Guest guest Posted November 7, 2002 Report Share Posted November 7, 2002 I'm not sure about the IgA but Macey's been on both Polygam and Venoglobulin. Both went well. Her IgA runs about 17. Ursula Holleman Macey's mom (7 yr. old with CVID, asthma, sinus disease, GERD, Diabetes Insipidus, colonic inertia) http://members.cox.net/maceyh Immune Deficiency Foundation - Peer Contact for GA http://www.primaryimmune.org / Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 9, 2002 Report Share Posted November 9, 2002 I just asked 's Immunologist about her " under 7 " IgA. He told me " under 7 " was very low and was a definite deficiency, but " 17 " (not sure why he picked that number) was a GOOD IgA level for a 2 yr old, so it seems to me that it varies with age. He told me it wouldn't change (although the IDF says there is a possibility to outgrow IgA deficiency, so I don't know how accurate that statement is). I am very limited in my knowledge of this as she was only diagnosed a few months ago, but this is what I've learned thus far. opinions > Our doctor called yesterday to discuss Rebekah's reaction to her last > infusion. We have been using gammaguard for seven infusions over the last > 11 months. He talked about moving her to polygam and said that it was > essentially the same thing or moving her to venoglobulin. Isn't > venoglobulin for people with IgA. He said that since Rebekah makes IgA, it > shouldn't be a problem. Unfortunately, I'm not sure that Rebekah makes IgA. > Three out of five IgA tests in the last 12 months show IgA as <4. The other > two say 14 or 20. One of those tests was from a lab that this doctor said > was worthless and told me to ignore any and all results from that lab. > > So, should I call the doctor back and ask more about this? If her IgA test > ever went to 14 or 20, are those good values? What about the <4 tests? Can > IgA vary that much? > > Pam > mom to 4 > Rebekah, 3, CVID > > > This forum is open to parents and caregivers of children diagnosed with a Primary Immune Deficiency. Opinions or medical advice stated here are the sole responsibility of the poster and should not be taken as professional advice. > > To unsubscribe -unsubscribegroups (DOT) > To search group archives go to: /messages > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 10, 2002 Report Share Posted November 10, 2002 From: " Pam Mork " <pmork@...> <snip>.... He talked about moving her to polygam and said that it was essentially the same thing or moving her to venoglobulin. Isn't venoglobulin for people with IgA. He said that since Rebekah makes IgA, it shouldn't be a problem. Unfortunately, I'm not sure that Rebekah makes IgA. Three out of five IgA tests in the last 12 months show IgA as <4. The other two say 14 or 20. One of those tests was from a lab that this doctor said was worthless and told me to ignore any and all results from that lab. So, should I call the doctor back and ask more about this? If her IgA test ever went to 14 or 20, are those good values? What about the <4 tests? Can IgA vary that much? <end quoted message, begin response>: Pam, I'm not as well-versed in the details of IgA testing ranges/readings, as many of the moms in this group are -- those with IgA deficient children will be far better resources than I. But I can tell you that every lab has just slightly different ranges, even for the same test and age group, because of different protocols for running the tests. As a result, most Ig results are relatively meaningless, without the ranges alongside. And, although the medical literature is slightly unclear as to the degree or direction, there's a chance that some Ig's will vary with health status (infected or not, degree of infection/duration of infection, etc), and they certainly change over time (and the Ig ranges certainly change every year or two until you reach adulthood), making it even more dificult to interpret the numbers. If that's not enough, I know that had to take into account 's lactose problems, to get a more accurate IgA level (I cannot fully explain that, but I know it was an important distinction for . If anyone is changing brands, or needs to check out the details of particular IVIG brands for one reason or another, here's a good spreadsheet of the pertinent data: http://www.ivig.com/ivig.html And here's a great comparison chart: http://www.ivig.com/pdfs/IVIG_product_comparison.pdf (scroll down to the IVIG table -- it shows the various brands, and their details and distinctions). You need Adobe Acrobat reader, but most people already have that. If not, it's a free download from the Adobe.com site. Hope that's helpful! Take care, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 4, 2004 Report Share Posted March 4, 2004 YOU STALLION! 10 reps with 90 pounds?!?! Given the history and the bruise location I would have thought infraspinatus and or teres minor. BTW, I'm assuming this wasn't a complete tear ie rupture of the s.spinatus. First off, I don't care how tuff you are, 295 bench - on your second day back - after several month lay off - for a 42 year old - following a significant injury - is just...well...not a good idea. What would I tell a patient with that history? Two words...WELL, DUH! But I fancy myself as a 43 year old stallion so I can sympathize with your zest. But remember, those highly vascularized tissues get stronger much quicker than the avascular tissues. Anyhoo, that's water under the bridge, but here's what I would tell a patient. You're starting over. As Stonebrink would have said, you have an injury superimposed on an existing injury. Not good. He also would have said if it hurts when you do that...don't do that. Again, H20 under the bridge. RICE initially, now heat and soft tissue massage with cross friction massage over the injury, stretch the capsule 180 degrees (or as close as you can get)from the labrum tear, proteolytic enzymes assuming you're within a two to three week window, mega dose vit C, a couple grams of glucosamine sulphate/day and of course adjustments to the cervical and thoracic spine. Plus I always adjust the upper ribs with a shoulder. Next get back in the gym (minus the oxen mentality) with 15-25 repetitions of very light weight (hint: less than body weight plus 90 pounds) I'd say 20-30 pounds max (maybe less - if it hurts when you do that, don't do that with so much weight) lat pull downs on a cable machine in front and behind your neck. Lightweight dumbbell bent rows (10-15 pounds max, high reps), lightweight lateral flys with elbow maximally flexed - full extension hurts. Also, lie on your side, elbow flexed to 90 and held tight to the side and do external rotations with embarrassingly light weight (yes, the old lady dumbbells - 2-4 pounds). Bench really hurts my bad shoulder (partial AC separation) but dumbbell bench on an incline doesn't - plus I like the neuro aspects of dumbbells better than barbell work when feasible. Also, look at the current theories on achilles tendinosis (not itis) there seems to be some sort of molecular change in the achilles collagen that predisposes to rupture, and it's not the typical micro-trauma/inflammatory etiology we would presume. I suspect there's an element of the same molecular changes in all of us geezer's connective tissues, maybe even the labrum, and the weekend warrior mentality exposes the weakness. It probably takes several months, if not years of progressive training to restore the normal integrity of previously sedentary tissue given the avascular nature of those tissues. The days of the super heavy lifting may be over. Besides, there's nothing wrong with the higher rep type work. You could also experiment with the super slow type lifting variation (nice article on it in the latest issue of Journal of Strength and Conditioning Research) and a nice method of introducing some extra periodization to your training. Of course that's several months down the road. If you don't mind, I'll send you some exercises I've put together for the shoulder and you can try them, critique and hopefully give me some first hand suggestions. On the bright side (looking at the silver lining of this cloud) you'll have a chance to experience some of these conditions we've thought about from the patient's perspective. Good luck. Keep me posted on your progress and methods that have been helpful. Interesting report, but sorry it was first person. Don Corvallis Opinions Last August I was doing weighted pull ups. Felt a tear in my left posterior shoulder. Some pain immediately - enough to tell me to stop working out. I had pain for months in the posterior shoulder when doing bench presses - but none doing pull ups. I am an ox when it comes to pull ups - I was knocking off sets of 10 reps with 90 LBS strapped to my waist when something tore. Very bad pain for about 24 hours. Very bad. 48 hours later and it was sore but was moving more freely than it had in years. Thought I would go to the gym and was stretching when my wife said " WHAT DID YOU DO TO YOUR ARM? " . I looked and had a deep purple and blue bruise from the inferior aspect of the lateral scapula to the mid tricep. I decided to take it easy - very little pain for a Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 5, 2004 Report Share Posted March 5, 2004 In a message dated 3/5/04 12:54:08 AM Central Standard Time, dpeterson@... writes: << Given the history and the bruise location I would have thought infraspinatus and or teres minor. BTW, I'm assuming this wasn't a complete tear ie rupture of the s.spinatus. >> This is my thought exactly. First the MRI said it was a complete transmural tear of the supraspinatus - I actually believe I did this when I was 18. But 80% of my pain is the the posterior aspect of the shoulder, even on passive range of motion. 20% is on the ventral aspect. The ortho yesterday asked me if it hurt up front and I said YES, but then later thought " It does hurt some there but I should have told him essentially all the pain is in the back of the shoulder " I was certain it was a teres minor or infraspinatus due to the location and symptoms. When I was 18 I was doing Jujutsu and felt a pop in my left shoulder and was unable to raise it for a month or so and the injury was more consistent with supraspinatus - but this injury was more consistent with infraspinatus. Once again - does this ortho know jack-sh**? Your advice is well taken, I really appreciate it. I appreciate everyone's advice and private emails. I am going to go talk to a few of my chiro buddies locally as well now that I have the MRI. I had gone to them before, but now having the MRI may help. Anglen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 5, 2004 Report Share Posted March 5, 2004 In a message dated 3/5/04 12:54:08 AM Central Standard Time, dpeterson@... writes: << Given the history and the bruise location I would have thought infraspinatus and or teres minor. BTW, I'm assuming this wasn't a complete tear ie rupture of the s.spinatus. >> This is my thought exactly. First the MRI said it was a complete transmural tear of the supraspinatus - I actually believe I did this when I was 18. But 80% of my pain is the the posterior aspect of the shoulder, even on passive range of motion. 20% is on the ventral aspect. The ortho yesterday asked me if it hurt up front and I said YES, but then later thought " It does hurt some there but I should have told him essentially all the pain is in the back of the shoulder " I was certain it was a teres minor or infraspinatus due to the location and symptoms. When I was 18 I was doing Jujutsu and felt a pop in my left shoulder and was unable to raise it for a month or so and the injury was more consistent with supraspinatus - but this injury was more consistent with infraspinatus. Once again - does this ortho know jack-sh**? Your advice is well taken, I really appreciate it. I appreciate everyone's advice and private emails. I am going to go talk to a few of my chiro buddies locally as well now that I have the MRI. I had gone to them before, but now having the MRI may help. Anglen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 5, 2004 Report Share Posted March 5, 2004 Anyone think there is a ghosts chance the complete supra tear will spontaneously heal? Anglen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 5, 2004 Report Share Posted March 5, 2004 .....do you mean spontaneous kind of healing that occurs absent appropriate active treatment?..... ....the kind of spontaneous healing that maximizes the likelihood of most beneficial recovery to normal function?.... ....the spontaneous healing that will keep likelihood of reinjury at zero?.... ......no..... Jack Pedersen DC Curator, Long Odds Institute of Spontaneous Recoveries Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 5, 2004 Report Share Posted March 5, 2004 Thank you all for your kind advice. This comes at such an inconvenient time, and leaves me wishing I sure had decent disability insurance. 3-6 months downtime does not make me happy. I am amazed at how poorly trained MD's are at musculoskeletal diagnosis. Even the ortho surgeons. I have a copy of my medical notes from my PCP. In them he mentions that back on 9/8/03 I related that I thought I had torn my rotator cuff and my labrum. He disagreed and noted that my supraspinatus strength was 5/5 and felt I had a mild case of impingement syndrome. The MRI done a week ago confirms my Supra was completely torn and that indeed I had a torn labrum. I could have saved them the cost of the MRI if they had just listened to me. Now the hard part is not fooling my self that it will somehow heal spontaneously. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 6, 2004 Report Share Posted March 6, 2004 In a message dated 3/6/04 11:31:34 AM Central Standard Time, skrndc1@... writes: << Needing that mri on such an obvious dx gives us a prime example of one of the reasons health care costs are what they are. >> True Sunny. I like the fact the doctors office notes say specifically my supraspinatus strength was 5/5 - I guess that is one strong completely torn muscle. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 6, 2004 Report Share Posted March 6, 2004 Needing that mri on such an obvious dx gives us a prime example of one of the reasons health care costs are what they are. So much is unnecessary. Sunny Sunny Kierstyn, RN DC Fibromyalgia Care Center of Oregon 59 Santa Clara St., Eugene, Oregon, 97404 541-689-0935 Re: Opinions > Thank you all for your kind advice. This comes at such an inconvenient > time, > and leaves me wishing I sure had decent disability insurance. 3-6 months > downtime does not make me happy. I am amazed at how poorly trained MD's > are at > musculoskeletal diagnosis. Even the ortho surgeons. I have a copy of my > medical > notes from my PCP. In them he mentions that back on 9/8/03 I related that > I > thought I had torn my rotator cuff and my labrum. He disagreed and noted > that my > supraspinatus strength was 5/5 and felt I had a mild case of impingement > syndrome. The MRI done a week ago confirms my Supra was completely torn > and that > indeed I had a torn labrum. I could have saved them the cost of the MRI if > they > had just listened to me. Now the hard part is not fooling my self that it > will > somehow heal spontaneously. > > > > > OregonDCs rules: > 1. Keep correspondence professional; the purpose of the listserve is to > foster communication and collegiality. No personal attacks on listserve > members will be tolerated. > 2. Always sign your e-mails with your first and last name. > 3. The listserve is not secure; your e-mail could end up anywhere. > However, it is against the rules of the listserve to copy, print, forward, > or otherwise distribute correspondence written by another member without > his or her consent, unless all personal identifiers have been removed. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 6, 2004 Report Share Posted March 6, 2004 The question for me is 'how can someone with so much training miss by such a large margin of error, something that should be rather obvious?'.....and isn't the system redundancy supposed to catch this type of error? Which is why the MRI was in fact necessary.... So we have an otherwise qualified ortho doc making an exam and listing 5/5 strength on a completely torn muscle....the mind reels at what other mistakes could be possible....was he just inattentive, mistaken or where there other components of a well-conditioned individual that somehow obscured the tear? I wonder what his response would be to being sent the results of the MRI---would he be interested, irritated or what?? J. Pedersen DC Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 1, 2004 Report Share Posted April 1, 2004 > I hope I can express this correctly first thing in the morning, but > we are all different and probably sensitive after years of > discrimination. That is the nice thing about being here, we can > tell our feelings and not hold back, knowing that there is someone > out there/in here who knows exactly how we feel. > > Marta > whatever size the darn manufacturers decide to make me! lol..having > to return a size five for being too tight! I am with Marta on this one! And I have to say that this is one of the main reasons I have shied away from this board and others. We are all so individual and we cannot compare one to another. And we cannot (well, you know we can) get offended if someone makes a comment about one size or another. I am happy in my skin for the first time in my life and I will be damned if I am going to allow somoene or something to take that away from me. Love on eachother.. Life is so damn short as it is. Take care. Liz P. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 19, 2008 Report Share Posted July 19, 2008 Ana: Conroe ISD is horrible unless you happen to get the right teacher. They will fight you with every dollar they have, so if you plan on asking for anything, plan on having to fight for them up to and including due process. Hiring an advocate to attend all ARDs is a must. You can see video what happened of what Conroe did to my son and from what I hear from other parents, once they closed the autism program, their kids went downhill, too. There was another story on Fox26 about Conroe. Let me see if I can find that one. They were denying at services at all for a young boy who was clearly autistics, being raised by grandparents who had their retirement money drained and they just didn't have the energy to fight back. School probably knew that, too. It made me very angry. These two particular schools were in The Woodlands, and I hear that The Woodlands " gets more services " than the rest of the county, likely because the parents are so vocal about it. http://www.myfoxhouston.com/myfox/pages/ContentDetail?contentId=3249002 Hilda In a message dated 7/19/2008 9:51:39 A.M. Central Daylight Time, anacastner@... writes: Any opinions on " The Woodlands " for living and opinions on Conroe school district? How is Cypress and that school district? Thank you for your help, Ana **************Get fantasy football with free live scoring. Sign up for FanHouse Fantasy Football today. (http://www.fanhouse.com/fantasyaffair?ncid=aolspr00050000000020) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 19, 2008 Report Share Posted July 19, 2008 Ana: Conroe ISD is horrible unless you happen to get the right teacher. They will fight you with every dollar they have, so if you plan on asking for anything, plan on having to fight for them up to and including due process. Hiring an advocate to attend all ARDs is a must. You can see video what happened of what Conroe did to my son and from what I hear from other parents, once they closed the autism program, their kids went downhill, too. There was another story on Fox26 about Conroe. Let me see if I can find that one. They were denying at services at all for a young boy who was clearly autistics, being raised by grandparents who had their retirement money drained and they just didn't have the energy to fight back. School probably knew that, too. It made me very angry. These two particular schools were in The Woodlands, and I hear that The Woodlands " gets more services " than the rest of the county, likely because the parents are so vocal about it. http://www.myfoxhouston.com/myfox/pages/ContentDetail?contentId=3249002 Hilda In a message dated 7/19/2008 9:51:39 A.M. Central Daylight Time, anacastner@... writes: Any opinions on " The Woodlands " for living and opinions on Conroe school district? How is Cypress and that school district? Thank you for your help, Ana **************Get fantasy football with free live scoring. Sign up for FanHouse Fantasy Football today. (http://www.fanhouse.com/fantasyaffair?ncid=aolspr00050000000020) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 19, 2008 Report Share Posted July 19, 2008 Ana: Conroe ISD is horrible unless you happen to get the right teacher. They will fight you with every dollar they have, so if you plan on asking for anything, plan on having to fight for them up to and including due process. Hiring an advocate to attend all ARDs is a must. You can see video what happened of what Conroe did to my son and from what I hear from other parents, once they closed the autism program, their kids went downhill, too. There was another story on Fox26 about Conroe. Let me see if I can find that one. They were denying at services at all for a young boy who was clearly autistics, being raised by grandparents who had their retirement money drained and they just didn't have the energy to fight back. School probably knew that, too. It made me very angry. These two particular schools were in The Woodlands, and I hear that The Woodlands " gets more services " than the rest of the county, likely because the parents are so vocal about it. http://www.myfoxhouston.com/myfox/pages/ContentDetail?contentId=3249002 Hilda In a message dated 7/19/2008 9:51:39 A.M. Central Daylight Time, anacastner@... writes: Any opinions on " The Woodlands " for living and opinions on Conroe school district? How is Cypress and that school district? Thank you for your help, Ana **************Get fantasy football with free live scoring. Sign up for FanHouse Fantasy Football today. (http://www.fanhouse.com/fantasyaffair?ncid=aolspr00050000000020) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 20, 2008 Report Share Posted July 20, 2008 > > Any opinions on " The Woodlands " for living and opinions on Conroe school district? I also live in The Woodlands and have kids going to Conroe ISD. We have also had to fight the school district for everything. You don't say where you kid(s) are on the spectrum. Mine are on the upper end, very bright, and CISD doesn't have anything at all for them. They are 13yo twin boys, one with Asperger/Developmental Coordination Disorder/Executive Dysfunction/sensory issues and the other not dx'd, but with Asperger symptoms/attention issues/sensory issues. One has only a 504 although he needs an IEP for executive dysfunction and social skills, and we have to supply all his special education ourselves from home. We are lucky our insurance has unlimited speech and OT with doctor's referral. Anyway, like Hilda, we have found the quality of education varies greatly depending on the teacher. They have some really bad ones, but we have also had some excellent ones and everything in between. Same goes for the administrators. Maybe it is like that in all large school districts. As far as living goes--ironically, my kids love living in The Woodlands. It is a great place to live for NT people, or the NT side of people, maybe I should say. Our family is enjoying living here in general. My one complaint is that all the kids' activities here are expensive. Even our church charges money for everything because they hire help instead of using parent volunteers. We have to go across the freeway to Spring or Oak Ridge for " normal " kids activities (with normal price tags). Long story, but we aren't in a position to move, and I'm not convinced things would be any different for my kids with their particular situation in a school district like Cy-Fair/Spring Branch anyway. However, I have met other people that have moved from Cy-Fair to other school districts in the area, and they say there is a huge difference. All of them took the services they got in Cy-Fair for granted and had a big shock when their kid's IEPs started getting ignored in the new school district. Hope this helps. Ruth Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 20, 2008 Report Share Posted July 20, 2008 > > Any opinions on " The Woodlands " for living and opinions on Conroe school district? I also live in The Woodlands and have kids going to Conroe ISD. We have also had to fight the school district for everything. You don't say where you kid(s) are on the spectrum. Mine are on the upper end, very bright, and CISD doesn't have anything at all for them. They are 13yo twin boys, one with Asperger/Developmental Coordination Disorder/Executive Dysfunction/sensory issues and the other not dx'd, but with Asperger symptoms/attention issues/sensory issues. One has only a 504 although he needs an IEP for executive dysfunction and social skills, and we have to supply all his special education ourselves from home. We are lucky our insurance has unlimited speech and OT with doctor's referral. Anyway, like Hilda, we have found the quality of education varies greatly depending on the teacher. They have some really bad ones, but we have also had some excellent ones and everything in between. Same goes for the administrators. Maybe it is like that in all large school districts. As far as living goes--ironically, my kids love living in The Woodlands. It is a great place to live for NT people, or the NT side of people, maybe I should say. Our family is enjoying living here in general. My one complaint is that all the kids' activities here are expensive. Even our church charges money for everything because they hire help instead of using parent volunteers. We have to go across the freeway to Spring or Oak Ridge for " normal " kids activities (with normal price tags). Long story, but we aren't in a position to move, and I'm not convinced things would be any different for my kids with their particular situation in a school district like Cy-Fair/Spring Branch anyway. However, I have met other people that have moved from Cy-Fair to other school districts in the area, and they say there is a huge difference. All of them took the services they got in Cy-Fair for granted and had a big shock when their kid's IEPs started getting ignored in the new school district. Hope this helps. Ruth Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 20, 2008 Report Share Posted July 20, 2008 Ruth, Hilda and all who have responded,  Thank you all for your honesty. The reason I don't mention what level my children are at is that I have found some families don't like when children are described as high, low, verbal, non-verbal etc.  I have found these issues within our support group in PA. But I am more than happy to explain our situation as long as I don't offend anyone.   My 8 yr old (soon to be 9) was dx with PDD-NOS at 18 months old and is " high functioning. "  He is entering 3rd grade. His issues remain to be social skills and executive function type issues. He definately has rigidity issues which we constantly work on. Presently he receives occupational therapy in school for his handwriting and sensory issues. We let go of speech because the therapist at our school is awful and we didnt' feel it was worth it for him to lose time from the classroom. We supplement with outpatient speech therapy which our insurance and medicaid cover. Our school has a vision program called " Bridges " and he qualifies for this as well. In addition, he gets pulled to be supported minimally with math, but mostly for reading comprehension (those hidden meanings continue to be difficult for him.)  Our school district here lacks in implementing social skills groups or programs. So that has been a constant battle for us. He is fully included with typical kids and through our medicaid system we are provided with a one on one for him. She only spends 4 hours at school with him and we were planning to titrate those hours in the future, but now I'm concerned with this transition how he'll do.  My younger son is 7 and will be going into 1st grade. He too has Asperger's type symptoms and is immature in his social skills. He only qualified for speech in our school district this past year.  We too supplement at home with a tutor for our 8 yr. old and the one on one comes to our house once a week.  Thank you for letting me know about the cost of activities in the Woodlands. We are definately not in a position to be raked over the coals in order for the kids to be in NT activities.  I look forward to continue our emails and I will have more questions soon! Off to getting the house ready for sale!!!!!!!  Take care, Ana  Ana Subject: Re: Opinions To: Texas-Autism-Advocacy Date: Sunday, July 20, 2008, 11:25 AM > > Any opinions on " The Woodlands " for living and opinions on Conroe school district? I also live in The Woodlands and have kids going to Conroe ISD. We have also had to fight the school district for everything. You don't say where you kid(s) are on the spectrum. Mine are on the upper end, very bright, and CISD doesn't have anything at all for them. They are 13yo twin boys, one with Asperger/Developmen tal Coordination Disorder/Executive Dysfunction/ sensory issues and the other not dx'd, but with Asperger symptoms/attention issues/sensory issues. One has only a 504 although he needs an IEP for executive dysfunction and social skills, and we have to supply all his special education ourselves from home. We are lucky our insurance has unlimited speech and OT with doctor's referral. Anyway, like Hilda, we have found the quality of education varies greatly depending on the teacher. They have some really bad ones, but we have also had some excellent ones and everything in between. Same goes for the administrators. Maybe it is like that in all large school districts. As far as living goes--ironically, my kids love living in The Woodlands. It is a great place to live for NT people, or the NT side of people, maybe I should say. Our family is enjoying living here in general. My one complaint is that all the kids' activities here are expensive. Even our church charges money for everything because they hire help instead of using parent volunteers. We have to go across the freeway to Spring or Oak Ridge for " normal " kids activities (with normal price tags). Long story, but we aren't in a position to move, and I'm not convinced things would be any different for my kids with their particular situation in a school district like Cy-Fair/Spring Branch anyway. However, I have met other people that have moved from Cy-Fair to other school districts in the area, and they say there is a huge difference. All of them took the services they got in Cy-Fair for granted and had a big shock when their kid's IEPs started getting ignored in the new school district. Hope this helps. Ruth Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 20, 2008 Report Share Posted July 20, 2008 Ruth, Hilda and all who have responded,  Thank you all for your honesty. The reason I don't mention what level my children are at is that I have found some families don't like when children are described as high, low, verbal, non-verbal etc.  I have found these issues within our support group in PA. But I am more than happy to explain our situation as long as I don't offend anyone.   My 8 yr old (soon to be 9) was dx with PDD-NOS at 18 months old and is " high functioning. "  He is entering 3rd grade. His issues remain to be social skills and executive function type issues. He definately has rigidity issues which we constantly work on. Presently he receives occupational therapy in school for his handwriting and sensory issues. We let go of speech because the therapist at our school is awful and we didnt' feel it was worth it for him to lose time from the classroom. We supplement with outpatient speech therapy which our insurance and medicaid cover. Our school has a vision program called " Bridges " and he qualifies for this as well. In addition, he gets pulled to be supported minimally with math, but mostly for reading comprehension (those hidden meanings continue to be difficult for him.)  Our school district here lacks in implementing social skills groups or programs. So that has been a constant battle for us. He is fully included with typical kids and through our medicaid system we are provided with a one on one for him. She only spends 4 hours at school with him and we were planning to titrate those hours in the future, but now I'm concerned with this transition how he'll do.  My younger son is 7 and will be going into 1st grade. He too has Asperger's type symptoms and is immature in his social skills. He only qualified for speech in our school district this past year.  We too supplement at home with a tutor for our 8 yr. old and the one on one comes to our house once a week.  Thank you for letting me know about the cost of activities in the Woodlands. We are definately not in a position to be raked over the coals in order for the kids to be in NT activities.  I look forward to continue our emails and I will have more questions soon! Off to getting the house ready for sale!!!!!!!  Take care, Ana  Ana Subject: Re: Opinions To: Texas-Autism-Advocacy Date: Sunday, July 20, 2008, 11:25 AM > > Any opinions on " The Woodlands " for living and opinions on Conroe school district? I also live in The Woodlands and have kids going to Conroe ISD. We have also had to fight the school district for everything. You don't say where you kid(s) are on the spectrum. Mine are on the upper end, very bright, and CISD doesn't have anything at all for them. They are 13yo twin boys, one with Asperger/Developmen tal Coordination Disorder/Executive Dysfunction/ sensory issues and the other not dx'd, but with Asperger symptoms/attention issues/sensory issues. One has only a 504 although he needs an IEP for executive dysfunction and social skills, and we have to supply all his special education ourselves from home. We are lucky our insurance has unlimited speech and OT with doctor's referral. Anyway, like Hilda, we have found the quality of education varies greatly depending on the teacher. They have some really bad ones, but we have also had some excellent ones and everything in between. Same goes for the administrators. Maybe it is like that in all large school districts. As far as living goes--ironically, my kids love living in The Woodlands. It is a great place to live for NT people, or the NT side of people, maybe I should say. Our family is enjoying living here in general. My one complaint is that all the kids' activities here are expensive. Even our church charges money for everything because they hire help instead of using parent volunteers. We have to go across the freeway to Spring or Oak Ridge for " normal " kids activities (with normal price tags). Long story, but we aren't in a position to move, and I'm not convinced things would be any different for my kids with their particular situation in a school district like Cy-Fair/Spring Branch anyway. However, I have met other people that have moved from Cy-Fair to other school districts in the area, and they say there is a huge difference. All of them took the services they got in Cy-Fair for granted and had a big shock when their kid's IEPs started getting ignored in the new school district. Hope this helps. Ruth Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 20, 2008 Report Share Posted July 20, 2008 Ruth, Hilda and all who have responded,  Thank you all for your honesty. The reason I don't mention what level my children are at is that I have found some families don't like when children are described as high, low, verbal, non-verbal etc.  I have found these issues within our support group in PA. But I am more than happy to explain our situation as long as I don't offend anyone.   My 8 yr old (soon to be 9) was dx with PDD-NOS at 18 months old and is " high functioning. "  He is entering 3rd grade. His issues remain to be social skills and executive function type issues. He definately has rigidity issues which we constantly work on. Presently he receives occupational therapy in school for his handwriting and sensory issues. We let go of speech because the therapist at our school is awful and we didnt' feel it was worth it for him to lose time from the classroom. We supplement with outpatient speech therapy which our insurance and medicaid cover. Our school has a vision program called " Bridges " and he qualifies for this as well. In addition, he gets pulled to be supported minimally with math, but mostly for reading comprehension (those hidden meanings continue to be difficult for him.)  Our school district here lacks in implementing social skills groups or programs. So that has been a constant battle for us. He is fully included with typical kids and through our medicaid system we are provided with a one on one for him. She only spends 4 hours at school with him and we were planning to titrate those hours in the future, but now I'm concerned with this transition how he'll do.  My younger son is 7 and will be going into 1st grade. He too has Asperger's type symptoms and is immature in his social skills. He only qualified for speech in our school district this past year.  We too supplement at home with a tutor for our 8 yr. old and the one on one comes to our house once a week.  Thank you for letting me know about the cost of activities in the Woodlands. We are definately not in a position to be raked over the coals in order for the kids to be in NT activities.  I look forward to continue our emails and I will have more questions soon! Off to getting the house ready for sale!!!!!!!  Take care, Ana  Ana Subject: Re: Opinions To: Texas-Autism-Advocacy Date: Sunday, July 20, 2008, 11:25 AM > > Any opinions on " The Woodlands " for living and opinions on Conroe school district? I also live in The Woodlands and have kids going to Conroe ISD. We have also had to fight the school district for everything. You don't say where you kid(s) are on the spectrum. Mine are on the upper end, very bright, and CISD doesn't have anything at all for them. They are 13yo twin boys, one with Asperger/Developmen tal Coordination Disorder/Executive Dysfunction/ sensory issues and the other not dx'd, but with Asperger symptoms/attention issues/sensory issues. One has only a 504 although he needs an IEP for executive dysfunction and social skills, and we have to supply all his special education ourselves from home. We are lucky our insurance has unlimited speech and OT with doctor's referral. Anyway, like Hilda, we have found the quality of education varies greatly depending on the teacher. They have some really bad ones, but we have also had some excellent ones and everything in between. Same goes for the administrators. Maybe it is like that in all large school districts. As far as living goes--ironically, my kids love living in The Woodlands. It is a great place to live for NT people, or the NT side of people, maybe I should say. Our family is enjoying living here in general. My one complaint is that all the kids' activities here are expensive. Even our church charges money for everything because they hire help instead of using parent volunteers. We have to go across the freeway to Spring or Oak Ridge for " normal " kids activities (with normal price tags). Long story, but we aren't in a position to move, and I'm not convinced things would be any different for my kids with their particular situation in a school district like Cy-Fair/Spring Branch anyway. However, I have met other people that have moved from Cy-Fair to other school districts in the area, and they say there is a huge difference. All of them took the services they got in Cy-Fair for granted and had a big shock when their kid's IEPs started getting ignored in the new school district. Hope this helps. Ruth Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 21, 2008 Report Share Posted July 21, 2008 If you are interested in moving a little further North, I feel I can recommend the Montgomery School District (near Lake Conroe) for a high functioning child. My son is 9, diagnosed with ADHD and Asperger's. He also has issues with binocular vision, reading comprehension (especially math word problems), and moderate asthma. We have an IEP for him, but I had to really make my case for it with facts. The Educational diagnostician only wanted to do 504, until I convinced the Principal otherwise. My son has gone to Creek elem which is rated exemplary. We did not get the diagnosis' until the end of second grade. he has had wonderful, intuitive teachers who really went the extra mile. My husband and I also have made it clear to the school that we are involved and reachable if there is a problem. My son had some serious aggression issues 1st and 2nd grades that calmed down a lot with interventions and modifications. He has excelled and is an A/B student, scoring a's on both his TAKKS tests this year (he had individual adminstration with the accomodated TAKKS which is more white space and a few less questions - but the same level as the other kids). I don't mean to seem as if I am bragging, just feel he is reaching his potential academically under their care. I do feel that they are somewhat deficient in social skills training and their special ed seems to be more for the really needy students ( my son was so bored we put back in mainstream class with the promise from his teachers of as much individual attention as they could give).If you want more info, please email me off list at lauc174@.... > > > > Any opinions on " The Woodlands " for living and opinions on Conroe > school district? > > I also live in The Woodlands and have kids going to Conroe ISD. We > have also had to fight the school district for everything. You don't > say where you kid(s) are on the spectrum. Mine are on the upper end, > very bright, and CISD doesn't have anything at all for them. They are > 13yo twin boys, one with Asperger/Developmen tal Coordination > Disorder/Executive Dysfunction/ sensory issues and the other not dx'd, > but with Asperger symptoms/attention issues/sensory issues. One has > only a 504 although he needs an IEP for executive dysfunction and > social skills, and we have to supply all his special education > ourselves from home. We are lucky our insurance has unlimited speech > and OT with doctor's referral. Anyway, like Hilda, we have found the > quality of education varies greatly depending on the teacher. They > have some really bad ones, but we have also had some excellent ones > and everything in between. Same goes for the administrators. Maybe > it is like that in all large school districts. > > As far as living goes--ironically, my kids love living in The > Woodlands. It is a great place to live for NT people, or the NT side > of people, maybe I should say. Our family is enjoying living here in > general. My one complaint is that all the kids' activities here are > expensive. Even our church charges money for everything because they > hire help instead of using parent volunteers. We have to go across > the freeway to Spring or Oak Ridge for " normal " kids activities (with > normal price tags). Long story, but we aren't in a position to move, > and I'm not convinced things would be any different for my kids with > their particular situation in a school district like Cy-Fair/Spring > Branch anyway. However, I have met other people that have moved from > Cy-Fair to other school districts in the area, and they say there is a > huge difference. All of them took the services they got in Cy-Fair > for granted and had a big shock when their kid's IEPs started getting > ignored in the new school district. > > Hope this helps. > > Ruth > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 21, 2008 Report Share Posted July 21, 2008 If you are interested in moving a little further North, I feel I can recommend the Montgomery School District (near Lake Conroe) for a high functioning child. My son is 9, diagnosed with ADHD and Asperger's. He also has issues with binocular vision, reading comprehension (especially math word problems), and moderate asthma. We have an IEP for him, but I had to really make my case for it with facts. The Educational diagnostician only wanted to do 504, until I convinced the Principal otherwise. My son has gone to Creek elem which is rated exemplary. We did not get the diagnosis' until the end of second grade. he has had wonderful, intuitive teachers who really went the extra mile. My husband and I also have made it clear to the school that we are involved and reachable if there is a problem. My son had some serious aggression issues 1st and 2nd grades that calmed down a lot with interventions and modifications. He has excelled and is an A/B student, scoring a's on both his TAKKS tests this year (he had individual adminstration with the accomodated TAKKS which is more white space and a few less questions - but the same level as the other kids). I don't mean to seem as if I am bragging, just feel he is reaching his potential academically under their care. I do feel that they are somewhat deficient in social skills training and their special ed seems to be more for the really needy students ( my son was so bored we put back in mainstream class with the promise from his teachers of as much individual attention as they could give).If you want more info, please email me off list at lauc174@.... > > > > Any opinions on " The Woodlands " for living and opinions on Conroe > school district? > > I also live in The Woodlands and have kids going to Conroe ISD. We > have also had to fight the school district for everything. You don't > say where you kid(s) are on the spectrum. Mine are on the upper end, > very bright, and CISD doesn't have anything at all for them. They are > 13yo twin boys, one with Asperger/Developmen tal Coordination > Disorder/Executive Dysfunction/ sensory issues and the other not dx'd, > but with Asperger symptoms/attention issues/sensory issues. One has > only a 504 although he needs an IEP for executive dysfunction and > social skills, and we have to supply all his special education > ourselves from home. We are lucky our insurance has unlimited speech > and OT with doctor's referral. Anyway, like Hilda, we have found the > quality of education varies greatly depending on the teacher. They > have some really bad ones, but we have also had some excellent ones > and everything in between. Same goes for the administrators. Maybe > it is like that in all large school districts. > > As far as living goes--ironically, my kids love living in The > Woodlands. It is a great place to live for NT people, or the NT side > of people, maybe I should say. Our family is enjoying living here in > general. My one complaint is that all the kids' activities here are > expensive. Even our church charges money for everything because they > hire help instead of using parent volunteers. We have to go across > the freeway to Spring or Oak Ridge for " normal " kids activities (with > normal price tags). Long story, but we aren't in a position to move, > and I'm not convinced things would be any different for my kids with > their particular situation in a school district like Cy-Fair/Spring > Branch anyway. However, I have met other people that have moved from > Cy-Fair to other school districts in the area, and they say there is a > huge difference. All of them took the services they got in Cy-Fair > for granted and had a big shock when their kid's IEPs started getting > ignored in the new school district. > > Hope this helps. > > Ruth > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 21, 2008 Report Share Posted July 21, 2008 If you are interested in moving a little further North, I feel I can recommend the Montgomery School District (near Lake Conroe) for a high functioning child. My son is 9, diagnosed with ADHD and Asperger's. He also has issues with binocular vision, reading comprehension (especially math word problems), and moderate asthma. We have an IEP for him, but I had to really make my case for it with facts. The Educational diagnostician only wanted to do 504, until I convinced the Principal otherwise. My son has gone to Creek elem which is rated exemplary. We did not get the diagnosis' until the end of second grade. he has had wonderful, intuitive teachers who really went the extra mile. My husband and I also have made it clear to the school that we are involved and reachable if there is a problem. My son had some serious aggression issues 1st and 2nd grades that calmed down a lot with interventions and modifications. He has excelled and is an A/B student, scoring a's on both his TAKKS tests this year (he had individual adminstration with the accomodated TAKKS which is more white space and a few less questions - but the same level as the other kids). I don't mean to seem as if I am bragging, just feel he is reaching his potential academically under their care. I do feel that they are somewhat deficient in social skills training and their special ed seems to be more for the really needy students ( my son was so bored we put back in mainstream class with the promise from his teachers of as much individual attention as they could give).If you want more info, please email me off list at lauc174@.... > > > > Any opinions on " The Woodlands " for living and opinions on Conroe > school district? > > I also live in The Woodlands and have kids going to Conroe ISD. We > have also had to fight the school district for everything. You don't > say where you kid(s) are on the spectrum. Mine are on the upper end, > very bright, and CISD doesn't have anything at all for them. They are > 13yo twin boys, one with Asperger/Developmen tal Coordination > Disorder/Executive Dysfunction/ sensory issues and the other not dx'd, > but with Asperger symptoms/attention issues/sensory issues. One has > only a 504 although he needs an IEP for executive dysfunction and > social skills, and we have to supply all his special education > ourselves from home. We are lucky our insurance has unlimited speech > and OT with doctor's referral. Anyway, like Hilda, we have found the > quality of education varies greatly depending on the teacher. They > have some really bad ones, but we have also had some excellent ones > and everything in between. Same goes for the administrators. Maybe > it is like that in all large school districts. > > As far as living goes--ironically, my kids love living in The > Woodlands. It is a great place to live for NT people, or the NT side > of people, maybe I should say. Our family is enjoying living here in > general. My one complaint is that all the kids' activities here are > expensive. Even our church charges money for everything because they > hire help instead of using parent volunteers. We have to go across > the freeway to Spring or Oak Ridge for " normal " kids activities (with > normal price tags). Long story, but we aren't in a position to move, > and I'm not convinced things would be any different for my kids with > their particular situation in a school district like Cy-Fair/Spring > Branch anyway. However, I have met other people that have moved from > Cy-Fair to other school districts in the area, and they say there is a > huge difference. All of them took the services they got in Cy-Fair > for granted and had a big shock when their kid's IEPs started getting > ignored in the new school district. > > Hope this helps. > > Ruth > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 6, 2011 Report Share Posted April 6, 2011 , Course is good pitched at just about the right level, the course is taught in Weatherfords training centre or was, instructors are working offshore medics so discussions are realistic not idealistic theres a premier inn about 2 miles away. Regards Ricky. P Please consider the environment before printing this email! This message and any attached files may contain information that is confidential and/or subject of legal privilege intended only for use by the intended recipient. If you are not the intended recipient or the person responsible for delivering the message to the intended recipient, be advised that you have received this message in error and that any dissemination, copying or use of this message or attachment is strictly forbidden, as is the disclosure of the information therein. If you have received this message in error please notify the sender immediately and delete the message. -- Opinions Hello again, I just wanted to ask for some info on medics courses that are held by ABERMED in Scotland as to their value and if it is expensive to stay in Aberdeen while doing the course they offer. Thanks P Quote Link to comment Share on other sites More sharing options...
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