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Guest guest Posted April 1, 2006 Report Share Posted April 1, 2006 Wenoka, good to see you post again! Glad you are surviving grad school! About the little knots -- Katy had them when she did Sub-Q and was told that it was just clumps that didn't absorb as quickly as others -- little lumps and that if she would massage that area just as soon as the Sub-Q was removed -- they would absorb without making lumps. She was told not to worry about them and they did disappear in about 2 weeks each time. But she found that massaging her belly after removing the lines prevented the lumps. Hope that helps. Glad Sams doing well! In His service, dale Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 11, 2006 Report Share Posted April 11, 2006 Sorry to hear you are on your own with a scoliosis daughter. Don't forget you have friends in this group. I would be glad tohelp. Take care Liz may flor carbonilla <may_flor_nikki@...> wrote: I"m May new here from the PHILIPPINES I am a mother of a 7 year old daughter who has a congenital scoliosis. I gave birth to only at home with a midwife. We've noticed that her right foot was not in a normal position as of the left. The midwife had it braced with only a piece of thick cardboard and a gauze diaper. After a week it went normal already.When she was in her 6th month, I've noticed that the blade of her shoulder is uneven, the right is lower than the left. When she started walking the same thing has been observed. With the help of a friend, we see a doctor just to find out that she has a congenital scoliosis. Being a single mother, it's not very easy to face this reality specially because I am financially unstable. I brought her to a public hospital where she had her check ups every 6 months. We go there early in the morning and just bring enough food to eat while waiting for her name to be called. Sometimes it took us one whole day before we finish it because there are hundreds of patients falling in line for their check ups also. She was braced before but later on the doctor says her spine did not respond to it. She has no permanent doctor everytime we go there. And until her last check up last December 2005, the doctor told us to just go back again in May. Another doctor said that I have to prepare for the surgery but that was almost two years ago. The just keep on looking at the x-ray results every 6 months but no other recommendation what other treatment should be done to her. She already turned 7 last September but only looks like a 4 year old one. She's not increasing her height for 3 years now and I have fear that she might not become taller at all. What hurts me most is when I see her crying after school telling that she was teased by some of her classmates that she is a dwarf. She keeps on asking me why she's not normal just like any other kids. I only got interested in researching about my daughter's case thru a friend who wanted to help me have it in an easier way besides I don't own a personal computer, I just rent equivalent to $1 an hour. How I wish we have lived in the U.S. or in any other country wherein we can ask some medical assistance for free. In my quite times, praise and worship, I always ask the Lord to lead me towards a solution to my 's problem. I never give up hope, God knows that. Sorry if sometimes my grammar is incorrect, I am not really knowledgeable enough because I have not finished my college, I really had a hard time composing this one just to share my story to all of you. Thank you so much for taking time reading my story. God bless you all...... Sincerely yous, May Send instant messages to your online friends http://uk.messenger. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 12, 2006 Report Share Posted April 12, 2006 Hi May, we will keep you in our prayers! stay connected to this group as much as possible! cynthializ <piglet28266@...> wrote: Sorry to hear you are on your own with a scoliosis daughter. Don't forget you have friends in this group. I would be glad tohelp. Take care Liz may flor carbonilla <may_flor_nikki@...> wrote: I"m May new here from the PHILIPPINES I am a mother of a 7 year old daughter who has a congenital scoliosis. I gave birth to only at home with a midwife. We've noticed that her right foot was not in a normal position as of the left. The midwife had it braced with only a piece of thick cardboard and a gauze diaper. After a week it went normal already.When she was in her 6th month, I've noticed that the blade of her shoulder is uneven, the right is lower than the left. When she started walking the same thing has been observed. With the help of a friend, we see a doctor just to find out that she has a congenital scoliosis. Being a single mother, it's not very easy to face this reality specially because I am financially unstable. I brought her to a public hospital where she had her check ups every 6 months. We go there early in the morning and just bring enough food to eat while waiting for her name to be called. Sometimes it took us one whole day before we finish it because there are hundreds of patients falling in line for their check ups also. She was braced before but later on the doctor says her spine did not respond to it. She has no permanent doctor everytime we go there. And until her last check up last December 2005, the doctor told us to just go back again in May. Another doctor said that I have to prepare for the surgery but that was almost two years ago. The just keep on looking at the x-ray results every 6 months but no other recommendation what other treatment should be done to her. She already turned 7 last September but only looks like a 4 year old one. She's not increasing her height for 3 years now and I have fear that she might not become taller at all. What hurts me most is when I see her crying after school telling that she was teased by some of her classmates that she is a dwarf. She keeps on asking me why she's not normal just like any other kids. I only got interested in researching about my daughter's case thru a friend who wanted to help me have it in an easier way besides I don't own a personal computer, I just rent equivalent to $1 an hour. How I wish we have lived in the U.S. or in any other country wherein we can ask some medical assistance for free. In my quite times, praise and worship, I always ask the Lord to lead me towards a solution to my 's problem. I never give up hope, God knows that. Sorry if sometimes my grammar is incorrect, I am not really knowledgeable enough because I have not finished my college, I really had a hard time composing this one just to share my story to all of you. Thank you so much for taking time reading my story. God bless you all...... Sincerely yous, May Send instant messages to your online friends http://uk.messenger. New Messenger with Voice. Call regular phones from your PC and save big. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 13, 2006 Report Share Posted September 13, 2006 ack! Ok, YAY they are using it, YAY it is working!! (can I say told ya so yet?) Boo that she doesnt get that you have to have an IMMEDIATE response. Syd earned the tokens, there is NO return policy on them. The failure appears to have been in not waiting to put stuff away and do the reward for the behavior RIGHT AWAY. Sydney had worked hard for them, and she should have done it quickly upon the correct number of tokens being earned. Even if that means mid session. See, the kid KNOWS, and if she doesnt get the follow through, she will rebel. Sydney rebelled, and the teacher didnt recognize it. But thats ok, shes willing to learn, and shes using it. YAY. Tell her NEVER to not give the earned prize, and to give it quickly, BEFORE any negative behaviors CAN happen. And it may help to have her greet the new visitor and tell the visitor how WELL Sydney is doing, engage her in the behavior modification. See, she has to hook her before it really starts working. And that positive praise can be JUST as important as the tokens. It is very encouraging that shes wanting to do this right. If you want to give her my email, feel free. I think I told you the tokens we used were like real coins, and were found in the stationery dept at walmart. They double as a teaching tool for coin values too. Good for you and GREAT for Sydney!!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 4, 2007 Report Share Posted April 4, 2007 Thank you for the resources! I did not know Easter Seals does all of that. I'm in OH but may check into the low interest loan for a new Hoyer. Thanks, a, age 29, SMA Type II carol32376 <carol32376@...> wrote: Please Read! To Parents, Siblings, Friends, and Individuals with Disabilities: Hello, my name is Carol Freitas, and I have Spinal Muscular Atrophy Type II/III sense birth. Growing up in a society that doesn't cater to disabilities, it's hard to know where there are services that you could really benefit from. It is time to stop this long and confusing matter. I am here to share my stories to help others to get the information that I've gotten through with the help of various non- profit agencies; like Easter Seals of MA, Boston Center of Independent Living, and MA Rehabilitation Commission. I'd like to invite you to get involved. Without the help of the agencies above, I wouldn't have gotten my 1st apartment, pca services, college assistance, a job, go to support groups (for both myself and my parents), go to social events, and many more. We can all unite our efforts and share the information we have struggle to obtain and share it with others. By doing this, we will become untied and be able to live to the fullest. At this very moment Easter Seals is trying to get the participation from everyone that is located with in the MA area. We are trying to unite as many participants from 14-30 in our Act Today - Influence Tomorrow - Youth with Disabilities Forum. We're looking to get advice to what type of services are needed in today's youth. We're currently working on a solid schedule for our meetings, but for now we meet once a month on Saturday's about 1-3pm. We are posting them on Myspace, as the meetings get planed. Please feel free to ask more about this program. Lets live and stop dreaming! For those who might not know much about Easter Seals services, let me mention some of their great programs available for anyone with a disability. If you want to contact Easter Seals, please call 800-922- 8290 (voice) or 800-564-9700 (tty) or visit their website http://www.ma.easterseals.com Easter Seals Services: Providing Services for People with Disabilities and Their Families Easter Seals Massachusetts provides a variety of programs and services for children and adults with disabilities or special needs. Services may be offered in an individual's home, in the community or at our facility. Assistive Technology: Recognized nationally as a leader in assistive technology, our services are an excellent resource for children and adults with disabilities who need high and low technology solutions for home, work or school in order to increase their independence. Job Training and Employment: Easter Seals helps students and adults with disabilities develop the skills they need to get and keep jobs in today's competitive workplace. The program offers individualized vocational rehabilitation, computer skills training, placement and employment services. Rehabilitation/ Therapy Services: Easter Seals' personalized approach delivers dependable and cost- effective rehabilitation services to infants, children, teens, adults and seniors. Therapy services include evaluation, treatment and consultation with Speech, Physical and Occupational Therapy. Camp: Easter Seals offers individuals with physical disabilities the chance to enjoy summer camp activities with able-bodied campers, including boating, archery, campfires, swimming and more. Disability Resource Information: Easter Seals provides comprehensive, up-to-date information on disability services and resources. Referrals are made to Easter Seals services and a wide variety of agencies and organizations that offer help to people with disabilities throughout the state. The Massachusetts Assistive Technology Loan Program: An Alternative Financing Program. This program provides access to low interest cash loans for the purchase of assistive devices and services to improve the quality of life for people with disabilities. Thank you for your time! Sincerely Carol Freitas Public Affairs Intern for Easter Seals of MA --------------------------------- Don't pick lemons. See all the new 2007 cars at Autos. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 4, 2007 Report Share Posted April 4, 2007 This is a really stupid question, I’m sure, but what is a Hoyer? My daughter is 19 months, type 2, and I haven’t ever heard of it…. VISHA WALLACE 804.334.5215 Stay-At-Home Mommy: www.ourthreegirls.com Rags Land Sales Rep: www.ragsland.com CM Consultant: www.mycmsite.com/vwallace _____ From: [mailto: ] On Behalf Of a B. Sent: Wednesday, April 04, 2007 6:41 PM Subject: Re: Hi! Thank you for the resources! I did not know Easter Seals does all of that. I'm in OH but may check into the low interest loan for a new Hoyer. Thanks, a, age 29, SMA Type II carol32376 <carol32376 (DOT) <mailto:carol32376%40> com> wrote: Please Read! To Parents, Siblings, Friends, and Individuals with Disabilities: Hello, my name is Carol Freitas, and I have Spinal Muscular Atrophy Type II/III sense birth. Growing up in a society that doesn't cater to disabilities, it's hard to know where there are services that you could really benefit from. It is time to stop this long and confusing matter. I am here to share my stories to help others to get the information that I've gotten through with the help of various non- profit agencies; like Easter Seals of MA, Boston Center of Independent Living, and MA Rehabilitation Commission. I'd like to invite you to get involved. Without the help of the agencies above, I wouldn't have gotten my 1st apartment, pca services, college assistance, a job, go to support groups (for both myself and my parents), go to social events, and many more. We can all unite our efforts and share the information we have struggle to obtain and share it with others. By doing this, we will become untied and be able to live to the fullest. At this very moment Easter Seals is trying to get the participation from everyone that is located with in the MA area. We are trying to unite as many participants from 14-30 in our Act Today - Influence Tomorrow - Youth with Disabilities Forum. We're looking to get advice to what type of services are needed in today's youth. We're currently working on a solid schedule for our meetings, but for now we meet once a month on Saturday's about 1-3pm. We are posting them on Myspace, as the meetings get planed. Please feel free to ask more about this program. Lets live and stop dreaming! For those who might not know much about Easter Seals services, let me mention some of their great programs available for anyone with a disability. If you want to contact Easter Seals, please call 800-922- 8290 (voice) or 800-564-9700 (tty) or visit their website http://www.ma. <http://www.ma.easterseals.com> easterseals.com Easter Seals Services: Providing Services for People with Disabilities and Their Families Easter Seals Massachusetts provides a variety of programs and services for children and adults with disabilities or special needs. Services may be offered in an individual's home, in the community or at our facility. Assistive Technology: Recognized nationally as a leader in assistive technology, our services are an excellent resource for children and adults with disabilities who need high and low technology solutions for home, work or school in order to increase their independence. Job Training and Employment: Easter Seals helps students and adults with disabilities develop the skills they need to get and keep jobs in today's competitive workplace. The program offers individualized vocational rehabilitation, computer skills training, placement and employment services. Rehabilitation/ Therapy Services: Easter Seals' personalized approach delivers dependable and cost- effective rehabilitation services to infants, children, teens, adults and seniors. Therapy services include evaluation, treatment and consultation with Speech, Physical and Occupational Therapy. Camp: Easter Seals offers individuals with physical disabilities the chance to enjoy summer camp activities with able-bodied campers, including boating, archery, campfires, swimming and more. Disability Resource Information: Easter Seals provides comprehensive, up-to-date information on disability services and resources. Referrals are made to Easter Seals services and a wide variety of agencies and organizations that offer help to people with disabilities throughout the state. The Massachusetts Assistive Technology Loan Program: An Alternative Financing Program. This program provides access to low interest cash loans for the purchase of assistive devices and services to improve the quality of life for people with disabilities. Thank you for your time! Sincerely Carol Freitas Public Affairs Intern for Easter Seals of MA --------------------------------- Don't pick lemons. See all the new 2007 cars at Autos. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 4, 2007 Report Share Posted April 4, 2007 A hoyer is a Hoyer lift. It is used for lifting a person who uses a wheelchair and is to much to lift safely. > Please Read! > > To Parents, Siblings, Friends, and Individuals with Disabilities: > > Hello, my name is Carol Freitas, and I have Spinal Muscular Atrophy > Type II/III sense birth. Growing up in a society that doesn't cater > to disabilities, it's hard to know where there are services that you > could really benefit from. It is time to stop this long and confusing > matter. I am here to share my stories to help others to get the > information that I've gotten through with the help of various non- > profit agencies; like Easter Seals of MA, Boston Center of > Independent Living, and MA Rehabilitation Commission. > > I'd like to invite you to get involved. Without the help of the > agencies above, I wouldn't have gotten my 1st apartment, pca > services, college assistance, a job, go to support groups (for both > myself and my parents), go to social events, and many more. We can > all unite our efforts and share the information we have struggle to > obtain and share it with others. By doing this, we will become untied > and be able to live to the fullest. > > At this very moment Easter Seals is trying to get the participation > from everyone that is located with in the MA area. We are trying to > unite as many participants from 14-30 in our Act Today - Influence > Tomorrow - Youth with Disabilities Forum. We're looking to get advice > to what type of services are needed in today's youth. We're currently > working on a solid schedule for our meetings, but for now we meet > once a month on Saturday's about 1-3pm. We are posting them on > Myspace, as the meetings get planed. Please feel free to ask more > about this program. > > Lets live and stop dreaming! > > For those who might not know much about Easter Seals services, let me > mention some of their great programs available for anyone with a > disability. If you want to contact Easter Seals, please call 800-922- > 8290 (voice) or 800-564-9700 (tty) or visit their website > http://www.ma. <http://www.ma.easterseals.com> easterseals.com > > Easter Seals Services: > Providing Services for People with Disabilities and Their Families > Easter Seals Massachusetts provides a variety of programs and > services for children and adults with disabilities or special needs. > Services may be offered in an individual's home, in the community or > at our facility. > > Assistive Technology: > Recognized nationally as a leader in assistive technology, our > services are an excellent resource for children and adults with > disabilities who need high and low technology solutions for home, > work or school in order to increase their independence. > > Job Training and Employment: > Easter Seals helps students and adults with disabilities develop the > skills they need to get and keep jobs in today's competitive > workplace. The program offers individualized vocational > rehabilitation, computer skills training, placement and employment > services. > > Rehabilitation/ Therapy Services: > Easter Seals' personalized approach delivers dependable and cost- > effective rehabilitation services to infants, children, teens, adults > and seniors. Therapy services include evaluation, treatment and > consultation with Speech, Physical and Occupational Therapy. > > Camp: > Easter Seals offers individuals with physical disabilities the chance > to enjoy summer camp activities with able-bodied campers, including > boating, archery, campfires, swimming and more. > > Disability Resource Information: > Easter Seals provides comprehensive, up-to-date information on > disability services and resources. Referrals are made to Easter Seals > services and a wide variety of agencies and organizations that offer > help to people with disabilities throughout the state. > > The Massachusetts Assistive Technology Loan Program: > An Alternative Financing Program. This program provides access to low > interest cash loans for the purchase of assistive devices and > services to improve the quality of life for people with disabilities. > Thank you for your time! > > Sincerely > Carol Freitas > Public Affairs Intern for Easter Seals of MA > > --------------------------------- > Don't pick lemons. > See all the new 2007 cars at Autos. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 4, 2007 Report Share Posted April 4, 2007 Ah… good to know. At what point will we probably get one of those?!? Is it a certain age & weight? VISHA WALLACE 804.334.5215 Stay-At-Home Mommy: www.ourthreegirls.com Rags Land Sales Rep: www.ragsland.com CM Consultant: www.mycmsite.com/vwallace _____ From: [mailto: ] On Behalf Of Jami Sent: Wednesday, April 04, 2007 10:56 PM Subject: Re: Hi! A hoyer is a Hoyer lift. It is used for lifting a person who uses a wheelchair and is to much to lift safely. > Please Read! > > To Parents, Siblings, Friends, and Individuals with Disabilities: > > Hello, my name is Carol Freitas, and I have Spinal Muscular Atrophy > Type II/III sense birth. Growing up in a society that doesn't cater > to disabilities, it's hard to know where there are services that you > could really benefit from. It is time to stop this long and confusing > matter. I am here to share my stories to help others to get the > information that I've gotten through with the help of various non- > profit agencies; like Easter Seals of MA, Boston Center of > Independent Living, and MA Rehabilitation Commission. > > I'd like to invite you to get involved. Without the help of the > agencies above, I wouldn't have gotten my 1st apartment, pca > services, college assistance, a job, go to support groups (for both > myself and my parents), go to social events, and many more. We can > all unite our efforts and share the information we have struggle to > obtain and share it with others. By doing this, we will become untied > and be able to live to the fullest. > > At this very moment Easter Seals is trying to get the participation > from everyone that is located with in the MA area. We are trying to > unite as many participants from 14-30 in our Act Today - Influence > Tomorrow - Youth with Disabilities Forum. We're looking to get advice > to what type of services are needed in today's youth. We're currently > working on a solid schedule for our meetings, but for now we meet > once a month on Saturday's about 1-3pm. We are posting them on > Myspace, as the meetings get planed. Please feel free to ask more > about this program. > > Lets live and stop dreaming! > > For those who might not know much about Easter Seals services, let me > mention some of their great programs available for anyone with a > disability. If you want to contact Easter Seals, please call 800-922- > 8290 (voice) or 800-564-9700 (tty) or visit their website > http://www.ma. <http://www.ma. <http://www.ma.easterseals.com> easterseals.com> easterseals.com > > Easter Seals Services: > Providing Services for People with Disabilities and Their Families > Easter Seals Massachusetts provides a variety of programs and > services for children and adults with disabilities or special needs. > Services may be offered in an individual's home, in the community or > at our facility. > > Assistive Technology: > Recognized nationally as a leader in assistive technology, our > services are an excellent resource for children and adults with > disabilities who need high and low technology solutions for home, > work or school in order to increase their independence. > > Job Training and Employment: > Easter Seals helps students and adults with disabilities develop the > skills they need to get and keep jobs in today's competitive > workplace. The program offers individualized vocational > rehabilitation, computer skills training, placement and employment > services. > > Rehabilitation/ Therapy Services: > Easter Seals' personalized approach delivers dependable and cost- > effective rehabilitation services to infants, children, teens, adults > and seniors. Therapy services include evaluation, treatment and > consultation with Speech, Physical and Occupational Therapy. > > Camp: > Easter Seals offers individuals with physical disabilities the chance > to enjoy summer camp activities with able-bodied campers, including > boating, archery, campfires, swimming and more. > > Disability Resource Information: > Easter Seals provides comprehensive, up-to-date information on > disability services and resources. Referrals are made to Easter Seals > services and a wide variety of agencies and organizations that offer > help to people with disabilities throughout the state. > > The Massachusetts Assistive Technology Loan Program: > An Alternative Financing Program. This program provides access to low > interest cash loans for the purchase of assistive devices and > services to improve the quality of life for people with disabilities. > Thank you for your time! > > Sincerely > Carol Freitas > Public Affairs Intern for Easter Seals of MA > > --------------------------------- > Don't pick lemons. > See all the new 2007 cars at Autos. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 4, 2007 Report Share Posted April 4, 2007 It is not usually about either. It is usually more about when the one being lifted doesn't feel safe/secure anymore you know it is time. Does that make sense? > > Please Read! > > > > To Parents, Siblings, Friends, and Individuals with Disabilities: > > > > Hello, my name is Carol Freitas, and I have Spinal Muscular Atrophy > > Type II/III sense birth. Growing up in a society that doesn't cater > > to disabilities, it's hard to know where there are services that you > > could really benefit from. It is time to stop this long and confusing > > matter. I am here to share my stories to help others to get the > > information that I've gotten through with the help of various non- > > profit agencies; like Easter Seals of MA, Boston Center of > > Independent Living, and MA Rehabilitation Commission. > > > > I'd like to invite you to get involved. Without the help of the > > agencies above, I wouldn't have gotten my 1st apartment, pca > > services, college assistance, a job, go to support groups (for both > > myself and my parents), go to social events, and many more. We can > > all unite our efforts and share the information we have struggle to > > obtain and share it with others. By doing this, we will become untied > > and be able to live to the fullest. > > > > At this very moment Easter Seals is trying to get the participation > > from everyone that is located with in the MA area. We are trying to > > unite as many participants from 14-30 in our Act Today - Influence > > Tomorrow - Youth with Disabilities Forum. We're looking to get advice > > to what type of services are needed in today's youth. We're currently > > working on a solid schedule for our meetings, but for now we meet > > once a month on Saturday's about 1-3pm. We are posting them on > > Myspace, as the meetings get planed. Please feel free to ask more > > about this program. > > > > Lets live and stop dreaming! > > > > For those who might not know much about Easter Seals services, let me > > mention some of their great programs available for anyone with a > > disability. If you want to contact Easter Seals, please call 800-922- > > 8290 (voice) or 800-564-9700 (tty) or visit their website > > http://www.ma. <http://www.ma. <http://www.ma.easterseals.com> > easterseals.com> easterseals.com > > > > Easter Seals Services: > > Providing Services for People with Disabilities and Their Families > > Easter Seals Massachusetts provides a variety of programs and > > services for children and adults with disabilities or special needs. > > Services may be offered in an individual's home, in the community or > > at our facility. > > > > Assistive Technology: > > Recognized nationally as a leader in assistive technology, our > > services are an excellent resource for children and adults with > > disabilities who need high and low technology solutions for home, > > work or school in order to increase their independence. > > > > Job Training and Employment: > > Easter Seals helps students and adults with disabilities develop the > > skills they need to get and keep jobs in today's competitive > > workplace. The program offers individualized vocational > > rehabilitation, computer skills training, placement and employment > > services. > > > > Rehabilitation/ Therapy Services: > > Easter Seals' personalized approach delivers dependable and cost- > > effective rehabilitation services to infants, children, teens, adults > > and seniors. Therapy services include evaluation, treatment and > > consultation with Speech, Physical and Occupational Therapy. > > > > Camp: > > Easter Seals offers individuals with physical disabilities the chance > > to enjoy summer camp activities with able-bodied campers, including > > boating, archery, campfires, swimming and more. > > > > Disability Resource Information: > > Easter Seals provides comprehensive, up-to-date information on > > disability services and resources. Referrals are made to Easter Seals > > services and a wide variety of agencies and organizations that offer > > help to people with disabilities throughout the state. > > > > The Massachusetts Assistive Technology Loan Program: > > An Alternative Financing Program. This program provides access to low > > interest cash loans for the purchase of assistive devices and > > services to improve the quality of life for people with disabilities. > > Thank you for your time! > > > > Sincerely > > Carol Freitas > > Public Affairs Intern for Easter Seals of MA > > > > --------------------------------- > > Don't pick lemons. > > See all the new 2007 cars at Autos. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 5, 2007 Report Share Posted April 5, 2007 Here is some more info about hoyer lifts... http://www.just-patient-lifters.com/ Visha Wallace wrote: > > This is a really stupid question, I’m sure, but what is a Hoyer? My > daughter is 19 months, type 2, and I haven’t ever heard of it…. > > VISHA WALLACE > > 804.334.5215 > > Stay-At-Home Mommy: www.ourthreegirls.com > > Rags Land Sales Rep: www.ragsland.com > > CM Consultant: www.mycmsite.com/vwallace > > _____ > > From: <mailto:%40> > [mailto: > <mailto:%40>] On > Behalf Of a B. > Sent: Wednesday, April 04, 2007 6:41 PM > <mailto:%40> > Subject: Re: Hi! > > Thank you for the resources! I did not know Easter Seals does all of that. > I'm in OH but may check into the low interest loan for a new Hoyer. > Thanks, > a, age 29, SMA Type II > > carol32376 <carol32376 (DOT) <mailto:carol32376%40> com> wrote: > Please Read! > > To Parents, Siblings, Friends, and Individuals with Disabilities: > > Hello, my name is Carol Freitas, and I have Spinal Muscular Atrophy > Type II/III sense birth. Growing up in a society that doesn't cater > to disabilities, it's hard to know where there are services that you > could really benefit from. It is time to stop this long and confusing > matter. I am here to share my stories to help others to get the > information that I've gotten through with the help of various non- > profit agencies; like Easter Seals of MA, Boston Center of > Independent Living, and MA Rehabilitation Commission. > > I'd like to invite you to get involved. Without the help of the > agencies above, I wouldn't have gotten my 1st apartment, pca > services, college assistance, a job, go to support groups (for both > myself and my parents), go to social events, and many more. We can > all unite our efforts and share the information we have struggle to > obtain and share it with others. By doing this, we will become untied > and be able to live to the fullest. > > At this very moment Easter Seals is trying to get the participation > from everyone that is located with in the MA area. We are trying to > unite as many participants from 14-30 in our Act Today - Influence > Tomorrow - Youth with Disabilities Forum. We're looking to get advice > to what type of services are needed in today's youth. We're currently > working on a solid schedule for our meetings, but for now we meet > once a month on Saturday's about 1-3pm. We are posting them on > Myspace, as the meetings get planed. Please feel free to ask more > about this program. > > Lets live and stop dreaming! > > For those who might not know much about Easter Seals services, let me > mention some of their great programs available for anyone with a > disability. If you want to contact Easter Seals, please call 800-922- > 8290 (voice) or 800-564-9700 (tty) or visit their website > http://www.ma. <http://www.ma.easterseals.com > <http://www.ma.easterseals.com>> easterseals.com > > Easter Seals Services: > Providing Services for People with Disabilities and Their Families > Easter Seals Massachusetts provides a variety of programs and > services for children and adults with disabilities or special needs. > Services may be offered in an individual's home, in the community or > at our facility. > > Assistive Technology: > Recognized nationally as a leader in assistive technology, our > services are an excellent resource for children and adults with > disabilities who need high and low technology solutions for home, > work or school in order to increase their independence. > > Job Training and Employment: > Easter Seals helps students and adults with disabilities develop the > skills they need to get and keep jobs in today's competitive > workplace. The program offers individualized vocational > rehabilitation, computer skills training, placement and employment > services. > > Rehabilitation/ Therapy Services: > Easter Seals' personalized approach delivers dependable and cost- > effective rehabilitation services to infants, children, teens, adults > and seniors. Therapy services include evaluation, treatment and > consultation with Speech, Physical and Occupational Therapy. > > Camp: > Easter Seals offers individuals with physical disabilities the chance > to enjoy summer camp activities with able-bodied campers, including > boating, archery, campfires, swimming and more. > > Disability Resource Information: > Easter Seals provides comprehensive, up-to-date information on > disability services and resources. Referrals are made to Easter Seals > services and a wide variety of agencies and organizations that offer > help to people with disabilities throughout the state. > > The Massachusetts Assistive Technology Loan Program: > An Alternative Financing Program. This program provides access to low > interest cash loans for the purchase of assistive devices and > services to improve the quality of life for people with disabilities. > Thank you for your time! > > Sincerely > Carol Freitas > Public Affairs Intern for Easter Seals of MA > > --------------------------------- > Don't pick lemons. > See all the new 2007 cars at Autos. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 7, 2007 Report Share Posted April 7, 2007 No advice really other than just keep doing what your doing. There is a little boy in our local Down Syndrome Play group who just happens to share the same Physical Therapist as My does. His mother is from Mexico and he is pretty good at both languages and sign language. So Bi Lingual and Down's IS POSSIBLE. Our PT thinks its great too! Steph " We all want progress, but if you're on the wrong road, progress means doing an about-turn and walking back to the right road; in that case, the man who turns back soonest is the most progressive. " C.S. Hi! Hi, My name is Sampson, and I have a baby girl with DS, she is 5 months old. I also have an older daughter and she is 5 years old. The baby is doing well and so far has had no major health problems. She has a regular monthly visits from early intervention program, and we also exercise with her everyday, practicing rolling, siting etc.. I'm from Mexico and my husband is american, my oldest daughter is bilingual. It would mean a lot to us if we could teach the baby to speak and understand both english and spanish... I know this will not be an easy thing to do.. Howewer we have heard of success stories raising bilingual children with DS from our baby's therapist.. I speak to my baby in spanish and my husband in english.. Do you have any advice for us in this area? Many thanks. Quote Link to comment Share on other sites More sharing options...
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