Amiodorone

[Guest guest]

I hear that Amioderone destroys the thyroid. Does anyone have any aches and

pains in the mussles and joint with this medication also. My husband is so

tired he has trouble just getting of the chair. He is also on a long list of

cardiac and diabtes med. Thank you for listening Ldasilyn

[Guest guest]

Hi Al,

Your comments regarding the use of amiodorone are very

interesting. Actually, 400 mg of Amiodorone is an acceptable daily

maintenance dosage. Of course, most medications, including

amiodorone, are best taken in the least dosage possible.

When I had my MI it left me with a lot of damage to my left ventricle and

low EF and lots of pvcs. I have a cardiologist who is also my EP

doctor. I have regular visits with him. In addition I see my family

doctor on a regular basis who is well aware of my situation. My Cardio and

Family doctor compare notes all the time. I even see an endocronoligist

and an opthomogist (eyes) and I am real pleased that they all work in

conjunction for my benefit. By the way, the cornea deposits are not permanent.

I studied the side effects of all my meds so I would be knowledgable

concerning each and every one of them. Amiodorone is a scary one for

sure. The deposits on the corneas have existed since I first started

therapy. I also developed mild hyperthyroidism which is now very much

normal again. In addition, I have blood work done to monitor renal

function, lung function, etc.

Bottom line - I have trust in my doctors, and if I didn't , I would look

for others. I appreciate their care and their direction. And I am doing

fairly well because of it. I always discuss whatever drugs I am to be put

on and research them. If I have any problems with them, I notify the

doctor pronto, however, I would never personally consider it a wise

decision to play with the dosages of my meds . I had a friend who did so,

and almost died because of it.

I am real happy for you that 75 mgs works for you - I wish it would for me,

but alas............

I also pray - daily,

Take care

Tom in PA

[Guest guest]

Hi Ldasilyn. I am new to the group, but I am on Amiodarone. My doctor told me

that there may be side effects being on the drug and you need to be monitored.

I was told that I would need to get blood tests twice a year and have a

pulmonary test once a year. I don't know if this drug destroys the thyroid, but

I do know that if your on it a long period of time it can cause problems. That

is why they don't like to put people on this drug until they absolutely have to.

I hope this helps. Tami

Also, I was told to be very careful in the sun. You're skin can burn EASILY

when you're on this drug.

> I hear that Amioderone destroys the thyroid. Does anyone have any aches and

> pains in the mussles and joint with this medication also. My husband is so

> tired he has trouble just getting of the chair. He is also on a long list of

> cardiac and diabtes med. Thank you for listening Ldasilyn

[Guest guest]

wow, i am hearing so much about this amodiarone. they just put me on

400 mgs a day and nobody has said a word about it.

i read about the side effects on the net but i havent been zapped in about

a month and i am so thankful for that.

and i do have a lot of muscle and joint pain but think mine may be

arthritus. i also am on a good list of cardiac and diabetes meds.

im reading this stuff about the eyes with interst. any comments tom??? i

havent noticed anything yet.

bob in pa

[Guest guest]

Hi Bobby. Did your doctor put you on Amiodarone (400mgs) after you were zapped?

If so, it may be such a high dose because it takes awhile for the drug to take

hold in your system. I started out at 400mgs, but now I am on 200mgs a day.

When do you go to see your doctor again? Tami

> wow, i am hearing so much about this amodiarone. they just put me on

> 400 mgs a day and nobody has said a word about it.

>

> i read about the side effects on the net but i havent been zapped in about

> a month and i am so thankful for that.

>

> and i do have a lot of muscle and joint pain but think mine may be

> arthritus. i also am on a good list of cardiac and diabetes meds.

>

> im reading this stuff about the eyes with interst. any comments tom??? i

> havent noticed anything yet.

>

> bob in pa

[Guest guest]

hi tami,

they put me on the amodiarone even before the implant and while i was still

in the hospital. maybe mine is high cause im a really big guy. youd

never know it to look at me but i top 300 on a scale.

working on that everyday but sunday.

i have no idea when i see the cardiologist again. they are a group and

when it is time to come in they call and give me the appointment. i never

heard of such a thing. im wondering about that one. do they have a lot

of missed appointments for reasons we would rather not think about. lol

anyhoo, i hope you are feeling well these days. i feel great except for

the panic attacks or anxiety when i am at rest or trying to go to sleep at

night.

bob in pa

[Guest guest]

Hi Bob in Pa

Talking about anxiety sleeping at nights i've had it 24/7 so they gave me lorazepam which is adavan 4 times a day which it looks like im hooked on it so im trying to lower the dose every week one less pill a day so i dont have to take it any more but i havent had a decent nite sleep since the last time i was shocked, i get up at least three times a day. did you find a solution for the sleepless nites and the anxiety if anybody did please let me know im going out of my mind, one more news i had an EPS studies april 23 and doctor could not produce the vt for the longest time he said he had a hard time gettin one so im ok with the meds. anyway rite the next day when my wife took my twins to school i thought i was gonna get shocked and my heart sped up to when i counted it was 39 in 15 seconds which makes 156. but when i went to the doctor thurday doc said it wasnt even close it was 110 for 22 seconds and machine did even bother to intervine. please people am i going out of my mind or is it that im too much in tune with my body , help me some one please dont know what to do or how to calm down when i exert a litlle my heart goes to 85 and i start worrying, how did you guys delt with it. Thanks for all the input and if im being a whiner tell me i wont rite anymore. again thanx for evething good luck and good heart. TURK

Re: Re: Amiodorone

hi tami,they put me on the amodiarone even before the implant and while i was still in the hospital. maybe mine is high cause im a really big guy. youd never know it to look at me but i top 300 on a scale.working on that everyday but sunday.i have no idea when i see the cardiologist again. they are a group and when it is time to come in they call and give me the appointment. i never heard of such a thing. im wondering about that one. do they have a lot of missed appointments for reasons we would rather not think about. lolanyhoo, i hope you are feeling well these days. i feel great except for the panic attacks or anxiety when i am at rest or trying to go to sleep at night. bob in paPlease visit the Zapper homepage athttp://www.ZapLife.org

[Guest guest]

Hi Bobby Isent it strange how people have to seenm to trade one symtom for

another? The acheness is better then being zapped i guess. My poor hubby

seems to have so many of the side effects from Amioderone but he is still

breathing and so far hasen't gotten zapped again.I guess sometimes you have

to make that trade Take care LDasilyn

[Guest guest]

hi turk,

the single thing ive found that keeps the anxiety feelings away is to keep

busy. even sitting here at the computer helps cause iim always thinking.

i try to get a lot of exercise everyday now so that when i go to bed im

very tired. on the days i dont go to the hospital i make sure i walk at

least a half mile and get some things done outside. and on the off days i

walk at least a half mile and try to increase it every week. the single

thing my docs told me to do is let my body tell me what i can and cant do.

but i suggest you talk to yours before you try any of that. we are all

different. for instance ive noticed most of our icd club members have had

the heart attack, or the bypass, or congenital defects. i went to the

hospitl with shortness of breath and was diagnosed as having viral

pnumonia. it was while there and being tested that the found the

arrythmia and the severe congestive heart failure.

the docs told me i cant get any better. i dont beleive that and my goal

is to prove them wrong. in one month i feel a lot better. i just hope it

keeps going that way and lasts. but, only time will tell.

bob in pa

[Guest guest]

Gurhan Ozdemir wrote:

i thought i was

gonna get shocked and my heart sped up to when i counted it was 39 in 15

seconds which makes 156. but when i went to the doctor thurday doc said

it wasnt even close it was 110 for 22 seconds and machine did even bother

to intervine.

Turk,

Counting your pulse may not always give an accurate reading, especially

if you are in some sort of arrhythmia or panic, that's my experience anyway.

It can be difficult to count fast (esp if pulse>120) and also not all beats

are equal. So it can be difficult to distinguish between ventricular

beats and atrial beats (the pulse measurement is officially ventricular

beat to ventricular beat). This may mean you think your pulse is

far higher than it is.

Have you had your AV node ablated? I have, and the ICD is programmed

to pace the ventricle in response to the atrium, but not go above 120 ventricular

bpm. Sometimes though the pulse feels higher, but it is not because

the ICD won't allow it (unless it is genuine VT, which couldn't be provoked

in the Cath Lab).

Whenever we've had a bad experience with our hearts, it's natural to

panic, but trust the doctors, trust the ICD, and trust God.

BTW, with all these zapfolk in PA, is there anybody else here in NI,

or even RoI/UK?

[Guest guest]

To Tumelty:

Thanks for the email brian it was very informative. No i didnt dave my av node ablated. and for some reason i thought that you could only feel the ventricular beat on you pulse. Thats why i was so worried. anyway thanks for the info. good luck and good heart. TURK

Re: Re: Amiodorone

Gurhan Ozdemir wrote: i thought i was gonna get shocked and my heart sped up to when i counted it was 39 in 15 seconds which makes 156. but when i went to the doctor thurday doc said it wasnt even close it was 110 for 22 seconds and machine did even bother to intervine.

Turk, Counting your pulse may not always give an accurate reading, especially if you are in some sort of arrhythmia or panic, that's my experience anyway. It can be difficult to count fast (esp if pulse>120) and also not all beats are equal. So it can be difficult to distinguish between ventricular beats and atrial beats (the pulse measurement is officially ventricular beat to ventricular beat). This may mean you think your pulse is far higher than it is. Have you had your AV node ablated? I have, and the ICD is programmed to pace the ventricle in response to the atrium, but not go above 120 ventricular bpm. Sometimes though the pulse feels higher, but it is not because the ICD won't allow it (unless it is genuine VT, which couldn't be provoked in the Cath Lab). Whenever we've had a bad experience with our hearts, it's natural to panic, but trust the doctors, trust the ICD, and trust God. BTW, with all these zapfolk in PA, is there anybody else here in NI, or even RoI/UK? Please visit the Zapper homepage athttp://www.ZapLife.org

[Guest guest]

Turk,

You're probably right than you can only feel the ventricles in your pulse, but if the atria are running fast, then so too would the ventricles. If my atria go at 140, the ICD is programmed that the venrticles don't go any higher than 120.

Re: Re: Amiodorone

Gurhan Ozdemir wrote: i thought i was gonna get shocked and my heart sped up to when i counted it was 39 in 15 seconds which makes 156. but when i went to the doctor thurday doc said it wasnt even close it was 110 for 22 seconds and machine did even bother to intervine.

Turk, Counting your pulse may not always give an accurate reading, especially if you are in some sort of arrhythmia or panic, that's my experience anyway. It can be difficult to count fast (esp if pulse>120) and also not all beats are equal. So it can be difficult to distinguish between ventricular beats and atrial beats (the pulse measurement is officially ventricular beat to ventricular beat). This may mean you think your pulse is far higher than it is. Have you had your AV node ablated? I have, and the ICD is programmed to pace the ventricle in response to the atrium, but not go above 120 ventricular bpm. Sometimes though the pulse feels higher, but it is not because the ICD won't allow it (unless it is genuine VT, which couldn't be provoked in the Cath Lab). Whenever we've had a bad experience with our hearts, it's natural to panic, but trust the doctors, trust the ICD, and trust God. BTW, with all these zapfolk in PA, is there anybody else here in NI, or even RoI/UK? Please visit the Zapper homepage athttp://www.ZapLife.org

[Guest guest]

Turk,

You're probably right than you can only feel the ventricles in your pulse, but if the atria are running fast, then so too would the ventricles. If my atria go at 140, the ICD is programmed that the venrticles don't go any higher than 120.

Re: Re: Amiodorone

Gurhan Ozdemir wrote: i thought i was gonna get shocked and my heart sped up to when i counted it was 39 in 15 seconds which makes 156. but when i went to the doctor thurday doc said it wasnt even close it was 110 for 22 seconds and machine did even bother to intervine.

Turk, Counting your pulse may not always give an accurate reading, especially if you are in some sort of arrhythmia or panic, that's my experience anyway. It can be difficult to count fast (esp if pulse>120) and also not all beats are equal. So it can be difficult to distinguish between ventricular beats and atrial beats (the pulse measurement is officially ventricular beat to ventricular beat). This may mean you think your pulse is far higher than it is. Have you had your AV node ablated? I have, and the ICD is programmed to pace the ventricle in response to the atrium, but not go above 120 ventricular bpm. Sometimes though the pulse feels higher, but it is not because the ICD won't allow it (unless it is genuine VT, which couldn't be provoked in the Cath Lab). Whenever we've had a bad experience with our hearts, it's natural to panic, but trust the doctors, trust the ICD, and trust God. BTW, with all these zapfolk in PA, is there anybody else here in NI, or even RoI/UK? Please visit the Zapper homepage athttp://www.ZapLife.org

[Guest guest]

it has been a miracle drug for me. I still take 300 mg's a day. except for occasional sunburn no side effects for me so far. RegardsTURK Baker <laurarn@...> wrote: Can anyone tell me about their experiences with amiodorone? How long were you on it? Did it work? Side effects? Thanks Baker

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