Von Willebrands

[Guest guest]

Hi Marsha,

I don't really know any specifics about Von Willebrands, either. I

just remember that I was told that it wasn't x-chromosome related like

hemophilia was. Like, with hemophilia, only boys can be affected. Girls

can be carriers, but will never have hemophilia. Because it's x-linked,

a girl may inherit one defective X, but will have a healthy X too, so

she's a carrier, but no disease. With boys, if they inherit a defective

X, well, they don't have another. So they have the disease.

Yours might have come from your mother, but that doesn't mean that

it's x-linked. Perhaps it's autosomal recessive, so your mom has the

disease, but it took a recessive gene from your father to pass it along?

Or maybe it's autosomal dominant, so all it took was the defective gene

passed down from your mother??

Oh what the hell. I don't know. LOL And it's too damn late to be

talking genetics!! :-)

Marsha Katzman wrote:

> Hi Yes Von Willebrands disease is similar to hemophilia. As for

> it being not x-chromosome related I had never heard that. It is

> hereditary. And mine is definitely from my mothers side. So that would

> indicate to me that it must be x-chromosome related. But not sure.

> They know so little about it. Even the tests are not always accurate.

> You could be tested today and the result will be you don't have it,

> but then repeat the test tomorrow and you will get a different result.

> This has resulted in some surgeons saying that I don't need the DDAVP

> before surgery - well, let me tell you - they don't give me the DDAVP

> and I don't have surgery.I forget which person brought up the DDAVP

> here, but I remember they were saying the drug made them sick. If it

> is given too much too quickly you will be very nauseaus and even

> develop a migraine.Marsha, Buddi (with a heart over the i) & Mcgiver

> I/M # toys2poo

> ICQ# 41368971

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