Re: Re: Hypoadrenal/Cortef (was: Raw Milk)

[Guest guest]

Well you are telling my story. I have been on hydrocortone (another brand

name for Cortef) since 1998. It took a little while to find the right dose

but at the beginning I was on 25 mg/day and now I am on 20 mg per day. I

wish I could say I have been able to get off it but I haven't. However

before I started it nothing was working for me and I was nearly non

functional. Once I started taking it, it was nothing short of a miracle. I

had been sick a long time and was just not getting better. I

tried boosting my adrenals with diet and supplements but nothing made much

difference.

I think I know why you r doctor doesn't like MckJefferies work. There was a

study published in Octl 1998 in JAMA where they tested the low dose

cortisone theory and their conclusion was that it helped some people but

overall it was too dangerous because it caused adrenal suppression. Well

the problem with that study was that they really skrewed it up. What they

did was take a bunch of CFS patients and give them either 25 mg or 30mg of

cortisone according to their body surface area. Why they did that who knows

but that is certainly not how you dose cortisone according to MckJefferies.

It is like if you decided to give a hypothyroid patient 2 or 3 grains of

thyroid according to their body surface area. You might help some people

that need that much but you would be having thyroid storm going on everywhere.

I too have had some doctors telling me that 25 mg is too much and too

dangerous but no one can tell me why. It just is. I suspect it is that

study but as far as I know no one has challanged it. It is maddening to me

because if it really is a problem I would like to know. But that study is

really bogus.

Having said all that, I have not been able to get off the cortisone but I

ahven't been able to get off my thyroid meds either. I don't think it is

harming me but who knows. I got pregnant while on it. The pregnancy went

fine. The delivery was a killer in part because no one knew how much

cortisone I would need. But my son 15 months old and is quite fine.

You might want to read Mck Jefferies book. It is a lot to slog through

though. And also From Fatigued to Fantastic, by Teilelbaum.

Also my DX works with people by phone so if you want her info email me

privately.

Good luck,

Irene

At 08:26 AM 7/19/03, you wrote:

>I'm very interested in anyone's experience taking cortef -- dosage,

>how long you've taken, if you've been able to get off. I know that

>I'm hypoadrenal and have wanted to avoid cortef and pursue more

>natural treatments, but I haven't had much luck.

>

>I keep wondering if I should try cortef, but my wholistic doctor (not

>WAPF) absolutely won't give me cortef even at the low dose of 5mg.

>She says even at that level she has patients that can't get off of

>it. She's not convinced by Jefferies work (I don't know if she's

>read it; I just know she's completely against cortef.)

>

>I'm not sure I understand why thyroid medication is o.k. to be on

>long-term/lifetime (I'm on that), but cortef is not o.k.

>

>I don't want to create new problems for myself by taking cortef, but

>I'm bone-weary of ill health.

>

>I'd appreciate hearing anyone's experience.

>

>

>

>

>--- In , Irene Musiol <irene@q...>

>wrote:

> > Well that has certainly been the case with me. In his book Dr, Mck.

> > Jefferies even supplements people with very mild insufficiency for

>that

> > very reason. To take the stress off the adrenals so they can

>repair. And

> > some people are able to get off the cortisol in time. I am hoping I

>will too.

> > It is funny, I never take cold medications or any of that stuff

>either but

> > I am taking the dreaded cortisone, albeit in very low doses.

> > Irene

>

>

>

>

[Guest guest]

Oh yes and my doctor has ahd people get off the cortisone. I think Mck

Jeffries has as well but I am not sure of that one. I did try to get a hold

of him once without luck. I found an email address but got no response. He

about 95 years old now if he is still alive.

Irene

>Well you are telling my story. I have been on hydrocortone (another brand

>name for Cortef) since 1998. It took a little while to find the right dose

>but at the beginning I was on 25 mg/day and now I am on 20 mg per day. I

>wish I could say I have been able to get off it but I haven't. However

>before I started it nothing was working for me and I was nearly non

>functional. Once I started taking it, it was nothing short of a miracle. I

>had been sick a long time and was just not getting better. I

>tried boosting my adrenals with diet and supplements but nothing made much

>difference.

>

>I think I know why you r doctor doesn't like MckJefferies work. There was a

>study published in Octl 1998 in JAMA where they tested the low dose

>cortisone theory and their conclusion was that it helped some people but

>overall it was too dangerous because it caused adrenal suppression. Well

>the problem with that study was that they really skrewed it up. What they

>did was take a bunch of CFS patients and give them either 25 mg or 30mg of

>cortisone according to their body surface area. Why they did that who knows

>but that is certainly not how you dose cortisone according to MckJefferies.

>It is like if you decided to give a hypothyroid patient 2 or 3 grains of

>thyroid according to their body surface area. You might help some people

>that need that much but you would be having thyroid storm going on everywhere.

>I too have had some doctors telling me that 25 mg is too much and too

>dangerous but no one can tell me why. It just is. I suspect it is that

>study but as far as I know no one has challanged it. It is maddening to me

>because if it really is a problem I would like to know. But that study is

>really bogus.

>

>Having said all that, I have not been able to get off the cortisone but I

>ahven't been able to get off my thyroid meds either. I don't think it is

>harming me but who knows. I got pregnant while on it. The pregnancy went

>fine. The delivery was a killer in part because no one knew how much

>cortisone I would need. But my son 15 months old and is quite fine.

>

>You might want to read Mck Jefferies book. It is a lot to slog through

>though. And also From Fatigued to Fantastic, by Teilelbaum.

>

>Also my DX works with people by phone so if you want her info email me

>privately.

>

>Good luck,

>Irene

[Guest guest]

I used it for about a year. It really didn't help. It isn't really a

natural version of cortef. It is some sort of dessicated adrenal but there

is no hormone in it. My doctors says that it helps some people though.

Irene

At 05:34 PM 7/19/03, you wrote:

>You might want to look at ISOCORT it's a natural version of

>cortef. Thyroid meds will not work if your adrenals are

>dysfunctional.

>-Vee

>

>

>

[Guest guest]

opalv214 wrote:

> Thyroid meds will not work if your adrenals are dysfunctional.

Not at all? Any type and severity of dysfunction?

Roman

[Guest guest]

Actually they do, at least they did for me. I was on thyroid 4 years before

starting cortisone and I definitely improved with the thyroid meds. But

there is synergism between cortisol and thyroid hormone. Thyronin for sure.

Irene

At 11:05 PM 7/19/03, you wrote:

>opalv214 wrote:

>

> > Thyroid meds will not work if your adrenals are dysfunctional.

>

>Not at all? Any type and severity of dysfunction?

>

>Roman

>

>

>

>