if society is going down the path that will punish parents that choose to have children with disabilities rather than abort them ... because of the costs that are involved in supporting those children and adults? I really don't believe services and funding is going to improve for people with disabilities. If people like Singer influence college students and others in our society, I think things will just get worse. Cheryl in VA (one of the worst states for support services to people with disabilities) Click reply to all for messages to go to the list. Just hit reply for messages to go to the sender of the message. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2003 Report Share Posted January 7, 2003 Yes, I think that is exactly where we are headed. I hope and pray it doesn't happen that way. The world would miss out on so much! B CNY Mom to Heidi 12 DS, Caleb 11 NDA, Corrie 10 DS and Mae 6 DS GOD BLESS AMERICA! Do you ever wonder if society is going down the path that will punish parents that choose to have children with disabilities rather than abort them ... because of the costs that are involved in supporting those children and adults? I really don't believe services and funding is going to improve for people with disabilities. If people like Singer influence college students and others in our society, I think things will just get worse. Cheryl in VA (one of the worst states for support services to people with disabilities) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2003 Report Share Posted January 7, 2003 We adopted from Texas and we got a subsidy and Medicaid (if we lived in Texas, it was no good elsewhere). She had special needs and therefore qualified. is our biological son and we made too much for SSI. Even though we qualified for food stamps and free lunches when my husband was an E-4, we made too much for SSI. Interesting, isn't it?? Elaine Re: Services for kids In a message dated 1/6/2003 3:07:09 PM US Mountain Standard Time, shippahoy@... writes: > kids but know > that if the kids are adopted and raised by adoptive parents that they > will get the services like medical care and money for adapted things > they may need and diapers and wipies for kids over potty training age.I > don't know why they don't help by- birth parents but by-adoption parents > they bend over backwards for. Not true here. We are the adoptive parents of 5 children, 3 of them special needs and we aren't getting anything more than the rest of the sp needs parents. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2003 Report Share Posted January 7, 2003 ... from this single mom and her kids.... WE LOVE YOU! Judi - Proud mother to Jordan 7, ds and Savannah 9 weeks, nda Where ever you go.... There you are Services for kids I see them working so hard to try to provide the best for their kids when just a little help from a program,any program would help these families. Especially the single moms out there.They are the unsung heroes of America. Thanks for letting me vent. wife of mom to ,Kristi, and Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2003 Report Share Posted January 7, 2003 Not meaning to sound lost here but who is Singer? Judi - Proud mother to Jordan 7, ds and Savannah 9 weeks, nda Where ever you go.... There you are Re: Services for kids Do you ever wonder if society is going down the path that will punish parents that choose to have children with disabilities rather than abort them ... because of the costs that are involved in supporting those children and adults? I really don't believe services and funding is going to improve for people with disabilities. If people like Singer influence college students and others in our society, I think things will just get worse. Cheryl in VA (one of the worst states for support services to people with disabilities) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2003 Report Share Posted January 7, 2003 > ... from this single mom and her kids.... > WE LOVE YOU! > Judi - Proud mother to Jordan 7, ds and Savannah 9 weeks, nda > Especially the single moms out there.They are the unsung heroes of America. Ditto from this single mom and her kids!!! Sue mom to Kate 13 and Karrie 6 w/ds Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2003 Report Share Posted January 7, 2003 i would not be surprised if it does happen. already i've heard how wrong i am to have had ny & bla bla bla. This society is just so sad. i would not change a thing about my having had ny. He is great & he has helped make me into who i am. without him i would still be ignorant to all of this & i would be just a regular parent. i am so blessed johnny has entered my life. Why can't people see that?? Re: Services for kids Do you ever wonder if society is going down the path that will punish parents that choose to have children with disabilities rather than abort them ... because of the costs that are involved in supporting those children and adults? I really don't believe services and funding is going to improve for people with disabilities. If people like Singer influence college students and others in our society, I think things will just get worse. Cheryl in VA (one of the worst states for support services to people with disabilities) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2003 Report Share Posted January 7, 2003 I can say I feel this way at times also that society would just rather have us abort or hide away our kids from the world! But I refuse I say she has every right to be here just as you and I , maybe more so since she seems to be using her time wisely at reaching others and showing them what she has shown me, A unconditional love that is simple in needs..... So I say who should be here??? I think its these kids first! Nettie619 mom to 4 kids ,, and 9 with ds and legally blind Or is it the world who is truly blind?? LOL---- Jeanette Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2003 Report Share Posted January 8, 2003 In a message dated 1/7/03 2:34:41 AM Central Standard Time, writes: > > , > > You are right. I am all for subsidies if the children have special needs, > but those of us who are raising our biological special needs children > basically get very little assistance. Our only assistance is 's > special education services. Everything else is done through private > insurance and copays. The only thing that I would really like to have and > that my insurances won't pay for is for someone to come into the home and > work with us - also consult with the school and daycare. If had > medicaid, I could get that without jumping through hoops. There is a > possibility that I could get this now through his IEP, but then it would go > through our local family assessment family team, which my supervisor serves > on. > > As far as developmental disabilities, I have two kids on my caseload whose > needs are greater than s. Most of the other children have been > affected socially and emotionally - not to mention being taken away from > their biological families. If ever had to go into care (and if > anything happened to Tim and I - this could happen b/c we don't have anyone > who would take him), his adoptive parents would get everything through > subsidy - including a darm stroller that I often dream of having. > > I wish those who are most vulnerable would be served appropriately. We > live in a state that is near the bottom as far as services to the MR > population goes. We pay thousands of dollars a year in taxes - yet I doubt > $1 goes towards the MR/DD population > > > I think the whole system is very unbalanced. I'm one of the fortunate adoptive parents that gets lots of services. I also have the experience necessary to find the funding and programs and the connections who will tell me when I'm being denied things unfairly. Unfortunately, even with all this, it doesn't always seem like enough to meet this child's needs. I know of a few other families with adopted children with special needs that aren't getting near the assistance that they need or should be getting through the subsidy system. Every state is a bit different and it seems some really don't provide much. Wisconsin actually is very good at providing at least medical assistance to families with children with special needs. Family support dollars are always in short supply. On the whole flip side of the coin I'm amazed at all the things our son's bio family got to assist them with this child while I had to work very hard to get anything for him from that county before the adoption. I hate the lack of privacy in the whole system. I worked in residential care for years so know the county caseworkers and the whole circle at the county. I'm sure we are the subject of some good gossip over coffee for some of my old acquiantances. They can say anything they want-just give me what I need to help this child. Karyn Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.