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HI Dolapo,

There are some natural products you could use to help with the

constipation if you dont want to resort to laxatives from the NHS.

Magnesium is a good one to try, i use Magnesium Citrate, Kirkmans

brand, available from the Nutricentre as a powder. This is a stool

softener and should help move things along. Start with a small

amount and build up gradually until you get loose stools, then drop

the dose back slightly to hopefully get firm, free-moving stools.

Another thing you could try is high doses of Vit C, this is also a

stool softener, use the same technique as above to get the rignt

dose for your child.

Hth, Nikki

>

> Hi all,

>

> My son, got his formal diagnosis of autism on Friday.I have

> been a member on this list for a couple of months now and have

> learned a lot.I need advice and guidance now!.

>

> Firstly can i ask listmates what the next step is? I have used

> culturelle and GSE to address gut bugs recently with some success

but

> the constipation is still there. I am planning to continue with

> enzymes and probiotics for now,and then add glyconutrients and

> transfer factor some time later. is this a reasonable first step?

I

> am very short on funds and cannot afford any tests for now?

>

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No, you do not need an rx for it, although the pharmacy asked for it in

their first reply to me, later on they seemed to change their mind and

said it was ok without ... (so if they say 'no' to you, it would

probably be worth pushing a bit)

Not sure how much, I think about 10 euros for the bottle and about the

same for the courier if I'm not mistaken. Actually think it came to

about 20euros in the end, so probably about 15 pounds (they did quote

few different prices in the past, but this was the final one)

sorry that I can't be more specific :(

Natasa

p.s. also, when emailing them, they are not very prompt in replying at

all... sometimes takes days or even weeks. the name of the person who

speaks english and deals with this is Yara, their phone number can be

found on treatingautism.com

> > >

> > > Hi all,

> > >

> > > My son, got his formal diagnosis of autism

> > on Friday.I have

> > > been a member on this list for a couple of months

> > now and have

> > > learned a lot.I need advice and guidance now!.

> > >

> > > Firstly can i ask listmates what the next step is?

> > I have used

> > > culturelle and GSE to address gut bugs recently

> > with some success but

> > > the constipation is still there. I am planning to

> > continue with

> > > enzymes and probiotics for now,and then add

> > glyconutrients and

> > > transfer factor some time later. is this a

> > reasonable first step? I

> > > am very short on funds and cannot afford any tests

> > for now?

> > >

> > > Also,i wonder if i can assess any therapy funded

> > by the government in

> > > addition to pre-school. is 3 and a half

> > years old and recently

> > > started half-day nursery with one-to-one

> > support.He is non-verbal and

> > > i wondered if i can request for additional hours

> > for ABA at home.

> > > Does anybody have experience with this?

> > >

> > > Also i have been reseraching on the internet and

> > have come across

> > > special CDs aimed at teaching kids on the

> > spectrum.I wonder if there

> > > are any listmaes who want to sell their old CDs

> > for a token?I am

> > > interested in these, as i want to see if my son

> > will respond well to

> > > them before investing heavily in them.

> > >

> > > By the way,i live in the UK,Weston-Super-Mare. All

> > advice,suggestions

> > > are welcome.

> > >

> > > Many thanks

> > >

> > > Dolapo

> > >

> >

> >

> >

> >

>

>

>

>

> ___________________________________________________________

> All New � Tired of Vi@gr@! come-ons? Let our

SpamGuard protect you. http://uk.docs./nowyoucan.html

>

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Hi, I have just sent you a very long email outlining the importance

of testing. I would urge you not to depend on what you " think " might

be up with your son biomedically, but to actually get the tests

done. We did that at the start, we just sort of " threw " things at

our boy, hoping they would stick.

We wasted a lot of time and money. Get yourself a good practitioner.

Muscroft is very good and many listers here will confirm that.

She is very genuine and reasonably priced and has been a godsend for

us. Her rota of patients grows daily and if you want to use her as a

practitioner you might want to get on her list now.

Have you read books on biomed? Children with Starving Brains? the

new book by Lathe?? There is so much to know.

> > > >

> > > > Hi all,

> > > >

> > > > My son, got his formal diagnosis of autism

> > on Friday.I have

> > > > been a member on this list for a couple of

> > months now and have

> > > > learned a lot.I need advice and guidance now!.

> > > >

> > > > Firstly can i ask listmates what the next step

> > is? I have used

> > > > culturelle and GSE to address gut bugs recently

> > with some success

> > but

> > > > the constipation is still there. I am planning

> > to continue with

> > > > enzymes and probiotics for now,and then add

> > glyconutrients and

> > > > transfer factor some time later. is this a

> > reasonable first step?

> > I

> > > > am very short on funds and cannot afford any

> > tests for now?

> > > >

> > > > Also,i wonder if i can assess any therapy funded

> > by the

> > government in

> > > > addition to pre-school. is 3 and a half

> > years old and

> > recently

> > > > started half-day nursery with one-to-one

> > support.He is non-verbal

> > and

> > > > i wondered if i can request for additional hours

> > for ABA at home.

> > > > Does anybody have experience with this?

> > > >

> > > > Also i have been reseraching on the internet and

> > have come across

> > > > special CDs aimed at teaching kids on the

> > spectrum.I wonder if

> > there

> > > > are any listmaes who want to sell their old CDs

> > for a token?I am

> > > > interested in these, as i want to see if my son

> > will respond well

> > to

> > > > them before investing heavily in them.

> > > >

> > > > By the way,i live in the UK,Weston-Super-Mare.

> > All

> > advice,suggestions

> > > > are welcome.

> > > >

> > > > Many thanks

> > > >

> > > > Dolapo

> > > >

> > >

> >

> >

> >

> >

>

>

>

>

> ___________________________________________________________

> Now you can scan emails quickly with a reading pane. Get the new

. http://uk.docs./nowyoucan.html

>

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Thanks

--- natasa778 <neno@...> wrote:

> No, you do not need an rx for it, although the

> pharmacy asked for it in

> their first reply to me, later on they seemed to

> change their mind and

> said it was ok without ... (so if they say 'no' to

> you, it would

> probably be worth pushing a bit)

>

> Not sure how much, I think about 10 euros for the

> bottle and about the

> same for the courier if I'm not mistaken. Actually

> think it came to

> about 20euros in the end, so probably about 15

> pounds (they did quote

> few different prices in the past, but this was the

> final one)

>

> sorry that I can't be more specific :(

>

> Natasa

>

> p.s. also, when emailing them, they are not very

> prompt in replying at

> all... sometimes takes days or even weeks. the name

> of the person who

> speaks english and deals with this is Yara, their

> phone number can be

> found on treatingautism.com

>

>

>

>

> > > >

> > > > Hi all,

> > > >

> > > > My son, got his formal diagnosis of

> autism

> > > on Friday.I have

> > > > been a member on this list for a couple of

> months

> > > now and have

> > > > learned a lot.I need advice and guidance now!.

> > > >

> > > > Firstly can i ask listmates what the next step

> is?

> > > I have used

> > > > culturelle and GSE to address gut bugs

> recently

> > > with some success but

> > > > the constipation is still there. I am planning

> to

> > > continue with

> > > > enzymes and probiotics for now,and then add

> > > glyconutrients and

> > > > transfer factor some time later. is this a

> > > reasonable first step? I

> > > > am very short on funds and cannot afford any

> tests

> > > for now?

> > > >

> > > > Also,i wonder if i can assess any therapy

> funded

> > > by the government in

> > > > addition to pre-school. is 3 and a half

> > > years old and recently

> > > > started half-day nursery with one-to-one

> > > support.He is non-verbal and

> > > > i wondered if i can request for additional

> hours

> > > for ABA at home.

> > > > Does anybody have experience with this?

> > > >

> > > > Also i have been reseraching on the internet

> and

> > > have come across

> > > > special CDs aimed at teaching kids on the

> > > spectrum.I wonder if there

> > > > are any listmaes who want to sell their old

> CDs

> > > for a token?I am

> > > > interested in these, as i want to see if my

> son

> > > will respond well to

> > > > them before investing heavily in them.

> > > >

> > > > By the way,i live in the UK,Weston-Super-Mare.

> All

> > > advice,suggestions

> > > > are welcome.

> > > >

> > > > Many thanks

> > > >

> > > > Dolapo

> > > >

> > >

> > >

> > >

> > >

> >

> >

> >

> >

> >

>

___________________________________________________________

> > All New � Tired of Vi@gr@! come-ons?

> Let our

> SpamGuard protect you.

> http://uk.docs./nowyoucan.html

> >

>

>

>

>

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> > >

> > > Hi all,

> > >

> > > My son, got his formal diagnosis of autism on Friday.I

have

> > > been a member on this list for a couple of months now and have

> > > learned a lot.I need advice and guidance now!.

> > >

> > > Firstly can i ask listmates what the next step is? I have used

> > > culturelle and GSE to address gut bugs recently with some

success

> but

> > > the constipation is still there. I am planning to continue with

> > > enzymes and probiotics for now,and then add glyconutrients and

> > > transfer factor some time later. is this a reasonable first

step?

> I

> > > am very short on funds and cannot afford any tests for now?

> > >

> > > Also,i wonder if i can assess any therapy funded by the

> government in

> > > addition to pre-school. is 3 and a half years old and

> recently

> > > started half-day nursery with one-to-one support.He is non-

verbal

> and

> > > i wondered if i can request for additional hours for ABA at

home.

> > > Does anybody have experience with this?

> > >

> > > Also i have been reseraching on the internet and have come

across

> > > special CDs aimed at teaching kids on the spectrum.I wonder if

> there

> > > are any listmaes who want to sell their old CDs for a token?I am

> > > interested in these, as i want to see if my son will respond

well

> to

> > > them before investing heavily in them.

> > >

> > > By the way,i live in the UK,Weston-Super-Mare. All

> advice,suggestions

> > > are welcome.

> > >

> > > Many thanks

> > >

> > > Dolapo

> > >

> >

>

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  • 5 months later...
Guest guest

Cheryl It took me 9yrs before I was lead in the right direction. Talk to your ped and see if there is a hospital or center which specializes in autism and learn disorders. I live in Baltimore and we are lucky to have two which are known for test and mental health. Kennedy Krieger Instruction and Mount Washington Ped Hospital. My son was tested by a neuropyhcologist. The testing took two day and each day he was there for majority of the day. He has Aspergers(autism) Pervasive learning Disability(nonverbal) and Anxiety Disorder and ADHD. Look in to this type of testing. It is allot at one time but you get your answers quicker. Good LuckCHERYL <tmy3angels@...> wrote: well we went to my daughters ped doc, and the neuro wanted to put her on ridilin.(sp) but after talking with her ped doc today, she is diagnosing her with pdd, and want her to be retested by chkd. im not sure if this is how things go. get diagnosed with non-verbal and sensory integration and then pdd then autism or what. im so confused. Im not even sure this diagnosis will actually help us get the help she needs! always confused...lol...cheryl

Ahhh...imagining that irresistible "new car" smell? Check out

new cars at Autos.

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  • 11 months later...
Guest guest

Hi Sue,

I am sorry to hear about your possible medical conditions. Waiting can

sometimes be worse than hearing the diagnosis, but know that my family is

sending lots of warm fuzzies your way and to not give up. I know it's what we

want to do sometimes, and sometimes it what we need to do to regain the

perspective that has gotten us through things this far. So take a " break " and

breathe. Wait for the results and I will pray that they will come back

negative. All of this stress during the waiting period is not good for your

heart if you did, in fact, have a heart attack. Again....just breathe. :)

Life is hard and being a parent has it's challenges, too. I hope that the

doctors can find what is causing Karrie to lose her strength in her legs.

Having Kate go off to college is fantastic! It's hard on mom, but in the end it

is a worth while experience (I know you already knew that). :)

I am sorry you are going through so much all at once. If the saying " it comes

in three's " is true, then you should not expect much more: 1. Your medical

issues, 2. Karrie's increased PT and 3. Kate going off to college. I hope that

you do not have anymore thrown onto your plate before you can finish what you

have in front of you. We are all here for you. Chase is sending you big hugs

and sloppy kisses to help you have a nice moment to help you have a moment to

breathe (he's good that way (: ).

Take care and remember to just BREATHE. :)

{{{{{{{{{{HUGS}}}}}}}}}}

Most sincerely,

Mom to n (5 yrs old) and Chase (16 mos), Ds and IS, SF 6.28.07

New diagnosis

Hi everybody,

I finally got a complete physical after not having insurance for so

long. I was really expecting to hear that my thyroid or hormonal levels

were off. The doctor asked tons of questions, and then pressed on

several " trigger points " on my back, shoulders and hips.

Long story short, she is running 13 blood tests to rule out

fibromyalgia. I am praying that this diagnosis is wrong. I've been

super depressed since she even brought it up.

I have to have an echo/stress done on Monday, since she also thinks I

might have had a small heart attack last week.

I'm feeling like I'm falling apart at the seams. I feel like my body is

betraying me. I am devasted at the thought of Kate leaving for college

in a couple more months. Karrie is in PT 5 days a week, trying to keep

her out of a wheelchair. She's losing strength in her legs for some

unknown reason.

So, could you please add us to your prayers, thoughts, or whatever? I

feel like finally giving up.

Sue mom to Kate 18 and Karrie 11 w/ds and mild autism

________________________________________________________________________________\

____

You rock. That's why Blockbuster's offering you one month of Blockbuster Total

Access, No Cost.

http://tc.deals./tc/blockbuster/text5.com

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  • 5 months later...

Hi ,

My daughter is 12 and our immunologist told us in July that he thinks

she has . She has been having symptoms for about a year and a

half. Our infectious disease doc didn't agree at first because of her

age, evidently most kids start much earlier. I had never heard of

before and never kept very good records (we have another child

recovering from a bone marrow transplant, so we were a little

distracted over the past year). It seems that she was cycling about

every 3 weeks, she would be well for a two week period and then sick

for nearly a week. She had tonsils out in June (due to frequent

fevers and sore throats), our immuno started her on Tagamet in July

and she has only cycled twice in three months. Our gastro switched

her from Tagamet to Nexium three weeks ago to see if she would notice

a difference, he was trying to determine if she could be having signs

of Crohns, and her symptoms returned and she fevered again last week.

We gave her two doses of prednisone in the first 12 hours and she was

completely fine after that. The fact that she is responding to

treatment has made our ID change his mind and he now believes that she

does indeed have or some type of periodic fever syndrome. He

isn't sure what to expect since she is older than most of his

patients. Hope it helps to know that you're not alone.

Take care,

(in Indiana)

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Hi ,

My daughter is 12 and our immunologist told us in July that he thinks

she has . She has been having symptoms for about a year and a

half. Our infectious disease doc didn't agree at first because of her

age, evidently most kids start much earlier. I had never heard of

before and never kept very good records (we have another child

recovering from a bone marrow transplant, so we were a little

distracted over the past year). It seems that she was cycling about

every 3 weeks, she would be well for a two week period and then sick

for nearly a week. She had tonsils out in June (due to frequent

fevers and sore throats), our immuno started her on Tagamet in July

and she has only cycled twice in three months. Our gastro switched

her from Tagamet to Nexium three weeks ago to see if she would notice

a difference, he was trying to determine if she could be having signs

of Crohns, and her symptoms returned and she fevered again last week.

We gave her two doses of prednisone in the first 12 hours and she was

completely fine after that. The fact that she is responding to

treatment has made our ID change his mind and he now believes that she

does indeed have or some type of periodic fever syndrome. He

isn't sure what to expect since she is older than most of his

patients. Hope it helps to know that you're not alone.

Take care,

(in Indiana)

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Hi ,

My son is 13 too.  He was diagnosed about three years ago.  He does not have the

typical story...like your son.  So there are some of us out there that don't fit

the normal mold of . 

Cheri, in CA

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Hi ,

My son is 13 too.  He was diagnosed about three years ago.  He does not have the

typical story...like your son.  So there are some of us out there that don't fit

the normal mold of . 

Cheri, in CA

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  • 3 years later...

I am 23 years old and was diagnosed with chondromalacia of the patella on right

knee. I have bad family history regarding knees, lots of double knee

replacements and knee pain and according to the ortho doctor my knee is way

older than 23 years old. I have had pain since high school but was always told

it was either growing pains and that it should go away.

I workout at least 3-4 times a week, but the pain is starting to bother me more

and more. I also work 12 hour shifts, so that also does not help. I was given

the options of scope, physical therapy, or waiting and taking anti-inflammatory

medications.

I had a meeting with the physical therapist and he did not think therapy would

help in my case. I decided to wait it out and try taking over the counter Aleve,

but have not seen any improvement and now have started to get pain in my left

knee too.

Looking for more options and trying to figure out when it's time to go for

surgery.

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