Thinking of you

[Guest guest]

Just wanted to tell you how sorry I am that so many of you are

experiencing so much pain,emotionally and physically. Wish there was

something I could say or do to make it all go away. Keep posting your

thoughts and feelings,it is excellent therapy and even though none of us

can take your pain away,just know we are always here to really listen.

We have all been helped so much by a and who have endlessly

researched helpful data for us. I ripped my arm open 3 days ago on the

screen door and cannot get stitches because of the fragility of my

(prednisone) skin. Kept off the computer as long as I could to give it a

chance to heal.

Love & Hugs to all our new members

June

[Guest guest]

Yikes, June,

You gotta be careful! Our skin is like tissue paper thanks to good ol

prednisone.

You are correct again.....We have the best moderators on the net & our

members are the greatest, always there to pick one another up. The support

we all receive can't be put into words. You receive whether you post or just

read.

Thanks again June for reminding us all of how fortunate we are to have one

another even though miles and miles separate us. Rest that arm, my friend

and take good care of yourself.

Gentle, tender, healing angel hugs,

Deb

[Guest guest]

Dear Lyn

Liver disease is so relentless.... it is ok to feel like you do and most everyone does... please see your doctor about an antidepressant...... you might perhaps need something to help you cope with this right now. Nothing wrong with healing the mind also....

Very common also for the spouse to be in denial and everyone around you thinks if you do this or do that you will be okay.... wrong....you know your body better than anyone else. Keep seeking answers and help and fighting. I know Randy had just about given up on living when I met him. He wanted so much to live, but felt he really didnt have a chance. Well, I guess you could say I was his cheerleader and fought alot of the battles for him when he could not. Unfortunately, alot of people do not get that support. And when you do not feel well, are depressed, and do not have a strong support system, it is very easy to fall into a vicious downward spiral. Please remember we are all here for you and we do care and will listen.

Look that disease in the face and tell it that it will not control you but you will control it to the best of your ability. Then take back control and let the sun shine in your face .

Cheryl & Randy

[Guest guest]

Dear Cheryl,

I just had to write you and say thank you for coming along side us

and giving such strength and encouragement. You are a special lady.

What a neat couple you and Randy are and what you share about Randy's

journey has been so inspirational to me and I am sure others in the

group. Anyway I just had to say thanks for being a cheerleader to us

and helping stay in the race to win over liver disease. I totally

agree with what you shared!!!!

Love,

Ruth

> Dear Lyn

>

> Liver disease is so relentless.... it is ok to feel like you do and

most

> everyone does... please see your doctor about an

antidepressant...... you

> might perhaps need something to help you cope with this right now.

Nothing

> wrong with healing the mind also....

>

> Very common also for the spouse to be in denial and everyone around

you

> thinks if you do this or do that you will be okay.... wrong....you

know your

> body better than anyone else. Keep seeking answers and help and

fighting. I

> know Randy had just about given up on living when I met him. He

wanted so

> much to live, but felt he really didnt have a chance. Well, I

guess you

> could say I was his cheerleader and fought alot of the battles for

him when

> he could not. Unfortunately, alot of people do not get that

support. And

> when you do not feel well, are depressed, and do not have a strong

support

> system, it is very easy to fall into a vicious downward spiral.

Please

> remember we are all here for you and we do care and will listen.

>

> Look that disease in the face and tell it that it will not control

you but

> you will control it to the best of your ability. Then take back

control and

> let the sun shine in your face .

>

> Cheryl & Randy

[Guest guest]

,

Thinking of you and picturing Rick on his way to recovery.

Prayers,

Suzanne

[Guest guest]

a,

Are you taking anything for adrenals support ? And are you taking anything for thyroid ?

I am taking pregnenolone and Armour Thyroid . I also am taking panthethoic acid its B5

vitamins from the health food store which will help with your adrenals. The pregnenolone creme

is also for the adrenals at the health food store. This may help you like it did for me ....Wow

what a difference.

Love

In a message dated 3/16/2008 12:57:24 A.M. Eastern Daylight Time, pwhaacke@... writes:

Hi Ladies,I was just thinking of all of you. My prayers are with each of you.I started back to work last Thursday. Fortunately..... just starting back part-time for now. But.....I'm learning another hard lesson. I need to know when to stop and rest!! I don't know how to do this!! If I'm having a pretty good day I just push myself way too hard. There is always so much to do. Today was one of my worst days since my explant. The early mornings are so hard. I had two very busy days in a row and I paid the price today. Last night I had the night sweats again and didn't sleep well at all. Today I have had fatigue, confusion/brain fog and had episodes of shortness of breath. I have had anxiety today and have been ready to cry at the drop of a hat. I feel like I have done so well since my explant 2 1/2 weeks ago..........until today! Grrrrrrrrrr!I think subconsciously I am in denial about the fact that my body is different. My husband is frustrated with me because I'm pushing myself too hard. I hope I can keep my job. I just don't know. Time will tell.I'm so glad we all have one another for comfort and support. I pray for each of you everyday and I miss being online with you everyday. I was online everyday while I was home after the surgery.Thank you again for everything! When I think back just to January and remember how frustrated and scared I was because no doctor could help me find answers..........and then I found all of you!!! What a blessing!! I'm sharing my story with alot of people and hope to get it to Ilena soon.Love and Prayers,a It's Tax Time! Get tips, forms and advice on AOL Money Finance.

[Guest guest]

a- Oh trust me....we can ALL relate to how you are feeling right

now. You are only weeks out of explant. The 2 week mark was the worst

for me! At that stage, I had to go back to work, I was still crying a

lot, didn't feel much better, didn't like how I looked...just all

around felt like crapola. I was just a body going through the motions

of life.

It takes about 6-8 weeks to really start seeing some improvements in

your health, and for your breasts to start " fluffing " and look normal

again. So, just hang in there through these first couple of weeks.

The most important thing you can do right now is listen to your body.

When it says rest....rest!! Your body just went through a traumatic

experience and is still healing! You need lots and lots of rest right

now, so please don't push yourself!

We are all here for you and we have all been there!!

Love, Krista

>

> Hi Ladies,

>

> I was just thinking of all of you. My prayers are with each of you.

>

> I started back to work last Thursday. Fortunately..... just starting

> back part-time for now. But.....I'm learning another hard lesson.

> I need to know when to stop and rest!! I don't know how to do this!!

> If I'm having a pretty good day I just push myself way too hard.

> There is always so much to do. Today was one of my worst days since

> my explant. The early mornings are so hard. I had two very busy

> days in a row and I paid the price today. Last night I had the

> night sweats again and didn't sleep well at all. Today I have had

> fatigue, confusion/brain fog and had episodes of shortness of

> breath. I have had anxiety today and have been ready to cry at the

> drop of a hat. I feel like I have done so well since my explant 2

> 1/2 weeks ago..........until today! Grrrrrrrrrr!

>

> I think subconsciously I am in denial about the fact that my body is

> different. My husband is frustrated with me because I'm pushing

> myself too hard. I hope I can keep my job. I just don't know.

> Time will tell.

>

> I'm so glad we all have one another for comfort and support. I pray

> for each of you everyday and I miss being online with you everyday.

> I was online everyday while I was home after the surgery.

>

> Thank you again for everything! When I think back just to January

> and remember how frustrated and scared I was because no doctor could

> help me find answers..........and then I found all of you!!! What a

> blessing!! I'm sharing my story with alot of people and hope to

> get it to Ilena soon.

>

> Love and Prayers,

>

> a

>

[Guest guest]

Hi a,

I am sorry you are having issues. I too had issues a few weeks after

explant - it was like a rollarcoaster. I'd feel great and then bam -

horrible. All that I can tell you is that it took me time. I know

that isn't the answer you probably want to hear but it is true.

Work was very tough for me. I had surgery on a Friday and went back

to work that following Tuesday. I used to be a huge overachiever but

after was so sick, I just do the minimal amount of what I can do and

to the best of my ability. I try not to let anything stress me - it

is not worth it! If it doesn't get done, it will be there the next

day. I can only do what I can do and I took at a super slow pace.

It gets better though. I still have rough points but nothing like I

was pre and post op.

Hang in there and take it slow. REST REST REST - I know, easier said

than done when you work - but when you are not at work, you need to

rest. This means your house will not be as clean as you wish, your

bills may sit longer than you'd hope. The weekends were my time to

clean and do bills - oh and rest!

Love, Lynn

>

> Hi Ladies,

>

> I was just thinking of all of you. My prayers are with each of you.

>

> I started back to work last Thursday. Fortunately..... just

starting

> back part-time for now. But.....I'm learning another hard

lesson.

> I need to know when to stop and rest!! I don't know how to do

this!!

> If I'm having a pretty good day I just push myself way too hard.

> There is always so much to do. Today was one of my worst days

since

> my explant. The early mornings are so hard. I had two very busy

> days in a row and I paid the price today. Last night I had the

> night sweats again and didn't sleep well at all. Today I have had

> fatigue, confusion/brain fog and had episodes of shortness of

> breath. I have had anxiety today and have been ready to cry at

the

> drop of a hat. I feel like I have done so well since my explant 2

> 1/2 weeks ago..........until today! Grrrrrrrrrr!

>

> I think subconsciously I am in denial about the fact that my body

is

> different. My husband is frustrated with me because I'm pushing

> myself too hard. I hope I can keep my job. I just don't know.

> Time will tell.

>

> I'm so glad we all have one another for comfort and support. I

pray

> for each of you everyday and I miss being online with you

everyday.

> I was online everyday while I was home after the surgery.

>

> Thank you again for everything! When I think back just to January

> and remember how frustrated and scared I was because no doctor

could

> help me find answers..........and then I found all of you!!! What

a

> blessing!! I'm sharing my story with alot of people and hope to

> get it to Ilena soon.

>

> Love and Prayers,

>

> a

>

[Guest guest]

Hi a,

Thank you for writing...and please, let us support you through your

healing. We'll be here, but you must take good care of yourself!

Don't overdo it.

I know what you are talking about with work and trying to be back in

the swing of things. You must take things very slow. For a very

long period of time I felt that I had improved enough... I felt

halfway decent at home, but found that when I got out in public and

tried to be normal again, it didn't work...I couldn't do it. I would

be so surprised at how bad I felt. It was weird.

Home really is a haven.

Our bodies may never FULLY 100% recover, though it may seem like it

at times. We may have days where we feel really, really good. I hope

you begin to see many of those. But I don't think we can ever really

forget that somehow our immune system has suffered some very serious

damage and it takes alot of tender care to get us back on track. I

hope you can keep your job too, but don't let your job interfere with

your healing. If you have to, you may have to think about a transfer

to a less strenuous job, or find another position that is more

conducive to healing. Stress will prevent healing from happening, so

minimize it as much as you can.

Take care and have a blessed week.

Patty

>

> Hi Ladies,

>

> I was just thinking of all of you. My prayers are with each of you.

>

> I started back to work last Thursday. Fortunately..... just

starting

> back part-time for now. But.....I'm learning another hard

lesson.

> I need to know when to stop and rest!! I don't know how to do

this!!

> If I'm having a pretty good day I just push myself way too hard.

> There is always so much to do. Today was one of my worst days

since

> my explant. The early mornings are so hard. I had two very busy

> days in a row and I paid the price today. Last night I had the

> night sweats again and didn't sleep well at all. Today I have had

> fatigue, confusion/brain fog and had episodes of shortness of

> breath. I have had anxiety today and have been ready to cry at

the

> drop of a hat. I feel like I have done so well since my explant 2

> 1/2 weeks ago..........until today! Grrrrrrrrrr!

>

> I think subconsciously I am in denial about the fact that my body

is

> different. My husband is frustrated with me because I'm pushing

> myself too hard. I hope I can keep my job. I just don't know.

> Time will tell.

>

> I'm so glad we all have one another for comfort and support. I

pray

> for each of you everyday and I miss being online with you

everyday.

> I was online everyday while I was home after the surgery.

>

> Thank you again for everything! When I think back just to January

> and remember how frustrated and scared I was because no doctor

could

> help me find answers..........and then I found all of you!!! What

a

> blessing!! I'm sharing my story with alot of people and hope to

> get it to Ilena soon.

>

> Love and Prayers,

>

> a

>

[Guest guest]

a,

the coffee enema book calls for 3 tablespoons of organic coffee

but I use only 2 talblespoons. And I do my in the morning . If

I were you I wouldn't do it past 5:00 p.m. And see if this helps.

You might want to get some melatonin for sleep aid at night

which PH told me about and helps to get me to sleep. It is all

natural at the health food store.

Love

In a message dated 3/17/2008 7:19:40 P.M. Eastern Daylight Time, pwhaacke@... writes:

Hi Patty,Thank you so much for emailing me. It is so good tohear from someone who has been there! Thanks forsticking with all of us and being such a wonderfulangel and helping us.One problem I am having is that my husband isn't sosure about the whole detox thing........especiallysince I have tried going back to work!!! He feelslike I get worse after I do coffee enemas and some ofthe other detoxification methods. We got into anargument about it this morning! I think the coffeeenema keeps me awake if I do it too late in the day! Have you had this problem? How may Tablespoons ofcoffee do you use?? Maybe I need to cut back on theamount of coffee I use??????????By the way, your post on Beauty & the Breast site wasabsolutely perfect! You have a gift with the way youword things and express yourself. I wish I was betterat this!! Sometimes I just cannot put my thoughtsinto words!Thank you for everything!Love,a--- glory2glory1401 <glory2glory1401 > wrote:> > Hi a,> Thank you for writing...and please, let us support> you through your > healing. We'll be here, but you must take good care> of yourself! > Don't overdo it. > > I know what you are talking about with work and> trying to be back in > the swing of things. You must take things very> slow. For a very > long period of time I felt that I had improved> enough... I felt > halfway decent at home, but found that when I got> out in public and > tried to be normal again, it didn't work...I> couldn't do it. I would > be so surprised at how bad I felt. It was weird.> > Home really is a haven.> > Our bodies may never FULLY 100% recover, though it> may seem like it > at times. We may have days where we feel really,> really good. I hope > you begin to see many of those. But I don't think we> can ever really > forget that somehow our immune system has suffered> some very serious > damage and it takes alot of tender care to get us> back on track. I > hope you can keep your job too, but don't let your> job interfere with > your healing. If you have to, you may have to think> about a transfer > to a less strenuous job, or find another position> that is more > conducive to healing. Stress will prevent healing> from happening, so > minimize it as much as you can.> Take care and have a blessed week.> Patty> > >> > Hi Ladies,> > > > I was just thinking of all of you. My prayers are> with each of you.> > > > I started back to work last Thursday. > Fortunately..... just > starting > > back part-time for now. But.....I'm learning> another hard > lesson. > > I need to know when to stop and rest!! I don't> know how to do > this!! > > If I'm having a pretty good day I just push myself> way too hard. > > There is always so much to do. Today was one of> my worst days > since > > my explant. The early mornings are so hard. I> had two very busy > > days in a row and I paid the price today. Last> night I had the > > night sweats again and didn't sleep well at all. > Today I have had > > fatigue, confusion/brain fog and had episodes of> shortness of > > breath. I have had anxiety today and have been> ready to cry at > the > > drop of a hat. I feel like I have done so well> since my explant 2 > > 1/2 weeks ago..........until today! Grrrrrrrrrr!> > > > I think subconsciously I am in denial about the> fact that my body > is > > different. My husband is frustrated with me> because I'm pushing > > myself too hard. I hope I can keep my job. I> just don't know. > > Time will tell.> > > > I'm so glad we all have one another for comfort> and support. I > pray > > for each of you everyday and I miss being online> with you > everyday. > > I was online everyday while I was home after the> surgery.> > > > Thank you again for everything! When I think back> just to January > > and remember how frustrated and scared I was> because no doctor > could > > help me find answers..........and then I found all> of you!!! What > a > > blessing!! I'm sharing my story with alot of> people and hope to > > get it to Ilena soon.> > > > Love and Prayers,> > > > a> >> > > __________________________________________________