Work

[Guest guest]

Hey Kristi!

Yes, I have a job that pays very well. My position is more like an added

extra help for the dr. I work for. It's just him & his wife that run the

bizness, but they need my help cuz paperwork get SOO backed up! They did

purchase for me a cordless headset phone, so I could run from the desk to

the rooms if needed. As far as being sick, they understand my illness,

and are very flexable w/ my needs. I do have my own van to get to work, &

I've got 24 hour nurses who drive me anywhere. I got the van from a

benefit my family had to raise $$ for it. I am not trying to brag but I

must say my van *ROCKS*!! It's my dream come true!

~jodi

[Guest guest]

Jodi,

Do you stay at work by yourself all day or does your nurse set with

you? Do you have much use of your hands and arms? I did up until about

2 years ago. I type on the computer using an on-screan keyboard and

the mouse. I also have a headset telephone here at home because I

can't hold the phone up to my ear but someone has to put it on my head

and dial the phone number for me. I only get a nurse 3 hr per day and

2 hr on the weekend. I have been selling stuff on the internet but my

mom has to help me and I pay her because I can't pack and ship things

and I can't write to sign checks, balance checkbook, write addresses.

All I can do is the computer part. I was just trying to find a way to

be more independent and like other people my age.

Kristi

> Hey Kristi!

>

> Yes, I have a job that pays very well. My position is more like an added

> extra help for the dr. I work for. It's just him & his wife that run the

> bizness, but they need my help cuz paperwork get SOO backed up! They did

> purchase for me a cordless headset phone, so I could run from the

desk to

> the rooms if needed. As far as being sick, they understand my illness,

> and are very flexable w/ my needs. I do have my own van to get to

work, &

> I've got 24 hour nurses who drive me anywhere. I got the van from a

> benefit my family had to raise $$ for it. I am not trying to brag but I

> must say my van *ROCKS*!! It's my dream come true!

>

> ~jodi

[Guest guest]

Hi Kris!

I'm never NEVER alone! Unless I ditch my nurse to go for a walk w/ my dog

to the park but still then I am being watched cuz my apt window faces the

park

My nurse helps me w/ EVERYTHING!! I am basically like a quad w/ feeling.

No use of hands/arms/legs/ nothing! but I can write if my arms pulled

up. and I can dial both my speaker phone & headset (after it's on my

head)

I have nrsg 24/7 my dr. wrote for that so thats what I get, I couldnt be

left alone for too long cuz of my secretions are SOO much. I've got MA

for my insurance, and I've heard MN is the best state to live in as far

as benefits, and such. But, DAMN it's cold here!=)

~jodi

[Guest guest]

Wow! I am envious! You even habe a dog? I am not allowed a dog because

I can't take care of it. How do you? Do you think you have 24/7 care

because you live on your own? I live with my parents. I don't see how

I could live on my own. Do you have the same nurse all the time? What

do you do if they call in sick? Who takes care of you?

Kristi

> Hi Kris!

> I'm never NEVER alone! Unless I ditch my nurse to go for a walk w/

my dog

> to the park but still then I am being watched cuz my apt window

faces the

> park

> My nurse helps me w/ EVERYTHING!! I am basically like a quad w/

feeling.

> No use of hands/arms/legs/ nothing! but I can write if my arms pulled

> up. and I can dial both my speaker phone & headset (after it's on my

> head)

>

> I have nrsg 24/7 my dr. wrote for that so thats what I get, I couldnt be

> left alone for too long cuz of my secretions are SOO much. I've got MA

> for my insurance, and I've heard MN is the best state to live in as far

> as benefits, and such. But, DAMN it's cold here!=)

>

> ~jodi

[Guest guest]

Umm...how do you afford 24 hour nursing care?

Re: Re:work

Hey Kristi!

Yes, I have a job that pays very well. My position is more like an added

extra help for the dr. I work for. It's just him & his wife that run the

bizness, but they need my help cuz paperwork get SOO backed up! They did

purchase for me a cordless headset phone, so I could run from the desk to

the rooms if needed. As far as being sick, they understand my illness,

and are very flexable w/ my needs. I do have my own van to get to work, &

I've got 24 hour nurses who drive me anywhere. I got the van from a

benefit my family had to raise $$ for it. I am not trying to brag but I

must say my van *ROCKS*!! It's my dream come true!

~jodi

[Guest guest]

On Sat, 25 May 2002 11:54:57 -0500 <those2@...> writes:

> Umm...how do you afford 24 hour nursing care?

>

>

I have Medical Assistance.

~jodi

[Guest guest]

oops...never mind

> I have nrsg 24/7 my dr. wrote for that so thats what I get, I couldnt be

> left alone for too long cuz of my secretions are SOO much. I've got MA

> for my insurance, and I've heard MN is the best state to live in as far

> as benefits, and such. But, DAMN it's cold here!=)

>

> ~jodi

Re: Re:work

Hey Kristi!

Yes, I have a job that pays very well. My position is more like an added

extra help for the dr. I work for. It's just him & his wife that run the

bizness, but they need my help cuz paperwork get SOO backed up! They did

purchase for me a cordless headset phone, so I could run from the desk to

the rooms if needed. As far as being sick, they understand my illness,

and are very flexable w/ my needs. I do have my own van to get to work, &

I've got 24 hour nurses who drive me anywhere. I got the van from a

benefit my family had to raise $$ for it. I am not trying to brag but I

must say my van *ROCKS*!! It's my dream come true!

~jodi

[Guest guest]

yes, im wondering too?...i know the only way i could get more PA hrs is if i

was vented (I dont know if id get 24 hr care then?) or if i was living on my own

then i could trade a room for rent free in exchange for some PA hrs...when i get

a job, i think i will lose what hrs i do have now.

lauren

those2@... wrote: Umm...how do you afford 24 hour nursing care?

Re: Re:work

Hey Kristi!

Yes, I have a job that pays very well. My position is more like an added

extra help for the dr. I work for. It's just him & his wife that run the

bizness, but they need my help cuz paperwork get SOO backed up! They did

purchase for me a cordless headset phone, so I could run from the desk to

the rooms if needed. As far as being sick, they understand my illness,

and are very flexable w/ my needs. I do have my own van to get to work, &

I've got 24 hour nurses who drive me anywhere. I got the van from a

benefit my family had to raise $$ for it. I am not trying to brag but I

must say my van *ROCKS*!! It's my dream come true!

~jodi

[Guest guest]

in MN medicaid pays for 24 hr care if you have complex respiratory issues.

n.

From: Biancucci <laurenmarie791@...>

Reply-

Date: Sat, 25 May 2002 12:40:09 -0700 (PDT)

Subject: RE: Re:work

yes, im wondering too?...i know the only way i could get more PA hrs is if i

was vented (I dont know if id get 24 hr care then?) or if i was living on my

own then i could trade a room for rent free in exchange for some PA

hrs...when i get a job, i think i will lose what hrs i do have now.

lauren

those2@... wrote: Umm...how do you afford 24 hour nursing care?

Re: Re:work

Hey Kristi!

Yes, I have a job that pays very well. My position is more like an added

extra help for the dr. I work for. It's just him & his wife that run the

bizness, but they need my help cuz paperwork get SOO backed up! They did

purchase for me a cordless headset phone, so I could run from the desk to

the rooms if needed. As far as being sick, they understand my illness,

and are very flexable w/ my needs. I do have my own van to get to work, &

I've got 24 hour nurses who drive me anywhere. I got the van from a

benefit my family had to raise $$ for it. I am not trying to brag but I

must say my van *ROCKS*!! It's my dream come true!

~jodi

[Guest guest]

It depends on what benefits you're on. Are you on just SSI? Also SSDI? If you

have Medicare I assume you're on SSDI. Any other source of income? Married?

Alana

Work

Hello to everyone. I have a question about working. How does working

effect our medical/medicare, and SSI. I've never worked but plan and

wish too. Thanks

[Guest guest]

thats a life insurance policy, not health care coverage. for most

career jobs, you get health care coverage if you pay the fees. you

just gotta watch out which HMOs they use and what the health care

coverage actually covers.

my last job was amazing. they have a policy of getting a life

insurance policy on every employee without a medical exam. when i

left, if i contacted the company and continued to pay within 30 days,

id keep it without a medical exam...so my parents kinda lucked out and

finally got a nice life insurance policy on me.

~Kendra

> Yeah if it is a good job.. but lots of insurances wont

> cover us since we have a life threatening disease.

> They are afraid we'll croke in a month and they'll

> have to pay up! Reg medical coverage is possible..

> like dental and junk.

>

[Guest guest]

not quite correct. i've been work for 10 yrs. no more ssi, but still have

medi-cal and ihss. i will send an explanation of the regs and procedures when i

get home.

alana

Re: Work

When you get a job, they take whatever pay you get and

subtract it from SSI. For example if you get a job and

make $300, they take that out of your SSI check

amount. If your job pays you more than what you get in

SSI, you loose SSI and medical. At least thats how it

works here.

[Guest guest]

Rules for Folks on SSI and Working

There is a formula that SSA uses for SSI recipients with additional income

from employment. Please note that there are different rules for blind or

self-employed beneficiaries. There are also different rules for SSI

recipients with unearned income such as SSDI, alimony, etc.

THE SSI WORK INCENTIVE FORMULA

- The 1st $85.00 you earn in a month doesn't count against your SSI.

- After that, for every dollar you earn, half ($.50) is deducted from your

SSI. The other half you keep.

- SSA uses your GROSS income (before taxes and deductions) when making

these calculations.

For example:

If in July you earn $800 gross, and if your monthly SSI is $780, and if you

report your income by August 10th:

$800.00 (gross earned income)

- $85.00 (allowable earned income)

--------

$715.00 divided by 2 = $357.50 (countable income)

So, you keep $85.00, and you keep $357.50, and SSA reduces your September

SSI by $357.50 (July's countable income) paying you $422.50 in Sept.

IMPAIRMENT RELATED WORK EXPENSES (IRWE's)

You may deduct the cost of out-of-pocket expenses that relate to your

disability AND work.

Examples:

Acupuncture to manage pain

Adaptive software or equipment to use at work

Vitamin supplements

Prescription co-payments

PAS not covered by another source but required for work

Transportation in a modified vehicle

There is not a standard list of deductions allowed. They are determined on

an individual basis. One may be required to provide justification from a

medical practitioner.

THE SSI WORK INCENTIVE FORMULA w/IRWE's

If in July you earn $800 gross, and if your monthly SSI is $780, and if you

report your income by August 10th, and you spend $100 on IRWE's:

$800.00 (gross earned income)

- $85.00 (allowable earned income)

--------

$715.00

-$100.00 (IRWE's)

--------

$615.00 divided by 2 = $307.50 (countable income)

So, you keep $85.00, and you keep $307.50, and SSA reduces your September

SSI by $307.50 (July's countable income) paying you $472.50 in Sept.

REPORTING INCOME

- Reporting your income in writing is required. Mail or bring in original

pay stubs and original receipts for IRWE's. SSA will make copies and

return the originals to you. No matter what anyone tells you, it is NOT

possible to officially report your income over the phone.

- You should report your income by the 10th day of the following month in

which you earned money. It doesn't count WHEN you WORKED...It counts WHEN

you were PAID. Ex: If you work all February and get paid on March 1st,

it's March income to be reported by April 10th. Get paid on July 12th &

26th, report your income to SSA by August 9th, and your September SSI check

will be reduced accordingly.

MEDICAID (MEDI-CAL IN CALIFORNIA) & IHSS

If your earnings are high enough for the formula to make your SSI payments

go down to $0.00, you are automatically put into a category called

1619b. This is a section of the Social Security Act that maintains your

Medicaid eligibility if your earnings and any other existing insurance

cannot support your medical needs.

Example:

I earn $2,200.00/mo. gross. I have medical insurance through my employer,

but it doesn't cover my in-home care. My Medicaid eligibility keeps me

eligible for IHSS that pays $2,688.50/mo. for in-home care that I could

never afford. I only have to keep reporting my income every month to SSA.

THINGS TO KEEP IN MIND

SSA is like Mc's. Mc's makes the same thing every day over and

over with few errors. If you ask them to hold the pickle, many things will

likely go wrong. SSA sends the right checks to the right people every

month bigger and better than anyone in the world. They define disability

as an inability to work. When you work you are contradicting the SSA

definition, hence, you're messing with a big machine. It's like you're

telling SSA to hold the pickle, and many things will likely go wrong. KEEP

all your paperwork! There is no statute of limitations on SSA looking back

and questioning earnings and SSI payments.

It's best to either have stable income so the future reduction in SSI

doesn't hurt, or to set your earnings aside 'til the month your SSI goes down.

Most of this info. is in the Social Security Red Book of Work

Incentives. You can get is at you SSA office or on line at

http://www.ssa.gov/work/ResourcesToolkit/redbook.html. Be sure to get the

2003 version. 2004 is not out yet.

At 07:31 PM 1/13/04 +0000, you wrote:

>Hello to everyone. I have a question about working. How does working

>effect our medical/medicare, and SSI. I've never worked but plan and

>wish too. Thanks

>

>

[Guest guest]

This system sucks. It needs to be drastically changed. I've been

denied transportation coverage ($60/day for ambulette service) if I

work, so I have to pay it myself. It isn't worth it. Also, they don't

keep in mind the housing situation some people are in. When they

deduct half of everything after the first $85, my rent changes (I'm in

a HUD residence with Section 8) so not only do I pay more because of

the extra money I earned from working, but they also take the part of

the $85 SSI says I can keep. In the end, I end up paying so much out

of pocket and forfeiting luxeries I can have now, such as cable and

internet, because, quite frankly, the system keeps me living in

poverty at $7000/year or living in poverty at a lower amount because I

chose to try to be a hard working citizen and benefit my state.

I don't know how many times I've explained this to my social security

worker (who won't get off my booty about getting a job), written

letters to those of authority, etc... nothing changes. All these new

" incentives " are not incentives. Sorry, but I'm not about to take my

five years of university education and work at a $2.50/hour job at a

specific location because now I have a ticket that says I can

work...oooh! big deal. I know I can work - I need help transitioning -

transportation, situational consideration. The only way I'm getting

off the system and earning an income is if I get a $25,000/year salary

with full medical benefits and paid transportation. And that's just

cutting even... (before I'm forced to spend the money to find a new

apartment since my lease will end once I'm off the system)!

~Kendra

> >Hello to everyone. I have a question about working. How does working

> >effect our medical/medicare, and SSI. I've never worked but plan and

> >wish too. Thanks

> >

> >

[Guest guest]

Good luck to all. There's a lot wrong with this system, but parts work if

you can wade through the red tape and misinformation. I and many other

work incentive advocates are still working on reforms. The current

administration wants us to work but doesn't want to fund the

supports. We'll keep advocating. Bring it on...

At 07:53 PM 1/13/04 -0800, you wrote:

>Alana,

>This is such valuable info you have given. I saved the email from way

>back when you had explained it before to me -- I had these same questions

>and had been getting wrong answers (like Holly stated) ... You explained

>it in very easy terms, so I suggest people save the post --it comes in handy!

>

>

[Guest guest]

Kendra...Thanks for the feedback. I can't agree more. It's better, but it

still sucks. May I share your situation with a colleague?

At 04:13 AM 1/14/04 +0000, you wrote:

>This system sucks. It needs to be drastically changed. I've been

>denied transportation coverage ($60/day for ambulette service) if I

>work, so I have to pay it myself. It isn't worth it. Also, they don't

>keep in mind the housing situation some people are in. When they

>deduct half of everything after the first $85, my rent changes (I'm in

>a HUD residence with Section 8) so not only do I pay more because of

>the extra money I earned from working, but they also take the part of

>the $85 SSI says I can keep. In the end, I end up paying so much out

>of pocket and forfeiting luxeries I can have now, such as cable and

>internet, because, quite frankly, the system keeps me living in

>poverty at $7000/year or living in poverty at a lower amount because I

>chose to try to be a hard working citizen and benefit my state.

>

>I don't know how many times I've explained this to my social security

>worker (who won't get off my booty about getting a job), written

>letters to those of authority, etc... nothing changes. All these new

> " incentives " are not incentives. Sorry, but I'm not about to take my

>five years of university education and work at a $2.50/hour job at a

>specific location because now I have a ticket that says I can

>work...oooh! big deal. I know I can work - I need help transitioning -

>transportation, situational consideration. The only way I'm getting

>off the system and earning an income is if I get a $25,000/year salary

>with full medical benefits and paid transportation. And that's just

>cutting even... (before I'm forced to spend the money to find a new

>apartment since my lease will end once I'm off the system)!

>

>~Kendra

[Guest guest]

I have always been told that the region in New York State (where I

live) between Syracuse, Ithaca and Rochester is considered a golden

triangle by disability rights advocates. This is partly because

there are more colleges and universities per sqaure mile than

anywhere else in the country. I formerly worked at a company in

Ithaca that hired almost exclusively wheelchair users. They were

mostly computer analysts who graduated from the technical college for

disabled individuals at RIT in Rochester. The owner was a graduate

of Cornell who uses a walker, and was very aggressive about hiring

people like himself who are highly motivated and just needed

accomodations at work. It was the best place I ever worked! I was

only one of 2 people there who did not use a wheelchair or other

mobility device.

Since my daughter was disabled, I have realized that we are extremely

lucky to be living where we do. Disability Rights groups have more

influence here than many other places. You rarely hear about an

automatic door not working at Cornell because it would practically

cause a riot of demonstrators. I cannot think of a public building

that we cannot access. At least, anywhere that we would really want

to go.

Everywhere we go, I see disabled people quite integrated around

here. There's a wheelchair user who runs the register at &

Noble. A City councilwoman is developmentally disabled. In

Rochester, all the businesses use TDY equipment because it seems that

every third person you meet there is deaf because of the nationally

prominant school for the deaf. In talking to employers, I know that

employment of anyone who can do the job is mostly not an issue here.

Simple accomodation for people is considered part of

the " enlightened " college town atmosphere.

Jerry

[Guest guest]

Absolutely!! Any way I can help, please ask!

~Kendra

> >This system sucks. It needs to be drastically changed. I've been

> >denied transportation coverage ($60/day for ambulette service) if I

> >work, so I have to pay it myself. It isn't worth it. Also, they don't

> >keep in mind the housing situation some people are in. When they

> >deduct half of everything after the first $85, my rent changes (I'm in

> >a HUD residence with Section 8) so not only do I pay more because of

> >the extra money I earned from working, but they also take the part of

> >the $85 SSI says I can keep. In the end, I end up paying so much out

> >of pocket and forfeiting luxeries I can have now, such as cable and

> >internet, because, quite frankly, the system keeps me living in

> >poverty at $7000/year or living in poverty at a lower amount because I

> >chose to try to be a hard working citizen and benefit my state.

> >

> >I don't know how many times I've explained this to my social security

> >worker (who won't get off my booty about getting a job), written

> >letters to those of authority, etc... nothing changes. All these new

> > " incentives " are not incentives. Sorry, but I'm not about to take my

> >five years of university education and work at a $2.50/hour job at a

> >specific location because now I have a ticket that says I can

> >work...oooh! big deal. I know I can work - I need help transitioning -

> >transportation, situational consideration. The only way I'm getting

> >off the system and earning an income is if I get a $25,000/year salary

> >with full medical benefits and paid transportation. And that's just

> >cutting even... (before I'm forced to spend the money to find a new

> >apartment since my lease will end once I'm off the system)!

> >

> >~Kendra

[Guest guest]

Thank you, Kendra! I collaborate with Bryon Mac at the World

Institute on Disability on this policy stuff. The work incentives

themselves work ok if one is able to navigate them - no easy feat. The

problems we're seeing are often related to what you described. Poor or no

collaboration in work incentive policy regarding other support services

such as housing subsidies and transportation, etc. I'm going to forward

your profile and do some pondering and research. What county/city do you

live in?

Thanks,

Alana

At 03:44 PM 1/14/04 +0000, you wrote:

>Absolutely!! Any way I can help, please ask!

>

>~Kendra

>

>

>

> > >This system sucks. It needs to be drastically changed. I've been

> > >denied transportation coverage ($60/day for ambulette service) if I

> > >work, so I have to pay it myself. It isn't worth it. Also, they don't

[Guest guest]

Rensselaer County in the city of Rensselaer, NY.

> > > >This system sucks. It needs to be drastically changed. I've been

> > > >denied transportation coverage ($60/day for ambulette service) if I

> > > >work, so I have to pay it myself. It isn't worth it. Also, they

don't

[Guest guest]

Kendra,

Does your city offer a para-transit system or Metro accessible buses? Many

areas are beginning to comply with ADA mandates. In Houston, all the " big "

Metro routes/buses are lift equipped and they offer a para-transit system

called MetroLift. It costs $1.15 a trip or you can buy a monthly pass. My

employer pays most of the cost of my passes (as they do for all Metro bus

riders). So, MetroLift

(http://www.ridemetro.org/services/metrolift.asp )...not perfect by any

means but definitely a good service. I take it to work and my husband picks

me up in the afternoon. If you don't have this type of service in your area

perhaps you or your local advocacy group can go to your transit authority

and say, " hey, we need this type of service....etc. "

I was very nervous about all the issues when I was about to graduate too.

So many things to consider!

I hope everything good for you! It will work out somehow!

L

Re: Work

This system sucks. It needs to be drastically changed. I've been

denied transportation coverage ($60/day for ambulette service) if I

work, so I have to pay it myself. It isn't worth it. Also, they don't

keep in mind the housing situation some people are in. When they

deduct half of everything after the first $85, my rent changes (I'm in

a HUD residence with Section 8) so not only do I pay more because of

the extra money I earned from working, but they also take the part of

the $85 SSI says I can keep. In the end, I end up paying so much out

of pocket and forfeiting luxeries I can have now, such as cable and

internet, because, quite frankly, the system keeps me living in

poverty at $7000/year or living in poverty at a lower amount because I

chose to try to be a hard working citizen and benefit my state.

I don't know how many times I've explained this to my social security

worker (who won't get off my booty about getting a job), written

letters to those of authority, etc... nothing changes. All these new

" incentives " are not incentives. Sorry, but I'm not about to take my

five years of university education and work at a $2.50/hour job at a

specific location because now I have a ticket that says I can

work...oooh! big deal. I know I can work - I need help transitioning -

transportation, situational consideration. The only way I'm getting

off the system and earning an income is if I get a $25,000/year salary

with full medical benefits and paid transportation. And that's just

cutting even... (before I'm forced to spend the money to find a new

apartment since my lease will end once I'm off the system)!

~Kendra

> >Hello to everyone. I have a question about working. How does working

> >effect our medical/medicare, and SSI. I've never worked but plan and

> >wish too. Thanks

> >

> >

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[Guest guest]

We have STAR (Special Transportation Available by Request) for the

disabled community. There are many problems with this, however. When I

first applied, I was told I wasn't " disabled enough. " I asked them how

I was supposed to get on our fixed route buses when 1...I couldn't

open the doors to even get in/out of my building, 2...I can't access

any of the sidewalks because the city is so old and they have not yet

made curb cuts, 3...couldn't access a sidewalk even if I were on it

since the tree roots had torn it up so bad most places hadn't cement

left... the list just keeps going, especially when winter comes around

and snow falls and the cold is too much for me to wait in, etc etc

etc... After finally appealing the decision three times, I got

seasonal transportation (November 1st - March 31st). I fought against

that as well and just recently (this past August, after originally

applying in October 2001) I am able to ride all year round.

Now the issues come, they aren't required to actually go get you when

you call to schedule. I was put on a schedule for work and school this

semester, the night before I called up to make sure I was still set

and I had been taken off the route for the next two weeks because they

were too busy and wouldn't do anything to help me (i.e. pick me up

earlier or later); they just refused. I had my VESID counselor call

and my boss from Senator Clinton's office and nothing happened.

Not only this, they treat the person like crap. I've been called a

bitch and a crippled. I'll speak up (of course!!) and they just give

me a nasty face and hee-ho and grunt and moan. Their supervisors are

the same way. I've written to the Department of Transportation and

have requested for my boss to call/write there as well to clear up

some issues and get this system working for those that could use it

regularly. I don't know what else to do but keep submitting letters

and reporting idiots to idiot supervisors. (BTW, this issue has also

been published in local newspapers and I have yet to see anything done

about it or any community action to help this fight - not even from

our ILC [who told me they couldn't help me since I was " manuevering

the city fine " since I am attending school and interning when I went

for advocacy for medical issues!!!]!!!!)

~Kendra

> Kendra,

>

> Does your city offer a para-transit system or Metro accessible

buses? Many

> areas are beginning to comply with ADA mandates. In Houston, all

the " big "

> Metro routes/buses are lift equipped and they offer a para-transit

system

> called MetroLift. It costs $1.15 a trip or you can buy a monthly

pass. My

> employer pays most of the cost of my passes (as they do for all

Metro bus

> riders). So, MetroLift

> (http://www.ridemetro.org/services/metrolift.asp )...not perfect by any

> means but definitely a good service. I take it to work and my

husband picks

> me up in the afternoon. If you don't have this type of service in

your area

> perhaps you or your local advocacy group can go to your transit

authority

> and say, " hey, we need this type of service....etc. "

>

> I was very nervous about all the issues when I was about to graduate

too.

> So many things to consider!

>

> I hope everything good for you! It will work out somehow!

>

> L

[Guest guest]

Liz,

Your boss sucks!!! I think you should talk to someone about on -the- job harrassment, and take his stupid _____ to court...Although, maybe that is not possible in the U.K....(?)

I think that you have suffered w/ his ignorance long enough...Isnt there gov. assistance that could help? ( So you could quit that job) Or what about unemployment?

HRH

[Guest guest]

I bet Lida might have some experience with this type of harrassment. Have you been able to talk with her about this?

HRH

[Guest guest]

I agree,

your boss is a very unpleasant individual.If you need to talk to an adult

scoliosis support group based in the UK, you could do a lot worse than

www.scoliosis-support.org where you'll find some advice and a sympathetic

ear.As an adult who had infantile scoliosis myself I'm appalled by the

obvious prejudice and harrassment of an individual with a disability.It's

something I've not really encountered myself but I feel very angry on your

behalf.There are laws against bullying in the workplace and threatening to

cut your pay is unacceptable.

Sins

>From: HRHandCO@...

>Reply-infantile scoliosis treatment

>infantile scoliosis treatment

>Subject: Re: WORK

>Date: Tue, 14 Sep 2004 08:46:09 EDT

>

>Liz,

>

>Your boss sucks!!! I think you should talk to someone about on -the- job

>harrassment, and take his stupid _____ to court...Although, maybe that is

>not

>possible in the U.K....(?)

>I think that you have suffered w/ his ignorance long enough...Isnt there

>gov.

>assistance that could help? ( So you could quit that job) Or what about

>unemployment?

>

>HRH

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