Guest guest Posted January 1, 2005 Report Share Posted January 1, 2005 Welcome Jan. If you are on Medicare, do you have an insurance supplement like BC/BS? I don't understand why your access to doctors is so limited that you would take a prescription from A PA who misdiagnosed you to your face. I also don't understand why you didn't bring information back to this person and require that they read up on it before accepting their treatment. I'm 35 and have had my diagnosis since I was four. I've seen my share of idiot doctors. I don't allow them to treat me unless I am assured that they are aware of CMT. If you are on Disability, they have to have seen medical records to make that determination. Do you bring these medical records with you? I'm very sorry that you have been failed by poor medical care. But at this stage of the game you need to become demanding and to not allow anyone to walk all over you. There is a lot of ignorance out there and you can't allow yourself to be a victim of it. If you can get to Philly, the University of Pennsylvania can be helpful. Lorna Quote Link to comment Share on other sites More sharing options...
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