Guest guest Posted April 5, 2000 Report Share Posted April 5, 2000 Welcome Nanci. I to know the frustrations of being sick and not looking like it. I suffer from Fibro and Chronic migraines. My own mother has migraines and doesnt understand but anyway if I can be of any help to you please feel free to contact me. Tina >From: " Aisha Elderwyn " <aisha@...> >Reply-egroups > " Being Sick Community List " <onelist> >Subject: Welcome Nanci !! >Date: Thu, 6 Apr 2000 10:24:28 +1000 > >1) Name:- Nanci > >2) Location:- East Central, WI, USA > >3) Personal Info:- I am dealing with an uncontrolled blood pressure problem >called Vasal Vagal Presyncope that has literally taken away my life and >along with that came severe GAD (about 3+ years now), so I am looking for a >list where people can understand, but not judge whether I feel well or not >because it is all invisible and my support system is null and void >family/friend wise except for online pals. Everyone thinks I am 'faking' >this in some way or that I can just pull out of it and they don't >understand >that I would if I could. I live with my mom and I am 39! YIPEE LOL ... I >was >very independent and have come to be very dependent because I can't walk >very far or take a long shower, etc. Pretty much housebound I am except >when >I go out with my mom somewhere or just for a car ride ... fun huh? I am >180º >of what I was before this happened and it is totally mindboggling and >frustrating to me. I harbour A LOT of anger about it and don't know what to >do with it? LOL ... I have 2 older kids 17 & 20. I am very much into >Harley's, but since I got sick I have missed that very much; along with a >social life in general. Right now I am pursuing my Computer Science degree >online because before I got sick I was attending school, so at least I'm >able to continue. I hope to make some friends and maybe gain some knowledge >on how to deal with this all by hearing what others deal with and how ... > >4) Interests:- I love to read, compute, swap stickers, rubber stamp, and >hope to get up and running with a rubber stamping web site shortly with a >new company I joined. I am busy, but not in the way I'd like to be ... > >5) Email:- Yes mystic1@... > >6) ICQ 60456677 > AOL: L2RHarleyAngel > >8) Birthday:- 3/10 - Pisces > > ______________________________________________________ Get Your Private, Free Email at http://www.hotmail.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 5, 2000 Report Share Posted April 5, 2000 Hang in there girlfriend. I have been in pain with no meds now for about going on six months. Its a struggle to go on but you do what you have to do. In my case I still have kids at home and am fortunate that I have been on disability for about five yrs now so I dont have to try and hold down a job as well as deal with everything else. I am truly sorry that the drs have given up on you as I am in that predicament right now. I am in the process of finding a dr which is hard when you live in a small town like I do. You have seen them all and there is this stigmatism that comes along with not reacting to regular drugs and needing narcotics to treat you pain adequately. I know that people look at us funny when we have problems that you cannot see on the outside-I myself have probably done this yrs ago when I was healthy. Hang in there. As my mother always says if you think you are in bad shape all you have to do is look around and find someone worse off than you. I am always here somewhere if you ever need me. Tina >From: " Nanci~ " <mystic1@...> >Reply-egroups ><egroups> >Subject: RE: Welcome Nanci !! >Date: Wed, 5 Apr 2000 20:42:58 -0500 > >Hi Tina ... Thanks for the welcome. I have met many people online that >suffer from Fibro and I've only had 1 migraine my whole life so I can't >even >imagine what you go through? I think the hardest part for me is the > " invisible " thing going on. At first when this happened I was so scared I >had MS or a brain tumor, but now I wish it had been because at least people >would then believe there was something wrong or I could have tried to fix >it. I honestly wish I was never born and don't know what the heck my >purpose >could possibly be anymore and have prayed myself to death many nights (not >suicidally, just hating my life and having nowhere to turn?). It's funny, >but I don't think people can even imagine how much it means just to simply >just hear the words " I understand " you know? Instead they harp on me as if >'I've' done something wrong and I have absolutely no control ... at least I >don't think I do and everyone, including the doctors have given up on me >which makes me very sad. I never expected anyone to feel sorry for me, but >just to understand, and to have my closest friends and boyfriend bail on me >really hurt. Okay, enough of the pity party right LOL ... After reading >what >some of the other people here are going through I feel as if I don't have >any problems? I'm very glad to meet you : ) > >Nanci~ >ICQ #60456677 > >---------------------------------------------------------------------------- >---- > >Welcome Nanci. I to know the frustrations of being sick and not looking >like >it. I suffer from Fibro and Chronic migraines. My own mother has migraines >and doesnt understand but anyway if I can be of any help to you please feel >free to contact me. >Tina >> > ______________________________________________________ Get Your Private, Free Email at http://www.hotmail.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 5, 2000 Report Share Posted April 5, 2000 Gosh I wish I had said all that. Makes my letter look adolescent lol Tina I am just trying to give you a hard way to go and at least my way is pain free LOL >From: " Aisha Elderwyn " <aisha@...> >Reply-egroups ><egroups> >Subject: Re: Welcome Nanci !! >Date: Thu, 6 Apr 2000 12:30:52 +1000 > >Just jumping into your converstaion here!! LOL... > > " I think the hardest part for me is the " invisible " thing going on. At >first >when this happened I was so scared I had MS or a brain tumor, but now I >wish >it had been because at least people would then believe there was something >wrong or I could have tried to fix > it. " > >Hon you are not alone in this. When I had an MRI for a suspected tumor we >all thought that I did have one. I actually cried when I didnt!! Just burst >into mega tears. I too wanted to be able to say " see told you I was sick " >and show my supposed loved ones - but we should not have to prove that we >are ill. Those that truly love us are suppose to unconditionally be >there....no excuses. > > " I honestly wish I was never born and don't know what the heck my purpose >could possibly be anymore " > >There will be one... keep the faith sweet one. > > " Instead they harp on me as if 'I've' done something wrong and I have >absolutely no control ... at least I don't think I do and everyone, >including the doctors have given up on me which makes me very sad. " > >Even the doctors???????? Girl you need new doctors!! Why have the doctors >given up on you? > > " I never expected anyone to feel sorry for me, but just to understand, and >to have my closest friends and boyfriend bail on me really hurt. " > >*hug* yes. The ones who you thought loved you the most... it hurts alot. > > " Okay, enough of the pity party right " > >Never! LOL.... > > " After reading what some of the other people here are going through I feel >as if I don't have any problems? " > >Rubbish! As I say - there will always be someone better then you and >someone >worse then you - but that makes absolutely no difference to how you feel. >Dont beat up on yourself. You are entitled to how you feel and have every >reason to be angry, hurt and the rest of it. There is no need to feel >guilty - it is not your fault that you are ill. *hug* > >Be gentle on yourself and know that we are here for you. >with love >Aisha. > > ______________________________________________________ Get Your Private, Free Email at http://www.hotmail.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 5, 2000 Report Share Posted April 5, 2000 Hi Tina ... Thanks for the welcome. I have met many people online that suffer from Fibro and I've only had 1 migraine my whole life so I can't even imagine what you go through? I think the hardest part for me is the "invisible" thing going on. At first when this happened I was so scared I had MS or a brain tumor, but now I wish it had been because at least people would then believe there was something wrong or I could have tried to fix it. I honestly wish I was never born and don't know what the heck my purpose could possibly be anymore and have prayed myself to death many nights (not suicidally, just hating my life and having nowhere to turn?). It's funny, but I don't think people can even imagine how much it means just to simply just hear the words "I understand" you know? Instead they harp on me as if 'I've' done something wrong and I have absolutely no control ... at least I don't think I do and everyone, including the doctors have given up on me which makes me very sad. I never expected anyone to feel sorry for me, but just to understand, and to have my closest friends and boyfriend bail on me really hurt. Okay, enough of the pity party right LOL ... After reading what some of the other people here are going through I feel as if I don't have any problems? I'm very glad to meet you : ) Nanci~ ICQ #60456677 Welcome Nanci. I to know the frustrations of being sick and not looking like it. I suffer from Fibro and Chronic migraines. My own mother has migraines and doesnt understand but anyway if I can be of any help to you please feel free to contact me.Tina >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 5, 2000 Report Share Posted April 5, 2000 Hi Nanci!! " I am dealing with an uncontrolled blood pressure problem called Vasal Vagal Presyncope " Eek... I've never even heard of it.. what is this?? " along with that came severe GAD (about 3+ years now) " GAD??? Eek..... what is this one too!! Oh dont you just hate how you get one disease and then 5 million decide to join in *grrrr* " so I am looking for a list where people can understand, but not judge " That is us!! We ocassionaly debate a bit (wink at sheena) but we all love and support each other. We would never judge you. Please feel free to be yourself here. Vent all you want. Share what you want - sware, curse, be positive, negative etc... we are always here. " my support system is null and void family/friend wise except for online pals. Everyone thinks I am 'faking' this in some way " *nods* Yes.... most of us have been through this too unfortunately. Makes you just want to shake them and say hey look at the blood tests... I'm sick!!! That is - if they havent gone off into their own little world and forgotton about you. Friends... who are they?? Family... the ones that are suppose to love you the most turn on you faster then anyone! Imagine life without internet! Ahhhhhh!!!!!!!!!! " I live with my mom and I am 39! YIPEE LOL ... I was very independent and have come to be very dependent " My hubby and I live with my parents also - sharing your YIPEE!! LOL... likewise - hate relying on others. It is so frustrating having to always ask someone to do things for you. " Pretty much housebound I am except when I go out with my mom somewhere or just for a car ride ... fun huh? " *hug* basically sux huh?! " I harbour A LOT of anger about it and don't know what to do with it? " Vent away! Bitch, scream, tell all - reveal the shocking truth!! You have every right to be angry - you did not choose to be sick! Seriously though - have you no means of venting that anger? Tried art - or started to write a journal? " Harley's, " Ohhh biker chick! Cool " but since I got sick I have missed that very much; along with a social life in general. " as well as life in general I bet! " Right now I am pursuing my Computer Science degree online because before I got sick I was attending school, so at least I'm able to continue. " Go for it!! That is excellent!! " I hope to make some friends and maybe gain some knowledge on how to deal with this all by hearing what others deal with and how ... " You have already made friends - we are all friends - anytime you wanna ask anything just jump in. And jump into any conversation anytime!! I am sure you can help up cope too!! I'll add your details to the profiles list in just a moment too Welcome aboard! Love Aisha. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 5, 2000 Report Share Posted April 5, 2000 Just jumping into your converstaion here!! LOL... " I think the hardest part for me is the " invisible " thing going on. At first when this happened I was so scared I had MS or a brain tumor, but now I wish it had been because at least people would then believe there was something wrong or I could have tried to fix it. " Hon you are not alone in this. When I had an MRI for a suspected tumor we all thought that I did have one. I actually cried when I didnt!! Just burst into mega tears. I too wanted to be able to say " see told you I was sick " and show my supposed loved ones - but we should not have to prove that we are ill. Those that truly love us are suppose to unconditionally be there....no excuses. " I honestly wish I was never born and don't know what the heck my purpose could possibly be anymore " There will be one... keep the faith sweet one. " Instead they harp on me as if 'I've' done something wrong and I have absolutely no control ... at least I don't think I do and everyone, including the doctors have given up on me which makes me very sad. " Even the doctors???????? Girl you need new doctors!! Why have the doctors given up on you? " I never expected anyone to feel sorry for me, but just to understand, and to have my closest friends and boyfriend bail on me really hurt. " *hug* yes. The ones who you thought loved you the most... it hurts alot. " Okay, enough of the pity party right " Never! LOL.... " After reading what some of the other people here are going through I feel as if I don't have any problems? " Rubbish! As I say - there will always be someone better then you and someone worse then you - but that makes absolutely no difference to how you feel. Dont beat up on yourself. You are entitled to how you feel and have every reason to be angry, hurt and the rest of it. There is no need to feel guilty - it is not your fault that you are ill. *hug* Be gentle on yourself and know that we are here for you. with love Aisha. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 5, 2000 Report Share Posted April 5, 2000 Hi , Welcome to the group. I hope you will find the support that you are looking for in the group. It is a great bunch of people. I can really relate to a lot of what you are talking about. I have PAN vasculitis. I spent the first two years that I had this disease trying to act and be normal. Hold down a full-time job, be wife and mother while I was having extreme joint pain. I was literally living on bottles of nuprin to keep my job. Dealing with jerky docters that kept telling me I just had a virus and it would just go away. I was ready to scream. I still get angry when I think about the treatment I got from some of these docters. I don't know if that will ever go away. I hate being dependent on others also. When my disease has been flaired up my husband has to do everything. Freinds and family just don't seem to understand what your going through. I know how you feel when you say that you look ok and people think you are just faking. When my disease is calmed down because of the immune suppressants, yes I do look fairly normal, but I am not the person I used to be. I have about 1/3 of the energy I used to. I guess I have learned how to accept that I have this disease but it has been three years in the making and with the aid of an anti-depressants. So hang in there it really helps to vent your anger and share with others. Write anytime, Kellie Welcome Nanci !! > 1) Name:- Nanci > > 2) Location:- East Central, WI, USA > > 3) Personal Info:- I am dealing with an uncontrolled blood pressure problem > called Vasal Vagal Presyncope that has literally taken away my life and > along with that came severe GAD (about 3+ years now), so I am looking for a > list where people can understand, but not judge whether I feel well or not > because it is all invisible and my support system is null and void > family/friend wise except for online pals. Everyone thinks I am 'faking' > this in some way or that I can just pull out of it and they don't understand > that I would if I could. I live with my mom and I am 39! YIPEE LOL ... I was > very independent and have come to be very dependent because I can't walk > very far or take a long shower, etc. Pretty much housebound I am except when > I go out with my mom somewhere or just for a car ride ... fun huh? I am 180º > of what I was before this happened and it is totally mindboggling and > frustrating to me. I harbour A LOT of anger about it and don't know what to > do with it? LOL ... I have 2 older kids 17 & 20. I am very much into > Harley's, but since I got sick I have missed that very much; along with a > social life in general. Right now I am pursuing my Computer Science degree > online because before I got sick I was attending school, so at least I'm > able to continue. I hope to make some friends and maybe gain some knowledge > on how to deal with this all by hearing what others deal with and how ... > > 4) Interests:- I love to read, compute, swap stickers, rubber stamp, and > hope to get up and running with a rubber stamping web site shortly with a > new company I joined. I am busy, but not in the way I'd like to be ... > > 5) Email:- Yes mystic1@... > > 6) ICQ 60456677 > AOL: L2RHarleyAngel > > 8) Birthday:- 3/10 - Pisces > > > > ------------------------------------------------------------------------ > Win $1000 this Friday! > 1/2860/3/_/_/_/954980844/ > ------------------------------------------------------------------------ > > View Members profiles, locations, hobbies and all that plus find out when their birthday are by visiting /files/ > > Visit The Members Lounge > http://www.elderwyn.com/members > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 6, 2000 Report Share Posted April 6, 2000 Hello Nanci Hope you are having a happy day! Welcome to a great circle of friends who are always here for you whether you need to laugh or cry!! Sounds like you are having a really rough time of it. I am a carer for my hubby who has among other things, hashimotos disease (thyroid) and fibromyalgia (seeing a specialist to find out for sure at end of month) I understand what you mean about the " if you are sick you must look it " , we have had the same trouble with my hubby, as he looks no different and has good and bad days. It sucks that we are brought up to believe that you must look/ behave a certain way because you have a certain condition of health. I am so sorry to hear you have no support, that is something everyone deserves. How well do you get on with your mum? Is she understanding? Of course you would " pull out of it " if you could, no-one would wish to be ill and if people think that then I think they are very mean and uncaring. It is hard to cope with not being able to do all the things you used to do before. my hubby was a very active guy and we have travelled all over Australia and Europe together, so it is a hell of an adjustment to have to stop, and not coz it is your choice. Anyway just wanted to say hello and glad you found this place. Take care Nerys Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 6, 2000 Report Share Posted April 6, 2000 Nanci, I found only one way to make my life meaningful after my epilepsy became a problem: I figured I could try to help others with the same problem. And I began talking to anybody who would listen about epilepsy, just spreading the info, making sure at least one person became informed. Now, if you have headaches, its pretty hard to be in the mood to discuss anything. Has nothing worked to make them go away? I remember as a teen having to carry Tylenol and aspirin with me all the time! But the first few times I smoked some pot...the headaches were gone forever! And the partial seizures (which are hard to notice except by the sufferer) also disappeared. just remember: it's better if you grow the stuff tourself (lots of info on the web for that. They even export genetically engineered seeds from holland to the USA by mail!), hydroponically, for example. Juast never give any to anyone else. BTW, cannabis has now been proven to be the ONLY weapon against the most fatal type of brain tumor. Also has been proven (as much as any drug can be 'proven') to work as a defense against stroke, and against brain damage after any sort of concussion or bleeding in the brain. I guess if you were stoned when you wrecked your car, you have a better chance of preserving your brain tissue. Just remember to be careful: In the USA, there is lots of bad pot going around. Another thing is demerol, which I always take for any pain, because here everything is available over the counter, except for sleeping pills. Try that! vanessa Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 6, 2000 Report Share Posted April 6, 2000 hon, "I guess if you were stoned when you wrecked your car, you have a better chance of preserving your brain tissue" I could not help but laugh when I read this sweetie! I thought to myself..... You are more likely to wreck your car if you WERE stoned! LOL *hug* Aisha. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 7, 2000 Report Share Posted April 7, 2000 Oh boy, I'm just starting to answer emails from Wednesday LOL ... and have about 200 sitting in my inbox ... YIKES!!!! ... but I'll take a little at a time ... thanks for your patience *S* ... I'm trying to answer questions to questions with answers if that makes sense ... Hi Nanci!!"I am dealing with an uncontrolled blood pressure problem called Vasal VagalPresyncope"Eek... I've never even heard of it.. what is this?? >>> It's something that has to do with the regulation of my blood pressure so I feel lightheaded and dizzy about 24/7 and sometimes faint and have actual vertigo (dizzy) spells where I can't stand up or I'll fall. I've tried different meds but they didn't work so I'm trying to learn to deal with it but I'm not doing very well. " along with that came severe GAD (about 3+ years now)"GAD??? Eek..... what is this one too!! Oh dont you just hate how you get onedisease and then 5 million decide to join in *grrrr* >>> GAD is Generalized Anxiety Disorder ... uncontrollable anxiety which I have no clue where this came from except maybe because I was a Type A person so stress makes the blood pressure thing worse and the GAD sux too when you don't know where it came from or how to get rid of it without meds. "so I am looking for a list where people can understand, but not judge"That is us!! We ocassionaly debate a bit (wink at sheena) but we all loveand support each other. We would never judge you. Please feel free to beyourself here. Vent all you want. Share what you want - sware, curse, bepositive, negative etc... we are always here. >>> I'm so glad to be here and I really like to tone of the list and how everyone is so supportive and friendly. There aren't a lot of rules and I like that; not that I hate rules or don't want to have any, but some lists just don't allow you to be yourself and this one seems to do just that ... thanks for you encouragement! "my support system is null and void family/friend wise except for onlinepals. Everyone thinks I am 'faking' this in some way"*nods* >>> LOL ... see, you all know what I mean! Nice huh? Yes.... most of us have been through this too unfortunately. Makes you justwant to shake them and say hey look at the blood tests... I'm sick!!! Thatis - if they havent gone off into their own little world and forgotton aboutyou. Friends... who are they?? Family... the ones that are suppose to loveyou the most turn on you faster then anyone! Imagine life without internet!Ahhhhhh!!!!!!!!!! >>> I don't think I could imagine my life without the Internet at this point ... it's nice, but sad how people you don't know can be more loving and supportive than your own family ... "I live with my mom and I am 39! YIPEE LOL ... I was very independent andhave come to be very dependent"My hubby and I live with my parents also - sharing your YIPEE!! LOL...likewise - hate relying on others. It is so frustrating having to always asksomeone to do things for you. >>> Yes, it's very hard. I have to depend on others to 'get' things for me at the store and stuff like that. I just can't 'go' whenever I feel like it and I hate it! "Pretty much housebound I am except when I go out with my mom somewhere orjust for a car ride ... fun huh?"*hug* basically sux huh?! >>> Can't say it much better than that ... it SUX!!!!! "I harbour A LOT of anger about it and don't know what to do with it?"Vent away! Bitch, scream, tell all - reveal the shocking truth!! You haveevery right to be angry - you did not choose to be sick! Seriously though -have you no means of venting that anger? Tried art - or started to write ajournal? >>> I've done all that fun stuff ... I do swap stickers with online pals and I am getting into rubber stamping ... journaling I want to try but can't find the time ... I am so stuck in the past, I can't seem to move forward ... : ( " Harley's, "Ohhh biker chick! Cool >>> LOL ... yes, I suppose I am, I like to say HarleyBabe! hehehehehe ... not your scummy biker chick at all though ... just a gal who loves, lives, breathes Harleys LOL "but since I got sick I have missed that very much; along with a social lifein general."as well as life in general I bet! >>> EXACTLY ... " Right now I am pursuing my Computer Science degree online because before Igot sick I was attending school, so at least I'm able to continue."Go for it!! That is excellent!! >>> Thanks ... it's not as much fun as 'going' to school, but it is brining me closer to a goal. " I hope to make some friends and maybe gain some knowledge on how to dealwith this all by hearing what others deal with and how ..."You have already made friends - we are all friends - anytime you wanna askanything just jump in. And jump into any conversation anytime!! I am sureyou can help up cope too!! >>> Thanks so much for your welcome and encouragement ... glad I found this list *S* I'll add your details to the profiles list in just a moment too >>> Oh boy *G* Welcome aboard!Love Aisha. Thanks Aisha (Pretty name!) Nanci~ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 7, 2000 Report Share Posted April 7, 2000 Just jumping into your converstaion here!! LOL... >>> No problem LOL ... I'm answering questions to questions with answers again hehehehe "I think the hardest part for me is the "invisible" thing going on. At firstwhen this happened I was so scared I had MS or a brain tumor, but now I wishit had been because at least people would then believe there was somethingwrong or I could have tried to fixit."Hon you are not alone in this. When I had an MRI for a suspected tumor weall thought that I did have one. I actually cried when I didnt!! Just burstinto mega tears. I too wanted to be able to say "see told you I was sick"and show my supposed loved ones - but we should not have to prove that weare ill. Those that truly love us are suppose to unconditionally bethere....no excuses. >>> I can see you totally understand. Isn't it sad when you'd rather have a brain tumor just to have to prove to people/family that you are sick? " I honestly wish I was never born and don't know what the heck my purposecould possibly be anymore"There will be one... keep the faith sweet one. >>> You are too kind *S* ... I saw my counselor today and got mad at her now because she told me I needed to change my attitude LOL ... and I told her if I wasn't sick I wouldn't have to change anything! I know she is right. I need to, after 3+ years, come to the realization that my life has changed and I can't do anything about it and accept it and try to move on. I just don't see how I can chalk this up and blow off my past life? I guess if I tell myself 'everything is hunky dory Nanci' every 5 minutes, she seems to think it will be? It isn't nice to get mad at your counselor, but jeez I just want her to help me get better ... I don't know .... " Instead they harp on me as if 'I've' done something wrong and I haveabsolutely no control ... at least I don't think I do and everyone,including the doctors have given up on me which makes me very sad."Even the doctors???????? Girl you need new doctors!! Why have the doctorsgiven up on you? >>> Well dear, I've been to Madison Clinic and Mayo Clinic (the mother of all clinics) and they find nothing else wrong or can't help with anything else. I have had every conceivable test done ... MRI's, CT Scans, gallons of bloodwork, eye tests, ear tests, heart tests, spinal tap (OOOOHHHHH that was fun!), Gynie tests, you name it. I'm so tired of being poked and prodded that I honestly don't have the energy to try anymore???? Maybe when I get back home to IL this summer I'll check out more docs or different means of 'healing' treatments? "I never expected anyone to feel sorry for me, but just to understand, andto have my closest friends and boyfriend bail on me really hurt."*hug* yes. The ones who you thought loved you the most... it hurts alot. >>> Yes it does and they don't understand ... maybe they just feel helpless? "Okay, enough of the pity party right"Never! LOL.... >>> Well thank you dear ... I'll go have another right now LOLOLOL " After reading what some of the other people here are going through I feelas if I don't have any problems?"Rubbish! As I say - there will always be someone better then you and someoneworse then you - but that makes absolutely no difference to how you feel.Dont beat up on yourself. You are entitled to how you feel and have everyreason to be angry, hurt and the rest of it. There is no need to feelguilty - it is not your fault that you are ill. *hug* >>> I know you are right ... it doesn't really matter what is wrong with a person, it is how they themselves can deal with it. There are people terminal that deal with life better than me and healthy people that don't. Thanks for the hug! *S* Be gentle on yourself and know that we are here for you.with loveAisha. >>> Thanks again Aisha ... HUGS to all of you!!!!!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 7, 2000 Report Share Posted April 7, 2000 Hi Kellie ... thanks for the welcome! *S* ... I can so relate to what you say too. Doctors are so worried about getting to the next patient these days they NEVER take enough time to worry about you. The last time I went to my family doctor, he was more worried about my mom taking care of me than he was of me. He told me there was nothing else he could do for me so adios baby! S C R E A M !!!! is right! I believe there are so many new illnesses out now that they just don't want to take long enough to really find out what the problem is. Another thing that really got me is when I first had this dizziness and stuff and they wanted to do a CT scan I had to wait a month and a half!!!! What IF I DID have a brain tumor? I'm telling you everytime I had to see another doctor I had to wait a minimum of 3-4 weeks if not more. When I went to Mayo ... OMG what a horrible experience. Millions of people ... like being in a hospital factory ... I feel sorry for anyone who can't be diagnosed and has to go from doctor to doctor. I don't know how you and many people can go on with life hurting and trying to do everything. I guess I am lucky in the fact that my boyfriend didn't bail on me til my mom moved up here? I pretty much layed on my couch the first year of this and cried; it was horrible and the symptoms were undescribable ... all I knew was/is there is something wrong and I'm not crazy ... Please tell me what PAN vasculitis is? How did you finally get a dx? I am glad that you have a supportive husband even if you don't like to depend on him. Thanks for the welcome and encouragement and if you have any suggestions on how to accept stuff like this please do share with me ... I have so much anger and just can't kick it ... I want my life back ... I'm only 39; was 35 when it started and my life was just falling into place and then boom! I don't mean to be so negative, but this is the first time I've had people understand ... sorry ... I'll try to be a little more upbeat LOL ... Thanks everyone for being so understanding : ) Nanci~ Hi , Welcome to the group. I hope you will find the support that youare looking for in the group. It is a great bunch of people. I can reallyrelate to a lot of what you are talking about. I have PAN vasculitis. Ispent the first two years that I had this disease trying to act and benormal. Hold down a full-time job, be wife and mother while I was havingextreme joint pain. I was literally living on bottles of nuprin to keep myjob. Dealing with jerky docters that kept telling me I just had a virus andit would just go away. I was ready to scream. I still get angry when Ithink about the treatment I got from some of these docters.I don't know if that will ever go away. I hate being dependent on othersalso. When my disease has been flaired up my husband has to do everything.Freinds and family just don't seem to understand what your going through. Iknow how you feel when you say that you look ok and people think you arejust faking. When my disease is calmed down because of the immunesuppressants, yes I do look fairly normal, but I am not the person I used tobe. I have about 1/3 of the energy I used to. I guess I have learned howto accept that I have this disease but it has been three years in the makingand with the aid of an anti-depressants. So hang in there it really helpsto vent your anger and share with others. Write anytime, Kellie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 7, 2000 Report Share Posted April 7, 2000 Hi Tina ... thanks for your welcome ... doesn't it suck when the docs give up on you? I mean where else are you supposed to turn? I've been on disability also for about a year and a half so I have to say I feel lucky in that manner because I couldn't work right now. My kids are also 17 & 20 so when this happened 3 years ago they were pretty self-sufficient. I'm glad that you can go on even when you think you can't. I guess we all do ... How old are your kids? Do you deal with these migraines on a daily basis? Your kids are lucky to have a mom that can keep on going for them *S* ... I hope that you can find a doctor to help you soon. Tell your mom that she is right; I have heard that many times and know that it is true, but as I said I guess it's more of how a person reacts to their own situation that makes or breaks them? Thanks for being so kind and I hope everyone knows that I am here to also share and care for others ... Everyone has been so sweet and offers to listen and be there and I just want you all to know I am here too because I can honestly say for once in my life "I understand" ... Have a nice weekend Tina *S* Nanci~ ICQ #60456677 Hang in there girlfriend. I have been in pain with no meds now for about going on six months. Its a struggle to go on but you do what you have to do. In my case I still have kids at home and am fortunate that I have been on disability for about five yrs now so I dont have to try and hold down a job as well as deal with everything else. I am truly sorry that the drs have given up on you as I am in that predicament right now. I am in the process of finding a dr which is hard when you live in a small town like I do. You have seen them all and there is this stigmatism that comes along with not reacting to regular drugs and needing narcotics to treat you pain adequately. I know that people look at us funny when we have problems that you cannot see on the outside-I myself have probably done this yrs ago when I was healthy. Hang in there. As my mother always says if you think you are in bad shape all you have to do is look around and find someone worse off than you. I am always here somewhere if you ever need me.Tina Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 7, 2000 Report Share Posted April 7, 2000 Hi Nerys ... WOW ... I've never gotten so many wonderful welcomes and messages ... I'm going to be here for days LOL ... what day am I on ... Thursday ... YIPEEEEE! I'm catching up slowwwwwwwwly but surely .... I wish I could say I'm having a happy day, but these days I'm just having days LOL ... thank you for your kind thoughts though ... maybe one day I'll be able to say I'm having a good/happy day ... thank you for a wonderful welcome as all of you have. It really seems there is such a common bond of this "invisible" thing going on with many of us. It is one of the hardest to deal with. How do you cope with being a carer for your hubby? He is soooooooooooooo lucky to have you. Most people just bail when someone gets sick as you've read. That's so not cool!!!!! I would/could NEVER do that to anyone and don't understand how people can do that to people they love or care for. I hope your hubby gets some news at the doctors this month. It's hard to wait isn't it? You sound like such a happy, cheerful person ... wanna trade bodies???? hehehehehehehe .... My mother and I have a love/hate relationship. We do very well when we have our space or don't live together, but we are soooooooooo opposite that it's hard for both of us, not just me. She is a very giving person monetarily wise, but emotionally she is just not there for me and I've tried to explain that to her for almost my whole life. Her way of showing love is to buy ... not extravagant, but in her way. She is understanding to a very low point. You have to understand though that she is 65, overweight and has high blood pressure and diabetes, so even though she can do more than I can, she still is getting up there and is hard for her to drive me here and there and cook and stuff. My kids are not supportive at all, but a lot of people tell me that kids just aren't? My friends bailed because I couldn't go out and 'do' and my boyfriend bailed as soon as my mom moved up here. 5 years down the tubes ... oh well; live and learn ... Now I don't even bother looking for anyone because I feel who would want me now anyway? And I can't go out so how do I meet someone? I am glad to hear that you and hubby go to travel to such wonderful places!!!!!! That is something no one can ever take away from you. It must be so hard for a man to have to deal with being active to not being active though. I hope he has a better disposition than I do and finds purpose and meaning for himself. I hope things work out for the best for you both ... have a nice weekend and thanks again for caring *S* Nanci~ Hello NanciHope you are having a happy day!Welcome to a great circle of friends who are always here for you whether youneed to laugh or cry!!Sounds like you are having a really rough time of it. I am a carer for myhubby who has among other things, hashimotos disease (thyroid) andfibromyalgia (seeing a specialist to find out for sure at end of month)I understand what you mean about the " if you are sick you must look it", wehave had the same trouble with my hubby, as he looks no different and hasgood and bad days. It sucks that we are brought up to believe that you mustlook/ behave a certain way because you have a certain condition of health.I am so sorry to hear you have no support, that is something everyonedeserves. How well do you get on with your mum? Is she understanding?Of course you would "pull out of it" if you could, no-one would wish to beill and if people think that then I think they are very mean and uncaring.It is hard to cope with not being able to do all the things you used to dobefore. my hubby was a very active guy and we have travelled all overAustralia and Europe together, so it is a hell of an adjustment to have tostop, and not coz it is your choice.Anyway just wanted to say hello and glad you found this place.Take careNerys View Members profiles, locations, hobbies and all that plus find out when their birthday are by visiting /files/ Visit The Members Loungehttp://www.elderwyn.com/members Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 7, 2000 Report Share Posted April 7, 2000 Hi ... girl you are too funny ... but in a good way! First off I think it is great that you found a purpose or meaning in your life to help other people; I think that is so great! Good for you *S* ... It might not be fun for you, but at least you have accepted it and are moving on. You should feel so good about helping others understand. Do you really have a hold on the epilipsy now by smoking weed? Can you do stuff or do you ever still have seizures that prevent you from living fairly normal? I don't have headaches and I did smoke pot when I was in high school, but I have to say you caught me off guard when you started talking seriously about it LOL ... at first I thought you were messing around ... I'm glad to hear if you really have found something to help you and I have found your message to be very interesting and informative! Are you from the U.S. or otherwise? Where the heck do you get the stuff? You be careful to girl ... and as far as demerol ... you can buy that over the counter? Isn't it addicting? I don't know much about that stuff ... so I'm just curious, not giving you the 3rd degree or 20 questions LOLOL ... take care ... nice meeting you *S* Nanci~ ICQ #60456677 Nanci,I found only one way to make my life meaningful after myepilepsy became a problem: I figured I could try to helpothers with the same problem. And I began talking toanybody who would listen about epilepsy, just spreadingthe info, making sure at least one person became informed.Now, if you have headaches, its pretty hard to be in themood to discuss anything. Has nothing worked to make themgo away? I remember as a teen having to carry Tylenol andaspirin with me all the time! But the first few times Ismoked some pot...the headaches were gone forever! And thepartial seizures (which are hard to notice except by thesufferer) also disappeared. just remember: it's better ifyou grow the stuff tourself (lots of info on the web forthat. They even export genetically engineered seeds fromholland to the USA by mail!), hydroponically, for example.Juast never give any to anyone else.BTW, cannabis has now been proven to be the ONLY weaponagainst the most fatal type of brain tumor. Also has beenproven (as much as any drug can be 'proven') to work as adefense against stroke, and against brain damage after anysort of concussion or bleeding in the brain. I guess ifyou were stoned when you wrecked your car, you have abetter chance of preserving your brain tissue.Just remember to be careful: In the USA, there is lots ofbad pot going around.Another thing is demerol, which I always take for anypain, because here everything is available over thecounter, except for sleeping pills. Try that!vanessa Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 7, 2000 Report Share Posted April 7, 2000 Hi Nanci!, > Oh boy, I'm just starting to answer emails from Wednesday LOL ... and have > about 200 sitting in my inbox ... YIKES!!!! ... but I'll take a little at a > time ... thanks for your patience *S* ... I'm trying to answer questions to > questions with answers if that makes sense ... LOL... " It's something that has to do with the regulation of my blood pressure so I feel lightheaded and dizzy about 24/7 and sometimes faint and have actual vertigo (dizzy) spells where I can't stand up or I'll fall. I've tried different meds but they didn't work so I'm trying to learn to deal with it but I'm not doing very well. " Is there nothing anyone can do to help? I guess you have had the 5 zillion tests and scans? " GAD is Generalized Anxiety Disorder ... uncontrollable anxiety which I have no clue where this came from except maybe because I was a Type A person so stress makes the blood pressure thing worse and the GAD sux too when you don't know where it came from or how to get rid of it without meds. " Without meds??? Surely there would be something that could help. Have you tried a mild anti depressant like any of the triptylines or zolft? " I've done all that fun stuff ... I do swap stickers with online pals and I am getting into rubber stamping ... journaling I want to try but can't find the time ... " You must love Ebay " I am so stuck in the past, I can't seem to move forward ... : " Anything we can do to help just say. If you are having a bad day - vent it out and know that we are here to hug and to share. " Thanks Aisha (Pretty name!) " Thank you. I was " " but changed my name. I always hated being called , and since I had been ill and injured for most of my life, " " was a bad association with those things. Aisha (pronounced I-E-Sha or A-E- Sha) means alive and well, sure I dont have to explain why that one resonated with me! " I saw my counsellor today and got mad at her now because she told me I needed to change my attitude LOL ... and I told her if I wasn't sick I wouldn't have to change anything! " Agreed!! I was told that I was making myself sick since I was " afraid of my body " or that I had " chose to be well " ~ well excuse me but I have chosen to be well... now where is that health? " I know she is right. I need to, after 3+ years, come to the realization that my life has changed and I can't do anything about it and accept it and try to move on. " Easy for her to say she is not sick! Best bit of advice I have ever had - Just because you accept it doesn't mean you have to like it! " I just don't see how I can chalk this up and blow off my past life? " And why *should* you?? You past life is part of you too remember. And you have every right to be angry - it is not a bad thing. You are as you feel and that is healthy! Ask Nerys! She always tells us it is better to vent out how we feel then to bottle it all up inside. You cannot just say " oh well this is it " and be glad about it! (if you do you have a more serious problem!!) There are many stages of grieving any loss. And the loss of your previous life and all you dreamed that is no longer is a HUGE loss. " I guess if I tell myself 'everything is hunky dory Nanci' every 5 minutes, she seems to think it will be? It isn't nice to get mad at your counsellor, but jeez I just want her to help me get better ... I don't know .... " Considered seeing a counsellor who actually helps you? " Well dear, I've been to Madison Clinic and Mayo Clinic (the mother of all clinics) and they find nothing else wrong or can't help with anything else. I have had every conceivable test done ... MRI's, CT Scans, gallons of bloodwork, eye tests, ear tests, heart tests, spinal tap (OOOOHHHHH that was fun!), Gynie tests, you name it. I'm so tired of being poked and prodded that I honestly don't have the energy to try anymore???? " *nods* Uh huh.. been there too... all of them actually.. and yes the spinal tap is fun isnt it. But you gotta keep the faith - there is a reason you feel as you do so although I understand that you need time out from going through it all over and over again, somewhere someone will be able to help you. Took me 10 years and zillions of practitioners later to be diagnosed. So I totally relate hon! " Maybe when I get back home to IL this summer I'll check out more docs or different means of 'healing' treatments? " That is always an option too. Have you tried any alternatives? " Now I don't even bother looking for anyone because I feel who would want me now anyway? " *HUGS* Ohhh I know the feeling you are in when you say that, and words are useless to help anyone with that emotion. Just know that you are special and deserving of love and all things good, same as everyone. Just because you are sick doesn't mean that you are no good. What you need just now is lots of TLC. Sending you lots of cyber hugs hon. Hang in there ok. And anytime you feel down just vent here - you are never alone, and we think you are special, everyone on this list is special. We were even going to change the name to something like " Fabulously Magnificent " or something ... LOL... that's cause we all are! with lots of love, Aisha. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 7, 2000 Report Share Posted April 7, 2000 It was a joke, but it does make me think... Like, did you know that there is alcohol involved in 33% of car wrecks? The sort of people who use statistics to convince the public of anything might say, hey, only 33% of wrecks involved alcohol, so you have a better chance if you drink, cause if you don't, the chance is 66%. Most people, remembering nothing of their 4th grade math, believe this sort of thing! Statistics guys are dangerous! vanessa Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 8, 2000 Report Share Posted April 8, 2000 I took it as a joke. I knew you were kidding. You made me laugh. Thanks. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 8, 2000 Report Share Posted April 8, 2000 Thanks for the nice letter. My boys are 16 and 20. My oldest is going through a divorce and he has a beautiful little daughter who will be two in May. I have had her most of the day and although she is quite a joy to my life she has totally worn me out-in a good way. I am hoping soon to find a dr who will treat me with not only adequate pain meds but with the respect we all duly deserve. Hang in there and like I said before I will be here if you or anyone else needs me. Are your kids boys? girls? Hope you get to feeling better really soon and also find a dr who will take care of you right. Hang in there. Tina >From: " Nanci~ " <mystic1@...> >Reply-egroups ><egroups> >Subject: RE: Welcome Nanci !! >Date: Fri, 7 Apr 2000 20:56:54 -0500 > >Hi Tina ... thanks for your welcome ... doesn't it suck when the docs give >up on you? I mean where else are you supposed to turn? I've been on >disability also for about a year and a half so I have to say I feel lucky >in >that manner because I couldn't work right now. My kids are also 17 & 20 so >when this happened 3 years ago they were pretty self-sufficient. I'm glad >that you can go on even when you think you can't. I guess we all do ... How >old are your kids? Do you deal with these migraines on a daily basis? Your >kids are lucky to have a mom that can keep on going for them *S* ... I hope >that you can find a doctor to help you soon. Tell your mom that she is >right; I have heard that many times and know that it is true, but as I said >I guess it's more of how a person reacts to their own situation that makes >or breaks them? Thanks for being so kind and I hope everyone knows that I >am >here to also share and care for others ... Everyone has been so sweet and >offers to listen and be there and I just want you all to know I am here too >because I can honestly say for once in my life " I understand " ... Have a >nice weekend Tina *S* > >Nanci~ >ICQ #60456677 > >---------------------------------------------------------------------------- >---- > >Hang in there girlfriend. I have been in pain with no meds now for about >going on six months. Its a struggle to go on but you do what you have to >do. >In my case I still have kids at home and am fortunate that I have been on >disability for about five yrs now so I dont have to try and hold down a job >as well as deal with everything else. I am truly sorry that the drs have >given up on you as I am in that predicament right now. I am in the process >of finding a dr which is hard when you live in a small town like I do. You >have seen them all and there is this stigmatism that comes along with not >reacting to regular drugs and needing narcotics to treat you pain >adequately. I know that people look at us funny when we have problems that >you cannot see on the outside-I myself have probably done this yrs ago when >I was healthy. Hang in there. As my mother always says if you think you are >in bad shape all you have to do is look around and find someone worse off >than you. I am always here somewhere if you ever need me. >Tina > > ______________________________________________________ Get Your Private, Free Email at http://www.hotmail.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 9, 2000 Report Share Posted April 9, 2000 Hi Nanci!, ... Hey there ... here I go again answering questions to questions with answers LOL ... > Oh boy, I'm just starting to answer emails from Wednesday LOL ... and have> about 200 sitting in my inbox ... YIKES!!!! ... but I'll take a little ata> time ... thanks for your patience *S* ... I'm trying to answer questionsto> questions with answers if that makes sense ...LOL... >>> And I'm still trying to catch up so keep laughing LOL "It's something that has to do with the regulation of my blood pressure so Ifeel lightheaded and dizzy about 24/7 and sometimes faint and have actualvertigo (dizzy) spells where I can't stand up or I'll fall. I've trieddifferent meds but theydidn't work so I'm trying to learn to deal with it but I'm not doing verywell."Is there nothing anyone can do to help? I guess you have had the 5 zilliontests and scans? >>> Yes I have had every conceivable test done, CT scans, MRI's, gallons of blood, heart specialist, gynie tests, ear and eye test, and the funnest one of all; the spinal tap! I've been to Madison and Mayo Clinic and it wasn't fun at all. They tried some meds, but they didn't do what they were supposed to do? "GAD is Generalized Anxiety Disorder ... uncontrollable anxiety which I haveno clue where this came from except maybe because I was a Type A person sostress makes the blood pressure thing worse and the GAD sux too when youdon't know where it came from or how to get rid of it without meds."Without meds??? Surely there would be something that could help. Have youtried a mild anti depressant like any of the triptylines or zolft? >>> I've been on meds for the GAD and they do help to an extent but I am not a med person so I hate being on them. I am also on an anti-depressant mainly to help with sleep LOL because if I wasn't sick I wouldn't be depressed. I just want to be normal again and get off the meds and find something to help with the blood pressure problem. "I've done all that fun stuff ... I do swap stickers with online pals and Iam getting into rubber stamping ... journaling I want to try but can't findthe time ... "You must love Ebay >>> OMG that's my 2nd HOME LOL ... I definitely keep them in business! "I am so stuck in the past, I can't seem to move forward ... :"Anything we can do to help just say. If you are having a bad day - vent itout and know that we are here to hug and to share. >>> Thanks so much for offering your help and concern. There are many people here who are so much worse off than me and I wish there was something I could do to help someone else? Others seem to have better attitudes and outlooks than I do even though they have it worse. I guess attitude is everything huh? Thanks for the hug though *S* " Thanks Aisha (Pretty name!)"Thank you. >>> Your welcome *S* I was "" but changed my name. I always hated being called ,and since I had been ill and injured for most of my life, "" was abad association with those things. >>> I think that is a really pretty name too, but I can see where you would have a problem with it now. Aisha (pronounced I-E-Sha or A-E- Sha) means alive and well, sure I donthave to explain why that one resonated with me! >>> NOPE ... makes perfect sense to me ... but where did you find it? "I saw my counsellor today and got mad at her now because she told me Ineeded to change my attitude LOL ... and I told her if I wasn't sick Iwouldn't have to change anything!"Agreed!! I was told that I was making myself sick since I was "afraid of mybody" or that I had "chose to be well" ~ well excuse me but I have chosen tobe well... now where is that health? >>> My same sentiments! "I know she is right. I need to, after 3+ years, come to the realizationthat my life has changed and I can't do anything about it and accept it andtry to move on."Easy for her to say she is not sick! Best bit of advice I have ever had -Just because you accept it doesn't mean you have to like it! >>> LOL, exactly what she said ... "it's easy for me to say I know but" ... I should be coming to you for counseling LOL, I like your advice better. It certainly makes more sense! " I just don't see how I can chalk this up and blow off my past life? "And why *should* you?? You past life is part of you too remember. And youhave every right to be angry - it is not a bad thing. You are as you feeland that is healthy! Ask Nerys! She always tells us it is better to vent outhow we feel then to bottle it all up inside. >>> Well my counselor told me for the last 5 times all I've done is complain about my life and if I don't like it then I should make changes to make it better ... H E L L O ... doesn't she know I would if I could ... OOOOHHHHH I'm getting angry thinking about it. I guess she feels if something happens to me so what, at least I'm doing what I want?????? How can I not look at my past life; it wasn't that long ago I could do all kinds of things ... I really was liking her and now I'm mad at her LOL You cannot just say "oh well this is it" and be glad about it! (if you doyou have a more serious problem!!) There are many stages of grieving anyloss. And the loss of your previous life and all you dreamed that is nolonger is a HUGE loss. >>> I guess I've probably been in the anger and disbelief stage way too long? "I guess if I tell myself 'everything is hunky dory Nanci' every 5 minutes,she seems to think it will be? It isn't nice to get mad at your counsellor,but jeez I just want her to help me get better ... I don't know .... "Considered seeing a counsellor who actually helps you? >>> LOL I thought she would and maybe she will? I've seen her 4 or 5 times, but like everything else in my life I can't just give up right away ... but I'll be moving back to IL in a few months anyway so I'll have to find someone else ... "Well dear, I've been to Madison Clinic and Mayo Clinic (the mother of allclinics) and they find nothing else wrong or can't help with anything else.I have had every conceivable test done ... MRI's, CT Scans, gallons ofbloodwork, eye tests, ear tests, heart tests, spinal tap (OOOOHHHHH that wasfun!), Gynie tests, you name it. I'm so tired of being poked and proddedthat I honestly don't have the energy to try anymore????"*nods* Uh huh.. been there too... all of them actually.. and yes the spinaltap is fun isnt it. But you gotta keep the faith - there is a reason youfeel as you do so although I understand that you need time out from goingthrough it all over and over again, somewhere someone will be able to helpyou. Took me 10 years and zillions of practitioners later to be diagnosed.So I totally relate hon! >>> I just wonder why it has to take so long for anyone? I know this isn't a religious list, but I am really furious with God about this too ... does that make any sense? I just want to know "WHY?" At least I could have got something 'normal'???? " Maybe when I get back home to IL this summer I'll check out more docs ordifferent means of 'healing' treatments? "That is always an option too. Have you tried any alternatives? >>> No I haven't because I'm not sure what they are ... any suggestions on how to go about finding this info out? "Now I don't even bother looking for anyone because I feel who would want menow anyway? "*HUGS* Ohhh I know the feeling you are in when you say that, and words areuseless to help anyone with that emotion. Just know that you are special anddeserving of love and all things good, same as everyone. Just because youare sick doesn't mean that you are no good. What you need just now is lotsof TLC. Sending you lots of cyber hugs hon. Hang in there ok. And anytimeyou feel down just vent here - you are never alone, and we think you arespecial, everyone on this list is special. We were even going to change thename to something like "Fabulously Magnificent" or something ... LOL...that's cause we all are! >>> Thanks so much for your encouragement; you don't know how much it means to me! You are right about what I need, but I don't know how to go about getting it. I never did understand how to parent your own inner child LOL ... I need 'REAL' arms around me *G* with lots of love,Aisha. (((((((((((((((( AISHA )))))))))))) >>> You are VERY special too!!!!!!! ... Nanci~ Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.