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Re: cmp in grade II and III

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I have grade IV CMP on the back of my patella, due to maltracking. My right

knee was treated with a Fulkerson osteotomy, which is a procedure where they

move the point of attachment for the patellar tendon on the tibia, and

Carticel Autologous Cartilage Implantation, which is a procedure where they

take a piece of healthy cartilage and grow more in a lab, then put it back

in the area where it's worn down to bone.

My surgery was very successful. Now my left knee is causing problems, and

I'm trying to decide whether to come up with the $70k for the surgery on my

own, or try and fight the insurance company (took 8 months to get approval

for the R knee and some 4 appeals) since there's been no procedures done on

my L knee yet, so insurance is not likely to approve it, no matter how hard

I fight.

I don't know what all the options are for grades II and III, I believe they

can try Synvisc or one of the other cushioning lubricant injections.

Good luck!

T.

*___________________

Fisher

@...*

On Mon, Aug 16, 2010 at 3:14 PM, caroltoth73 <caroltoth73@...> wrote:

>

>

> I can hardly believe I found this web site and I hope some you can give me

> some info. I have cmp in grade II-III there is nothing wrong with the

> ligaments or muscles or cartilage anywhere except from the back of the

> patella. I have seen 2 surgeons and they don't want to do surgery and would

> not really tell me anything. Is this rare? I have pain not only in the knee

> itself but radiating up and down from the knee. I can find alot of info on

> just cmp but almost zip when it's in the later stages. This is changing my

> life and my job and even my own self concept and I can not find anyone that

> has this paticular problem. I relly need some info. What is the future of

> this? Has anyone went to grade 4? Then do they do surgery? What surgery? Can

> anyone shed some light on this?

>

>

>

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When I was first diagnosed it was stage 4 in both knees although I was not told

it was cmp until almost year later and I requested my medical records. My knee

caps had dislocated. I had no warning no symptoms. I had surgery to remove the

cartilage that had pulled away from the bone. I didn't get any better after a

year. I got a new surgeon and after a new MRI I was back at stage 4 cmp again in

both knees. I have had multiple surgeries. I just recently had a patellofemoral

replacement. This is the most relief that I have had in the last almost 8 years.

I am supposed to have my other knee done in December.

If you can avoid surgery as long as possible. Try physical therapy first. It

will take a while to see results but I know they usually don't do surgery with

stage 2/3. They will do it with stage 3/4. I have lost the last 7 years of life

behind my knees. If you want any more information you can let me know.

Tara

On Aug 16, 2010, at 4:14 PM, caroltoth73 wrote:

> I can hardly believe I found this web site and I hope some you can give me

some info. I have cmp in grade II-III there is nothing wrong with the ligaments

or muscles or cartilage anywhere except from the back of the patella. I have

seen 2 surgeons and they don't want to do surgery and would not really tell me

anything. Is this rare? I have pain not only in the knee itself but radiating up

and down from the knee. I can find alot of info on just cmp but almost zip when

it's in the later stages. This is changing my life and my job and even my own

self concept and I can not find anyone that has this paticular problem. I relly

need some info. What is the future of this? Has anyone went to grade 4? Then do

they do surgery? What surgery? Can anyone shed some light on this?

>

>

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Tara,

How much can you do, or are you expected to do, with the PFR? I am

afraid I'm going to end up there eventually, but am concerned about

being able to get back to martial arts and belly dance.

Thanks,

T.

On 8/16/2010 4:52 PM, Tara Gandy-Sanford wrote:

> When I was first diagnosed it was stage 4 in both knees although I was not

told it was cmp until almost year later and I requested my medical records. My

knee caps had dislocated. I had no warning no symptoms. I had surgery to remove

the cartilage that had pulled away from the bone. I didn't get any better after

a year. I got a new surgeon and after a new MRI I was back at stage 4 cmp again

in both knees. I have had multiple surgeries. I just recently had a

patellofemoral replacement. This is the most relief that I have had in the last

almost 8 years. I am supposed to have my other knee done in December.

>

> If you can avoid surgery as long as possible. Try physical therapy first. It

will take a while to see results but I know they usually don't do surgery with

stage 2/3. They will do it with stage 3/4. I have lost the last 7 years of life

behind my knees. If you want any more information you can let me know.

>

> Tara

> On Aug 16, 2010, at 4:14 PM, caroltoth73 wrote:

>

>> I can hardly believe I found this web site and I hope some you can give me

some info. I have cmp in grade II-III there is nothing wrong with the ligaments

or muscles or cartilage anywhere except from the back of the patella. I have

seen 2 surgeons and they don't want to do surgery and would not really tell me

anything. Is this rare? I have pain not only in the knee itself but radiating up

and down from the knee. I can find alot of info on just cmp but almost zip when

it's in the later stages. This is changing my life and my job and even my own

self concept and I can not find anyone that has this paticular problem. I relly

need some info. What is the future of this? Has anyone went to grade 4? Then do

they do surgery? What surgery? Can anyone shed some light on this?

>>

>>

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Tara What surgery did you have ? Are you able to work? Are you able to exercise?

Carol

> >

> >> I can hardly believe I found this web site and I hope some you can give me

some info. I have cmp in grade II-III there is nothing wrong with the ligaments

or muscles or cartilage anywhere except from the back of the patella. I have

seen 2 surgeons and they don't want to do surgery and would not really tell me

anything. Is this rare? I have pain not only in the knee itself but radiating up

and down from the knee. I can find alot of info on just cmp but almost zip when

it's in the later stages. This is changing my life and my job and even my own

self concept and I can not find anyone that has this paticular problem. I relly

need some info. What is the future of this? Has anyone went to grade 4? Then do

they do surgery? What surgery? Can anyone shed some light on this?

> >>

> >>

>

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T. the doctor told me I can do what ever I want except run, kneel, and what ever

my right knee will allow me to do. My right knee still needs to be done in

December. I am not sure about martial arts but I am sure you would be able to do

the belly dancing. Just like the total knee they say no high impact sports so I

am not sure if martial arts would be considered high impact. The doctor and I

are in disagreement about the running part because there are some doctors who

believe you can still run with the PFR. So we will see who will win this

argument between the doctor and myself after I have my other knee done and I see

how I really feel. He said I should be able to ski and things like that. I am

not able to do a lot yet because of my right knee still being bad but I am able

to do much more than I could with all the other surgeries.

Tara

On Aug 16, 2010, at 6:48 PM, The AntiChick wrote:

> Tara,

>

> How much can you do, or are you expected to do, with the PFR? I am

> afraid I'm going to end up there eventually, but am concerned about

> being able to get back to martial arts and belly dance.

>

> Thanks,

> T.

>

> On 8/16/2010 4:52 PM, Tara Gandy-Sanford wrote:

> > When I was first diagnosed it was stage 4 in both knees although I was not

told it was cmp until almost year later and I requested my medical records. My

knee caps had dislocated. I had no warning no symptoms. I had surgery to remove

the cartilage that had pulled away from the bone. I didn't get any better after

a year. I got a new surgeon and after a new MRI I was back at stage 4 cmp again

in both knees. I have had multiple surgeries. I just recently had a

patellofemoral replacement. This is the most relief that I have had in the last

almost 8 years. I am supposed to have my other knee done in December.

> >

> > If you can avoid surgery as long as possible. Try physical therapy first. It

will take a while to see results but I know they usually don't do surgery with

stage 2/3. They will do it with stage 3/4. I have lost the last 7 years of life

behind my knees. If you want any more information you can let me know.

> >

> > Tara

> > On Aug 16, 2010, at 4:14 PM, caroltoth73 wrote:

> >

> >> I can hardly believe I found this web site and I hope some you can give me

some info. I have cmp in grade II-III there is nothing wrong with the ligaments

or muscles or cartilage anywhere except from the back of the patella. I have

seen 2 surgeons and they don't want to do surgery and would not really tell me

anything. Is this rare? I have pain not only in the knee itself but radiating up

and down from the knee. I can find alot of info on just cmp but almost zip when

it's in the later stages. This is changing my life and my job and even my own

self concept and I can not find anyone that has this paticular problem. I relly

need some info. What is the future of this? Has anyone went to grade 4? Then do

they do surgery? What surgery? Can anyone shed some light on this?

> >>

> >>

>

>

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Carol

I had a patellofemoral replacement (PFR) in May. I am not back to work because I

have been out of work since 2003. However, after the right knee is done in

December I am hopeful to be back in the work place by next summer. I am starting

to exercise but I am still limited by my right knee. I just started bike riding

again. I am unable to inclines yet because it hurts my right knee to bad and my

left knee I am still working on strengthening it. I am doing much more than I

have been able to in the last almost 8 years. I know I will never be like I was

before all this but I am hopeful that I will be close to it after I have the PFR

on my right knee. The doctor is hopeful as well that since I did so well with

this surgery that I will be able to get back to a somewhat normal life.

Tara

On Aug 16, 2010, at 6:59 PM, caroltoth73 wrote:

>

>

> Tara What surgery did you have ? Are you able to work? Are you able to

exercise? Carol

>

>

> > >

> > >> I can hardly believe I found this web site and I hope some you can give

me some info. I have cmp in grade II-III there is nothing wrong with the

ligaments or muscles or cartilage anywhere except from the back of the patella.

I have seen 2 surgeons and they don't want to do surgery and would not really

tell me anything. Is this rare? I have pain not only in the knee itself but

radiating up and down from the knee. I can find alot of info on just cmp but

almost zip when it's in the later stages. This is changing my life and my job

and even my own self concept and I can not find anyone that has this paticular

problem. I relly need some info. What is the future of this? Has anyone went to

grade 4? Then do they do surgery? What surgery? Can anyone shed some light on

this?

> > >>

> > >>

> >

>

>

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