Hi

[Guest guest]

Larry,

If you're not on meds and looking to keep up your health, let me recommend a

book to you. It really helped me bounce back quickly as I was just diagnosed

in the hospital in 2006 with AIDS. It's called:

Immune Restoration Handbook

2nd edition,

December 2004

Published in U.S. by:

Keep Hope Alive

PO Box 270041

West Allis, WI 53227

414-545-6539

http://www.keephopealive.org.

And all of the profits from the sale of this book are donated to non-profit

charities, educational or scientific entities.

If you're trying to do things naturally, as it sounds you are, this book can

give great advice on what to do and what not to do.

L.

[Guest guest]

Hi

Here I am, dear. I have a lot to do both online (in my person comcast account)

and offline, so I haven't been getting here to my account to post to the

group that often. It is really nice to be missed, though, and I have missed

you, too. In fact, I have missed everyone. So, thank you for your kind

thoughts, and I am still doing plenty of Life Lift breathing, so don't

worry about that!!!!

I am having a lot of trouble with my computer these days, too, so that is

another reason why I have not been here much lately. That's what happens all

the time in Computervillle. Problems, problems, and then some more problems!!!

Love always,

Pat

Hi

Hi and welcome Lee,

For some reason I can no longer reply to e-mail on my " read " screen.

Juno closes down the program each time I try so even tho' you've been

here awhile I did want to say hi. Glad you got your DVD's. I plan to

order the exercise ones in March and I know I'll wait anxiously for

them too :-)

I want to be in on the contest too but I didn't get the message til

this afternoon so I will start tomorrow. Sounds inspiring.

Hey Virginia, I also miss Pat. glad you asked about her...hey Pat,

where are you?????

Happy Valentine's day to all my friends.

Chris

________________________________________________________________________________\

____

8:00? 8:25? 8:40? Find a flick in no time

with the Search movie showtime shortcut.

http://tools.search./shortcuts/#news

[Guest guest]

Hi Pat ,

Glad to know you are ok and that you are just busy.

Molly : O )

>

> Hi

>

> Here I am, dear. I have a lot to do both online (in my person

comcast account) and offline, so I haven't been getting here to my

account to post to the group that often. It is really nice to

be missed, though, and I have missed you, too. In fact, I have

missed everyone. So, thank you for your kind thoughts, and I

am still doing plenty of Life Lift breathing, so don't worry about

that!!!!

>

> I am having a lot of trouble with my computer these days, too, so

that is another reason why I have not been here much lately. That's

what happens all the time in Computervillle. Problems, problems,

and then some more problems!!!

>

> Love always,

> Pat

>

>

> Hi

>

> Hi and welcome Lee,

>

> For some reason I can no longer reply to e-mail on my " read "

screen.

> Juno closes down the program each time I try so even tho' you've

been

> here awhile I did want to say hi. Glad you got your DVD's. I plan

to

> order the exercise ones in March and I know I'll wait anxiously

for

> them too :-)

>

> I want to be in on the contest too but I didn't get the message

til

> this afternoon so I will start tomorrow. Sounds inspiring.

>

> Hey Virginia, I also miss Pat. glad you asked about her...hey Pat,

> where are you?????

>

> Happy Valentine's day to all my friends.

>

> Chris

>

>

>

>

>

>

>

_____________________________________________________________________

_______________

> 8:00? 8:25? 8:40? Find a flick in no time

> with the Search movie showtime shortcut.

> http://tools.search./shortcuts/#news

>

>

[Guest guest]

I'd like to be part of the contest, too, Laurie. Is it ok to start tomorrow?

Melinda )

Hi

Hi and welcome Lee,

For some reason I can no longer reply to e-mail on my " read " screen.

Juno closes down the program each time I try so even tho' you've been

here awhile I did want to say hi. Glad you got your DVD's. I plan to

order the exercise ones in March and I know I'll wait anxiously for

them too :-)

I want to be in on the contest too but I didn't get the message til

this afternoon so I will start tomorrow. Sounds inspiring.

Hey Virginia, I also miss Pat. glad you asked about her...hey Pat,

where are you?????

Happy Valentine's day to all my friends.

Chris

[Guest guest]

Hi Katanya... would you believe I have a llama with that name? I'm Llinda in Idaho raising llamas, doves, fantails, homing pigeons, and cockatiels... along with 7 cats (at this time), two large dogs, 2 cockatoos, and Zoe the Quaker Parrot. I have Hep type 1a, I did treatment for 52 weeks 2004-05. I am undetectable at one year post Tx... yea!

Just start posting questions, the people here are as great a bunch as you could ever wish for. You'll get lots of response to your questions and fears.

Welcome!

Llinda

I just started treatment 3 weeks ago and I have so many questions. I wanted to say hi to everyone.

[Guest guest]

Welcome to the group. Ask away with your questions and I am

sure that you will get answers.

Dick

At 08:40 AM 2/19/2007, you wrote:

I just started treatment 3 weeks

ago and I have so many questions. I

wanted to say hi to everyone.

[Guest guest]

Hi back to you and thank you for joining us. We have several members on treatment now a few weeks ahead of you and many who have finished tx. So many questions is something we all have in common about treatment and our hep c - so ask away. Having other people on treatment with you for support Tx Buddy's makes it a lot easier. When you are ready tell us more about you and what name or nickname would you like to use for group. Take Care and All The Best. Deb HCV geno 1 for 30 years liver transplant 3/4/01 New Orleans

[Guest guest]

Hi.

Welcome to our family. Ask away. We’re here to help. We’ve got

people here all along the journey from just diagnosed to on treatment (tx) to

multiple treatments, to failed tx & successful tx to transplants. We‘ve

either go answers or can help you find them.

De

Hi

I just started treatment

3 weeks ago and I have so many questions. I

wanted to say hi to everyone.

[Guest guest]

ask away I dont think you could ask more than i did I am in week 7 for me week 3 was hell but it got better ask any thing your not sure about katanyablade <katanyablade@...> wrote: I just started treatment 3 weeks ago and I have so many questions. I wanted to say hi to everyone.

Expecting? Get great news right away with email Auto-Check.Try the Beta.

[Guest guest]

Hello Katanyablade, Do you know what your genotype is? How long have you had Hep C? When did you start tx (treatment)? Have you had a biopsy, blood tests? What kind of tx are you doing? All of these answers are needed to figure out how you might react to tx & what your response might be. You've picked a great group if you need support or answers. We are one big ol' family, listening to each others problems, answering each other's questions - there's no such thing as a stupid question - & letting each other rant, even joining in to rant with. I'm SuZie. I'm a S W F, 57 years old & never married. I live up here

in the GWN (Great White North), in Thunder Bay, Ontario, Canada with my sweetie Sir SpYke the G O T - Galactic Overlord in Training (you will surely hear more of him later) I've had HCV type 1a, since the late '60s or early '70s so that's almost 40 years. I have cirrhosis & am now ( according to my doctors) in ESLD (End Stage Liver Disease) but I feel fine. Let us know how you are. Welcome, SuZie & Sir SpYke the Fuzzy I just started treatment 3 weeks ago and I have so many questions. I wanted to say hi to everyone.

Next time I'm coming back as a cat

[Guest guest]

My massage therapist used these and wants to sell them.

Therapy bay room divider curtains.

Ride on tracks mounted on the ceiling.

$95 OBO

See pictures of them here:

http://portland.craigslist.org/clc/for/285463805.html

( E. Abrahamson, D.C.)

Chiropractic physician

Lake Oswego Chiropractic Clinic

315 Second Street

Lake Oswego, OR 97034

503-635-6246

Website: http://www.lakeoswegochiro.com

AOL now offers free email to everyone. Find out more about what's free from AOL at AOL.com.

[Guest guest]

hey sis yep I got some strange sores to thanks for letting me what there called I never seem to have more than 3 or 4 at a time I just deal with themI am glad your are doing so well on tx you give me hope that every week this could get a little better Keep enjoying life and telling us about it katanyablade <katanyablade@...> wrote: I just wanted to check in and say hi to everyone...I 'm on week 5 of the treatment . I feel pretty good. I'm a bit moody and a little tried, but other than that, not too bad. I got

to go fishing this week with my boyfreind and caught a bunch of rock fish (YUM!!!). I also went on a two-day trip to Baja for a marine bio class. Is anyone else getting cranker sores??? They hurt like hell. Hope everyone is having a good week!! Kat

Expecting? Get great news right away with email Auto-Check.Try the Beta.

[Guest guest]

Hi I found these cool little patches at Rite-Aid called cranker covers and it sticks to them for almost a whole day, so you can eat . It takes some of the pain away too. There're pretty cheap and reallly worth it. What week are you on? Feel better Goolsby <anthonyegoolsby@...> wrote: hey sis yep I got some strange sores to thanks for letting me what there called I never seem to have more than 3 or 4 at a

time I just deal with themI am glad your are doing so well on tx you give me hope that every week this could get a little better Keep enjoying life and telling us about it katanyablade <katanyablade > wrote: I just wanted to check in and say hi to everyone...I 'm on week 5 of the treatment . I feel pretty good. I'm a bit moody and a little tried, but other than that, not too bad. I got to go fishing this week with my boyfreind and caught a bunch of rock fish (YUM!!!). I also went on a two-day trip to Baja for a marine bio class. Is anyone else getting cranker sores??? They hurt like hell. Hope everyone is having a good week!!Kat Expecting? Get great news right away with email Auto-Check.Try the Beta.

Have a burning question? Go to Answers and get answers from real people who know.

[Guest guest]

Hi I found these cool little patches at Rite-Aid called cranker covers and it sticks to them for almost a whole day, so you can eat . It takes some of the pain away too. There're pretty cheap and reallly worth it. What week are you on? Feel better Goolsby <anthonyegoolsby@...> wrote: hey sis yep I got some strange sores to thanks for letting me what there called I never seem to have more than 3 or 4 at a

time I just deal with themI am glad your are doing so well on tx you give me hope that every week this could get a little better Keep enjoying life and telling us about it katanyablade <katanyablade > wrote: I just wanted to check in and say hi to everyone...I 'm on week 5 of the treatment . I feel pretty good. I'm a bit moody and a little tried, but other than that, not too bad. I got to go fishing this week with my boyfreind and caught a bunch of rock fish (YUM!!!). I also went on a two-day trip to Baja for a marine bio class. Is anyone else getting cranker sores??? They hurt like hell. Hope everyone is having a good week!!Kat Expecting? Get great news right away with email Auto-Check.Try the Beta.

Have a burning question? Go to Answers and get answers from real people who know.

[Guest guest]

thanks hope I can get them in Germany I am in week 8 and doing fairly well hpoefully it gets better as we go along I have a few weeks leftcindy sieman <katanyablade@...> wrote: Hi I found these cool little patches at Rite-Aid called cranker covers and it sticks to them for almost a whole day, so you can eat . It takes some of the pain away too. There're pretty cheap and reallly worth it. What week are you on? Feel better Goolsby <anthonyegoolsby > wrote: hey sis yep I got some strange sores to thanks for letting me what there called I never seem to have more than 3 or 4 at a time I just deal with themI am glad your are doing so well on tx you give me hope that every week this could get a little better Keep enjoying life and telling us about it katanyablade <katanyablade > wrote: I just wanted to check in and say hi to everyone...I 'm on week 5 of the treatment . I feel pretty good. I'm a bit moody and a little tried, but other than that, not too bad. I got to go fishing this week with my boyfreind and caught a

bunch of rock fish (YUM!!!). I also went on a two-day trip to Baja for a marine bio class. Is anyone else getting cranker sores??? They hurt like hell. Hope everyone is having a good week!!Kat Expecting? Get great news right away with email Auto-Check.Try the Beta. Have a burning question? Go to Answers and get answers from real people who know.

Don't get soaked. Take a quick peek at the forecast with the Search weather shortcut.

[Guest guest]

That is great!! I love it when local celebs/businesses get behind worthwhile

charities, really can help to spread the word!

Sharon H.

Mom to , (15, DS) and , (11)

South Carolina

" Be kinder than necessary, for everyone you meet is fighting some kind of

battle. "

hi

hi guys

I just started back at my rock n roll dancing classes this week

and I found out that the guy that runs it , his name is Tommy Kaye - he

DJ's a local radio station and his segment is called 6 o'clock rock

Anyways- he sells t-shirts etc to rock n rollers

And guess who his charity is??

Thats right- the Downs Syndrome Society for SA!!!!!!!!!!!!!!!!!!!!!!!!

How cool is that- all proceeds from the shirts go there!!

YEAH!!!!!!!!!!!!!!!!!!!!!!!

And the local BEC we belong to ( Business Enterprise Centre) we have a

women in business centre too- we are sponsoringthe Autistic Society

YEAH!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

Sorry had to tell someone

--

Aussie Leis- mum to 9 , Natasha 5 and 3.

Character is like a tree and reputation like its shadow. The shadow is what we

think of it; the tree is the real thing.

Abraham Lincoln,

[Guest guest]

In message <eucs5r+68g9eGroups> you wrote:

Hi Turtle4

> I just started yesterday with my tea. My little mother barely fits in

> my jar so I know I'll be getting a bigger container soon.

With every new brew, your culture will make a new SCOBY (S ymbiotic

C ulture/C olony Of B acteria & Y easts) across the top of your

vessel exctly the right size to make a plug. It's kind of a neat cellular

mat the bacteria build. This and the liquid which contains bacteria

and yeasts throughout ARE the Kombucha culture.

> My recipe that was given to me was 1 big tea bag of regular tea and 7

> little green tea bags plus I added about a cup of white sugar and 1/4

> c. brown sugar like the youtube guy said to do. Does that sound right.

You don't say what quantity this is for .. quart, gallon? Maybe gallon?

I use about 1 3/4 cups of sugar (brown or white) to 6-8 teabags or

teaspoons of loose tea per gallon. Some people use more, some less.

It depends what flavour and strength you like and you will find THAT

out through making several brews.

> I'm sooo confused with the continuous brewing I've been reading

> about.But I think (if I'm reading right) that you just keep adding

> sweet tea to your original mixture which is what you call the starter?

Continuous brewing only works if you have a large enough container

(minimum of 2 gallons) with a spigot. Since I have never been able to

find such a glass container in the UK I have never done continuous brewing.

The ordinary way of brewing (which I do) is to make up my brew according

to recipe and to leave it covered and un disturbed for 7 days and then

to try it with a straw. If still too sweet, ferment on until it tastes

right for you. Then bottle and start again.

Any more questions?

Blessings and most kombuchaly,

Margret (UK( :-)

--

+------------------ Minstrel@... --------------------+

<)))<>< http://www.therpc.f9.co.uk <)))<><

http://www.AnswersInGenesis.com

+----------------- http://www.Gotquestions.org ------------------+

God keeps His eye upon you as you come and go, and always guards you.

[Guest guest]

In a message dated 3/31/2007 9:27:56 A.M. US Eastern Standard Time, honeygirl_in_mi@... writes:

Anyway, I really enjoy this group, you have been a great source of information.

Hi Amber,

I'm glad you came out of lurking. Hope to hear more from you.

*~**~*See what's free at AOL.com.

[Guest guest]

honeygirl_in_mi wrote:

> I usually just lurk, but thought it was about time to introduce myself.

hi amber!! im so glad that you decided to say hello! it is nice to

meet you... i hope that you will post more often!

:*carolyn.

[Guest guest]

hi amber welcome to the group!!! sometimes we hit those platues and have to shock the muscles with something new. firms are a great workouts though, good for you for sticking with it. kassia

It's here! Your new message!Get

new email alerts with the free Toolbar.

[Guest guest]

Hello Sabine,

We live in Northern California and see a Pediatric Specialist at UC

San Francisco's Rheumatology Department. We have had one appt with

her so far, and she is VERY knowledgeable on all the Periodic Fever

Syndromes (PFS). We are still in the process of trying to determine

which syndrome our son, Tyler (16 months), has.

What are Quentin's episodes like? How far apart do they cycle? Are

they regular? Are his symptoms the same each time?

Has Quentin been tested for any of the other syndromes? There is

DNA testing for some of the syndromes, and blood work for one called

cyclic neutropenia. I am just concerned that they may be thinking

it is without ruling out the other syndromes.

How are you trying to control his fevers? Ibuprofen and Tylenol

barely work on our son. We just recently had liquid Naproxen

prescribed, and his 1st episode on it was about half as severe

as 'normal'. His temp never went above 102.2 and it only lasted 1.5

days. The MD said in some children, the Naproxen when given twice

(12 hours apart) daily as a preventative may stop the episodes from

starting. I had to supplement with Tylenol (not Ibuprofen) in

between the Naproxen doses, and it made a HUGE difference. Naproxen

is the ingredient in Aleve. Another member who's son has FMF just

tried Naproxen, and it helped him also. You may want to talk to

your MD about it.

Hope this helps,

Pruden

mother to Tyler (16 months)-undetermined PFS

Lake County California (Northern)

>

> Hi everybody,

>

> I am new to this group. I just received a phone call from our

> pediatrician referring us to the infectious disease specialist who

also

> saw our son 2005/2006 with this " recurrent fevers " nobody could

make

> sense out. Both are convinced that it is for sure this time,

since

> our little angel showed every single symptom. I have to say that

> Quentin, our son, is sick a lot due to his autism as well. So any

> information for " beginners " would be highly appreciated. We live

in

> Northern California.

>

> You all take care,

>

> Sabine

>

[Guest guest]

Hi ,

right now we are still with Kaiser Permanente and see doctors within

their network, our next appointment is next week with the pediatric

infectious disease specialist. Quentin is having his episodes every

14-21 days, his fever fluctuates between 104-106 F and last always 3-5

days, most of the time 5 days. In 2005/2006 they did an awful lot of

urine, stool and blood tests to find out which underlying cause those

fever may have, but couldn't find anything. The ID doc was the first to

mention , because of the time frame, the severity of the fever,

pharyngitis, swollen neck lymph nodes and those ulcers in his mouth

(which appeared this last time for the very first time in such a

quantity). CRP, ESR and the white blood cells are also always elevated

with those fevers. Quentin himself complaints about severe headaches and

tummy aches, which is always a sign for us to see the doctor even before

the fever starts since our son has an incredible pain threshold. I am

not 100% sure which kind of tests those specialists did (pediatric GI,

pediatric Neurologist and pediatric ID) but I will ask at our next

visit. Ibuprofen and Tylenol are barely doing it for our son but he is

also on the DAN! protocol (Defeat Autism Now) which supports his whole

immune system, maybe that helps in addition to the fever reducers and

inflammatory medicines. Thanks for your tip about Naproxen I will ask

the MD's about it.

Have a great day,

Sabine, mom to Quentin (5 yrs), autism & , pregnant 36 wks, living

in Santa Cruz, CA

> We live in Northern California and see a Pediatric Specialist at UC

> San Francisco's Rheumatology Department. We have had one appt with

> her so far, and she is VERY knowledgeable on all the Periodic Fever

> Syndromes (PFS). We are still in the process of trying to determine

> which syndrome our son, Tyler (16 months), has.

>

>

> What are Quentin's episodes like? How far apart do they cycle? Are

> they regular? Are his symptoms the same each time?

>

> Has Quentin been tested for any of the other syndromes? There is

> DNA testing for some of the syndromes, and blood work for one called

> cyclic neutropenia. I am just concerned that they may be thinking

> it is without ruling out the other syndromes.

>

> How are you trying to control his fevers? Ibuprofen and Tylenol

> barely work on our son. We just recently had liquid Naproxen

> prescribed, and his 1st episode on it was about half as severe

> as 'normal'. His temp never went above 102.2 and it only lasted 1.5

> days. The MD said in some children, the Naproxen when given twice

> (12 hours apart) daily as a preventative may stop the episodes from

> starting. I had to supplement with Tylenol (not Ibuprofen) in

> between the Naproxen doses, and it made a HUGE difference. Naproxen

> is the ingredient in Aleve. Another member who's son has FMF just

> tried Naproxen, and it helped him also. You may want to talk to

> your MD about it.

>

> Hope this helps,

> Pruden

> mother to Tyler (16 months)-undetermined PFS

> Lake County California (Northern)

>

> -

>

[Guest guest]

{{{HUGS}}}}} Kerry! My thoughts and prayers are with you. The

restorative yoga sounds wonderful. I hope you enjoy it. Take care

of yourself!!

Best Regards,

Sherri

>

> Hi all,

> Just a quick note to let you know I'm still hanging in there.

>

> Treatments are going well, it takes longer to set me up for the

radiation treatments than it takes to do them. One day my

appointment time was at 9:00 and I was out at 9:06! The chemo is

going well, as long as I take my anti-nausea meds an hour before

taking chemo. It's quite a schedule my chemo has to be taken an hour

before my radiation so it is in my system when the radiate me. I

also have to fit eating in between all this. I'm doing well for now,

at times I feel very tired and a bit like I'm getting a flu bug. I

have noticed a strange taste a couple of times, but it hasn't

effected my eating yet. I'm still on Decadron (a steroid that

increases your appetite), my oldest DD laughed at me the other day I

had a sandwich in one hand and a fork in the other. Honestly, I

don't eat like that usually. I'm usually the last person to be

eating. I'm taking advantage of the good appetite for now and I'm

trying to eat as many fruits and veggies as I can, although I'm

getting scared to step on the scale.

>

> I have managed to do yoga a couple of times and I see that a new

cancer center in Calgary called WellSprings has a restorative yoga

class that I'd like to take. I'm going to phone next week to see if

they have any openings. I also have a Look Good Feel Better program

to go to on May the 15th. I have already got my wig from the cancer

society and on Friday I started losing my hair due to the radiation.

My wit is a shorter style with red highlights. My new nickname is

Patches, or Baldy as DH likes to refer to me. LOL!

>

> Hope all is well with you.

> Take care,

> Hugz, Kerry

>

[Guest guest]

hi kerry, i didn't even realize you were sick. i am so sorry to hear this but glad to hear the treatments going okay. my dads really tires him out too but he is trying to walk more when he can. i really want to see you both get back to healthy as possible. keep strong!!!! kassia

Ahhh...imagining that irresistible "new car" smell? Check out

new cars at Autos.

[Guest guest]

Kerry!!!!! I'm so glad to hear from you, I was thinking about you the other day too, wondering how you were. Somehow I must have missed a post that said you had joined the club no one wants to be a member of... welcome, from another survivor and member. I'm so sorry to hear it though. I'm glad to hear you are doing okay overall though, sounds like you are being very proactive in finding ways to help yourself, I know how huge that is and I'm really glad to hear you're doing it. I hope the restorative yoga program is available for you, it sounds great. My hugs and prayers join those of so many others wishing you healing and peace. I'll look forward to working out "with" you again when you're ready for it and I know Jen will be too (hey, I'm up to 4-6 workouts each week on a regular basis now! thanks for your encouragement, it helped a lot)!

Hugs, prayers and love,

Hi

Hi all,

Just a quick note to let you know I'm still hanging in there.

Treatments are going well, it takes longer to set me up for the radiation treatments than it takes to do them. One day my appointment time was at 9:00 and I was out at 9:06! The chemo is going well, as long as I take my anti-nausea meds an hour before taking chemo. It's quite a schedule my chemo has to be taken an hour before my radiation so it is in my system when the radiate me. I also have to fit eating in between all this. I'm doing well for now, at times I feel very tired and a bit like I'm getting a flu bug. I have noticed a strange taste a couple of times, but it hasn't effected my eating yet. I'm still on Decadron (a steroid that increases your appetite), my oldest DD laughed at me the other day I had a sandwich in one hand and a fork in the other. Honestly, I don't eat like that usually. I'm usually the last person to be eating. I'm taking advantage of the good appetite for now and I'm trying to eat as many fruits and veggies as I can, although I'm getting scared to step on the scale.

I have managed to do yoga a couple of times and I see that a new cancer center in Calgary called WellSprings has a restorative yoga class that I'd like to take. I'm going to phone next week to see if they have any openings. I also have a Look Good Feel Better program to go to on May the 15th. I have already got my wig from the cancer society and on Friday I started losing my hair due to the radiation. My wit is a shorter style with red highlights. My new nickname is Patches, or Baldy as DH likes to refer to me. LOL!

Hope all is well with you.

Take care,

Hugz, Kerry