Guest guest Posted November 5, 2004 Report Share Posted November 5, 2004 Esther, I know exactly what you are going through! Mostly because I am there too. My name is Liz. I am 20 and a junior at the University Of Kentucky studying Equine Genetics and English. I've had CMT since I was 3 and I've had four operations for it. All throughout high school, I always believed that I didn't get dates because I wasn't good enough. I've finally realized that it's just that they weren't good enough and if they were scared off by my braces or my limp... they weren't worth. It's hard. I know it is. But in an odd way, my CMT has become a blessing... it weeds out all of the superficial people and leaves only the people who like me for me. I am amazed... I have been dating a boy for almos nine months now and I knew that he was keeper because, when I told him about my CMT, just very basically... that very night he went home and researched it and learned about it. All on his own. I don't know that I've really given you any advice... and I know it's frustrating... but I guess the best thing I can say is to be patient and the right one will come along. Liz Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 5, 2004 Report Share Posted November 5, 2004 That was lovely, . ------ Rick Alber Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 6, 2004 Report Share Posted November 6, 2004 Hi Esther, I know exactly what you mean about the down sides of CMT. I was just diagnosed 6 months ago, and Gretchen does an unbelievable job of new information. The only thing I don't like is reading all the negatives. Sometimes mind over matter means alot more than " You're in for this, so deal with it " ... I'm not saying this in a bad way whatsoever, but if someone tells you every day, " You're stupid, deal with it " (that's just an example), after awhile you start to think that. I like to hear good things, maybe a nice poem, a happy thought, a joke...anything that get's me off the realization that what is going to come with CMT. I truly believe about MIND OVER MATTER and have purposely been avoiding some of the info just so I keep my spirits up. Otherwise, it seems like your doomed. I'll be darned if this will get the better of me. Gretchen has wonderful information, but I notice alot of people don't come back because they get the info they need, and don't want to keep reading how bad it's going to get. But she does unbelievable about new things coming up everyday, which does pertain to all of us...She's a very good source of EVERYTHING YOU WANTED TO KNOW ABOUT CMT, BUT WERE AFRAID TO ASK!!! (I hope one person out there got the joke!!)..... Love to all, and to you Gretchen Thank you for everything... Quote Link to comment Share on other sites More sharing options...
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