Re: Digest Number 1316

[Guest guest]

In a message dated 12/9/00 9:53:46 PM Pacific Standard Time, gefox@...

writes:

<< nor make moral judgements on who may do more good with it can you? My

biggest ethical problem at the time was that someone had to die for me to

live..... yeah..what an ego..like someone was going to go out of his way to

die, liver intact.. . just for me

jerry >>

You seemed to have figured out that they had to die anyway. You didn't get

to snap your fingers and say " What the hell, keep on living. "

Harper

[Guest guest]

In a message dated 12/9/00 10:33:42 PM Pacific Standard Time,

shireen42@... writes:

<< Flatcat, do you have a real name?

I take pen vee K before dental work.

Shireen >>

I'm Harper. I updated my profile after joining the group; I had been locked

into general e-mail wariness. I'm 57, and I live in San Francisco with my

husband, whom I work with. I saw myself as exceptionally tough and healthy

until the day I turned orange in May. I haven't worked since that day, and

I'm not sure I will return to my job, which is quite stressful, when I'm

able. My gp says I may be able to work by April. (Financially, it's an

unsettling situation, although not devastating. Just a big surprise.)

I'm doing very well, with excellent blood tests, barring a couple of

flareups. I haven't been able to go below 10 mg Prednisone yet, with 100 mg

Imuran. I've been lucky in avoiding most side effects, other than running

out of energy abruptly and thoroughly, achiness, forgetfulness. clumsiness

with reading and numbers, and, of course, the moonface and astonishing weight

gain.

I can't imagine how people without access to the internet manage to find what

they need to know about these problems. I've learned almost nothing from my

doctors, and that little only when I was insistent.

As time goes on, I'd like hearing about each of you, when you feel like it.

You say you take pen vee K before dental work. What is that?

Harper

[Guest guest]

In a message dated 12/9/00 9:42:15 PM Pacific Standard Time, gefox@...

writes:

<< . (usually it`s because miss my wife and some lonelyness sets in but I

can get out of it quickly >>

Does your wife live elsewhere? Is she well?

[Guest guest]

On Sat, 9 Dec 2000 19:36:58 EST, egroups wrote:

>

> Has anyone gotten a flu shot this year?

>

> Take care, from Louisiana AIH 99'

Theresa, my hep reccommened a flu shot and it is the 1st I have ever had.

I had no side effects from it but still get cold symptoms.

I would suggest that you take it.

Debra

your gentle friend

God Bless

_______________________________________________________

Send a cool gift with your E-Card

[Guest guest]

Tyelenol can be very hard on

those with liver disease and should be avoided as much as possible

Jerry,

Now that Randy has had the transplant guess what they say he can take?? Tylenol-- not aspirin or motrin but tylenol. Go figure? They say he has a very healthy liver now and it is functioning normally so when he has to take anything, we check with them first but his dosage is always what is on the label.

Cheryl

[Guest guest]

Dear Harper,

Randy developed a cataract in his eye due to prednisone usage (he was on it from Dec. 97 to July. 99). He had surgery for it this past July and his vision is normal and back to 20/20 in the eye with the plastic lense. I tease him all the time -- whenever I take him to Cleveland Clinic I just get another part of him replaced --LOL. Soon he will have a whole new body. But I love him dearly .

Cheryl & Randy

Randy tx 12-14-99 AIH

Cheryl is his donor

Cleveland Clinic Foundation in Ohio

[Guest guest]

In a message dated 12/10/00 12:29:58 PM Pacific Standard Time,

cheryl722@... writes:

<< Tyelenol can be very hard on those with liver disease and should be

avoided as much as possible >>

I can't take aspirin, so as far as I can tell I'm out of luck for minor pain

problems. Taking hot showers helps for some things.

[Guest guest]

In a message dated 12/10/00 12:30:01 PM Pacific Standard Time,

cheryl722@... writes:

<< Dear Harper,

Randy developed a cataract in his eye due to prednisone usage (he was on it

from Dec. 97 to July. 99). He had surgery for it this past July and his

vision is normal and back to 20/20 in the eye with the plastic lense. I

tease him all the time -- whenever I take him to Cleveland Clinic I just get

another part of him replaced --LOL. Soon he will have a whole new body.

But I love him dearly .

Cheryl & Randy

Randy tx 12-14-99 AIH

Cheryl is his donor

Cleveland Clinic Foundation in Ohio >>

Explain, please -- I'm just getting the hang of some of this. What does the

line " Randy tx 12-14-99 AIH " mean? Cheryl is his donor -- I know this is

incredibly ignorant on my part -- but what did you donate if you're still

around?

How long and how much prednisone led to the cataracts? I ran into someone

who took very small amounts of Prednisone intermittently for asthma and had

two cataract operations in her forties. On the other hand, I was taking 80

mg for a while this summer, and my opthalmologist says I have no more than

normal cataract development and don't need to come back for a couple of

years, and then just for a routine checkup, as anyone my age would.

Harper

AIH - diagnosed May 00

[Guest guest]

Flatcat: Your e-mail is coming through loud and clear but please sign your

name. Your gastro or hepatologist should be the one who tells you to take

premed for dental treatment not the dentist. I have worked in the dental

field off and on for 30 years, go by what your liver doctor tells you because

most dentist do not understand what AIH is. Hope this has helped.

Genny/Jodi's Mom/AIH

[Guest guest]

In a message dated 12/10/00 3:04:12 PM Pacific Standard Time,

Babycolt98102690@... writes:

<< Flatcat: Your e-mail is coming through loud and clear but please sign

your

name. Your gastro or hepatologist should be the one who tells you to take

premed for dental treatment not the dentist. I have worked in the dental

field off and on for 30 years, go by what your liver doctor tells you

because

most dentist do not understand what AIH is. Hope this has helped.

Genny/Jodi's Mom/AIH >>

Thanks. Unfortunately, I have very little access to my gastro guy, who is a

big deal locally. I did have my teeth cleaned, and all went well.

Harper

[Guest guest]

In a message dated 12/10/00 6:00:20 PM Pacific Standard Time,

shireen42@... writes:

<< The Clinic wants me to get a bone density test. I went >to my Gastro

yedterday and asked him about it... he said ...so what are >they going to do

if they find your bones are thinning?.... I guess give >me bone transplants.

>>

Perhaps it's inapplicable in your case, but there are several newish drugs

for osteoporosis. Fosamax is the best known with, usually, the fewest side

effects. They take a long time to show a benefit. The bone density test

takes only minutes and is completely painless. My HMO seems to make them

hard to get; grab it and take what advantage you can.

[Guest guest]

Jerry,

They are meds to treat osteoporosis.

Shireen

>From: gefox@...

>Reply- egroups

> egroups

>Subject: Re: [ ] Digest Number 1316

>Date: Sat, 9 Dec 2000 23:44:38 -0500 (EST)

>

>Thanks Harper.... I saw that movie too good analogy..... In my case I`ve

>lived at least 5 yrs. longer than I would`ve without a transplant so....

>who am I to complain? This stuff now is a piece of cake. I find it

>ironic that my cancer will destroy my bones and the meds. I take are

>helping it along. The Clinic wants me to get a bone density test. I went

>to my Gastro yedterday and asked him about it... he said ...so what are

>they going to do if they find your bones are thinning?.... I guess give

>me bone transplants. You can only worry about thngs so much... till the

>worrying becomes worse than the reality.

>Most things are beyond our control. It may be too early yet but my

>eyesight has been getting worse and my eyes water a lot... anybody else

>have watery eyes?

>Jerry

>

________________________________________________________________________________\

_____

Get more from the Web. FREE MSN Explorer download : http://explorer.msn.com

[Guest guest]

Jerry,

Pen Vee K is penicillin you take in pill form. I am allergic to trimox that

my dentist wanted to give me.

Shireen

>From: gefox@...

>Reply- egroups

> egroups

>Subject: Re: [ ] Digest Number 1316

>Date: Sun, 10 Dec 2000 01:47:15 -0500 (EST)

>

>sure thats easy for you say shireen!

>what the heck is pen vee K?

>

>jerry

>

________________________________________________________________________________\

_____

Get more from the Web. FREE MSN Explorer download : http://explorer.msn.com

[Guest guest]

Jerry, My gastro tells me to take tylenol if I have to for pain or fever but

only 3grams MAX a day. Although its hard on the liver, the consequences of

taking Motrin or Ibuprophen or even asprin are much worse on those with

bleeding problems. I guess when given a choice, thats my only choice. I only

take it if needed.

Jen

On Sun, 10 Dec 2000 15:23:37 EST, egroups wrote:

> Tyelenol can be very hard on

> those with liver disease and should be avoided as much as possible

>

>

> Jerry,

>

> Now that Randy has had the transplant guess what they say he can take??

> Tylenol-- not aspirin or motrin but tylenol. Go figure? They say he has

a

> very healthy liver now and it is functioning normally so when he has to

take

> anything, we check with them first but his dosage is always what is on

the

> label.

>

> Cheryl

_______________________________________________________

Send a cool gift with your E-Card

[Guest guest]

Jen or anybody whats the skinny on Advil? I take that (sparingly) When I

was cirrhosing my liver I used to abuse tylenol which is why I`m leery

of it now.I don`t take any other pain meds. and sometimes my back and

knees hurt a bunch... it can be disconcerting as you all probably know.

Jerry

[Guest guest]

oh yeah.... I never take aspirin ... I learned the hard way how hard it

is on your stomach and esophagus

[Guest guest]

Cheryl.... After transplant I too was told I could use tylenol but I`m a

little worried now with AIH. I remember takng large amounts as I was

busy cirrhosing my liver and my doctors told me it had helped the course

of cirrhosis along by using too much of it I used to use aspirin but got

scared off that after hemmorhaging. I still use tylenol from time to

time but also Advil but neither one too ofen I just made up my mind to

raise my pain threshold

and found I can take much more than I thought. However I Never use

aspirin

throwing up torrents of blood got my attention. If you guys have time

and the inclinatin don`t forget to get in touch when you go to Cleveland

this week.

Sometimes when I have a headache I just hit myslf in the big toe with a

hammer and I forget the headache.

Jerry

Tyelenol can be very hard on

those with liver disease and should be avoided as much as possible

Jerry,

Now that Randy has had the transplant guess what they say he can take?? Tylenol-- not aspirin or motrin but tylenol. Go figure? They say he has a very healthy liver now and it is functioning normally so when he has to take anything, we check with them first but his dosage is always what is on the label.

Cheryl

[Guest guest]

Harper... My wife died in 1989 of cirrhosis.... she was 39....she left 4

daughters.... I now have 3 and 7/9 grandchildren which she never got to

see.

Jerry

[Guest guest]

Harper.... They have pre-transplant psychological counseling for all

candidates... this " survival guilt " is very common among

transplantees..and they get on top of it right away...

jerry

[Guest guest]

In a message dated 12/10/00 10:58:50 PM Pacific Standard Time,

gefox@... writes:

<< Cheryl.... After transplant I too was told I could use tylenol but I`m a

little worried now with AIH. >>

All I can tell you is that I developed very, very serious anemia after I

began taking one enteric aspirin a day as a stroke preventive.

Afterward, I was told to take ONLY Tylenol and generic subs (acetaminaphen.)

Now, with AIH, I'm told NO TYLENOL unless I just can't bear some period of

pain.

Harper

[Guest guest]

In a message dated 12/10/00 11:27:23 PM Pacific Standard Time,

gefox@... writes:

<< Harper... My wife died in 1989 of cirrhosis.... she was 39....she left 4

daughters.... I now have 3 and 7/9 grandchildren which she never got to see.

Jerry >>

I'm so very sorry, Jerry. We'll be looking forward to your fourth

grandchild. She left that legacy behind for the world.

Harper

[Guest guest]

Is it common for transplant recipients to get AIH with the new liver?

Re: [ ] Digest Number 1316

Cheryl.... After transplant I too was told I could use tylenol but I`m alittle worried now with AIH. I remember takng large amounts as I wasbusy cirrhosing my liver and my doctors told me it had helped the courseof cirrhosis along by using too much of it I used to use aspirin but gotscared off that after hemmorhaging. I still use tylenol from time totime but also Advil but neither one too ofen I just made up my mind toraise my pain thresholdand found I can take much more than I thought. However I Never useaspirinthrowing up torrents of blood got my attention. If you guys have timeand the inclinatin don`t forget to get in touch when you go to Clevelandthis week.Sometimes when I have a headache I just hit myslf in the big toe with ahammer and I forget the headache. Jerry

[Guest guest]

Tom......AIH is thought to be primarily gene related.... that is

inherited......AIH itself destroys ...cirrhosis.....liver cells.

I, personally, seem to have contracted it by tranfusions that I received

in `93,`94 and `95 after variceal bleeds and hemmorhaging...... at least

according to guess by CCF Heps. ....or it could have been borne on my

new liver..... AIH lies dormant till some unknown agent triggers a

flare-up. Check out some of the sites that others have listed here.....

try Hepatitis Central.com ..... I`ve found that to be very informative

on all kinds of liver disease.... I can`t speak for any one else but I

see no reason for you not to be welcome here.... these members all try

to help each other.

Transplant seems to be the only " cure " for

AIH and we`ve carried on discussion as to whether it will reappear

post-transplant..... which seems to appear to be at least possible if

not eventually probable.

jerry

[Guest guest]

Who is Harper????????????

Shireen

>From: gefox@...

>Reply- egroups

> egroups

>Subject: Re: [ ] Digest Number 1316

>Date: Mon, 11 Dec 2000 02:16:37 -0500 (EST)

>

>Harper... My wife died in 1989 of cirrhosis.... she was 39....she left 4

>daughters.... I now have 3 and 7/9 grandchildren which she never got to

>see.

>

>Jerry

>

________________________________________________________________________________\

_____

Get more from the Web. FREE MSN Explorer download : http://explorer.msn.com

[Guest guest]

Re: Stockport PCT Tripartite Model of Health Visiting: A reply to ann ebeid

As mentioned a couple of days ago, there is an article on this model

in Community Practitioner: July 2004, Vol 77 No 7, pages 251 to 256.

Barbara Swann Nurse Consultant in Public Health and I wrote this paper,

based on their ten year experience of developing and then providing three

different, but complementary types of services to local communities:

1. A first parent visitor programme to all teenage parents across

Stockport, non GP attached.

2. A generic primary care health visiting service based on GP attachment.

3. A health visitor led community development service, located and targeted

in Stockport's most deprived communities.

This allows people to concentrate on providing high quality services in both

child and family and wider public health, which would appear to reflect much

of what is suggested in the CNO review document on vulnerable children

published in August.

Barbara, the main author, has received over 100 requests for help and

information since this paper was published, which is fantastic but places

inevitable strain on her as, with everyone else, the day job doesn't stop.

So please could people first look at the paper if they're interested.

Barbara is thinking about holding an event to present the model and let

people see its different elements. Email me if you're interested.

Hope this helps

Neil

Neil Brocklehurst PhD, RN, RHV, DN Cert

IndependentConsultant

Public Health Practice and Nursing Development

e: neil@...

Research stakeholders wanted

>

>As part of a SDO funded research project: " A scoping exercise to

>conceptualise the actual and potential contribution of nurses, midwives

>and health visitors to child health and child health services, "

>stakeholder conferences are being held in Manchester on Thursday 28

>October & in London on Monday 1 November. We are looking for health

>visitors (consultant HV - practitioners HV) who would be prepared to

>share their views about the contribution of health visitors especially

>regarding disadvantaged families, minor ailments in childhood,teenage

>pregnancies, vulnerable neonates, children with complex needs, children

>in need of protection/looked after children and troubled school

>children. Attendance at the conferences is free. Please contact:

>beth.murgatroyd@... or alison.while@... to get an

>invitation on a first come-first served basis.

>

>best wishes

>

>

>

>

>

>

>