!

[Guest guest]

Yes ! I want the 'snail mail' address of your friend with three down

syndrome children. Genetic counselors from Loma in California told me

that as far as they knew, I was the only mother in the world to give birth to

three separate Down Sydrome babies. So they are wrong! I want to meet this

lady! I'll write her! Send her address!

Joyce-mother of seven (three are DS--16,-6,and -2 1/2)

[Guest guest]

>Yes ! I want the 'snail mail' address of your friend with three down

>syndrome children. Genetic counselors from Loma in California told

me

>that as far as they knew, I was the only mother in the world to give birth

to

>three separate Down Sydrome babies. So they are wrong! I want to meet

this

>lady! I'll write her! Send her address!

>Joyce-mother of seven (three are DS--16,-6,and -2

1/2)

Hi Joyce;

Her name is Masters

husband is

children are Jericaka-Lyn 9/21/97 down syndrome/girl

10/16/92 down syndrome/boy

Josiah 8/9/95 down syndrome/boy

5 years (I think) boy

RR3

Woodstock, Ontario

N4S 7V7

Canada

I can't wait to tell her of you!!!

[Guest guest]

You got it. Make sure you do it, cuz I want a picture too. I especially want

one of me and you Gloria, oh kindred spirit. =)

-

In a message dated 05-Apr-00 11:29:11 Eastern Daylight Time,

gloe2000@... writes:

<< I can see it now . . .

yo both look incredible.

I want a great pic of the 2 of you in your skivvies in front of Caesar's.

>>

[Guest guest]

I have to comment on this one about the stimulants as cannot take

stimulants, has tried Ritalin and Adderall and both made her anxiety level

sky rocket, she couldnt stand simple noise even someone breathing and she

became way more impulsive and I had to really watch her with my other younger

girls as I could not trust her judgment because of her impulsiveness. This

was never an issue before the stimulants but I will say they helped her

concentration and it was devestating to have to take her off because it

really helped one thing but brought on a whole new set of serious problems.

Now wer'e trying Imipramine but havnt seen any success yet. Nikki

[Guest guest]

!

is having a terrible time concentrating, she says its like her mind is wondering like "what am I going to do after school, what about this, what about that etc etc" She cant concentrate on her school work and homework is a nightmare She had to miss recess to complete her math and so on and so on. Its just wandering mind and she also says her mind feels blank. She has forgotten her multiplcation tables etc. HELP. This is one of those days that I feel like I cant handle any of this. Im no longer dealing with one child like this its now 2 and I feel so inadequate I just want it to go away. (not reality though). Nikki in O'town Nikki,

I sounded just like you yesterday. After dealing with 3 OCD kids and 1 OCD mom-in-law all day, not to mention 1 oblivious husband, I was ready to turn in my resignation from all family by last night. My son is also having incredible concentration problems. He brought home his first F paper yesterday and said it was because he forgot how to do borrowing in subtraction. He has always been a straight A student. While I think a few bad grades are no big deal,(I don't won't him to be perfect),I am concerned. He brought home another F today. He has also been diagnosed with ADHD but we haven't tried medicating that because his sister has ttm and docs usually recommend against stimulants when ttm is present in the family. I am also concerned that his present medication may be contributing to his lack of concentration.

We start with a new therapist in 2 weeks who will start CBT with him. I'm hoping that maybe we can decrease his meds for rages as he gains more control through CBT and then address the ADHD.

Hang in there, Nikki! As our therapist told me when I realized I had 3 kids with problems not just 1 or 2, at least you're better educated and equipped to deal with this now than when you started out with the 1st one.

You may subscribe to the OCD-L by emailing listserv@... . In the body of your message write: subscribe OCD-L your name. You may subscribe to the Parents of Adults with OCD List at parentsofadultswithOCD . You may access the files, links, and archives for our list at http://www.egoups.com/group/ . Subscription issues, problems, or suggestions may be addressed to Louis Harkins, list owner, at harkins@... .

[Guest guest]

He has also been

diagnosed with ADHD but we haven't tried medicating that because

his sister has ttm

and docs usually recommend against stimulants when ttm is present

in the family.

Hi ,

I never heard of this. I take ritalin for ADHD and my daughter has TTM

so I think I would have come across this somewhere. I know you have to

be cautious with stimulants when tics are present but even then it can

be done. Are you sure about this contraindication?

Dana in NC

[Guest guest]

Re: !

He has also been diagnosed with ADHD but we haven't tried medicating that becausehis sister has ttm and docs usually recommend against stimulants when ttm is presentin the family.Hi ,I never heard of this. I take ritalin for ADHD and my daughter has TTMso I think I would have come across this somewhere. I know you have tobe cautious with stimulants when tics are present but even then it canbe done. Are you sure about this contraindication?Dana in NCDana,

I first heard about this on the ttm parents list and asked our docs. I am glad to hear that this is successful for you. It gives me more confidence to try stimulants for Ian.

You may subscribe to the OCD-L by emailing listserv@... . In the body of your message write: subscribe OCD-L your name. You may subscribe to the Parents of Adults with OCD List at parentsofadultswithOCD . You may access the files, links, and archives for our list at http://www.egoups.com/group/ . Subscription issues, problems, or suggestions may be addressed to Louis Harkins, list owner, at harkins@... .

[Guest guest]

!

Hi ,

Could you please tell me what ttm is? Thanks. Hugs,

[Guest guest]

Re: !

Hi ,

Could you please tell me what ttm is? Thanks. Hugs,

:

TTM stands for trichotillomania. It means that my daughter pulls her hair out.

[Guest guest]

Nikki:

Aiden has trouble periodically with his thoughts causing him to forget things he

already knows. It's still OCD in my book and related to anxiety, even though

they don't perceive it as such. That's why I include limits on homework in his

IEP. I really don't think it's a medication response, but the best thing to do

would be to bring it up to your prescribing physician. I'll let Kathy or

respond to the meltdown issue. My first recommendation is to have an IEP

meeting to determine what might be causing her stress at school and how it could

be lessened, at least for a time.

Jule

[Guest guest]

Hi Alan! I do not have that book although I have a small library of others.

I am meeting with the school psychologist and teachers in a couple weeks and

maybe will set up a 504 plan for her. We are going to wean off of all meds

and see what we are actually dealing with as far as symptoms we do not even

have a true baseline on her. She has been on some sort of med for the last 2

1/2 yrs and they are starting to have alot of weird side effects. Her body

has always responded very weird to medications and I have to say its only

getting worse. I feel this is the best thing to do right now. Thanks for the

tip on the book. God bless! Nikki in O'town

[Guest guest]

Nikki,

's difficulties concentrating on her homework sound very familiar. Our daughter had similar difficulties at times. Have you tried discussing getting some accommodations from her teacher? I think that reducing the volume of homework could be a help.

Alan

[Guest guest]

Nikki,

's difficulties concentrating on her homework sound very familiar. Our daughter had similar difficulties at times.

Have you tried discussing getting some accommodations from her teacher? I think that reducing the volume of homework could be a help. Is it any easier for her to dictate the answers rather than writing them?

Also, the book "Teaching the Tiger" could also be useful.

Alan

[Guest guest]

Hi Nikki, in O'Town,

It is good to hear that has been able to overcome her ET fears!

YOU did a great job!

There are mixed feels about the elastic band snapping routine. The person

with OCD is supposed to snap when they have the urge to follow through with

a compulsion. I'm not comfortable with this technique, because it replaces

the compulsion with another one, rather than putting a stop to it. It also

hurts - yes that's the point - but it doesnt prevent the person from

snapping away when they NEED to do it!! It does sound like is

following those instructions when she hits herself.

Personally, I would suggest that when wants to smack herself,

instead she do some Bossing Back. Remind her to push the OCD Bully away...

not to give in to the thoughts or the actions.

Remember the exercise where there is a volume switch?? When hears

the voices, remind her to work on turning down the volume. She can start by

thinking/concentrating on what she is hearing, then imagine a huge button

that adjusts the sounds.

take care, hi to for me...

wendy in canada

_________________________________________________________________________

Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com.

[Guest guest]

HI NIkki:

Habit reversal, e.g. twanging the rubber band, is only effective for

mental rituals not for obsessions. Often it can be tricky for kids

to tell the difference. Perhaps Tiff can learn a more gentle way of

redirecting herself if these thoughts are mental

compulsions/rituals. If they are obsessions, then unfortunately as

we all know negative consequences rarely stop obsessions. Good

luck, take care, aloha, Kathy (H)

kathyh@...

P.S. IN our family's experience humor or exercise help with distracting

Steve from both Os and Cs. K.

At 08:25 PM 01/03/2001 -0500, you wrote:

I everyone, I wanted

to update you all on Tiff. She got through the E.T.

episode pretty well, she was able to watch the movie and sleep with the

stuffed animal. She says she still doesnt LIKE him but she's not scared

of

him anymore. But she is having alot of intrusive thoughts about hell

again.

We saw all the signs a couple weeks ago and I knew it was coming. She is

talking all the time and keeping busy ALL the time, cant stand silence

etc

etc. She has started slapping herself in the cheek to stop the thought

and I

wanted your opinions on if this is a good idea or not. She says it helps

but

Im worried it will turn into a compulsion. Her therapist (not seeing

right

now) used to have her wear a rubber band on her wrist and snap it when

she

had a " thought " it became too painful for her and she stopped

it but she

created this on her own. Let me know your thoughts please. Thanks and God

B! less you all!! Nikki in O'town

[Guest guest]

Oh , You had such an ordeal to go through!!!!! You had every right to be so frightened!!! I'm glad you trusted us with your story!!! Talking about what's happenung in our lives does help one to open up and go on!!!

Need to let us see that little angel you brought into this world!!! Send us a picture when ya can!!! Daddy doing the dydee's, that's great news!!!

Tells me a lot about him, without even knowing him!!! You get your strength back now. Raising the little ones get very little sleep sometimes!!! So Glad everything turned out for you )

{{{ Precious Angel Hugs }}}

Helen

Hi Helen, nice to meet you I am glad to be back on-line and reading e-mail. We are doing well. is developing and growing so much! I don't know if I will be having another baby any time soon though - what an experience! It was hard. I am sure if you've had a baby, you will understand what I mean! When I was 32 weeks pregnant, I got sick with a gastro-intestinal virus...ugh it was nasty...and I had pneumonia which went away but in general, I didn't get better. The flu-ish symptoms passed though. I spent most of the rest of my pregnancy at the hospital but I was so tired and ill I didn't even care. I didn't expect to carry full term at one point, which was frightening but since I was already 32 weeks it wasn't so bad. But not only did I carry full term, I actually had to have my labor induced at 41 weeks! I guess was happy to be where she was. I was unhappy because contractions and cramping started while I was ill and never went away. But it was "false labor". When I was induced, I had a relatively easy labor. It only lasted 11 hours from the time my waters were broken until she was delivered. After about 2.5 hours pushing, some kind of maternal instinct told me I couldn't get her out on my own. The doctors decided I was right (duh!) so they used vaccuum extraction to get her out.

She was nine pounds, five ounces and almost twenty two inches long. I am not petite, but I am not that big either! After she was delivered, everything seemed to be fine but then after a half an hour, my placenta still would not deliver. It was not detaching from my uterine wall so the doctors had to manually detach and remove it, which I am told is basically a surgical procedure, and my uterus began to rupture and I was hemorraging. I still don't really understand how they managed to stop this process ?? But it took almost two hours to get me stablized. My blood pressure was almost non-existent and I needed blood transfusions, which was frightening but what can you do, right? All this while we were scared I would have a seizure (I am epileptic) during delivery, and that issue never even arose! I did seize the night after she was born, but not during labor and delivery...which was nice. The toughest part was that I couldn't hold my baby for what seemed like forever after she was born. My husband and the nurse both brought her over to me to see her, but it wasn't the same. When I finally did get to hold her, I was so weak and frail. She spent the first night at the nursery because I couldn't care for her and that saddened me. My husband was wonderful. He stayed with us at the hospital the whole time we were there (eight days). Two weeks later, I had a urinary blockage and had to be re-admitted to the hospital and he stayed with us again! He is a real sweetheart. He is a wonderful daddy too. He is totally Mr. Mom! When he is around I rarely have to do diaper changes...he is exicited to do it, lol

Anyway thanks for the opportunity to share about my experience. I haven't told many people about it... my family knows, and the people at church know because they were praying for us. But it's not a tale you tell to everyone.

I know the people in this group understand such things and how devastating and stressful illness is.

[Guest guest]

Thanks Judi...

[Guest guest]

;

Great transformation! It looks like your biceps doubled in size!

Truely amazing :0) Congrats~

Joann

http://www.mrsbishwitskitchen.com

[Guest guest]

--- Hi Kathi, No I haven't been here alot. I am so busy running

around after my three kidlets. I am at C2W3. It is going well. I

have had a harder time being dedicated this time to the eating, but

the workouts have been great. My hubby hid the scale on me for 1

month, and that really got me motivated. I want to see some good

results at the end of that month. I have 10 lbs to go.

No I haven't posted pictures. Maybe at the end of this challenge.

I am my worst critic. We'll see.

you mentioned a few posts back that you were changing things around

for C2. What are you doing different.

Talk later,

In , " Kathi Felix "

<LILSTEPPER@Y...> wrote:

> --- Hi !

> There you are! I don't think I have seen ya in a few days...ummm

> maybe it is cause I am the geek of the world and hang out here

> incessantly!lol

> Thanks for the compliment..you just wait till C2 is wover!!!! i have

> some plans yo!!! I think I will enjoy this week off! today I will

get

> some shirts for my concert and some pear lotion from vicotria

> secrets! Hey ...how are things going for you? I can't always

> remember where everyone is in their challenge. I am trying to keep

up

> with everyone who finished! have any pics yet or soon? or did I miss

> yours up already?

> Kathi (who's just another name)

>

> In , lymanheather

> <no_reply@y...> wrote:

> > --- Hey you,

> > Awesome results. You are one fit and strong chick. Oh I would

say

> > enjoy your week off. HAve some treats. IT isn't going to make

any

> > difference and then you won't feel like you have missed out. Have

> a

> > great time at your concert.

> >

> > In , " Kathi Felix "

> > <LILSTEPPER@Y...> wrote:

> > > ---this is what I am thinking too. I just need to also take a

> break

> > > so I do not get bored of my training. So once I take this week I

> > > willl switch things around. Then they will be fresh and new to

> me.

> > > Plus since we are going out of town too...it is the perfect time

> for

> > > me to take a break. I was just wondering something though. I am

> > > totally not taking a free for all eating week..but I am sooooo

> dang

> > > excited this week now I am having trouble wanting to eat

> anything! I

> > > have butterflies in my stomach because I am excited and very

> nervous

> > > for the concert. I mean...I am not down to where I thought I

> would

> > be

> > > for this concert. I like my pics...but I am still an obese

> > person..so

> > > I think I just want to really look good. So that is why I am

> > > nervous...like I will be the fattest girl there. Okay...I know I

> am

> > > talking down and all..this is just a tiny feeling I have I

guess.

> > > anyway..I was just wondering if I just drink shakes mostly and

> have

> > > fruit with it...will it harm me much? AT least I will still be

> > > getting food in me...but I think I am just too excited and

> nervous

> > to

> > > chew!!!! Does that make any sense at all? LOL! yeah..an

> stuff..there

> > > is my question and my waaaaaaa report!!!!

> > > Kathi (who's just another name)

> > >

> > > In , " Lynda "

> <lyndaesp@y...>

> > > wrote:

> > > > Your body does need a break from high-intensity training. Most

> > > people

> > > > who do weight training take a week off 3-4 times a year. One

> big

> > > > reason it that it helps prevent overtraining. During that

week

> > > off,

> > > > you don't have to sit on your butt- take lots of walks, do

> yoga,

> > do

> > > > some light cardio that you may not typically have time for. I

> > > usually

> > > > swim several times that week.

> > > >

> > > > You don't have to take a break from the healthy eating though.

> I

> > > > save my " semi-free " eating weeks for the times I am out of

town.

> > > >

> > > > HTH,

> > > > Lynda

[Guest guest]

--- yeah..I need to go run after my kiddies..umm peeps on here must

think I ignore them for the sake of internet...lol...well...you are

right!!!! just kiddin!!! they get my time...but I also have my time.

What an addict to this place I am.

cooolness I want to see your pics at the end..will be waiting!!

Oh...ummm...the different things I am doing aren't too much..just

gotta keep my body guessing. I am changing my weights to monday,

wednesday, friday, and cardio to tuesday,thursday, saturday. It was

the other way around last challenge. And I will be very better

waabout my portions. I am gonna kick in more fruit and veggies. I

tend to like to eat more bread when it is cold and crave more fruit

and veggies when it is hot..makes sense I guess. STill gonna have my

free days!! no doubt bout that! I will keep taking my vitamin called

seasilver. It is awesomeness! Sooo not too much things...just a tad

bit of tiny changes. And this week off is going to freak my body out

when like next week I am all bein strict waaagain an stuff. That

should do the trick! I may try to use more myoplex..I don't

know..Okay..umm..yeah..that is waaabout it.

Kathi (who's just another name)

In , lymanheather

<no_reply@y...> wrote:

> --- Hi Kathi, No I haven't been here alot. I am so busy running

> around after my three kidlets. I am at C2W3. It is going well. I

> have had a harder time being dedicated this time to the eating, but

> the workouts have been great. My hubby hid the scale on me for 1

> month, and that really got me motivated. I want to see some good

> results at the end of that month. I have 10 lbs to go.

> No I haven't posted pictures. Maybe at the end of this

challenge.

> I am my worst critic. We'll see.

> you mentioned a few posts back that you were changing things

around

> for C2. What are you doing different.

> Talk later,

>

> In , " Kathi Felix "

> <LILSTEPPER@Y...> wrote:

> > --- Hi !

> > There you are! I don't think I have seen ya in a few days...ummm

> > maybe it is cause I am the geek of the world and hang out here

> > incessantly!lol

> > Thanks for the compliment..you just wait till C2 is wover!!!! i

have

> > some plans yo!!! I think I will enjoy this week off! today I will

> get

> > some shirts for my concert and some pear lotion from vicotria

> > secrets! Hey ...how are things going for you? I can't

always

> > remember where everyone is in their challenge. I am trying to

keep

> up

> > with everyone who finished! have any pics yet or soon? or did I

miss

> > yours up already?

> > Kathi (who's just another name)

> >

> > In , lymanheather

> > <no_reply@y...> wrote:

> > > --- Hey you,

> > > Awesome results. You are one fit and strong chick. Oh I would

> say

> > > enjoy your week off. HAve some treats. IT isn't going to make

> any

> > > difference and then you won't feel like you have missed out.

Have

> > a

> > > great time at your concert.

> > >

> > > In , " Kathi Felix "

> > > <LILSTEPPER@Y...> wrote:

> > > > ---this is what I am thinking too. I just need to also take a

> > break

> > > > so I do not get bored of my training. So once I take this

week I

> > > > willl switch things around. Then they will be fresh and new

to

> > me.

> > > > Plus since we are going out of town too...it is the perfect

time

> > for

> > > > me to take a break. I was just wondering something though. I

am

> > > > totally not taking a free for all eating week..but I am

sooooo

> > dang

> > > > excited this week now I am having trouble wanting to eat

> > anything! I

> > > > have butterflies in my stomach because I am excited and very

> > nervous

> > > > for the concert. I mean...I am not down to where I thought I

> > would

> > > be

> > > > for this concert. I like my pics...but I am still an obese

> > > person..so

> > > > I think I just want to really look good. So that is why I am

> > > > nervous...like I will be the fattest girl there. Okay...I

know I

> > am

> > > > talking down and all..this is just a tiny feeling I have I

> guess.

> > > > anyway..I was just wondering if I just drink shakes mostly

and

> > have

> > > > fruit with it...will it harm me much? AT least I will still

be

> > > > getting food in me...but I think I am just too excited and

> > nervous

> > > to

> > > > chew!!!! Does that make any sense at all? LOL! yeah..an

> > stuff..there

> > > > is my question and my waaaaaaa report!!!!

> > > > Kathi (who's just another name)

> > > >

> > > > In , " Lynda "

> > <lyndaesp@y...>

> > > > wrote:

> > > > > Your body does need a break from high-intensity training.

Most

> > > > people

> > > > > who do weight training take a week off 3-4 times a year.

One

> > big

> > > > > reason it that it helps prevent overtraining. During that

> week

> > > > off,

> > > > > you don't have to sit on your butt- take lots of walks, do

> > yoga,

> > > do

> > > > > some light cardio that you may not typically have time for.

I

> > > > usually

> > > > > swim several times that week.

> > > > >

> > > > > You don't have to take a break from the healthy eating

though.

>

> > I

> > > > > save my " semi-free " eating weeks for the times I am out of

> town.

> > > > >

> > > > > HTH,

> > > > > Lynda

[Guest guest]

Hi !!!

I missed you too friend and thank you for the warm welcome! How are you doing now? I know that when I left for vacation, you needed some quiet time to yourself. Did it help, and did you pamper and take care of you for once? I missed our chats, but I am here to stay now. Love you friend.

Love, Sue #2

-- Re: HI and Suze

> Welcome back ladies!! We sure missed you...new rule, you can no longer disappear for the same time span. Gets far too quiet!!!Hope all is ok. Love, G.otF.M. MA

[Guest guest]

I am ok my friend. I had tried to slow a bit for a few weeks, still worked

full time and taught the First Eucharist Class their songs in sign language

but stayed off the internet, didn't go to my Board meetings and just tried

to focus on making it on 11mg of pred. It didn't work...lol...but it is

ok. I got my lab results back and at the time my sed rate was as my dear

rhuemy put it " moderately highly elevated " { hate when they get technical

like that!} so I felt better that it wasn't me being a wuss but my body

saying..Nope, Nope not ready... I bumped back up to 15 , tried 13, didn't

care for it. Had a nice high on 15 for a week but now I am leveling...I do

love that pred rush! We are discussing mtx and I think I am going to go for

it. I need to stop being such a poop. I still do a lot of things like a

normal person but have to really push hard cause if i had my way, I would

sleep...but that is what the dragon wants so ..dance on it's head.

Sorry your vacation was cut short. I have bee nthinking about taking the

boys overnight somewhere to just get away and play. I think I am taking

Friday off and taking them to the Indian Museum at Foxwoods. It isnt

really part of the casino so I don't have to worry abotu the..not now

boys..mooma needs a new pair of shoes...danger. We will look at pretty

things and admire the past and be thankful for electricity and make up...

Course, this is provided I get out of bed...lol

Are you feeling better ?

, G.otF,M.

[Guest guest]

Hi Sweetie,

I am glad that you are somewhat better. I wish that I had the time to call you and talk to you before I left. If you can do the MTX , do it. After some time, I did feel a difference, the only problem is that I cannot get past 25mg of pred, so we are trying for Enbrel. Although I do feel pretty good on MTX, doc says that I should be able to get off of pred, but it's not working...a 25 mg is a safety zone for me.

As for Foxwoods...I live not even 10 minutes from there!!! I have to work Friday, but if you go, please tell me and I will meet you afterwards or something. Anything okay? Let me know. Good to hear from you. Many, many hugs....love you.

Love,Sue #2

-- Re: !

I am ok my friend. I had tried to slow a bit for a few weeks, still worked full time and taught the First Eucharist Class their songs in sign language but stayed off the internet, didn't go to my Board meetings and just tried to focus on making it on 11mg of pred. It didn't work...lol...but it is ok. I got my lab results back and at the time my sed rate was as my dear rhuemy put it " moderately highly elevated" { hate when they get technical like that!} so I felt better that it wasn't me being a wuss but my body saying..Nope, Nope not ready... I bumped back up to 15 , tried 13, didn't care for it. Had a nice high on 15 for a week but now I am leveling...I do love that pred rush! We are discussing mtx and I think I am going to go for it. I need to stop being such a poop. I still do a lot of things like a normal person but have to really push hard cause if i had my way, I would sleep...but that is what the dragon wants so ..dance on it's head.Sorry your vacation was cut short. I have bee nthinking about taking the boys overnight somewhere to just get away and play. I think I am taking Friday off and taking them to the Indian Museum at Foxwoods. It isnt really part of the casino so I don't have to worry abotu the..not now boys..mooma needs a new pair of shoes...danger. We will look at pretty things and admire the past and be thankful for electricity and make up...Course, this is provided I get out of bed...lol Are you feeling better ?, G.otF,M.

[Guest guest]

> Hi Suz,

As for Friday, Mom and Dad are now driving us..ok, I won't

complain...chauffered service is good!! So I will be at the mercy of their

schedules. 1st Communion is May 17th and we have a lot of rehersals

between now and then but can we try and plan a Saturday to do lunch after

that?

Hi Sweetie,

> I am glad that you are somewhat better. I wish that I had the time to

> call you and talk to you before I left. If you can do the MTX

> , do it. After some time, I did feel a difference, the only

> problem is that I cannot get past 25mg of pred, so we are trying for

> Enbrel. Although I do feel pretty good on MTX, doc says that I should

> be able to get off of pred, but it's not working...a 25 mg is a safety

> zone for me.

>

> As for Foxwoods...I live not even 10 minutes from there!!! I have to

> work Friday, but if you go, please tell me and I will meet you

> afterwards or something. Anything okay? Let me know. Good to hear

> from you. Many, many hugs....love you.

> Love,Sue #2

>

> -- Re: !

>

> I am ok my friend. I had tried to slow a bit for a few weeks, still

> worked

full time and taught the First Eucharist Class their songs in

> sign language

but stayed off the internet, didn't go to my Board

> meetings and just tried

to focus on making it on 11mg of pred. It

> didn't work...lol...but it is

ok. I got my lab results back and at

> the time my sed rate was as my dear

rhuemy put it " moderately highly

> elevated " { hate when they get technical

like that!} so I felt better

> that it wasn't me being a wuss but my body

saying..Nope, Nope not

> ready... I bumped back up to 15 , tried 13, didn't

care for it. Had a

> nice high on 15 for a week but now I am leveling...I do

love that

> pred rush! We are discussing mtx and I think I am going to go for

it.

> I need to stop being such a poop. I still do a lot of things like a

> normal person but have to really push hard cause if i had my way, I

> would

sleep...but that is what the dragon wants so ..dance on it's

> head.

>

> Sorry your vacation was cut short. I have bee nthinking about taking

> the

boys overnight somewhere to just get away and play. I think I am

> taking

Friday off and taking them to the Indian Museum at Foxwoods.

> It isnt

really part of the casino so I don't have to worry abotu

> the..not now

boys..mooma needs a new pair of shoes...danger. We will

> look at pretty

things and admire the past and be thankful for

> electricity and make up...

> Course, this is provided I get out of bed...lol

>

> Are you feeling better ?

>

>

> , G.otF,M.

>

>

>

[Guest guest]

that's fine sweetie. Just know that I only live 10 minutes from Foxwoods, so I can meet you anytime. I would LOVE to have lunch anytime. It would be so wonderful to meet someone from the east with Stills. We have to get too.

Love,Sue #2

-- Re: !> > I am ok my friend. I had tried to slow a bit for a few weeks, still> worked full time and taught the First Eucharist Class their songs in> sign language but stayed off the internet, didn't go to my Board> meetings and just tried to focus on making it on 11mg of pred. It> didn't work...lol...but it is ok. I got my lab results back and at> the time my sed rate was as my dear rhuemy put it " moderately highly> elevated" { hate when they get technical like that!} so I felt better> that it wasn't me being a wuss but my body saying..Nope, Nope not> ready... I bumped back up to 15 , tried 13, didn't care for it. Had a> nice high on 15 for a week but now I am leveling...I do love that> pred rush! We are discussing mtx and I think I am going to go for it.> I need to stop being such a poop. I still do a lot of things like a > normal person but have to really push hard cause if i had my way, I> would sleep...but that is what the dragon wants so ..dance on it's> head.> > Sorry your vacation was cut short. I have bee nthinking about taking> the boys overnight somewhere to just get away and play. I think I am> taking Friday off and taking them to the Indian Museum at Foxwoods.> It isnt really part of the casino so I don't have to worry abotu> the..not now boys..mooma needs a new pair of shoes...danger. We will> look at pretty things and admire the past and be thankful for> electricity and make up...> Course, this is provided I get out of bed...lol > > Are you feeling better ?> > > , G.otF,M.> > >