Guest guest Posted January 27, 1999 Report Share Posted January 27, 1999 ------------------------------------------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 27, 1999 Report Share Posted January 27, 1999 Exactly on the driving bit. I had an implant 2 plus yrs ago and have been driving ever since. I must say when I drove over the Washington Bridge the first time, I thought what if .... will I end up in the mighty Hudson? As long as you don't black out it is ok. Beyond that I don't know. Ted ------------------------------------------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 27, 1999 Report Share Posted January 27, 1999 I think the level of shock the thing is set for the first firing makes a big difference. On my original settings, the first one hurt and gave you quite a kick, but I still felt under control. Since then I have had a few fatal rythems that didnt respond to a milder jolt so now the thing fires on 100% first time. I have never blacked out, but I also cant say which direction the steering wheel would go if it were to fire while driving. I would venture to say I would be pulling a hard right or left for two to three seconds. Scarry thought I hope to never experiance (had a MI and went down for the count while driving, luckily hit a Chicken joint rather than a person) Steve ------------------------------------------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 1, 1999 Report Share Posted February 1, 1999 ------------------------------------------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 1, 1999 Report Share Posted February 1, 1999 Dear Jon, Although I'm not much of a participant here, I just wanted you to know that I read all of the postings and am very grateful for your kind interest in this project. You said, I believe, that you were a journalist. I am a writer .. Wrote a lot for the NY Times travel k, garden and long island sections. No hard news though. Feature stuff. Have had 16 books published and hundreds of articles. These days mostly on gardening. The latest " Seaside Gardening " published by Harry Abrams in NY. We've just finished a companion book " Country Gardening " to be published this coming fall. Anyway, thank you again for your kind interest in this project. It is a great service to all of us. ------------------------------------------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 12, 1999 Report Share Posted February 12, 1999 Hi Anita, Thank you o very much for he info. I am trying to find out all I can about the meds my step dad is taking, since is open heart surgery 1-22-99. He is still in the hospital(Heart Valve replacement) he is having many problems with the meds not working for him, They already zapped him once & aretalking about doing it again, if you no anyone who has had this type of operation , please tell them to get in touch with me. I have had no luck with this group in locating anyone that has gone thew ths. Thank again, I really do aprreciate you taking the time to respond to my question. Vic ------------------------------------------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 12, 1999 Report Share Posted February 12, 1999 Hi Anita, Thank you o very much for he info. I am trying to find out all I can about the meds my step dad is taking, since is open heart surgery 1-22-99. He is still in the hospital(Heart Valve replacement) he is having many problems with the meds not working for him, They already zapped him once & aretalking about doing it again, if you no anyone who has had this type of operation , please tell them to get in touch with me. I have had no luck with this group in locating anyone that has gone thew ths. Thank again, I really do aprreciate you taking the time to respond to my question. Vic ------------------------------------------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 13, 1999 Report Share Posted February 13, 1999 Vic -- I'm probably not going to be of much help to you in trying to understand what is going on with your step-dad. My father-in-law had heart valve replacement surgery a few years ago, but he never had to cardioverted (zapped). The only trouble I remember him having with meds was the Coumadin (blood thinner). He's still on that med but has to have his blood checked every week or so--it's a pain. As far as the surgery, he's doing great now. I gather your step-dad has not been implanted with an ICD yet--that may happen if they continue to have to zap him. Maybe someone will read your note and have more input for you. Meantime, hang in there-- I'll be thinking about you (and your family). Anita from NC ------------------------------------------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 13, 1999 Report Share Posted February 13, 1999 Vic -- I'm probably not going to be of much help to you in trying to understand what is going on with your step-dad. My father-in-law had heart valve replacement surgery a few years ago, but he never had to cardioverted (zapped). The only trouble I remember him having with meds was the Coumadin (blood thinner). He's still on that med but has to have his blood checked every week or so--it's a pain. As far as the surgery, he's doing great now. I gather your step-dad has not been implanted with an ICD yet--that may happen if they continue to have to zap him. Maybe someone will read your note and have more input for you. Meantime, hang in there-- I'll be thinking about you (and your family). Anita from NC ------------------------------------------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 13, 1999 Report Share Posted February 13, 1999 Hi Anita, Thank you for your response. My step dad is on Coumadin already & they did tell him he would have to have his blood checked twice a week when he does go home. He is taking all inds of medicine right now, but they cant sem to get his Blood pressure ajusted or his breathing, I think he is worse off for havig this operation, but that is only my opinion. Thank you for your kind words. Vic ------------------------------------------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 13, 1999 Report Share Posted February 13, 1999 Hi Anita, Thank you for your response. My step dad is on Coumadin already & they did tell him he would have to have his blood checked twice a week when he does go home. He is taking all inds of medicine right now, but they cant sem to get his Blood pressure ajusted or his breathing, I think he is worse off for havig this operation, but that is only my opinion. Thank you for your kind words. Vic ------------------------------------------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 19, 1999 Report Share Posted February 19, 1999 My cardiologist switched me from Cordarone to Pacerone which he says is the same thing. I have been on Pacerone now for about 6 months and feel fine. And a big plus, Pacerone is much much cheaper than Cordarone, if that is an issue. ------------------------------------------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 7, 1999 Report Share Posted March 7, 1999 My cardiologist switched me from Cordarone to Pacerone, which is a generic for Cordarone, as I understand it. The price is about 1/4, should that be of any concern. I have a dual chamber ICD, Guidant, installed in 1996. Mercifully, it has never fired, and I am feeling just fine. I don't have that thumping you talk about and I have been on Cordarone 200 MG a day since my " incident " ( I love that don't you? Sort of like the incident when the North Koreans shot down a 747 back in 1987) ... Theodore , Jr. ------------------------------------------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 11, 1999 Report Share Posted May 11, 1999 Dear Sue, what is long q t syndrome. Some of my friends seem to think I ave fatigue syndrome, because my energy level is often low, but only in the spring. My doc thinks it's hayfever! Ted. ------------------------------------------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 11, 1999 Report Share Posted May 11, 1999 <a7363fb1.2469747-@...> wrote: Original Article: list//?start=604 > Dear Sue, what is long q t syndrome. Some of my friends seem to think I ave > fatigue syndrome, because my energy level is often low, but only in the > spring. My doc thinks it's hayfever! Ted. > Hi Ted, LQTS is an abnormality of the heart's electrical system. It has to do with heart muscle cell structure and causes a fast arrythmia called Toursade de Pointes. The Q-T interval is a measurement of time required for repolarization and when longer than normal presents a problem. I was able to find good information on this subject by contacting askjeeves.com and asking " What is long q-t symdrome? " Jeeves' site is a great place for finding good reference material. Are you now on any heart meds, Ted? LQTS is not like chronic fatigue syndrome. Hope you are doing OK. Regards, Sue ------------------------------------------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 3, 1999 Report Share Posted June 3, 1999 I wonder if any of you have had similar experience. I had my implant in Nov 97. Never had a firing. Cardiologist very happy. I take 1 1/2 pacerone a day and two blood pressure pills along with one aspirin. Last year I had shortness of breath a lot. Went through all tests and all was in ship shape, but shortness persisted. Then it went away around this time of year. Back in March, I began to huff and puff again. Although I am not having shortness of breath, If I work out in the garden, particularly getting up and down on my knees, I huff and puff and have to catch my breath for a minute. This seems to be persisting. My primary phys. thinks it may be an allergy or it may be that I need to walk a half an hour a day. Anyone else have this fatigue and Huffing and puffing? They don't seem to be concerned, but I don't have the stamina. Is this a normal thing? Any input would be appreciated. Many thanks. ------------------------------------------------------------------------ eGroups.com home: - Simplifying group communications Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 3, 1999 Report Share Posted June 3, 1999 Hi -- I " huff & puff " when I do any activity it seems, but I can tell you from experience that the advice about walking half an hour each morning does help me tremendously. I feel better physically and emotionally. I have congestive heart failure which causes shortness of breath all the time. Of course I'm on a number of meds including Cordarone for arrhythmia and Coreg for my CHF. But, do try the walking--it sure helped me. Here's hoping you begin to feel better soon. Anita in NC ------------------------------------------------------------------------ eGroups.com home: - Simplifying group communications I wonder if any of you have had similar experience. I had my implant in Nov 97. Never had a firing. Cardiologist very happy. I take 1 1/2 pacerone a day and two blood pressure pills along with one aspirin. Last year I had shortness of breath a lot. Went through all tests and all was in ship shape, but shortness persisted. Then it went away around this time of year. Back in March, I began to huff and puff again. Although I am not having shortness of breath, If I work out in the garden, particularly getting up and down on my knees, I huff and puff and have to catch my breath for a minute. This seems to be persisting. My primary phys. thinks it may be an allergy or it may be that I need to walk a half an hour a day. Anyone else have this fatigue and Huffing and puffing? They don't seem to be concerned, but I don't have the stamina. Is this a normal thing? Any input would be appreciated. Many thanks. ------------------------------------------------------------------------ Tired of waiting for your stock quotes and charts to load? StockMaster is super-fast for quotes, charts, news, and portfolios. Markets don't wait, why should you? http://clickhere./click/69 eGroups.com home: - Simplifying group communications Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 3, 1999 Report Share Posted June 3, 1999 The first time that happened to me my cardiologist told me my lungs were filling up with fluid. He put me on Lasix and the problem cleared up almost over night. That's just a water pill to put it simply. I couldn't even get in and out of bed without having to rest and catch my breath. I thought it was going to be the end, but it wasn't. I'm still on it and it still happens every once in awhile. But never as bad as before. I'm not saying that's what is wrong with you. I am not a doctor. But please at least talk to him or your family doctor. None of us should have to live with this discomfort. Tom Denny Theo1415@... wrote: > I wonder if any of you have had similar experience. I had my implant in Nov > 97. Never had a firing. Cardiologist very happy. I take 1 1/2 pacerone a > day and two blood pressure pills along with one aspirin. Last year I had > shortness of breath a lot. Went through all tests and all was in ship shape, > but shortness persisted. Then it went away around this time of year. Back in > March, I began to huff and puff again. Although I am not having shortness of > breath, If I work out in the garden, particularly getting up and down on my > knees, I huff and puff and have to catch my breath for a minute. This seems > to be persisting. My primary phys. thinks it may be an allergy or it may be > that I need to walk a half an hour a day. Anyone else have this fatigue and > Huffing and puffing? They don't seem to be concerned, but I don't have the > stamina. Is this a normal thing? Any input would be appreciated. Many > thanks. > > ------------------------------------------------------------------------ > Tired of waiting for your stock quotes and charts to load? > StockMaster is super-fast for quotes, charts, news, and portfolios. > Markets don't wait, why should you? http://clickhere./click/69 > > eGroups.com home: > - Simplifying group communications ------------------------------------------------------------------------ eGroups.com home: - Simplifying group communications Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 4, 1999 Report Share Posted June 4, 1999 Theo, Stick to that low sodium diet also. You need to keep the fluid off of your lungs. Duff has a link on his site to a low sodium food store. Check it out and say hi to me. Pete E Re: digest I wonder if any of you have had similar experience. I had my implant in Nov 97. Never had a firing. Cardiologist very happy. I take 1 1/2 pacerone a day and two blood pressure pills along with one aspirin. Last year I had shortness of breath a lot. Went through all tests and all was in ship shape, but shortness persisted. Then it went away around this time of year. Back in March, I began to huff and puff again. Although I am not having shortness of breath, If I work out in the garden, particularly getting up and down on my knees, I huff and puff and have to catch my breath for a minute. This seems to be persisting. My primary phys. thinks it may be an allergy or it may be that I need to walk a half an hour a day. Anyone else have this fatigue and Huffing and puffing? They don't seem to be concerned, but I don't have the stamina. Is this a normal thing? Any input would be appreciated. Many thanks. ------------------------------------------------------------------------ Tired of waiting for your stock quotes and charts to load? StockMaster is super-fast for quotes, charts, news, and portfolios. Markets don't wait, why should you? http://clickhere./click/69 eGroups.com home: - Simplifying group communications ------------------------------------------------------------------------ eGroups.com home: - Simplifying group communications Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 4, 1999 Report Share Posted June 4, 1999 I feel walking has done more for me then any other single facet of my treatment. I have a similar profile to Anita. Another patient convinced me that I could walk further then I did a couple years ago, and I think it has kept me going. My EF is staying at the same level, but my Vo2 is increasing a little, and the Huffing and Puffing is gone. Walk everyone. Pete E Re: digest << Message: Re: digest (2.00 KB) >> Hi -- I " huff & puff " when I do any activity it seems, but I can tell you from experience that the advice about walking half an hour each morning does help me tremendously. I feel better physically and emotionally. I have congestive heart failure which causes shortness of breath all the time. Of course I'm on a number of meds including Cordarone for arrhythmia and Coreg for my CHF. But, do try the walking--it sure helped me. Here's hoping you begin to feel better soon. Anita in NC ------------------------------------------------------------------------ Track your stocks and funds in a StockMaster portfolio. With easy setup, you get quotes, charts, and news for them all on just one page. No limits, fast loading, and FREE! http://clickhere./click/67 eGroups.com home: - Simplifying group communications ------------------------------------------------------------------------ eGroups.com home: - Simplifying group communications Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 5, 1999 Report Share Posted June 5, 1999 I rarely ever huff and puff but I am always fatigued. I know it is caused by the propranolol and I wonder if other drugs may cause it too. Whenever I try to run or walk up stairs or walk up a hill I get this dead feeling in my extremeties and my legs have completely given out on me a few times. My understanding is that without the adrenalin (which the propranolol blocks) the O2 cannot be moved from the blood to the muscles at the rate that it is needed. Without O2 the muscles switch to anaerobic respiration which only produces 1/19 of the energy aerobic respiration does. It also produces lactic acid which causes pain and muscle cramps. A good site to look up information about drugs is rxlist.com. You can find out the mechanism of action of cordarone. (Interesting fact: Plants and many fungi and bacteria have a slightly different metabolic pathway for anaerobic respiration. They produce alcohol rather than lactic acid. Isn't it a good thing we aren't like that? We would get drunk every time we exercised!) ------------------------------------------------------------------------ eGroups.com home: - Simplifying group communications Quote Link to comment Share on other sites More sharing options...
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