Guest guest Posted April 20, 2002 Report Share Posted April 20, 2002 In a message dated 4/20/2002 2:30:07 AM Eastern Daylight Time, writes: > To the list, I contacted the reporter of the Philadelphia Inquirer article > ....here it is. > - Thanks so much for sending the article! It's great - I'm sending it to my mother! I think someone mentioned recently that it would be great to have something clear and short to send to relatives who have trouble understanding... Cyndi in VA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 20, 2002 Report Share Posted April 20, 2002 In a message dated 4/20/2002 2:30:07 AM Eastern Daylight Time, writes: > To the list, I contacted the reporter of the Philadelphia Inquirer article > ....here it is. > - Thanks so much for sending the article! It's great - I'm sending it to my mother! I think someone mentioned recently that it would be great to have something clear and short to send to relatives who have trouble understanding... Cyndi in VA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 30, 2002 Report Share Posted November 30, 2002 In a message dated 11/30/2002 8:55:19 PM Eastern Standard Time, writes: > > Does anyone have any recomendations for a DAN doctor in central PA > or possibly the Blatimore, MD area? > > > Email me off list. Michele Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 25, 2005 Report Share Posted August 25, 2005 Diane, my heart goes out to you. That is SOOOOO horrible and upsetting. I am wondering, from everyone out there with CT, what are the chances of getting it in the opposite ear? My son has had 2 surgeries on his left ear (he is 7 years old), and I feel we will probably need a third (he is starting the stinky drainage again). Does he have a high chance of getting this in his left ear as well? Another question, is the no water rule only for canal wall down? Our surgeon gave him permission to swim without ear plugs this summer, and he has been in the pool everyday with a canal wall up surgery. Thanks for advice! Warm Regards, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 25, 2005 Report Share Posted August 25, 2005 I had my CWD in 1979 and have never used ear plugs while swimming (yes my Doc approves). I have had no more c-toma's since 1979. Do what your Doc's tell you as to using ear plugs or not, they are the experts. tom hansen --- jennifer <jennifer@...> wrote: > Diane, my heart goes out to you. That is SOOOOO > horrible and upsetting. > > I am wondering, from everyone out there with CT, > what are the chances > of getting it in the opposite ear? My son has had 2 > surgeries on his > left ear (he is 7 years old), and I feel we will > probably need a > third (he is starting the stinky drainage again). > Does he have a high > chance of getting this in his left ear as well? > > Another question, is the no water rule only for > canal wall down? Our > surgeon gave him permission to swim without ear > plugs this summer, > and he has been in the pool everyday with a canal > wall up surgery. > > Thanks for advice! > > Warm Regards, > > > > > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 27, 2005 Report Share Posted August 27, 2005 , I had CWU in 02/2005. I am going for my 2nd look 09/20/05. I have been without ear protection for at least a month. So far, so good. I agree with Tom, Follow the Dr orders. Bettie > > > Diane, my heart goes out to you. That is SOOOOO > > horrible and upsetting. > > > > I am wondering, from everyone out there with CT, > > what are the chances > > of getting it in the opposite ear? My son has had 2 > > surgeries on his > > left ear (he is 7 years old), and I feel we will > > probably need a > > third (he is starting the stinky drainage again). > > Does he have a high > > chance of getting this in his left ear as well? > > > > Another question, is the no water rule only for > > canal wall down? Our > > surgeon gave him permission to swim without ear > > plugs this summer, > > and he has been in the pool everyday with a canal > > wall up surgery. > > > > Thanks for advice! > > > > Warm Regards, > > > > > > > > > > > > > > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 19, 2006 Report Share Posted May 19, 2006 Funny you should ask this question. My son saw a specialist two days ago and we spoke about it. His chest deformity, though, is a severe indent instead of a bulge. It is so severe that when he was little, it caused a heart murmer and lowered the blood flow, and many times he has had food caught in his esophagus that couldn't get through. Twice we've had to call paramedics. The specialist we saw is the one that has developed the new 3-D surgery for scoliosis. He said that to do the surgery now (my son is 16) would be a major surgery, and would take the same amount of recovery as his spinal fusion did. He said that they put a plate in, under the ribs and pectus, to straighten them out. It didn't sound like fun. When he was little, and we had the heart problems, the doctors suggested he have the surgery before kindergarten. However, when he reached the age of 4, they determined that there was not significant enough problems with the heart to warrant such a surgery. They told me that if we wanted the surgery for strictly cosmetic reasons, they would do it, but after research on it, I just didn't have the heart to put my little guy through that (he had been through enough at that time). Now I do regret him not having the surgery - but you never know and can't predict the future. I wish you well in finding out answers. > From: " suzanna_melik " suzanna_melik@... > Date: Thu May 18, 2006 2:04pm(PDT) >Subject: My spine curvature and chest deformity > >Hi,I am new to the group. I have scoliosis and chest deformity because >of it. I am 42 years old. My parents never paid attention to this. The >bulge in my chest really bothers me. I am wondering if anyone else had >this type of problem and what are the treatment options. > >Thanks, >Suzanna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 20, 2006 Report Share Posted May 20, 2006 > The specialist we saw is the one that has developed the new 3-D surgery for scoliosis. Hi, What is this new " 3-D " surgery you mentioned, or is there a good link I could go to that describes it? Thanks, Quote Link to comment Share on other sites More sharing options...
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